Oh Blue, I sure hope that they change their insurance. It really stinks that those of us who've worked, end up biting the bullet where help is concerned.
Pentasa is a very helpful med for most of us Crohnies, but there are certainly more than a few who've reacted badly to it. I'm sorry that you are one of them. If you've got more than mild disease, I'd thinkt hat you're GI would be a bit more interested in treating you with some a little stronger. Mesalamine is a very first line med used alone for those who have mild disease activity. How long have you been off all your meds? Please don't wait too long to go back for a follow up. I'm sure you are already aware of the risks of untreated disease.
As far as your Rheumy, You really should ask for copies of your bloodwork and all tests. I have a big, fat file that I keep around with everything in it. It's much easier that way for me to make sure that I can get copies of anything to any MD who may need it.
The interesting thing about
what you've written is that your CRP was elevated and your Sed Rate was not. Many Docs rely to heavily on Sed Rate, but the CRP is actually much more sensitive to inflammation. In addition, a high result coming so close after a medrol pack should be speaking volumes. The medrol should have reduced the inflammtion, but it seems that for you, it didn't reduce it enough.
I spent an entire year beggin my Rheumy to treat me and at every visit, he would want to check "one more thing". At my last visit, he actually told me that I needed to get a GI to treat my very mild CD so that he could treat my joint pain and tendonitis with NSAIDS! I nearly blew my top! I've had these problems for well over 25 years and I have tried every NSAID and COXII out there and failed every one. My gut just can't tolerate them and I get left with the choice of unbearable joint pain or unbearable gut pain.
I got a referral to another Rheumy and at the end of my first visit, I want to hiss his feet. I left knowing that he was putting in the request to get me started on Humira to get both diseases under control. For me, the end result was that I needed to find a Doc who really knew how this specific disease process works, so that it could be treated accordingly. You might need to do the same. Nobody should walk out of a Doc with no answers and more questions, especially after you've been Dx with some form of autoimmune disease.
If you can't get some answers soon, PLEASE, search out Docs who can get them for you so that you can find the relief you deserve and get on with your life.
Keah a.k.a. Wormy
God helps those who help themselves.
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