Severe Arthritis in 16 year old

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

worriedmom16
New Member


Date Joined Apr 2007
Total Posts : 3
   Posted 4/19/2007 11:29 PM (GMT -7)   
Hi I am a mom of a 16 year old daughter. She had a bucket handle tear of her meniscus when she was 13 y.o. They could not repair her meniscus and had to remove it. She had continued problems, her latest x-rays and MRI from 12-06 showed severe arthritis, bone spurs, and an OCD lesion and a baker's cyst. The doctor also ordered an x-ray of her good knee that also showed arthritis. Art first they wanted to do a meniscal transplant and know want to do an osteotomy. They are concerned with her severe arthritis progession within the last 2 years and tell me that the amount of arthritis she has for her age is very abnromal. I am very concerned about doing the right thing for her.
 
Has anyone heard of a case of the severe arthritis in a 16 year old, and does anyone know anything about an osteotomy.
 
 
Any help would be greatly appreciated. I am concerned of why this is happening and doing the right thing for her.
She has a long life ahead of her and I do not want to mess her knee up anymore then it already is!

Please Help
Worried Mom!!!

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 4/21/2007 10:15 AM (GMT -7)   
hey there mom.
i am just reading through the posts here...my sympathy for you & your daughter.
i want to read a few things in my nursing texts about osteotomies before i write anything. but one question...did your daughter have any bloodwork done? and if so what were her Sed-rates or ESR, RF, CRP, and any other rheumatic panels?
and also, have they ruled out bone cancers? i just wnt to get an idea of what they hae and have not ruled out. i take it they must have taken some CA panels & perhaps a biopsie when they first did the surgery when she was 13. was it all clean? is there any family history of RA? or any sort of arthritis? or degenerative bone disease?
will be in touch soon.
(i had pretty bad RA at 16...if that's any comfort, probably not though...but, if this is some sort of degenerative rheumatic disease...it can be helped)
sincerely,
erin
Arthritis Forum Moderator
Active Severe Rheumatory Arthritis. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Previous Lymes Disease for 10 years.
Meds: Remicade infusions 300mg Q3weeks; Intra-articular knee injections when needed; Mercaptopurine 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 10mgQD mantainance; Entocort 9mgQD; Meclizine; Augmentin; Tigan 300mg; Reglan; LidoDerm Patches; Diazepam 5mg for AS back spasms; Rozerem 8mg; Diclofenac 150mg; Dilaudid 4mg. 


worriedmom16
New Member


Date Joined Apr 2007
Total Posts : 3
   Posted 4/21/2007 11:43 AM (GMT -7)   
They have not done any blood work or biopsies, the dr. however did state that he thought that maybe this was just her or maybe early arthritis runs in my family. No one thought I now of besides myself has early arthirits. I am not sure that mine is as early as my daughters. I have early DJD and synovial cysts in three areas of my lumbar spine, but the dr. did not think that the two were related. Should I ask for blood tests or biopsies? I just have had so many conflicting opinions from osteotomy to meniscus transplant and one person did recommend seeing a rheumotologists but when I asked the dr whois doing the surgery he did not think that it was necessary.

I really appreciate any help or opinions, I am just concerned about making the wrong choice for her and messing up her knee for the rest of her life. I also do not want her in constant pain.

Thank you again from the bottom of my heart for your help!!!!!!
Worried Mom

Harley Diva
Regular Member


Date Joined Oct 2006
Total Posts : 160
   Posted 4/22/2007 12:20 AM (GMT -7)   
Hi worried mom.......There are many mom's here and you have our hearts because there is nothing worse than having your child in pain or ill. I would take her to a rheumatologist who can give her an appropriate diagnosis. I had four surgeries that I did not need prior to getting diagnosed. It is not normal for a child to have arthritis. A rheumatologist specializes in arthritis and I think it is reasonable to get another opinion. It can't hurt anything.
Harley Diva
 
....RA, HPT,  drugs: MTX Enbrel, bp meds,folic acid


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 4/22/2007 6:40 AM (GMT -7)   

Good Morning,

I am Kitt and here is some information regarding osteotomy. I am  a  nurse and we have an excellent orthopaedic surgeon at our hospital who has performed this type of surgery many times.  As with any surgery every case is different but most people do well.

An osteotomy is an elective surgical procedure, performed under general anesthesia, in which a bone is cut or a portion is taken out in order to fix a bad bone alignment, to shorten or lengthen the bone, or to correct damage due to arthritis. An osteotomy is needed when a bone has healed badly or crooked, or when a deformity is caused by disease or disorder.

I know it must be very hard to watch your child go through this pain.

The members that posted before me gave you great advice. Now you need to be sure you know exactly what the physician is planning, the recovery time which will include physical therapy and how your daughter feels about her disease. I cannot vote for or against surgery. I would leave that to the people with experience. :-)

Just a note on Juvenile Arthritis ..........there are many diferent kinds of arithritis in children and it can start very young in their lives.  I had a cousin that 's 4 years old had JRA.

The most prevalent form of juvenile arthritis is juvenile rheumatoid arthritis, or JRA. It affects approximately 50,000 children in the United States.

Bless you and lots of support.

 

 


 
Respectfully
 
Kitt
 
Depression 25 years, Husband CD 30 years
__________________________________________________ 
"If you doubt you can accomplish something, then you can’t accomplish it. You have to have confidence in your ability, and then be tough enough to follow through.”
Rosalyn Carter
 


worriedmom16
New Member


Date Joined Apr 2007
Total Posts : 3
   Posted 4/22/2007 6:49 AM (GMT -7)   
Thank you again ofr your input and opinions! I think I am going to go get a 3rd opinion but this time from a rheumotologists not a orthopedic surgeon.
I work for Kaiser hosptial and have for the last 14 years, so I have quite a bit of medical experience. I work in Administration now.

My daughter is not to happy about the surgery and wants to do nothing. The doctors are telling me if I do she will have a total knee replacement by the time she is 30.

I feel for any parent at there is who has to make 10 time worse decisions for there children this is no where near cancer and I am having the hardest time making the right decision
so my daughter can have a normal adult hood.

Thanks again!!
I am going to call tomorrow and make that appointment before her surgery which they already have scheduled June 4th but I am not sure if she is going to go through it!!!

THANKS AGAIN!!!
BLESS YOUI

Ave
New Member


Date Joined Oct 2013
Total Posts : 1
   Posted 10/11/2013 11:43 AM (GMT -7)   
Hello, I too have a "granddaughter" with JRA and very very ill. She can hardly get off bed in the mornings. She is in so much pain, knees, hands and now her jaws. Do you know what the exercise is for these young kids with this illness? She is also putting on a lot of weight and most of it is from all the drugs she is prescribed on. I am so worried about her and depressed as a grandma because I wish I knew what to do to help ease the pain especially when I walk to her house a block away and see her tears running down her cheeks of the pain. My son who is also very sick of Arthritis says she will need knee replacement by the time she is 25.. Please help. :(

Post Edited (Ave) : 10/11/2013 12:50:43 PM (GMT-6)


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 10/11/2013 10:02 PM (GMT -7)   
Hello Ave,
I'm so very sorry to hear that you son and grandchild have RA, it is so very hard on the parents and grandparents and my heart goes out to you. Maybe ask if you could go to one of her doctors appointments so that you can help her better.
I would ask that you re post and start a new thread so others will come by and give better advise and help. I do not think worriedmom16 is on this message board anymore. But others might still be able to help and my heart goes out to you and your family. My own daughter had open heart surgery at 12 days old, her heart is 85% normal and she does good but has to see cardiologists regularly, she is now 22 years old and doing good. So, I'll say prayers for you and your family.
Prayers
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

Neenaa
Regular Member


Date Joined Sep 2013
Total Posts : 118
   Posted 10/14/2013 9:27 AM (GMT -7)   
Hello Ave, I feel deeply for you in your situation. Watching people you love suffer so much must be dreadful. I have suffered with RA in my jaw so I know what your grandchild is going through. There is no pain like it. Fortunately I no longer suffer from it because as soon as it starts now I get an injection of steroids into the joint and the pain disappears almost immediately. The last one I had was in March and its still working perfectly. First I am given a local anaesthetic and then when I am numb they give me the steroid injection. I don't feel anything at all (except the wonderful absence of pain). It is done in the radiography department where they are looking at x-rays of the jaw while they work. It helps to make sure that they are getting the right spot because the joint is small and a bit complicated. I hope this is a bit of help. Good luck, Neenaa.
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, December 07, 2016 3:51 AM (GMT -7)
There are a total of 2,733,991 posts in 301,165 threads.
View Active Threads


Who's Online
This forum has 151299 registered members. Please welcome our newest member, ABBear.
228 Guest(s), 1 Registered Member(s) are currently online.  Details
exqualls


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer