Hello Sydney Jo!
Okay. If I remember all my initials correctly, you have Crohn's and Arthritis. Me, too. But I've added Fibromyalgia (FM) to my collection. Talk about total confusion for me and my doctors! I have every one of your symptoms except the nausea. Although I do have days where my stomach isn't quite right. As to which one of my 3 disorders/diseases is to blame for it, no one knows for sure. Lethargy: I have times where I absolutely have to lay back in my recliner to nap because I feel like I've been drugged and can't stay awake another minute. Heavy Limbs: One day I'm okay and the next I feel like I have 20# weights attached to each of my legs and arms. Simply walking seems harder to do! Foggy Brain: One day I can remember the name I used to tease my sister with when she was 3 and other times I can't remember how to spell THE. I refer to these times as "My brain's on Vacation!" It's very frustrating, isn't it? Joint Pain: I might be able to describe it better if it stayed in only one joint but from day to day it changes places. It can even change throughout a single day! And the Spine Pain has got to be the worst. Mine actually feels like it's burning. Everything I do involves my back in some way so moving any which way can be painful. I have found some relief for that though. I use a large ice pack on my back for about 20 minutes, followed by a long heating pad for about 20-30 minutes. I was amazed that it really helps! Even the next day I sometimes ache less. Gee, large ice pack, long heating pad. I sound like a real picture of health, don't I? LOL
We suspect the Fibromyalgia is to blame for the lethargy, heavy limbs and foggy brain. We suspect the Arthritis is to blame for the joint pain and spine pain. I also have it in my hands real bad but I find typing helps, along with compression gloves while I sleep. And what can we blame Crohn's for, you might ask. Well, it could be the reason I have Arthritis. It can also be blamed for some of the lethargy, especially if I'm even mildly flaring up. Right now my Crohn's is in remission but even then, it's still in me and never completely silent.
So is it possible you have Fibromyalgia? Could be. Or it could be just from the combination of Crohn's and Arthritis. I'm sorry I can't be more help to you but I was diagnosed with Arthritis shortly after I was diagnosed with FM. I've kind of given up on figuring out what to blame for what symptom. The doctors can't do it so how am I suppose to. I'm sure you are just as confused as I am. You're probably wishing it would all just go away! Me, too.
If I can help in any way, please let me know. If you post on this thread that you started, I'll know it and get back to you. You have one thing I don't. A job to go to each morning and that makes all of your symptoms very hard to cope with. I had to stop working because doctors were so limited on what they could do to help me that I couldn't function at a job. I hope someone answers your post that can give you more detailed help. I just wanted you to know that you're not alone. It's not all in your head, like some doctors (and people) try to make you believe. You just keep looking for some answers because doctors don't always have them.
Thank you so much for your reply. My GI mentioned Fibromyalgia as she was writing my doctors certificate out for my week off work, she also mentioned having irritable bowel on top of my CD so I was not really having any faith in her that day. She is a nice lady but she doesnt really understand having flare ups as she keeps telling me "but you are still on the same dosage of your meds, why would you be in a flare" good question lady, and "why are all flares different", if I knew that I would nt be asking you! I only visit her when I need referrals to specialists, medication scripts and time of work. We sound like kindred spirits health wise, Im glad you came along and posted, I felt like I was reading my own life story. How do you deal with all these symptoms, especailly when they all happen together? Do you up your meds? Im worried how long it will take for me to snap out of this one, I have upped my meds to 20mg pred and 25mg MTX and am waiting for the pred to kick in (its been 2 days) which it hasnt yet because Ive not long woken up after falling asleep on the sofa!
I have the same love/ hate relationship with pred as well. For a year, after a flare that put me in hospital, I managed on 5mg - those were the days, I currently take 10mg, which by the looks of it isnt going to be enough. After having upped the pred to 20mg with no success, have now upped to 40mg today with minor success - the D has stopped, but the brain is still foggy and I feel like an invisible elephant is sitting on me. Hopefully tomorrow this too will subside. Usually on 20mg I have cleaned the whole house and started on the garden - not this time.
You are right about the GI problem, but in my area she is the best I could find, if I really am confused by her I will call my Gastro for confirmation of diagnosis/medication and she puts me on the right path - generally.
Thank you for all you wise advice, it does feel good to talk to people who know firsthand what you are going through.