Is it better or not?

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babybloo
Regular Member


Date Joined Aug 2005
Total Posts : 289
   Posted 3/7/2007 10:48 PM (GMT -7)   
Hi, this is sort of an update but I also might throw a question or two in.  I took my third shot of enbrel Monday and am still on 25mg of Methotrexate.  Finished medrol dose pack on Sunday.  I had a really good weekend.  Was thinking I must be improving as the morning stiffness barely lasted 30 minutes and I was able to go for a walk and start light exercise.  I was actually excited about this.  Monday and Tuesday were good.  Into Wednesday and not as bad as I have been but I am starting to feel like it is coming back.  Stiffness and pain lasting longer.  Pain most of the day.  But I am walking with a barely noticeable limp.  Was it just the pred again that made me feel so good.  Are my other meds still not working?  When will I know.  I don't really want to take things that could be harmful if they aren't helping.  Another issue is I want to quit my job which would mean losing my current insurance... how long can one stay on pred?  This is the only thing so far that seems to have helped anyway.  I can't afford to keep paying for drugs that aren't helping... blah blah... sorry I just want this to be gone.  Been there done that....
 
Theresa
dx: Rheumatoid Arthritis.  Duration: 10yrs. Dx'ed 2006.  Asthma, hypertension, hypothyroid
 
Meds: Methotrexate 25mg wkly, Medrol Dose pack PRN, Enbrel 50mg wkly, Folic Acid, Fish Oils, Ultram 50mg TID,  Advair 250/50, Diovan HCT 160mg/25mg QD, Synthroid .1mg QD, Women's One a Day, tylenol PRN.
 
 


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 3/8/2007 5:07 PM (GMT -7)   
Hey Theresa, do you think you might be over-doing it without even realizing it? Since you feel better, you want to do more? Sometimes we feel like we can do anything, but it takes a while for our bodies to get back into the swing of things.. I don' t know how long you can stay on pred.. I wouldn't recommend staying on it too long though.. it can have some serious long term affects. Hang in there, it is getting better, it's just gonna take time..
Moderator of Arthritis/Epilepsy Forums
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


babybloo
Regular Member


Date Joined Aug 2005
Total Posts : 289
   Posted 3/8/2007 5:56 PM (GMT -7)   
It's unlikely I was overdoing it as I really didn't go anywhere like I ususally do, weather didn't permit it this time. Actually, where I think I am right now is in Limbo. I do think I am getting better... The stiffness isn't as long and the pain is down... Going to call doc tomorrow to see if I can increase the relafen to 3 times a day instead of just two as I feel for now this will do the trick. Today was another good day... woke up to little pain and stiffness and was able to walk with little problem... I may be coming down with illness as my throat is a bit scratchy and yesterday could have been the start of it. My boy had strep C and then went back today and has Strep A lovely isn't it. I avoided one but have a feeling I am not going to able to avoid it twice.

I really do think I am seeing positive effects from the meds. Here is my question. I know when I go back they will want to decrease MTX, but if I am only starting to see results should I ask to stay at the same dose a little bit longer before tryiing a decrease just yet?

Theresa
dx: Rheumatoid Arthritis.  Duration: 10yrs. Dx'ed 2006.  Asthma, hypertension, hypothyroid
 
Meds: Methotrexate 25mg wkly, Medrol Dose pack PRN, Enbrel 50mg wkly, Folic Acid, Fish Oils, Ultram 50mg TID,  Advair 250/50, Diovan HCT 160mg/25mg QD, Synthroid .1mg QD, Women's One a Day, tylenol PRN.
 
 


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 3/8/2007 6:06 PM (GMT -7)   
Yucky strep.. you poor thing! And your poor son! 'Tis the season, huh? I hope you both get to feeling better, and soon..

If the doc suggests that you decrease the MTX, ask him if you can stay at your current dose, just a little longer just to "see" what happens.. most docs are ok with that, unless there is a specific reason for wanting to wean you off of it..

Oh, another thing I didn't think about, is the weather yucky where you live? Alot of times, that can be a major contributor to pain and stiffness..
Moderator of Arthritis/Epilepsy Forums
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


babybloo
Regular Member


Date Joined Aug 2005
Total Posts : 289
   Posted 3/8/2007 6:12 PM (GMT -7)   
I live in Kentucky so the weather varies. But we are getting on the warmer side spring weather. For me my RA doesn't seem to be affected one way or another by weather. I was actually diagnosed in the summer with the worst pain and started to feel better when it got cooler, but this fluctuates as well. I usually am peeved because when i feel good the weather is bad and when I feel bad the weather is good and I can't get out and do anything.... LOL... but right now I am good, its 32 degrees and clear. I might keep a log again just to see if there is any relationship somewhere to anything... but it looks like I might be on an upswing and I really don't want to change anything yet.... except for the additional antiinflammatory midday.
Theresa
dx: Rheumatoid Arthritis.  Duration: 10yrs. Dx'ed 2006.  Asthma, hypertension, hypothyroid
 
Meds: Methotrexate 25mg wkly, Medrol Dose pack PRN, Enbrel 50mg wkly, Folic Acid, Fish Oils, Ultram 50mg TID,  Advair 250/50, Diovan HCT 160mg/25mg QD, Synthroid .1mg QD, Women's One a Day, tylenol PRN.
 
 


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 3/8/2007 7:52 PM (GMT -7)   
I'm normally ok in the cold too.. it is the moisture level in the air that gets me.. Where in Kentucky do you live? My husband is from there, and we go there often to visit his family.. We were there one winter, and there was snow all over the place, and cold, but I felt great! :) But I come home to SC and I can feel the rain coming 2 days out.. is the strangest thing...
Moderator of Arthritis/Epilepsy Forums
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


tearNeye
New Member


Date Joined Mar 2007
Total Posts : 2
   Posted 3/13/2007 4:05 AM (GMT -7)   
Hi everyone, I was diagnosed with RA when I was around 30 years old. I am currently experiencing pain in my right ankle and it is really swollen to where I can't walk except if I have an air cast on my foot. I'm afraid to take enbril and now I really don't want to take it after reading the side effects that alot of you are experiencing. Does anyone know of anything that isn't so invasive and maybe helped them?

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 3/13/2007 4:49 PM (GMT -7)   
Hey tearNeye - welcome to healing well.. What have you taken in the past for your RA? Have you tried any of the NSAIDS or DMARDS?
Moderator of Arthritis/Epilepsy Forums
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


Shaleygirl
Regular Member


Date Joined Jan 2007
Total Posts : 30
   Posted 3/13/2007 6:43 PM (GMT -7)   

Hi Theresa.  I am happy to hear that you are seeing some results from the Enbrel.  I have taken 4 injections with no change yet and Dr. wants me to change my MTX tabs to injectable.

I grew up in KY near Ownesboro and moved to WY 30 yrs ago.  My family goes way back there but I just couldn't take the humidity and at that time the only decent paying job was coal mining.

You take care and hope you see more improvement.


~Bonny~
Cheyenne,  WY
 
Meds: Enbrel/ MTX/ FA/ Klonopin/ Flexeril/ Lyrica/ Hydrocodone
 
RA Dx Sept05/ FMS Dx Jul05/ OA Dx Apr00
 
"Fear not for I am with thee"


Keah
Veteran Member


Date Joined Nov 2003
Total Posts : 7314
   Posted 3/14/2007 11:56 AM (GMT -7)   
It took a couple of months for me to see the benefits of enbrel. Perhaps you are getting some now, but you may want to leave things as is until you see more lasting relief. I hope that comes soon.
Keah a.k.a. Wormy
 God helps those who help themselves.
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