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sandie523
Regular Member


Date Joined Mar 2007
Total Posts : 22
   Posted 4/7/2007 8:54 PM (GMT -7)   
  
   So i was supposed to have my first remicade infusion yesterday (friday) but i got a freaking sore throat. they had to reschusle me for this thursday coming up. That sucks i was actually looking forward to it, I had been so scared for the past souple of months and when i finally get the sourage to do it i get a sore throat. Well know my throat is fine but now im getting congested what a bummer. I feel so awful, i had to ask for that say off and now i gotta try n get thursday off. I dont know what to do. I dont know if I should tell them why i'll be missing the day or just keep that to my self. In a way i want to say something, because im gonna be missing a few more days in a couple weeks, but then i really dont want anybody to know besides my family and close friends. What should I do?
 
  Sandie
 
 Dx. R.A.
 Meds: Prednisone,MTX,Naproxen,Sulfasalizine,Plaquenil.
 


Harley Diva
Regular Member


Date Joined Oct 2006
Total Posts : 160
   Posted 4/8/2007 2:10 AM (GMT -7)   
Hi....So sorry. Make sure you let your doctor know if your not feeling well at all. I think I had a slight sore throat before my Enbrel and I have been sick for two weeks. I mean really sick. I started antibiotics yesterday and I am feeling a little better. As far as work it kind of depends on the environment you work in. Everyone at work knows about my RA. I told them because I didn't want the pressure of hiding anything. Then they know why I am asking for some accomadations. They been very good. Prior to telling them it looked like one thing after the other. A surgery here and there. Crutches etc. Now it all makes sense. I am doing much better. I have to say my boss has been wonderful. I also try very hard to reduce my time off by scheduling things all on the same day or my day off. I am a social worker though and so I am lucky the whole office is a touchy feely bunch.
Harley Diva
 
....RA, HPT,  drugs: MTX Enbrel, bp meds,folic acid


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 4/8/2007 7:28 AM (GMT -7)   
:-)  hah...Diva!..."touchy feely bunch"....love it, that was cute. tongue
Sandie...bummer!!!!!!!!  but, this too shall pass & your infusion will be here lickity-split.  just think, if you had gone & you did have an infection or something in the throat...perhaps you would have gotten doubly sick!
 
if i were you, i think i would absolutely tell my manager or employer "Every so-and-so weeks I'll need to be having to get a treatment at the hospital...."  and explain what Remicade is.  i feel that by giving a fair and well-ahead-of-time warning of what's going on, when it'll be happening, and so on.....will make you look very responsible.  i don't think any employer in their right minds would hold this against someone.
 
and should your infusions go really well, and after a few they get quicker....ya might even wanna return to work the same day of the infusion. 
 
things will work out.  but yeah...i would let them know too.
take care.
Arthritis Forum Moderator
Active Severe Rheumatory Arthritis. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Previous Lymes Disease for 10 years.
Meds: Remicade infusions 300mg Q3weeks; Intra-articular knee injections when needed; Mercaptopurine 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 10mgQD mantainance; Entocort 9mgQD; Meclizine; Augmentin; Tigan 300mg; Reglan; LidoDerm Patches; Diazepam 5mg for AS back spasms; Rozerem 8mg; Dilaudid 4mg tabs for pain. 


sandie523
Regular Member


Date Joined Mar 2007
Total Posts : 22
   Posted 4/8/2007 11:30 AM (GMT -7)   
 
 
        Thank u  guys Soooo much. I will tell my boss first thing monday morning. I LOVE this place everyone here is so nice and understanding. When it comes to my R.A. and i have problems or ??? it just seems like no one else understands but you guys. THANX again.
 
  Sandie
 
 Dx. R.A.
 Meds: Prednisone,MTX,Naproxen,Sulfasalizine,Plaquenil.
 


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 4/8/2007 7:52 PM (GMT -7)   
Sandie Hi,

I so can relate as to whatr you are going through and you are right it does suck.I do not take remicad we but I do take Humira and I have not been able to take the Humira because (1)I have gotten the shingles and I have a really bad cold and I also have had a staph infection going on as well.I tell you I have been paying the price for not being able to take my Humira.Most mornings it takes me for ever to get out of bed and then it takes about two hours before i can half way function.
Curley
.........
 


Harley Diva
Regular Member


Date Joined Oct 2006
Total Posts : 160
   Posted 4/8/2007 10:31 PM (GMT -7)   
Sandie....Let us know when you start the infusions. I think quite a few people here take the same medication and can support you along the way. Also let us know how you reveal goes on Monday................Best of luck
Harley Diva
 
....RA, HPT,  drugs: MTX Enbrel, bp meds,folic acid


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 4/9/2007 10:02 AM (GMT -7)   
Best wishes on your 1st infusion. I remember I was ECSTATIC when my GI doc called the chemo-lab...and 1,2,3,...Badda Bing! I was there 1st thing on Monday Oct 9th 2006!
Eat well this week, get a lot of rest....and relax when you get there, you'll do alright Sandie.

peace/love
erin
Arthritis Forum Moderator
Active Severe Rheumatory Arthritis. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Previous Lymes Disease for 10 years.
Meds: Remicade infusions 300mg Q3weeks; Intra-articular knee injections when needed; Mercaptopurine 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 10mgQD mantainance; Entocort 9mgQD; Meclizine; Augmentin; Tigan 300mg; Reglan; LidoDerm Patches; Diazepam 5mg for AS back spasms; Rozerem 8mg; Dilaudid 4mg tabs for pain. 


sandie523
Regular Member


Date Joined Mar 2007
Total Posts : 22
   Posted 4/9/2007 9:32 PM (GMT -7)   
 
 
    Ok so my appt. is for thursday morning hopefuly i will be better buy then, i really doubt it though cuz my sore throat turned in to a cough. its not that bad so god willing i will get better by then. Lets cross our fingers. ive been doing everything i can think of to make this go away.but there only so much i can do. Well i'll keep ya posted.
 
  Sandie
 
 Dx. R.A.
 Meds: Prednisone,MTX,Naproxen,Sulfasalizine,Plaquenil.
 


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 4/10/2007 10:13 AM (GMT -7)   
in my prayers Sandie...i know how much of a b**** this is to keep on having to delay your infusion when looking forward to it. sit tight! :) you'll get there. rest up gal! here's to THURSDAY!!! and hopin' that you actually get there this time!
((((((((((((hugs)))))))))))))))
erin
Arthritis Forum Moderator
Active Severe Rheumatory Arthritis. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Previous Lymes Disease for 10 years.
Meds: Remicade infusions 300mg Q3weeks; Intra-articular knee injections when needed; Mercaptopurine 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 10mgQD mantainance; Entocort 9mgQD; Meclizine; Augmentin; Tigan 300mg; Reglan; LidoDerm Patches; Diazepam 5mg for AS back spasms; Rozerem 8mg; Dilaudid 4mg tabs for pain. 


Harley Diva
Regular Member


Date Joined Oct 2006
Total Posts : 160
   Posted 4/10/2007 6:54 PM (GMT -7)   
Sandie sorry for your delay. I think I have got the same crud. I have been crying to Ducky on another thread. Every week I think I am at the end of it and it dragggggggsssss on. My doctor called it the crud and he was right. Baby yourself and rest. It will happen as soon as you are healthy. I hope you get relief right away. Thoughts are with you dearie.
Harley Diva
 
....RA, HPT,  drugs: MTX Enbrel, bp meds,folic acid


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 4/10/2007 7:27 PM (GMT -7)   
maybe it the healing well crud? tee hee hee.. everyone.. get your bottles of lysol and spray your keyboards.. we're spreading the crud through the internet! ha! LOL LOL.. ok, I'm delirious!

But on a serious not, you're right Diva.. you BOTH need to rest and baby yourself so that you feel better.. take a nice long bath and just soak and sleep for about 10 hours.. :)
Moderator of Arthritis/Epilepsy Forums
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 4/11/2007 7:29 AM (GMT -7)   
:-)  no no...it's not the HealingWell Crud....it's El! tongue she's given us all  skull THE TUBERCULOSIS!  skull LOL tongue
luv ya El...just tryin' to get a chuckle to ya. ;)
tee hee hee, that was funny Duck. HW crud. hah. well, at least we are all on the same schedule.
 
{{{{{{{{{{{{{{{{{ get well hugs }}}}}}}}}}}}}}}}}

Harley Diva
Regular Member


Date Joined Oct 2006
Total Posts : 160
   Posted 4/12/2007 10:25 PM (GMT -7)   
Well my crud is going away! I hope yours goes soon Sandie. I was sick for three weeks. I will send you some HW healing vibes{{{{{{{{{{{}}}}}}}}} there they are. Hey everyone wash your hands before you type........
Harley Diva
 
....RA, HPT,  drugs: MTX Enbrel, bp meds,folic acid


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 4/13/2007 10:44 AM (GMT -7)   
laughing my arse off! tongue

sandie523
Regular Member


Date Joined Mar 2007
Total Posts : 22
   Posted 4/13/2007 11:38 AM (GMT -7)   
 
 
 
 
     So my appt. was rescheduled again, for monday morning. Im glad to report im finally gettin better just got the sniffles now. I cant belive that just 1 month ago i was terrified of this remicade now i cant wait. Im seriously lookin foward to it.
     Have a good day guys.
 
  Sandie
 
 Dx. R.A.
 Meds: Prednisone,MTX,Naproxen,Sulfasalizine,Plaquenil.
 


Harley Diva
Regular Member


Date Joined Oct 2006
Total Posts : 160
   Posted 4/14/2007 5:25 PM (GMT -7)   
It took me months and a lot of support to start the Enbrel. Now I am afraid I will need to stop it or that it won't work. I am waiting for the day that I can just forget about the RA and have a normal day. I hope the remicade knocks it into remission and you can just go forward.
Harley Diva
 
....RA, HPT,  drugs: MTX Enbrel, bp meds,folic acid

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