My journey with Enbreal

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Kellyconcord
New Member


Date Joined Jan 2007
Total Posts : 14
   Posted 4/18/2007 1:21 PM (GMT -7)   
Well I have high hopes for Enbrel after reading everyones post about it, and I have been taking it now for three weeks, I give my self 2 shots a week 25 mg each.  I dont know if it was in my head but i really started to feel better after the first shot tongue I have felt pretty good the last couple weeks so good that I actually got out of the car a acouple times and forgott to grab my cane! Anyhow today I fee like crap I am very stiff but I have to take the weather in ti the factor and I am also weening off the prednisone, also the fact that I have not got any rest since last week doesnt help.
So after the initial far of giving one self a shot and relized I was worried for nothing. that part was easy. I do have to tell ya'll though here I am the otehr day getting ready to inject no big deal and I did it and it hurt like holy hell, i was totally not expecting it!! Well I got a vein!! talk about brusie all across the top of my leg!! Thankfully I am have very fair skin tone so now I kinda can look and see if there might be a vein near by.
 
So three weeks in, I still have high hopes of feeling better and better.
 
How long before everyone else really started to feel good and normal when taking the Enbral???
RA, - Enbrel, prednisone, folic acid, Vitamin C


Shaleygirl
Regular Member


Date Joined Jan 2007
Total Posts : 30
   Posted 4/18/2007 5:14 PM (GMT -7)   
I finally had about 3 moderate days after my 7th Enbrel shot.  I take all 50mg in one shot per week.  Glad to hear that you are getting good results.

~Bonny~
Cheyenne,  WY
 
Meds: Enbrel/ MTX/ FA/ Klonopin/ Flexeril/ Lyrica/ Hydrocodone
 
RA Dx Sept05/ FMS Dx Jul05/ OA Dx Apr00
 
"Fear not for I am with thee"


Harley Diva
Regular Member


Date Joined Oct 2006
Total Posts : 160
   Posted 4/18/2007 9:37 PM (GMT -7)   
Hi....I am on my fifth week. I thought I wasbetter at first. Then I got an respiratory infection and felt worse. This week I have felt much better more energy. I don't know if it is possible to feel normal again. I think I am seeing improvements.
Harley Diva
 
....RA, HPT,  drugs: MTX Enbrel, bp meds,folic acid


CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 4/19/2007 3:28 PM (GMT -7)   

Hey there, I'm not on Enbrel - but, I will say, I've found out no matter how good your meds work, once you are lacking sleep (not to mention add bad weather, pms, or whatever) the pain will be back to some extent no matter what until you 'sleep it off' basically.

Good luck, I hope you start feeling better again. I know when I was on Remicade, I had considerable relief w/in 48 hours, it was awesome.

***
 


Harley Diva
Regular Member


Date Joined Oct 2006
Total Posts : 160
   Posted 4/22/2007 6:22 AM (GMT -7)   
Kelly Shaley how are you doing with the enbrel. I'm feeling better on my 5th week. I hope we all keep improving.
Harley Diva
 
....RA, HPT,  drugs: MTX Enbrel, bp meds,folic acid


Kellyconcord
New Member


Date Joined Jan 2007
Total Posts : 14
   Posted 4/24/2007 9:22 AM (GMT -7)   
I am feeling so so I have completed my 4th week So I am one week behind ya Diva. I do see some improvement but that’s about it, I am hoping for it to really kicking in over the next couple weeks I am a big girl so I think it will take longer because of that? Maybe ? I am slowly reducing the prednisone as well. But the last week my feet and ankles have been swelling up alot and I am not sure why. The days I do feel better I am still noticing joint pain from damage and I can’t get anyone to give me any pain meds, which sucks. So its still an up hill battle it seems. I am not complaining it could be and has been alot worse. Patients is virtue, isn’t that the phrase? phewy ! LOL


RA, - Enbrel, prednisone, folic acid, Vitamin C


Kellyconcord
New Member


Date Joined Jan 2007
Total Posts : 14
   Posted 5/24/2007 7:53 AM (GMT -7)   
Well I am off to the Rhumy today for a check up, I have been on the Enberel for about two months and have seen some improvement, but not as much as i would like, I am still weening off the roids but its hard. The last two weeks my feet and ankles have stayed swelled up big time, I think I may be retaining a lot of water i drink alot of it all day at work so we will see. And this may be completely unrelated but something else that has happened in the last month is I have seemed to developed Rasatia (spell?) my cheeks are really red and looks like broken blood vessels. I have always been blessed with very nice skin, most of my life, never any acne, pimple ect. so maybe its catching up with me?
anyhow like I said I am feeling better but still not very mobile like I would like to be, but i guess i cant complain I can get out of bed and get to work. I cant expect a miracle. Trying to plan a vacation is kinda depressing having to make sure everywhere is handicap accessible and have amigos to rent! I am very heavy set and I know that has alot to do with everything, I found a diet aI am going to try. I would really love to just have the gastric bypass and get it over with but the red tape is a pain in the rear!!!
RA, - Enbrel, prednisone, folic acid, Vitamin C


Shaleygirl
Regular Member


Date Joined Jan 2007
Total Posts : 30
   Posted 5/24/2007 9:22 AM (GMT -7)   
I have not gotten what I would like from the Enbrel.  I am at 14 weeks along with changing the MTX to injectible 20mg 8 weeks ago.  Hmmmm not sure about all of this.  I see my Dr in June so maybe she will change meds.  I must say that the MTX is keeping swelling and inflammation somewhat better but oh the pain.

~Bonny~
Cheyenne,  WY
 
Meds: Enbrel/ MTX/ FA/ Klonopin/ Flexeril/ Lyrica/ Hydrocodone
 
RA Dx Sept05/ FMS Dx Jul05/ OA Dx Apr00
 
"Fear not for I am with thee"

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