Good Moanin' Healing Well V27

New Topic Locked Topic Printable Version
53 posts in this thread.
Viewing Page :
 1  2  3 
[ << Previous Thread | Next Thread >> ]

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 4/18/2007 3:50 PM (GMT -7)   
Previous thread can be reached here.. Please continue moanin'.. tongue
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 4/18/2007 5:07 PM (GMT -7)   
duck u r the maonin police lol thanks for the new thread. :)

hey any chats gonna happen again? just wonderin'

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 4/18/2007 6:36 PM (GMT -7)   
LOL.. that's me.. MP Moanin' Police.. wow, that almost has an "alternate" meaning huh? tee hee hee.. We can try a chat again.. I know the software is still having issues and we still get kicked off every 15 - 20 minutes.. but we can try if everyone wants one.. I'm game..
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 4/19/2007 12:51 AM (GMT -7)   

Lemme me know when and I'll try to be there!

Guess I got a last post in b4 v26 got locked down...but I'll say it again - I love those days chocolate does me good! At least when I'm able to enjoy it's goodness! ha ha tongue   Ahhh, there is just too much sadness in the world right now....we all need a little smile.

It's seems sorta like a Peace and Love signature week with all the woes in the world right now. So:

Peace and Love to you all! scool

**


 


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 4/19/2007 5:31 AM (GMT -7)   
sry mama but boo got the last post i think our MP forgot to lock down lol lol lol u know i love my MP!

i agree camama ~ world peace and it begins with each of us.

ps i have been pigging out on chocolate since easter!!!!!!!!!!!!!!!!!!! we hace so much of it here from grandparents uncles etc that there is no end in sight.

well got to go to work! take care everyone ... we r suppose to be sunny and in the 50's today yippie!!!!!! hey no cracks from the hot spots as 50 is a heat wave here lol.

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 4/19/2007 8:06 AM (GMT -7)   
LOL.. I can't lock the thread, only Peter can.. tee hee hee.. he just hasn't been online yet to do it.. no biggy.. :)
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 4/19/2007 9:20 AM (GMT -7)   

Hey, no jokes here (well, not too many, that is!) I may live in SoCal now, but I'm originally from Mass (and the family spent some time living in Vermont before moving to Northern CA)! I do remember the cold, the snow, the humidity, etc.  <shudder!> tongue

I just made the kids (okay and I had some too!) Chocolate chip pancakes....I thought I was going to start loosing weight.....maybe after Spring Break????

****


 


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 4/20/2007 5:00 AM (GMT -7)   
hey camama we are suppose to reach 60 today!  scool yippie eye yeah!!!!!!!!!!!!!!!!!!!!!!
 
hey my kids had buckwheat panacakes with fresh maple syrup.  u know the real kind that we get from local trees!!!!!!   my youngest usually adds a chocolate chip to the mix but i think they r getting sick of too much chocolate these days.  me .... never! lol 
 
well everyone stay safe and well  hugs yalinda tongue

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 4/20/2007 1:21 PM (GMT -7)   
scool  moanin'
good to be home! went to the rheummy this afternoon.  had me knees done, sad hurts now, but while he was doing it wasn't so bad...feels like someone squishes a sock into your knee.
my hunny picked me up & dumped me home.  he works right around the corner from my rheummy so it works out good.
and now Pea's takin' care of me.
 
so we decided i'm going to try that Voltaren first...see how it goes, if it's lousy we'll switch to celebrex.
he said given the 6MP, Remicade & all the immune suppressants, the Celebrex would most likely work better NOW than it did 6 years ago (when it did diddlysquat). eyes we shall see.
 
right?!?!? it's so strange out today, i was WAY overdressed, LOL...i was prepared for it to be like, 30, LOL.  shoot...i think we got to 70 degrees.
 
hopefully some good films are on tonight. staying put this weekend...can't keep the legs down long enough to make it to joe's.  he's got a marathon next weekend...so i need to be up & walking for that (or kinda).
 
funny story:  (speaking of maple syrup)  when i was in grammer school we went on a 3 days retreat to P.A. {camping} and the camp counselors would at times get a little arrogant of course....so the one dude points out that the tree  over there is a maple tree.  then tells some littl kid to "go suck on a branch" tongue cuz you'll get maple syrup.  stupid kid did it...duh. tongue hah...go suck on a branch.
peace/love
erin

yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 4/21/2007 5:33 AM (GMT -7)   
funny erin u made me laugh. poor kid, damaged for life. so was the kido u? lol its ok dont answer. lol
i was a "boyscout" ( me and marsha brady) and went to new mexico to climb the rockies (philmont) when i was 12 and they had me chewing on pondarosa pine bark saying it tasted like a vanilla shake or something? i dont remember it totally but i was coaxed as a kid by a camp counslor to chew bark! lol awe the good ol days rock climbing, hiking, i canoe can u? lol
it was sunnyand hot here too! today might make 70?! gonna open the windows and get that winter stank out of the house with a cool fresh spring breeze. i love it when we finally open the windows and let the fresh air in. i already have taken a bunch of meds(3 xtra tys) to make my day a bit more painfree so i can enjoy the fresh air hopefully? i am vertain i will be moanin later but it will be worth it!

lata yalinda

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 4/21/2007 9:12 AM (GMT -7)   
cool  moanin' ya'll & good moanin' Camama!
redface  what a lousy nite.  dang knees.  pretty much up all night, half awake.  i ate all nite however! lol...weird combo, tuna...chocolate...and i don't know what else.  but i had the munchies. tongue
hah!...camama you're close!  IT WAS MY SISTER! lol.  tongue every now & then i'll give her a "hey, go suck a branch" lol.  but she tells this story to every "new" person at holidays. like she's scarred for life or something. eyes she also thinks that me & my mother "emotionally damaged" her when she was small when we used to scare the crap outa' her @ nite.
tee hee hee...we would wait for her to pass going to the bathroom & grab her ankles though the wooden spokes of the stairwell railing.  my ma' would hold a flashlight under her chin & hide in my sis's closet & spook her real good.
hee hee...i had fun!  so yeah,my sis is a chicken.
 
those were the good ol' days
 
peace/love
erin
 

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 4/21/2007 9:42 PM (GMT -7)   

Oh good Lord, Erin!!! Did you really do that!!! Your poor sister! Holy Cow. What abuse! tongue

That was Yalinda asking if it was you chewing on the branch, but I love how in your sleepless mode you always think you're talking to your Camama! :-)

Sadly, I'm gullible enough now at my too-close-to-37 to think about it age, that I'd be chewing on bark now if you told me it tasted like a chocolate shake! tongue

Oy, I'm in smiling mood right now...I think it's a grimacing smirk actually - my foot is hurting in an "I'm gonna get you" way.....

Erin, I hope you get some sleep tonight!

*****


 


Harley Diva
Regular Member


Date Joined Oct 2006
Total Posts : 160
   Posted 4/22/2007 6:18 AM (GMT -7)   
Erinnnnnn!!!!! Your a crack up...I bet your sister is damaged for life. The stairwell thing is the worst! It did start my day with a horrific chuckle. Tell your sister laughter is the best medicine so she is my shot for the day.........wicked wicked
Harley Diva
 
....RA, HPT,  drugs: MTX Enbrel, bp meds,folic acid


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 4/22/2007 10:32 AM (GMT -7)   
cool  LOL...yeah right?!? "damaged"..."abused"....hah!  she doesn't know what a "bad-childhood" is.  she lead a pretty charmed life, so really...those "spook stories" are her only ammo against us. 
my ma' in the 70's & 80's was a horror junkie! devil i suppose this is where i get my fear of clowns, T.V.s turned off in a dark room, dolls, weird eyeballs, aliens. eyes umh, i think that's it.  i had more fun i guess because i was her accomplace (sp?). tongue
oh...we also used to also lock the basement door on my sis' & turn the light off when she'd go down there! yeah, we were bad.
she's a priss though my sister....very "dry". totally my opposite. where the heck she got so prim beats the heck outa' me.
ooh, 1 more funny one.  when i was 7 y/o and my father was still around...he took me out on this little, shotty row boat between NYC and the Stautue of Liberty to go crabbin'.
well....wouldn't ya know that the dang dingy sprung a leak!
the little tin boat started to fill with water and we're out in the middle of the darn bay.
know what he does???? he put duct tape over the holes! and continued to fish. eyes
out of an electrician's mouth came: "There ain't nothin' duct tape can't fix."
 
yeah your right Camama...that time 2 years ago when i was awake for 4 nights in a row...i caught you at 2am!  i remember that. tongue ya must of made a lasting impression.
hope ya'll enjoyed some of my stories.  i should start a novel.
{wait till you hear about how i took a souvenir home from Italy!...tee hee, it was an actual person!}
peace/love
erin


Arthritis Forum Moderator
Active Severe Rheumatory Arthritis. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Previous Lymes Disease for 10 years.
Meds: Remicade infusions 300mg Q3weeks; Intra-articular knee injections when needed; Mercaptopurine 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 10mgQD mantainance; Entocort 9mgQD; Meclizine; Augmentin; Tigan 300mg; Reglan; LidoDerm Patches; Diazepam 5mg for AS back spasms; Rozerem 8mg; Diclofenac 150mg; Dilaudid 4mg. 

Post Edited (erin.K) : 4/22/2007 11:35:31 AM (GMT-6)


Harley Diva
Regular Member


Date Joined Oct 2006
Total Posts : 160
   Posted 4/22/2007 6:44 PM (GMT -7)   
Erin I am a horror junkie also. I love B horror movies and own about 200 of them! I love to lay in bed and watch them when I am having a bad flare. My troubles seem so small against folks being gutted by the living dead......
Harley Diva
 
....RA, HPT,  drugs: MTX Enbrel, bp meds,folic acid


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 4/23/2007 9:06 AM (GMT -7)   
confused  200?!?!?!? confused i wish i had your stash!  hey, did you ever see the film "May"?  it's probably my favorite, it has Angela Bettis & Jeremy Sisto in it; i watched it last night...it's really good if ya get a chance. ooh, another bizarro one, "Feed", now that's a stomach turner.  wow...you've an impressive collection...i'm slowly building, tongue on a tight budget so i have my hunny DVD record them when my favs come on cable or on HBO demand or something.
 
redface  well moanin' all,
no sleep last nite...blah. knees got worse yesterday as i think i was up on them too much saturday.  kept me up all night last night w/ pain sad .
waiting for my Voltaren to be delivered.  oh, i did get to take a bath this morning! finally!
trying to get back on track w/ my MAKERS diet...since last wednesday nite i haven't been following it, and the darn legs blew up again, mad so hoping they go down within the next few days.
keep on keepin' on.
Arthritis Forum Moderator
Active Severe Rheumatory Arthritis. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Previous Lymes Disease for 10 years.
Meds: Remicade infusions 300mg Q3weeks; Intra-articular knee injections when needed; Mercaptopurine 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 10mgQD mantainance; Entocort 9mgQD; Meclizine; Augmentin; Tigan 300mg; Reglan; LidoDerm Patches; Diazepam 5mg for AS back spasms; Rozerem 8mg; Diclofenac 150mg; Dilaudid 4mg. 


elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 4/23/2007 10:17 AM (GMT -7)   

Hi everyone!  Still here.  Saw my new primary on Friday to ask about local GIs.  He gave me 3 numbers immediately, and told me not to go to a PA.  Evidently PAs are all the rage in my area, and even specialty offices now staff them.  He said I was too complicated for a PA--wasn't sure if that was a complement or not.  Come to find out, my ID doctor called my primary ahead of time and asked him to set me up with a GI (or call my old GI to get me in earlier).  Well, it worked.  I now have an appointment with one this Thursday (too darn fast for me).   I have a horrible feeling I will get scoped again (both ways) because they all insist on collecting their own data. 

Stomach is still a mess.  It had gotten better once my ID doctor took me off two of the tb meds, but recently it has kicked up again.  And that's what it feels like--someone is kicking me in the stomach over and over again.  Very different from acid indigestion (although that is certainly very painful in and of itself).  I think these tb meds, combined with the mtx, are just not very good for my poor GI system.  Plus, after talking with primary on Friday, it is possible that I have a bleed somewhere in there, although I would imagine it's on the mild side. 

Joints are not all that great, but they've been worse.  My wrists are killing me.  They're hot and red and swollen.  I dropped out of handbells (I play for my church) for the rest of the season (there's only two performances left) because my wrists just can't take it.  Fingers aren't swollen, but my hands ache horribly.  Only thing that seems to help is the heating pad (or a hot bath).  Ultracet helps a bit, and I do take that daily now.  Ankles, and my heels of all places, really hurt as well.  I'm pretty sure I have spinal arthritis of some kind, and the feet and hand pain is just a little bonus :)  My lower back is killing me every single morning until around 1-2pm, and I can't raise my arms above my shoulders if my life depended on it.  I've been getting very creative with the blow dryer.  I've never really had a problem with my knees.  Also, at weigh-in at my primary's office on Friday, I've gained 5 pounds with changing absolutely nothing?  I'm now making myself walk every single day; when my joints get a bit better I'm going to start walking with light weights. 

Enough moanin.  Back to work and a bottle of rolaids.

El


Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan


CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 4/23/2007 7:17 PM (GMT -7)   
oh man, El, feel better!

 


Boo
Veteran Member


Date Joined May 2004
Total Posts : 724
   Posted 4/24/2007 1:56 AM (GMT -7)   
Erin, you're a mess, you stinker!
Rough weekend, grown up kids-wise. I always remember my mom saying that when your kids are little they step on your feet. When they grow up they step on your heart. So true. When grandchildren are involved I can't ignore the problems. Oh for the days when sitting in time-out was enough.
I've noticed how much of a toll it takes on my physical well-being. It's all tied up together. I've been in a support group for families of alcoholics for almost 25 years and don't know what I would do without it. But it can still take all your strength when something happens (like over and over).
I have to remind myself to take a deep breath and relax. No more getting all tied up in knots and asking for more physical pain. My body is doing a fine job of seeing to that already.
Still doing a lot of research on link between RA-depression-chronic pain-thyroid. Seeing primary doc in a couple of weeks. I'm still gaining weight and can't move from my bed at the end of the day. This is a merry-go-round, I know but I've got to get off somewhere. Boo

yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 4/24/2007 2:54 PM (GMT -7)   
moanin everyone. well the last 24 have been a nightmare! i would love to sit here and just write about the horrible flare i am in ( which i am in) but it is not about me. yesterday my mom who avoids doctors like the plague and has suffered with joint pain for many years ( 2 years ago needed a knee replacement and still refuses to have it done) but for years has had shoulder hand knee etc pain and the subborn person that she is has refused to address the issue with a doctor. i have told her since my diagnosis to talk to a doctor about her aches and pains but she has refused. well yesterday we here had sunshine and warm temps so she decided to cut her grass clean her garage and pick up all the pine cones in the yard all before noon! i later in the day get a phone call from my daughter telling me frandma is stuck in the car cant get out or walk! she had been this way since 1 and i spoke to her at 130 and 230 and she never mentioned it to me. get the stubborn part! she thought what ever it was would eventually get better. well ladies and gents it didnt! she was a total assist as she had a bumm knee and now her "good knee" was totallyinflammed and she could not bare anyweight. call a foctor?! no well i fif and wenmt with her gave him a piece of my imput to her life and he gave her a medrol pack and whalah she is better and ble to walk again. i took her for a RA blood test and work upo and will not be surprised at all to finally get her diagnosed! i am off to her house again now so i got to go but this plus my own flare and no sleep is killin me but this too shall be resolved! take care and i didnt read any posts so forgive me and i will later take care yalin

momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 4/25/2007 8:55 AM (GMT -7)   
Happy Hump Day!

Well is it every cold here *shiver* I thought it is supposed to be spring but where my inlaws are, they are snowed in, and it is barely 50, I know that could be considered a heat wave but come on! This is getting ridiculous:) I managed to get on the treadmill but the next day, I felt it in the joints...It is so frustrating that I can't do something so simple as walk on the darn treadmill!!! I felt it the next day, limping around and my husband is warning me about the whole treadmill walking *sigh* but I am going to keep at it, at a sloooooow pace haha!

Oh yalinda...Your poor mom, bless her heart, she is a stubborn one, it is good you were there to get her in to the doc! I hope she gets on a regimen so she doesn't get into such a bind next time? As for you, you are going to be in the same boat if you don't slow down and get some rest, but then with all we have to do as moms, this is just how it is right? I'm sorry you are flaring so terribly :(

El...I hope your tummy starts to feel better, because gosh you can only eat so many rolaids...are you eating the fruit flavored ones at least?

Erin..You make me laugh...love your stories girl!! but I hate to hear your knees are acting up so much:( Why isn't your Remicade working??? I am thinking that is pretty strong medication? I could be wrong...

Have a great day everyone!

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 4/25/2007 8:59 AM (GMT -7)   
scool  yalin! oh my! eyes is your ma' a WWII gal? {was she born in the 20's?}  my grandma is (she's in her 80's now...not quite sure 80-what...she hasn't told her age in 15 years so no one knows! LOL, GodBless er')  but those guys n' gals that went through WWII...man, they are indestructable it seems, and they have that mentality (a bit stubborn & tough as stones!) all good qualities to have, but the stubborness has it's downfalls, like you experienced.
thank God for you!  maybe now she'll do what's best.

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 4/25/2007 9:10 AM (GMT -7)   
mad  moanin'
this Voltaren is DISAPOINTING ME!!!!!!!!!!!!! mad started it on Monday. taking 150mg daily.  it has shown NOTHING in terms of any pain relief. mad it's nothing like the Arthrotec.
so i guess it was that misoprostal additive that made the arthrotec "better" because this plain old dicofenac has done SQUAT! mad {not enough mad faces to effectively represent how i'm feeling}.
don't know what's going on.
had my knees done friday afternoon (with the steroid injections)...and the knees are sore from the procedure, but in all...they're alright.  but...since monday night the ankles have been excrutiating. if i had not eventually passed out asleep at 5 am i would have gone to the ER.
also a fever yesterday, 100.6, i am tired of the whole situation.
 
it's just been an incredibly difficult past few days. especially not being able to walk. i hope this passes, i don't want to miss my hunnie's big weekend in 4 days. been waiting a year for his marathon & going away.
 
signing off...apparently not in a good mood.
till next time, hopefully in better spirits.
Arthritis Forum Moderator
Active Severe Rheumatory Arthritis. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Previous Lymes Disease for 10 years.
Meds: Remicade infusions 300mg Q3weeks; Intra-articular knee injections when needed; Mercaptopurine 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 10mgQD mantainance; Entocort 9mgQD; Meclizine; Augmentin; Tigan 300mg; Reglan; LidoDerm Patches; Diazepam 5mg for AS back spasms; Rozerem 8mg; Diclofenac 150mg; Dilaudid 4mg. 


elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 4/25/2007 10:43 AM (GMT -7)   

Hey everyone.  I'm in a much better mood today.  Tummy still hurts like heck, but I have my appointment with the new GI tomorrow morning.  I will not leave his office until he does something about my stomach; the rolaids are getting old.  And no, I'm not eating the fruit flavored ones--they started making me nauseous, although I have a feeling the nausea really comes from whatever is wrong with my stomach to begin with.

Yalinda--sorry to hear your mom is giving you such a hard time.  Erin's right, though.  At least she has you to look after her.  If it's any consolation, my dad is the same way.  He has severe ulcerative colitis, diabetes, and RA.  He lives in Brazil most of the year (he's retired) and he NEVER sees a doctor.  He's on 15 mg of mtx/week, insulin daily, and he keeps a steady supply of prednisone handy in case his UC decides to flare.  I'm like, Dad, don't you think you should have some bloodwork done once in a while?  I saw him about a month ago, and it scares he how frail he's actually become.  I think it's the RA; it's getting out of control, and because of his diabetes and UC he's limited in what he can take (I think the tnf-inhibitors are out). 

Erin--glad to hear your knees are doing a bit better, but sorry you're in such a gloomy mood.  Perhaps my bad mood from yesterday was contagious.  I recall voltaren, for me, working immediately!  I'm disappointed for you.  I thought it was a good drug, just didn't agree with my stomach (again) or colon. 

 

Momto3--good for you for getting on the treadmill.  When I make myself walk, I always feel better.  I may pay for it later, but I get immediate benefits from exercise.  I'm just careful not to overdo it.

 

Boo--I've always been one to believe that your mental health has a BIG effect on your physical health.  I'm a psychologist, although I'm a researcher, not a clinician.    Minimal stress is best for everyone, but especially for us AI folks.

Everyone else--I hope you're doing well.  I'll let everyone know how my GI appointment goes.

Elcamino

 


Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 4/25/2007 3:26 PM (GMT -7)   
hey,
just wanted to say a quick GOOD LUCK to El.
momto3...you bring up a really good topic & question; when you stated "why isn't the Remicade working?" i started the "newer" RA treatments in 2003? (well late 2002...like august)...it started with Enbrel. with that, the RA was quite severe but i was not as physically disabled as i am now. i think there was a time in that 2 year period on Enbrel where i had 3 month remission.
that was pretty much it.
went on to Humira in 2005 and stopped that in Oct '06. the RA just kept progressing despite the TNF meds, dmards, and immune suppressants.
Remicade i feel has helped heal a lot of the Crohns damage. i did gain much needed weight (79 pounds and gained up to be over 100 pounds since october 9th) so it has done "something".
i was just really wishing it would have helped the RA.
reality is...all of these meds do help significantly the majority of patients...but some don't respond at all.
it could be that perhaps i may do better on the new meds coming out that target not the TNF cells but Tcells and Bcells rather...who knows.
i think that if there wasn't a 10 year wait between onset & treatment, i don't think i would be this bad.
:)
Arthritis Forum Moderator
Active Severe Rheumatory Arthritis. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Previous Lymes Disease for 10 years.
Meds: Remicade infusions 300mg Q3weeks; Intra-articular knee injections when needed; Mercaptopurine 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 10mgQD mantainance; Entocort 9mgQD; Meclizine; Augmentin; Tigan 300mg; Reglan; LidoDerm Patches; Diazepam 5mg for AS back spasms; Rozerem 8mg; Diclofenac 150mg; Dilaudid 4mg. 

New Topic Locked Topic Printable Version
53 posts in this thread.
Viewing Page :
 1  2  3 
Forum Information
Currently it is Sunday, December 04, 2016 5:36 PM (GMT -7)
There are a total of 2,732,774 posts in 301,054 threads.
View Active Threads


Who's Online
This forum has 151206 registered members. Please welcome our newest member, KrazyKorean5.
314 Guest(s), 13 Registered Member(s) are currently online.  Details
Wdan, Bololidat, Michael_T, jennydancingfish, Lizzie70, Teamchris, Serenity Now, jared16, NiceCupOfTea, lymedriven, NotQuiteAntonio, julymorning, minnietoty


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer