Hi, everybody...it's lonesome here

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EveSasser
Veteran Member


Date Joined Mar 2006
Total Posts : 808
   Posted 3/29/2007 1:19 PM (GMT -7)   
Hi, all,
 
As you know from previous posts, I have inflammatory spondylarthropathy (reactive arthritis or maybe AS). I have been in physical therapy for a month. I take Enbrel when I can, but I get a lot of infections. I went to an infectious disease doctor because my rheumatologist wanted me on suppressive therapy for the infections. She said she couldn't do much about the urinary tract infections without cultures but she said that a sinus infection could travel quickly through the body. She gave me 250 mg of ceftin to take every day. The other night I woke up and I felt like someone had hung a ton of bricks on my bones. For two days, I was in terrible fatigue and nauseated, and my mother says that I came into her room in the middle of the night and said that I wasn't going to make it. I believe it. I couldn't reach the infectious disease doctor so I saw my GP and she gave me 10 days of biaxin and said she thought it was a sinus infection. I was on biaxin before when they thought I had lyme. Now, I am swollen all over because that is what biaxin does to me.
 
I am still working to build my business. It is very difficult because I can't get on a steady path to health. The physical therapy helps. When I am exercising, I am out of the pain zone. I clearly have an inflammatory spondylarthropathy, as people with this disease feel better when they are on the move. I don't sleep well and I move around all night. I think I am in pain when I sleep. I tried sinequan, a tricyclic antidepressant, for the nerve pain but I gained 10 pounds in three weeks because I ate everything in the house. I won't take lyrica because I have had problems with similar drugs.
 
I ran an advertisement because I am tired of sitting at home. I got a reply from a nice guy and we have been corresponding. He knows about the arthritis but I don't want to overload him. I told him that it mainly affects my stamina which is true. I hope that I am not making a mistake by trying to date a little, but I feel better when there is a man around. I haven't dated anybody in years but I just went and had a fabulous cut and color. It has grown long because I was too ill to go to the hairdresser for two years. Just having the support of my physical therapist has made me feel like a new person. He has cerebral palsy, and he is  wonderful PT. I have a minor crush on him and admire him so much for what he has managed to do. He just fell in love. Anyway he gives me courage.
 
Well, this is all for now. I just wanted to touch base and make contact. I am hurting right now. I had a fight with my mother this morning. She has been bugging me to go with her to buy underwear, and I told her that we could go to Macy's but that I couldn't stay long because I had to get back home. Long shopping trips leave me extremely exhausted. On the way back she threw a fit and said I was always in a hurry. I have tried and tried and tried to explain to her that I have arthritis of the spine and that it is hard for me to go shopping. Yes, I can take a mile walk and I am fine as long as I am moving, but a lengthy, leisurely tour through Macy's I cannot handle. It was a really terrible fight, and she lit into me big time. I have really tried to do good things for my immediate family, knowing that they have supported me through a tough time, but this was really difficult.
 
Hope all of you are managing to thrive despite the many challenges. Would love to hear from any and all about what is going on in your lives.
 
Eve
 
 

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 3/29/2007 7:40 PM (GMT -7)   
Hey Eve, long time no see.. Sounds as if you're having a rough go of it.. Has your docs thought of putting on any other types of meds since you are having issues with the biologics and infections?

So glad you went out and had your hair done! You know, it's easy to fall in a rut when we don't feel good.. the bad thing is, is that it's very hard to get out of that rut, especially when we let other areas in our lives fall by the wayside. Getting your hair done and dating is WONDERFUL.. it does great things for your self-esteem and that will make you feel better just in itself.. GOOD FOR YOU!

Hang in there Eve, you're doing great!
Moderator of Arthritis/Epilepsy Forums
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


EveSasser
Veteran Member


Date Joined Mar 2006
Total Posts : 808
   Posted 3/29/2007 8:49 PM (GMT -7)   
No, my rheumatologist said I have two options: biologics and NSAIDS. They are the recommended treatments for spondylarthropathy. I am going to have to keep working on getting the infections under control.

Thank you for writing. Gads, I don't feel like I am doing great today. I appreciate your vote of confidence. Don't know about this dating stuff. I had already explained about my arthritis to this guy that I was writing, but he didn't seem to get it. I had to explain it and I am afraid it may have driven him away. Just said I have arthritis of the spine, am in physical therapy, need a couple of weeks to get stronger so I don't fall into my coffee when we meet. Didn't hear from him today so we'll see.

Kim B 2
New Member


Date Joined Apr 2007
Total Posts : 2
   Posted 4/27/2007 8:01 AM (GMT -7)   
Hi everyone.I am new to this .I hope everyone is feeling ok.I wanted to chat because I feel very alone with what I am going through .I have a sister-in-law that supposely has osteoarthritis like me but she doesn't seem to be feeling like me . Plus she gives me no support ,we never talk about it .,and she never helps with the depression part .Alot of times she even annoys me! In 03 I had open heart surgery ,I am on coumadin for life and in 04 is when the arthritis of the neck, back ,and hip started .In 06 I had another surgery because I almost bled to death on account of the coumadin.I am 41 ,married and feel my husband does not understand what I go through on a daily basis. Don't even get me started on , they are useless ! Well , I could go on and on So I think I will stop for now . Thank You for letting me vent .Hope you all have a good day , Or try to !!!

Kim B 2
New Member


Date Joined Apr 2007
Total Posts : 2
   Posted 4/27/2007 8:14 AM (GMT -7)   
I noticed I forgot to add the word doctors where I said the word useless so it looks like I said that my husband is .lol !! It is the doctors that are useless not my husband !

istone
Regular Member


Date Joined Nov 2006
Total Posts : 77
   Posted 4/30/2007 8:43 AM (GMT -7)   

hi Kim

i have the same problem as u pls send me an email ( see my profile)and we can chat.

i have also osteo....of neck back and hip .

regards Iris

 

Kim B 2 said...
Hi everyone.I am new to this .I hope everyone is feeling ok.I wanted to chat because I feel very alone with what I am going through .I have a sister-in-law that supposely has osteoarthritis like me but she doesn't seem to be feeling like me . Plus she gives me no support ,we never talk about it .,and she never helps with the depression part .Alot of times she even annoys me! In 03 I had open heart surgery ,I am on coumadin for life and in 04 is when the arthritis of the neck, back ,and hip started .In 06 I had another surgery because I almost bled to death on account of the coumadin.I am 41 ,married and feel my husband does not understand what I go through on a daily basis. Don't even get me started on , they are useless ! Well , I could go on and on So I think I will stop for now . Thank You for letting me vent .Hope you all have a good day , Or try to !!!

istone
Regular Member


Date Joined Nov 2006
Total Posts : 77
   Posted 4/30/2007 8:46 AM (GMT -7)   

hi kim

i have same problem as u please reply check my profile we can chat.

regards

Iris

Kim B 2 said...
Hi everyone.I am new to this .I hope everyone is feeling ok.I wanted to chat because I feel very alone with what I am going through .I have a sister-in-law that supposely has osteoarthritis like me but she doesn't seem to be feeling like me . Plus she gives me no support ,we never talk about it .,and she never helps with the depression part .Alot of times she even annoys me! In 03 I had open heart surgery ,I am on coumadin for life and in 04 is when the arthritis of the neck, back ,and hip started .In 06 I had another surgery because I almost bled to death on account of the coumadin.I am 41 ,married and feel my husband does not understand what I go through on a daily basis. Don't even get me started on , they are useless ! Well , I could go on and on So I think I will stop for now . Thank You for letting me vent .Hope you all have a good day , Or try to !!!
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