Remicade wearing off..how quick for you?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

lillise
Regular Member


Date Joined Jan 2007
Total Posts : 90
   Posted 4/3/2007 12:34 PM (GMT -7)   
Hi all,
hope you are ok.  I have AS and received my first infusion of remicade in feb (for crohns) happily it TOTALLY got rid of my back pain and i was amazed and over the moon.  I had been suffering so badly for so long i didn't know what to do with myself.
After about 5/6 weeks it started to wear off...not majorly but the pain was back...pardon the pun! I had my second infusion at 7 weeks (about 2/3 weeks ago)and i am already feeling the pain come back.
In your experience, how long has it taken for you?....does the benefit get shorter each time??  I am not on anything else with the remicade, just a steroid shot at the time.  My docs are trying to get me on methotrexate as well as they say it prolongs it but i'm scared of the fertility issues surrounding it....too scared to go on it.
I'm in the UK and we don't have Humira here so i am terrified of the thought of the pain coming back as there is nothing left for me if this stops working.
Would really appreciate hearing your experiences with it
Lise :o)
Diagnosed with Crohn's start of 2002. Had 5 months of remission since diagnosis.  Tried lots of different meds, started on infliximab (remicade) Feb 07 had to jump thro hoops here in England to get it . So far so good...hooray!! The light at the end of the tunnel is on and i'm going for it!!
Diagnosed with AS feb 2007 but suffered for years


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 4/3/2007 2:18 PM (GMT -7)   
I was started on Remicade for my AS and CD. I was started at 8 week intervals and it was not lasting. The recommended dosing interval for someone with AS is 6 weeks. My Remicade was put on that schedule. For the first year it was holding me pretty good. Now I am getting joint and back pain at about 4.5 weeks. My dosage has even been increased and I still don't hold for the entire 6 weeks. My GI is talking about moving my interval to every 5 weeks.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, peripheral neuropathy, diffuse connective tissue disease, Sjogren's Syndrome ?
 


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 4/3/2007 7:45 PM (GMT -7)   
hi there!

i receive my infusions of 300mg every 3 weeks. i couldn't handle the wait when it was at the 4 and 6 week intervals (landed in the ER due to pain) so my GO keeps me on 3 weeks.
the RA is my main problem but i do deal with CD and AS. even at 3 weeks i can feel the pain worsening a few days before the next infusion.

perhaps you & your docs can tweek the timing.
take good care
Arthritis Forum Moderator
Active Severe Rheumatory Arthritis. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Previous Lymes Disease for 10 years.
Meds: Remicade infusions 300mg Q3weeks; Intra-articular knee injections when needed; Mercaptopurine 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 10mgQD mantainance; Entocort 9mgQD; Meclizine; Augmentin; Tigan 300mg; Reglan; LidoDerm Patches; Diazepam 5mg for AS back spasms; Rozerem 8mg; Dilaudid 4mg tabs for pain. 


KodakPuppy
Regular Member


Date Joined Mar 2007
Total Posts : 101
   Posted 4/4/2007 6:42 PM (GMT -7)   
Hi There,
I am also on remicade eery eight weeks. I am never completely pain free but it is much better. I start to feel it more fter bout seven weeks. Good luck.
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, December 04, 2016 7:29 PM (GMT -7)
There are a total of 2,732,818 posts in 301,057 threads.
View Active Threads


Who's Online
This forum has 151210 registered members. Please welcome our newest member, Margaretcb.
357 Guest(s), 11 Registered Member(s) are currently online.  Details
notsosicklygirl, Psilociraptor, JaSanne, Rikky1, magoo2, BKelly, Buzzlymeyear, Ed Ski, Red_34, Sue*Nash, Sissy63


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer