I have been off the enbrel now for 1.5 months. It's definitely out of my system, but the mtx and plaquenil are keeping things under control (I'm just a lot more sore and stiff). The problem is that my lower GI symptoms are now back. I have tons of lower GI cramping, and pain that is often localized on my lower right abdomen. No diarrhea yet, but the cramping definitely feels like the big "D." Additionally, I'm having ulcer-like symptoms (intense pain in the middle of my stomach that is eased by eating something little), and of course, the acid reflux.
Erin, how long did it take before your IBD kicked in after you stopped enbrel? Do you have upper GI symptoms too, or just lower? I have an appointment with my GI doctor, but it's not until July. I suppose I could always call him and he would be willing to give advice over the phone, but I want answers from him (he wasn't very forthcoming a couple of years ago), and I need to request that in person.
Again, please let me know how the Maker's Diet goes for you--I'm getting to the point where I might try it.
Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan