Erin--you're doing the Maker's Diet? I'm very interested in how you do on it. I tried to read the book, and it was ok (very reasonable) until he started talking about shielding yourself from all electromagnetic rays in your home. That was a bit too much for me. But the diet part of it makes a lot of sense. I've read somewhere that IBD is making a huge comeback in this country because of the largely processed foods we consume. Switching to organic only, I would think, might make a big difference in your IBD as well as the joints. Please keep us updated--I may get the courage to try this one day.
Boo--glad to hear you survived the scope. Actually, I guess the bad part is the prep; the scope is no problem. Even if you're "clean as a whistle" I believe it is standard procedure to get biopsies done. This scope will serve as your baseline, and if no biopsies are taking, you're missing a lot of information.
So glad to hear that the diet is working well for you Erin. I've been hesitant to try it because it looks so hard to follow! Plus, I have 2 4 year old children so I can't throw my pantry away. I just have to exercise willpower and avoid whatever they're eating. Perhaps I'll take a second look at that book--it's on my bookshelf. NOw, this guy wrote this book and created this diet for cd, not for arthritis. Is the diet good for all types of AI disease? Will it supposedly make the RA go into remission? Does this mean I can never have another chemical cake (twinkie) again? Oh well, my stomach is so upset these days I'm not much interested in eating anyway.
Latest on me--ID doc is having second thoughts about the tb and may take me off all those nasty drugs (I hope so). Now, she is thinking IBD again, but of course she is not the right doctor for that. I have to go back to a GI, and every single GI I've met doesn't just talk about a-holes--they sort of live their own reality :) Arrogant, pompous and completely minimizing. Ok, enough rant. I can't get in for a while (July) anyway. My stomach is killing me--wouldn't be surprised if I have an ulcer or two, despite the PPI and zantac. Getting ready to have a ct scan of the abdomen and pelvis in about an hour; don't think it will show much of anything and I'm wondering why I actually agreed to it. At least it doesn't require the prep of a colonoscopy (sorry boo). Arthritis is holding; I'm sore and stiff, but the mtx is not doing a bad job of holding it steady, considering I'm only taking 7.5 mg/week. With the ultracet, I can live with it. Decided not to go back on tnf-inhibitors until after I see the GI doctor in July. I think the fact that my lower GI system calmed considerably after I started enbrel is an important finding, and I think the GI may be interested. I'm still stuck in that diagnostic neverland, where I'm just under the radar. Sometimes I think I should just take NSAIDS to see if i can trigger a flare, but then NSAIDS can do damage to your bowel even if you have no IBD problems. So I would just be confounding everything. Boo, let us know how your colonoscopy went.
Erin--keep going on that diet! I'm going to try it too, but I may ease into it rather than throw all my food away. It's amazing how much processed food we all consume and don't even know it!
To all: Have a nice holiday and weekend!
Hi all. I hope everyone had a nice Easter holiday. I enjoy cooking, but not for large groups--I don't quite have the knack for that, but we always end up going to my SIL's house for Easter and Thanksgiving. Personally, I would love to go out to dinner for Easter, and maybe even Christmas, but you can't replace family, huh?
My hands are now acting up. They started throbbing over the weekend, and now I can't even twist the tops of the jars--forget my medicine bottles. Only thing that helps much is a heating pad. I should get some electric mittens. I remember my rheumy telling once that playing a piano (if you play, that is) is good for your finger joints. The rest of me is still sore and stiff, but my hands are bothering me the most these days. Had my ct scan done on Friday, and I see the ID doctor on thursday to get the results. I suppose i could pick up a copy of the films and report by tomorrow, if I really want to know. I think I will, just because I don't always trust doctors. They tend to keep a lot of info. to themselves.
Erin, I've decided that I'm going to try to ease into the Maker's diet. There are certain things that I'm just not willing to give up right now (e.g., diet soda, caffeine, cous cous--since it's the only thing I can eat right now). I figure if I eliminate one thing every other week or so, then I'll officially be on the diet in about 6 months :) Seriously, though, I plan on eliminating a lot of carbs, like breads and cerials, etc... I'll actually eliminate a lot of meat as well, since I'm not that crazy about it to begin with. The only thing I'll have a really hard time with is potatoes. I could live on baked potatoes, and they're very easy on my poor stomach. But who knows? Maybe I can eventually give those up too.
Hope everyone has a great week.
Hi all......I sure miss a lot quickly. I've been home with many of the complaints I hear on this thread. I've been having severe problems with my stomach. It's been periodic over the last month, but this last time was the worst - right after dinner, I've been getting a severe cramping, nausea, and swelling in my abdomen. After a few Tums, I go to bed. I typically wake up about 2 a.m. writhing in pain and spend the next hour or so on the can with a bucket (though, I have luckily been freed of actually needing it - this last time I was almost not so lucky), take 2-4 more Tums and am usually fine by morning. This last time, I was in bed all day. I stopped the azulphidine about 4 weeks ago. I had an episode like that which occured soon after I took a dose and figured it was the med....but now I'm getting this problem 1-2 times a week. There is a family history of gall stones and gallbladder disease and I'm concerned. I'm supposed to start Arava today and I'm not sure I should until the stomach feels better.
Other problems - could they be releated? I don't know - my knees have been giving out on me! I haven't had this problem in YEARS. They click when I walk up the stairs and randomly just give out. Luckily, I have caught myself up until now.....I worry when I won't be able to. My fingers and hands have been very stiff, swollen, and painful.
I've been thinking a serious diet is in order. I'm putting on weight. I feel rotten. I feel I need to eliminate all those processed foods as well (good for you Erin and EL!) I have 2 little guys as well and can't empty the pantry, but need to find that willpower to proceed. I want to get on that liver cleansing diet really bad - but it also take a lot of preperation (chopping up food my fingers can't handle) and passing up on the family's food. If I work hard now, maybe I can fit in to a (lots of coverage) bikini by NEXT summer!
Okay, so this reply was all "I, I, I, me, me, me" - but it was also a way to say, "I (there's that word again) understand and can totally relate to you!"