I posted a while back about AS....twas a long ramble and explained my history and trouble with diagnosis. So i thought id gove you an update!
Well today i had my rheumy appointment (at a different and bigger hospital)
I got on really well with my new doc. He had requested all my notes and history from my old rheumy and took ages talking to me and talking me through my various tests and results and what it all meant(had never had this explained before). He said despite the lack of 'damage' to the sacroiliac he was sure i had AS and that was what he was diagnosing me with. He said my ongoing pain,type of pain and stiffness, blood results, some xrays and history of uveitis pointed to it (and family history of it, my mum has it) and the fact that it has responded to remicade (which i am on for my crohns), confirmed it for him. He is now writing to my GI to tell him not to take me off remicade even if it stops helping my crohns (that was what i was concerned about before).
He said what some of you guys said- that women have a harder time getting diagnosed as the damage may not show up for years and years. (we're obviousley more resilient than those weak men...he he!!)
I am relieved it has finally been diagnosed (not relieved to have it tho i might add!!)and my remicade is safe !!
For all of you who replied before, thank you, it was comforting to know i was not alone :o)
And to all of you who are still in limbo with diagnosis, hang in there and don't be afraid to change docs.
Diagnosed start of 2002. Had 5 months of remission since diagnosis. Tried lots of different meds, started on infliximab (remicade) Feb 07 had to jump thro hoops here in England to get it . So far so good...hooray!! The light at the end of the tunnel is on and i'm going for it!!