New to this part of board. Can I ask some ?'s

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sylvie74
Regular Member


Date Joined Mar 2007
Total Posts : 443
   Posted 3/22/2007 9:18 AM (GMT -7)   
I'm in the process of trying to figure out why I have a myriad of bizarre (and undiagnosed) symptoms, for at least the last 9-10 yrs now.. (Here's a link to my "chronic pain" thread, if you're interested in reading them:
 


However, there are some problems stemming back a bit farther which I might not have mentioned. When I was in junior high, I remember walking around school, sometimes with a limp, because of "growing pains" in my thigh bones. Also, my hips hurt on occasion- they pop a lot, too. LOL I still get the growing pains once in a while, and now and then feel pains in my forearms. Lately, part of my myriad of undiagnosed symptoms includes weird "cramps" or something in my wrists, and ankles, and within my knees. I do have creaky knees (have for the last year or two, that I've noticed). And for about that long, I've started having what seems like intense muscle cramps in my left thigh & calf (sometimes other leg, but mostly left). (But muscle relaxers did not relieve them at all). And then now in my knees! And there is a warm feeling there, which is bizarre. confused Also, I can no longer sleep on my side with my knees together, because it makes my knees hurt badly.

I'm 32 yrs old.. is it possible I could be suffering from (among other things) arthritis?
 
Note from Mod:  ***I didn't change anything, I just made your link, "clickable".. Thanks!***

Post Edited By Moderator (Ducky) : 3/22/2007 11:26:48 AM (GMT-6)


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 3/22/2007 10:32 AM (GMT -7)   
Hey there sylvie.. welcome to the Arthritis side of the forum.. It is very possible that you have arthritis.. I am 33 and was diagnosed 2 years ago... there are other members on here that are in their 20s and have it.. Have you seen a rheumy? When you made the statement about "growing pains" the first thing that popped into my mind was Fibro.. have you seen anyone about this? You maybe suffering from a combination of the 2 (which a lot of us do) since that are all AI related.. Have you tried sleeping with a pillow between your knees? I know that has helped me some in the past, as well as maybe icing your knees down, can help with the pain and swelling.. let us know what you decide.. take good care.. Duck
Moderator of Arthritis/Epilepsy Forums
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


sylvie74
Regular Member


Date Joined Mar 2007
Total Posts : 443
   Posted 3/22/2007 6:04 PM (GMT -7)   
Thank you for making my link clickable, btw. :P

The Neuro says she doesn't think I have Fibro, and the CNP (who met with me last time I visited) basically told me the same thing. I think partly because even though I can (and have) experienced pain all over my body, it seems to be focused in particular areas- or like predominantly, the left side of my body. Oh.. then my sleeping habits. I do wake up frequently to go to the bathroom (and I'm a light sleeper because of the kids), but generally, I sleep ok.

When I was at the regular doctor, she told me right off "It sounds like you have Neuropathy". She didn't tell me what type or anything. She put me on Neurontin, which didn't seem to be doing anything. At that point, she referred me to the Neuro. I'm about ready to find another doctor at this point.

Keah
Veteran Member


Date Joined Nov 2003
Total Posts : 7314
   Posted 3/23/2007 11:26 AM (GMT -7)   
Hi Sylvie,
All through my pre-teen years, I had the same growing pains. Exercise has always been fun because every leg lift produces a hip crack that can be heard across the room! I've given up on them because as I've gotten older, the cracks hurt nore.

My battle with tendonitis began by 13, when I was first Dx with chronic tendonitis in my feet. Not far behind that was the knee inflammation which eventually ended in surgery, but only after 5 years of misery (There were no MRIs back then). The shoulders became a problem in the meantime and that was called bursitis. I still find it hard to believe that a 16 year old could have such chronic inflammatory problems without anyone trying to consider the cause. Instead, they just fed me one NSAIS after another. Of course I never could stay on them for longer than a few days before my gut would act up and I faced the choice of treating the joint pain and dealing with abdominal pain and diarrhea or just learning to live with joint pain.

For many years I hobbled along until a few years ago when the joint problems finally outweighed the stomach issues. Of course I was lucky and had been Dx with Crohn's Disease by then. My research had already led me to the possibility of the various forms of inflammatory arthritis and I knew enough to insist upon a Rheumatology consult.

As you've seen by your other post, there are many of us here with lots of info about our own disease process and we're more than happy to share what we know, as well as our own experiences. Certainly, we all have our own little biases, based on that info, but we're more than happy to do whatever is necessary to help someone get to the root of their problem, so that they can finally find the answers and hopefully the relief that they deserve.

I hope that you'll research all of the possibilities that we've tossed out, see which seems to apply to you and explore the possibilities with your Docs. Not all Docs consider every possibility and all too often, a Specialist cannot think outside the box of their particular specialty. We frequently need to change Docs and get other opinions. It can seem as if there is no end in sight sometimes, but most times, the search is worth it. I hope you find that true for you.

Meanwhile, as frustrating it can be, know that you've got many supporters here at HealingWell and we're all in your corner. We'll be here to answer your questions as you go through the process of finding an answer and most importantly, we'll be here to cheer you on and support you when you need a shoulder to lean on.

Best Wishes!
Keah a.k.a. Wormy
 God helps those who help themselves.
Please help us support this invaluable forum.
Crohn's Forum Moderator


sylvie74
Regular Member


Date Joined Mar 2007
Total Posts : 443
   Posted 4/3/2007 5:45 PM (GMT -7)   
:) Thank you so much for the supportive post, and welcome. I do appreciate it! I'm sorry that you are all struggling the way you are. It's horrible to read some of the things people on this board are going through. :(

I wanted to ask.. my knees. I had a random warm feeling in my left knee.. I can't see that it's swollen when this happens, but my knees do hurt on occasion. tonight is very bizarre. My left knee actually feels "icy/hot". confused Any idea what the heck this could possibly be? It's been like this for the last hour at least. It's very disconcerting.
(undiagnosed) chronic pain, for nearly 10 yrs and counting..


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 4/4/2007 5:40 PM (GMT -7)   
Hey sylvie.. how is the knee? Do you still have that icy/hot feeling? Mine get that way when I am in the middle of a flare.. is it hot to the touch?
Moderator of Arthritis/Epilepsy Forums
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


sylvie74
Regular Member


Date Joined Mar 2007
Total Posts : 443
   Posted 4/5/2007 8:57 AM (GMT -7)   
It's not like that anymore, thank goodness. It was just like that for an hour or two. My knee did feel warm, but not "hot". It was just weird! :(

(Thank you for responding! :) )
(undiagnosed) chronic pain, for nearly 10 yrs and counting..

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