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curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 4/10/2007 7:00 AM (GMT -7)   
I hope that every one is doing well.I have a couple of questions for you'll and hopethat some one can help me.Ok for starters I have RA,OA,AS and I have crohns,I also have inflamation of the linining of my nerves.
 
This is what is going on with me and hope that some one can shed some light on this for me.I have RA in both of my hands and it is getting worse because I no longer can straiten out my fingers or can I make a fist any longer.My left one is no where as bad as my right one but they both will go numb I mean to the point of not being able to feel any thing and if I try and rub them to try and get some feeling back in them it makes it hurt werse because they are trying to wake back up.
 
I need to know if you'll think it is my nerve condition doing this or becuase my RA is getting werse?I will take any input any can give me.I have a appointment with my Neurologist on may the 11th and and I have an appointment with my Rheumatoliagist on the 23th of this month.I just want to know if any of you are going through this?and if so what is being done to help.
 
I am on Humira,Plaquinile and I'm on Sulflazine as well.I would appreiciate any info you'll might be able to give me.Thank you.
Curley
.........
 


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 4/10/2007 8:11 AM (GMT -7)   
Hey Curley... so sorry to hear what is going on with you... I, myself, haven't had any issues like this, but I'm wondering if maybe it is a combination of your nerves and your RA? Like maybe one is making the other worse, therefore you having these problems? Hopefully someone will be along shortly that can help you out.. Hang in there.. {{{{{[[[[[(((((Curley)))))]]]]]}}}}}
Moderator of Arthritis/Epilepsy Forums
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


sandie523
Regular Member


Date Joined Mar 2007
Total Posts : 22
   Posted 4/10/2007 8:41 AM (GMT -7)   
 
 
 
  
     Hey curley,  i too had that problem  a while back, id say maybe like 5 months ago. It was the same thing my right had was very painful, i just wasnt able to close it on my own it would hurt sooooooo bad. I still dont know what caused it but i have a idea. I started taking phenteramine (a weightloss drug, and that wbout when my pain began not only my hand, but my R.A. aloso got worse.
 
    I stoped taking those pills and my pain started going away. its not completly gone but at least i can write now, i wasent able to hold a pencil with out pain. Also in a trip to mexico my mom brought my some little garlics at least thats what i think they are. They look like a lillte tiny ball id say a little smaller than a dime, any ways they in a hard shell but they smell like garlic. So ive been drinking one of these lil garlic daily and bot do they help i wish i could show you one. Their awsome. Maybe if you give me your e-mail add. i'll send you a pix so you can try then as well.
          Good luck curley.
 
  Sandie
 
 Dx. R.A.
 Meds: Prednisone,MTX,Naproxen,Sulfasalizine,Plaquenil.
 


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 4/10/2007 5:00 PM (GMT -7)   
Thanks you both for your replys I appreciate it.This problem has been going on every since I was diagnosed with crohns and then others followed.I'm just tired of feeling like crap all of the time.I would give any thing to have just one day with out pain.I see my Rheumatolagist on the 23rd of this month so maybe we can try something else.I will let you'll know what she has to say.

You can get my e-mail by clicking on my name............................................
Curley
.........
 


Harley Diva
Regular Member


Date Joined Oct 2006
Total Posts : 160
   Posted 4/10/2007 6:37 PM (GMT -7)   
Hi Curley. I had the same thing but it was carpal tunnel caused by swelling in my wrist and rheumatoid nodules in the tendon. I had surgery on the right hand and it relieved all the pain. I did not even take one pain pill after surgery because it was so much less painful than before. I now have it in the left hand and if it gets worse I will have the surgery because I have been pain free. The doctor can do a nerve conduction study that will let them know if that is the problem. They can also do a MRI to look at any nodules. I hope you feel better soon. I know how miserable it was. My thoughts are with you.
Harley Diva
 
....RA, HPT,  drugs: MTX Enbrel, bp meds,folic acid


KodakPuppy
Regular Member


Date Joined Mar 2007
Total Posts : 101
   Posted 4/10/2007 10:11 PM (GMT -7)   
Hi Curley,
I am sorry to hear you are having problems. My hands were getting bad before the remicade but now they are better. Hope you feel better soon.
KodakPuppy

SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 4/11/2007 9:08 PM (GMT -7)   
Curley,
I am so sorry for your pain, I think the CD is the cause of all our other ailments I too have CD and AS and my feet are just starting to feel numb, I dont know why but will ask Dr next week.
Being in pain all the time is unbearable, I hope you find relief soon.
Good luck with your Rheumy appt.
Take care
Jo

caprie
Regular Member


Date Joined May 2006
Total Posts : 22
   Posted 4/12/2007 11:05 AM (GMT -7)   

Curley,

I hope you are feeling better.  After reading your post I remembered reading some information in the Humira side effects that came to mind.  It states to notify your doctor if you experience any numbness or tingling or have ever had a disease that affects your nervous system (like multiple sclerosis).  I am just not sure if it is exclusive to Multiple sclerosis or any nervous system problem.

You may want to inquire about the Humira.

Hope you get the help you need.

Caprie


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 4/12/2007 4:31 PM (GMT -7)   
hey Curley,
{{{{{{{{{{{hugs}}}}}}}}}}}}} i hope you find answers & relief soon.
from the immunosuppressants, Remicade, 6MP, Arthrotec...i don't know which caused it if any; but i had very bad loss of sensation ion both hands & forearms when starting the arthrotec, 6MP, remicade combo. tingling, like that "fell asleep" feeling (pins n' needles?) and this would last all day.
when i stopped the daily arthrotec it seemed to pretty much go away....but at times it comes back. i get the same sensation on each side of my head as well. it's weird!
hang tight Curley,,,,i empathize with your troubles right now.
hang in there.
Arthritis Forum Moderator
Active Severe Rheumatory Arthritis. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Previous Lymes Disease for 10 years.
Meds: Remicade infusions 300mg Q3weeks; Intra-articular knee injections when needed; Mercaptopurine 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 10mgQD mantainance; Entocort 9mgQD; Meclizine; Augmentin; Tigan 300mg; Reglan; LidoDerm Patches; Diazepam 5mg for AS back spasms; Rozerem 8mg; Dilaudid 4mg tabs for pain. 


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 4/12/2007 6:31 PM (GMT -7)   
tongue  hi curley, long time no write.  sry to hear things have been not going to well. 
i really amno expert on this topic but sdid want to share one view i experienced ....
i too have a hx of this numbing and tingling sensations and this was before any drug intervention.  i was told told that the RA is an inflammatory disorder and the inflammation mainly at my joints was causing the problem of loss of sensation or slrrping hands and feet.  the inflammation was joint related interferring with the nerves nearby? idk if i totally understod it correctly but that is my lay understanding.  so i guess iagree with ****y that it is both somehow interrelated.  in retro spect i dont have that anymore like i use to have and perhaps that is beause my inflammation has devreased on current meds?  i havent thought about it but i use to have it a lot and now i dont? wait my knee cap goes numb every now and again! yep top of my knee cap but that is all i have lately.... good luck and great hearing from u again..... yalinda tongue

curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 4/12/2007 6:47 PM (GMT -7)   
Thank you'll very much.i tell you I have had so much going on.I have crohns and I'm in a flare and I have lost 14 pounds in the last three weeks.My arthritis is flaring as well and i am starting to swell up in both legs.Oh and not to mention I have had the shingles a couple of weeks ago.I am dealing with this darn Pyoderma Gangrenosa as well it has been flaring I have had them on my arms legs and back but for the first time I got one on my face on the right side and it is about as big as a 50cent coin and it is healing but it is leaving a really bad scare.I can't tell you'll how many people that I don't even know has asked me what was wrong with my face.I see my Rheumy next week and hopefuly she will give me some shots in my hand and fingers.I know when they start hurting really bad the only thig I have found that helps is to put my hands under the hottest water i can stand this is the only thing that help ease them up.Being off of the Humira for so long hasn't helped any thing.
Curley
.........
 


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 4/12/2007 7:03 PM (GMT -7)   
curley so sry...... is there any ointment u can but on that spot on ur face? i hear shingles are painful too ....
i do not know what this pyoderma gangrenosa is but it sounds like gang green!? is that what they call the shingle sores? i am not certain but isnt shingles in ur system once u get it for a long time? i could be wrong? how long will u be off the humira (((((HUGS)))))))

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 4/14/2007 8:11 AM (GMT -7)   

Wow Curly, sorry to hear what's going on with you! Shingles can be painful and take a very long time to recover from. I wonder if some of what you are experiencing is a result of having the shingles.

I wanted to input that while I was on Remicade, a few months in to treatment, I started having problems with  numbness in my arms. Really bad. I'd wake up and it would be so painful (numb painful, I don't get it.) It was hard to get them to stop being numb and afterwards, they would just hurt. I would also get numb arms and hands if I had a coughing attack. This problem very slowly dissapated after I stoopped Remicade - it was strange.

Good luck and I hope you can recover from the shingles quickly to get back on some treatment.

**


 


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 4/14/2007 10:02 AM (GMT -7)   
Curley,
You're in my prayers. ((((((((((((((((hugs))))))))))))))))
erin
Arthritis Forum Moderator
Active Severe Rheumatory Arthritis. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Previous Lymes Disease for 10 years.
Meds: Remicade infusions 300mg Q3weeks; Intra-articular knee injections when needed; Mercaptopurine 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 10mgQD mantainance; Entocort 9mgQD; Meclizine; Augmentin; Tigan 300mg; Reglan; LidoDerm Patches; Diazepam 5mg for AS back spasms; Rozerem 8mg; Dilaudid 4mg tabs for pain. 

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