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Date Joined May 2007
Total Posts : 1
Posted 5/1/2007 1:28 AM (GMT -6)
Hi, I'm new to this whole forum thing, but I suddenly had to talk to someone else who coud possibly understand what I've been going through. Here's a quick synopsis of my story (skip ahead to get to my questions): diagnosed with psoriasis, mild to moderate, at 15; at 19 suffered a fall, really silly story; dx I broke a toe, went back to college and limped a around campus for 2 months; new dx a dislocated toe, limp with a cast for 3 months; 4 years, 3 MRIs, 2 more casts, many tests and a few more misdiagnoses along the way and in January they said it was psoriatic arthritis. I moved back home after college so that I could get included in my parents healthcare benfits for all the testing I've had done to figure this out and now I'm staying to keep my meds covered. I've struggled with chronic depression since I was nine. So, I know the coping mechanisms to get my life on track, but I never seem to have the energy to use them.
Now I'm 23 with a life before me and it feels like my options for a career and everything are quickly disappearing. I've never had more than a part-time job, let alone one with benefits and I'm not sure what to expect to find out there. So far the swelling is only in my feet, but I often have moderate to severe pain in my neck and back on top of the almost constant pain in my feet. I guess any suggestions you all could give me on finding a career that would be willing to accomodate my needs, would really be helpful. I have a BA in English and Art History, but am reluctant to go back to school, because I really need to get out on my own and right now I can't afford this disease and school. I'm also really worried about
how mobile I'm going to be five or ten years from now. While walking I get passed by just about
everybody. How can I go into an interview and say oh by the way there will be days when I can barely make it in in the morning let alone stand for more than five minutes. Who'll hire me except for some paper-pushing type of job. I'm still trying to work out the best balance of meds with my multiple doctors so maybe this will all change in the next few months, but after almost four years of constant pain its hard to hold on to hope.
My younger sister has diabetes and one of the first things she said at the hospital when initially diagnosed is "I'll never be able to
open my own gallery now". I felt so badly for her, but now I feel the same way. Part of me always wanted to
open my own bookstore. It's hard enough to make a small business succeed w/o all this, and now I'm not sure it's possible. So if anyone is looking for a couple of artists (I write trashy novels and she makes beautiful furniture) give me a holler. Thank you if you've read this far. I really needed to share this stuff with someone and you all seemed like really nice people. Thanks again.
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Date Joined Oct 2006
Total Posts : 160
Posted 5/1/2007 10:19 AM (GMT -6)
Never say never you have no idea where life will take you. i would suggest following your dreams sit down make a plan and get going! I am also an artist and know that it is not a choice it is an obsession that we need to fullfil. Artists and writers need to do thier craft. There are many options with a masters. I have a degree in art and work for the county. I still have a studio and spend many hours doing art. The county pays the bills. You could check out some public programs for health care and check with your doctor for assistance programs for people with a chronic disease. Some major hospitals like Stanford or Mayo clinic have information from the department that specializes in your disease. I sometimes tell my husband that I may be in a wheelchair in ten years. He tells me "well you aren't today" "what do you want to do today?" Treatments are discovered and things change over time. The did not have TNF inhibitors a few years ago. Many people facing even greater challanges change lives and do wonderful things check out the movie Emmanuell's Gift. It is very inspirational. Also chronic pain can cause depression and helpless feelings. Talk with your doctor. I am holding positive thoughts for you and hoping the meds start working soon. Glad your here on the forum.
, drugs: MTX Enbrel, bp meds,folic acid
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Date Joined Jun 2007
Total Posts : 10
Posted 6/7/2007 9:35 PM (GMT -6)
Get a graduate degree - I got mine at CSUDH (www.csudh.edu) through the HUX program - totally online. I took out minimal student loans for tuition while working. I am now an adjunct faculty with a great salary, benefits, and very flexible hours. Seriously, you need to line something up now to cover your back.
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Date Joined Nov 2006
Total Posts : 1331
Posted 6/7/2007 9:50 PM (GMT -6)
I'm sorry you are feeling defeated..this is difficult stuff!! I'm a bit older at 36 and have three children and have RA without a positive test. I returned to school to get a degree in Sociology (family studies) and at one time I did teach pre-k and kindergarten. At this point, I am just trying to get through school, commute my kiddos into their schools and keep a household going. Since my university is in a different town then their schools, I do a lot of driving!! There are days when I can hardly stand the pain, so yes I understand your frustration and times of hopelessness of will this ever end? Will I always be in pain? and yes when I attend classes, people hurry past me on the stairs since I really must take my time!
You have come to the right place to vent and we understand!
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