AS update from me. Diagnosis

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Regular Member

Date Joined Jan 2007
Total Posts : 90
   Posted 3/8/2007 12:23 PM (GMT -6)   
I posted a while back about AS....twas a long ramble and explained my history and trouble with diagnosis. So i thought id gove you an update!
Well today i had my rheumy appointment (at a different and bigger hospital)
I got on really well with my new doc.  He had requested all my notes and history from my old rheumy and took ages talking to me and talking me through my various tests and results and what it all meant(had never had this explained before).  He said despite the lack of 'damage' to the sacroiliac he was sure i had AS and that was what he was diagnosing me with.  He said my ongoing pain,type of pain and stiffness, blood results, some xrays and history of uveitis pointed to it (and family history of it, my mum has it) and the fact that it has responded to remicade (which i am on for my crohns), confirmed it for him.  He is now writing to my GI to tell him not to take me off remicade even if it stops helping my crohns (that was what i was concerned about before).
He said what some of you guys said- that women have a harder time getting diagnosed as the damage may not show up for years and years. (we're obviousley more resilient than those weak men...he he!!)
I am relieved it has finally been diagnosed (not relieved to have it tho i might add!!)and my remicade is safe !!
For all of you who replied before, thank you, it was comforting to know i was not alone :o)
And to all of you who are still in limbo with diagnosis, hang in there and don't be afraid to change docs.

Diagnosed start of 2002. Had 5 months of remission since diagnosis.  Tried lots of different meds, started on infliximab (remicade) Feb 07 had to jump thro hoops here in England to get it . So far so good...hooray!! The light at the end of the tunnel is on and i'm going for it!!

Veteran Member

Date Joined Jun 2004
Total Posts : 1372
   Posted 3/8/2007 3:10 PM (GMT -6)   
Glad to hear you have some answers. I too have crohn's and I am having reoccuring tendinitis and just started going to a rheumatologist. I don't have a dx though.

Forum Moderator

Date Joined Nov 2003
Total Posts : 7056
   Posted 3/8/2007 5:55 PM (GMT -6)   
lillise, wish I didn't have to welcome you to the Crohn's - AS club but since you are now an official member, WELCOME! There are quite a few of us and that fact gives me some comfort to know that others know what this is like. I'm glad that you saw a good rheumy and finally got the answers you deserved.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, peripheral neuropathy, Sjogren's Syndrome

Veteran Member

Date Joined Mar 2005
Total Posts : 3199
   Posted 3/8/2007 7:41 PM (GMT -6)   
Woo-hoo! So glad to hear that lillise! Not happy for your diagnosis, but happy you have answers, and have a starting point! Please keep us posted! You sound like you are in great spirits! Good for you.. Take good care..
Moderator of Arthritis/Epilepsy Forums
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea

Veteran Member

Date Joined Dec 2005
Total Posts : 1782
   Posted 3/9/2007 4:22 PM (GMT -6)   
Another Crohnie w/AS here -- go glad your new doctor has some sense and recognizes that we women don't just spontaneously fuse! I am sorry that you were diagnosed. I know the Remicade has helped my AS/RA tremendously (better than the Enbrel I believe, although the Enbrel worked well).

I hope the Remicade continues to provide you the relief you need, for both.
"My "Trifecta" - CD, AS & RA...

Co-Moderator Crohn's Forum

Remicade every 6 weeks, Methotrexate weekly, Folic Acid daily

Veteran Member

Date Joined Nov 2003
Total Posts : 7314
   Posted 3/10/2007 4:32 PM (GMT -6)   
I'm in the same club too! Glad to hear that you'v gotten some answers. Hopefully you'll be able to keep it under control with the Remicade.
Keah a.k.a. Wormy
 God helps those who help themselves.
Please help us support this invaluable forum.
Crohn's Forum Moderator

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