Ladies -- Remicade & Funky Periods

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starrnr
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Date Joined Dec 2005
Total Posts : 1782
   Posted 2/23/2007 12:37 PM (GMT -7)   
Just curious, any of you ladies on Remicade and having periods, find that your periods are getting funky? More bleeding, less bleeding, pain, etc? I had my period last week (a humdinger) and was finished by the weekend. I had my infusion on Tuesday and I've been spotting since Wednesday night. Nothing serious, just irritating. I had period issues when I was on Enbrel and when I called, menstrual issues were not a side effect - I have to "assume" that Remicade is the same (although I just hate to assume anything nowadays).

By the way, I also think my period was the reason I went into one heck of a flare the 2 weeks prior. They've been just awful the past few months.

Your thoughts?
"My "Trifecta" - CD, AS & RA...

Co-Moderator Crohn's Forum

Remicade every 6 weeks, Methotrexate weekly, Folic Acid daily


Ducky
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Date Joined Mar 2005
Total Posts : 3199
   Posted 2/23/2007 12:52 PM (GMT -7)   
I agree with you.. I'm not on Remicade, but I am on Enbrel.. and holy lord.. since I started Enbrel.. MAN-O-MAN has my periods been wicked... not regular... Now that I think of it... my last flare started the day before I "started"... hhmm...

Now you have me thinking... I'm gonna have to look at my calendar...
Moderator of Arthritis/Epilepsy Forums
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


starrnr
Veteran Member


Date Joined Dec 2005
Total Posts : 1782
   Posted 2/23/2007 1:04 PM (GMT -7)   
Hey there. The reason I think my period caused my flare, was as soon as I started, the flare started to ease up. Was fine once my period was over. I never noticed that before.

I remember when I called Enliven a few months after I started the Enbrel (a couple of years ago) and noticed that my periods were horrid. The nurse said that it wasn't on the list of side effects, they hadn't had any "complaints" but that they would start an "anecdotal" file for this... I wonder if they did and how many women have called since.

If it's not one thing, it's another...goodness gracious, can I take a time out from all of this??? LOL
"My "Trifecta" - CD, AS & RA...

Co-Moderator Crohn's Forum

Remicade every 6 weeks, Methotrexate weekly, Folic Acid daily


yalinda
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Date Joined May 2006
Total Posts : 1179
   Posted 2/23/2007 5:37 PM (GMT -7)   
my rhuemmy and gyn both told me that my med didnt effect my cycles but i disagree. i am on mtx and i havent had a period since september! i am one happy mama! i am hoping for early menapause induced by mtx, my therory! sry ladies i feel for u all! but i cant stop dancing in the streeets over this one! lol any other mtx induce menopauses out there? sry for the hyjack of the post but i figure i will kill 2 birds with one posting lol

starrnr
Veteran Member


Date Joined Dec 2005
Total Posts : 1782
   Posted 2/23/2007 8:33 PM (GMT -7)   
LoL Yalinda...good for you. Wish I could say the same and I'm on MTX as well. Phooey!
"My "Trifecta" - CD, AS & RA...

Co-Moderator Crohn's Forum

Remicade every 6 weeks, Methotrexate weekly, Folic Acid daily


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 2/24/2007 12:20 PM (GMT -7)   
hi Star!
 
ooh, this one is right up my alley!  my last period??? holey toledo, THE BLEEDING!!!! confused confused confused
it was almost to a point where i thought i might have needed help or something the bleeding was so bad.  and clots!  it would just gush out & soak through maximum security protection (you catch my drift).
the worst i have had, not necessarily painful...but the bleeding was very scarey.  in all honesty i thought i may have been having a hemorrhage.
 
i'm not sure if it's the Remicade because i have been on that since Oct. & this never happened...but this is the 1st one since starting the 6MP (i think that has something to do with it).
 
i don't get freaked out by much...but this did it.
Arthritis Forum Moderator
Active Severe Rheumatory Arthritis. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Previous Lymes Disease for 10 years.
Meds: Remicade infusions 300mg Q3weeks; Intra-articular knee injections when needed; Mercaptopurine 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 20mgQD mantainance; Entocort 9mgQD; Meclizine; Augmentin; Tigan 300mg; Reglan; LidoDerm Patches; Diazepam 5mg for AS back spasms; Restaril; Dilaudid 4mg tabs for pain. 


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 3/6/2007 3:27 AM (GMT -7)   
:-)  hey Star,
 
okay...i think i may have a good answer to this little phenomena we have here, LOL.
 
i told my GI guy about the bleeding ordeals (geesh, bad enough talkin' buttholes all the time to em' never mind this! lol).  alright, he's a smart cookie...a real academia.
 
his thoughts:
Remicade & placebo were equal in response to menstrual bleeding.
However...the difference is, that these TNF meds and Remicade and all INCREASE the vasculature to the GI/GU systems when healing & reducing inflammation...thus, heavier flows when you get your period.
 
heck...i buy it!  sounds right on to me!
 
as long as your platelets & coagulation were alright...it's just gonna be another pain in the arse thing we must go through.
 
cheers!
erin
Arthritis Forum Moderator
Active Severe Rheumatory Arthritis. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Previous Lymes Disease for 10 years.
Meds: Remicade infusions 300mg Q3weeks; Intra-articular knee injections when needed; Mercaptopurine 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 10mgQD mantainance; Entocort 9mgQD; Meclizine; Augmentin; Tigan 300mg; Reglan; LidoDerm Patches; Diazepam 5mg for AS back spasms; Rozerem 8mg; Dilaudid 4mg tabs for pain. 

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