got my blood work results

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bluemeanies
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Date Joined Jun 2004
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   Posted 3/8/2007 6:50 AM (GMT -7)   
I got my results for the blood work from my 1st rheumatologist visit, well sort of, I didn't get numbers just whether it was normal or abnormal.  I'll have to ask for more info when I go for my next visit.  I was HLA B27 negative.  I don't think they did RF or ANA tests.  My liver, kidneys and electrolytes were normal as was my Sed rate.  The abnormal ones were elevated C-reactive Protein and white cell count.  I had finished a steroid pack about 3 days before the blood was drawn, given to me for bad tendonitis in my elbow.  I don't think the steroids affected the tendonitis pain in my hands though it did help the elbow.
 
I have crohn's but it is doing better (at least symptom wise) since I quit taking Pentasa.  I have a follow up appointment in 2 1/2 months or sooner if the tendonitis happens before then.  Maybe I can find out more if he sees me when it first happens instead of two weeks into the three week cycle of pain and after prednisone.

Ducky
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Date Joined Mar 2005
Total Posts : 3199
   Posted 3/8/2007 5:08 PM (GMT -7)   
hey blue.. I can't remember, are you on Remicade for your crohn's?
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Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
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bluemeanies
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Date Joined Jun 2004
Total Posts : 1372
   Posted 3/9/2007 6:32 AM (GMT -7)   
I am not taking anything for the crohn's right now. I have moderate crohn's and was taking Pentasa but stopped it at the beginning of February. My gi says I also have IBS and most of my problems (d 4-6 times a day with pain and straining) were from that. The Pentasa was costing me about $90 a month and I can't afford it anymore so I slowly stopped taking it. And guess what, most of my d has stopped and I have some formed bm's now. I am now convinced it was the Pentasa making me sicker. I have not seen my gi in about 9 months.

Ducky
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Date Joined Mar 2005
Total Posts : 3199
   Posted 3/9/2007 10:06 AM (GMT -7)   
I have heard of others having issues with Pentasa like that.. Maybe your rheumy will put you on Remicade since it is used to treat Crohn's and is helpful with Crohn's Arthritis... Are you gonna go back and see another GI?
Moderator of Arthritis/Epilepsy Forums
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


bluemeanies
Veteran Member


Date Joined Jun 2004
Total Posts : 1372
   Posted 3/9/2007 10:52 AM (GMT -7)   
I will probably just go to the gi I already see. I will need a colonscopy in the next year because I grow polyps and need them removed on a regular basis, I had my last one about a year ago. If I start having problems I'll call him though. With the crappy insurance I have now I won't be able to pay for Remicade.

The company I work for may change the insurance in May, I sure hope so. If not I'm going to start looking for a new job. Right now they pay the first $500 of medical cost, then I pay the next $1,250, then the insurance starts and pays 75%. I am still trying to pay for the last colonoscopy. I do not qualify for most financial help because I have insurance and I make just over the amount to qualify. I live alone and do not get help from anyone so I do not have extra money for anything. It takes all I make just to pay the monthly bills. I have debated just stopping the insurance and using that money to pay off the hospital but I'm trying to hold off on that. It sucks to be poor and sick. The stress of trying to decide to pay bills or buy meds does not do my system any good so I try not to worry about it, but I do.

Keah
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Date Joined Nov 2003
Total Posts : 7314
   Posted 3/10/2007 3:07 PM (GMT -7)   
Oh Blue, I sure hope that they change their insurance. It really stinks that those of us who've worked, end up biting the bullet where help is concerned.

Pentasa is a very helpful med for most of us Crohnies, but there are certainly more than a few who've reacted badly to it. I'm sorry that you are one of them. If you've got more than mild disease, I'd thinkt hat you're GI would be a bit more interested in treating you with some a little stronger. Mesalamine is a very first line med used alone for those who have mild disease activity. How long have you been off all your meds? Please don't wait too long to go back for a follow up. I'm sure you are already aware of the risks of untreated disease.

As far as your Rheumy, You really should ask for copies of your bloodwork and all tests. I have a big, fat file that I keep around with everything in it. It's much easier that way for me to make sure that I can get copies of anything to any MD who may need it.

The interesting thing about what you've written is that your CRP was elevated and your Sed Rate was not. Many Docs rely to heavily on Sed Rate, but the CRP is actually much more sensitive to inflammation. In addition, a high result coming so close after a medrol pack should be speaking volumes. The medrol should have reduced the inflammtion, but it seems that for you, it didn't reduce it enough.

I spent an entire year beggin my Rheumy to treat me and at every visit, he would want to check "one more thing". At my last visit, he actually told me that I needed to get a GI to treat my very mild CD so that he could treat my joint pain and tendonitis with NSAIDS! I nearly blew my top! I've had these problems for well over 25 years and I have tried every NSAID and COXII out there and failed every one. My gut just can't tolerate them and I get left with the choice of unbearable joint pain or unbearable gut pain.

I got a referral to another Rheumy and at the end of my first visit, I want to hiss his feet. I left knowing that he was putting in the request to get me started on Humira to get both diseases under control. For me, the end result was that I needed to find a Doc who really knew how this specific disease process works, so that it could be treated accordingly. You might need to do the same. Nobody should walk out of a Doc with no answers and more questions, especially after you've been Dx with some form of autoimmune disease.

If you can't get some answers soon, PLEASE, search out Docs who can get them for you so that you can find the relief you deserve and get on with your life.
Keah a.k.a. Wormy
 God helps those who help themselves.
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