looks like i am starting enbrel !

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yalinda
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Date Joined May 2006
Total Posts : 1179
   Posted 5/8/2007 5:20 PM (GMT -7)   
hi everyone, just came back from the rhuemmy - he couldnt belive i waited so long to let him know how bad i had gotten.  i guess when u cant wash your hair or curl it it is time to admit things are pretty bad.  eyes
i was told about 3 choices  the remicade which i think is the infusion and not condusive to my work schedule.  the other one which i forgot already.........which is humira?  yeh, any way i thought that enbrel fit my needs and lifestyle and i must tell you after coming home and viewing the video i am so hopeful i could spit! no really to think i will do things again without the pain and limitations.  the mtx just never did it 100% but i was better for a short stint although my rhuemmy said he always documented that i culd benifit from a tnf inhibitor just didnt think i was ready for more meds.  i told him i am at the point of lay it on me and make me free and mobile again.  so anyway i should start within the week - he said i have enough documentation the insurance should provide.  i only hope tomorrow at work i dont hear my provider has been cut!
well i feel like a kid in a candy store i hope this works for me and i can enjoy summer!!!!!  heres to better days!  yalin tongue

Ducky
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Date Joined Mar 2005
Total Posts : 3199
   Posted 5/8/2007 6:53 PM (GMT -7)   
Woo-hoo! Congrats Yalinda! That is great news! You'll have to let us know how it goes.. Are you going to keep the MTX too and just add the Enbrel? Or Enbrel only?
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


yalinda
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Date Joined May 2006
Total Posts : 1179
   Posted 5/8/2007 7:33 PM (GMT -7)   
mtx too! gosh i hope i am not too positive if that is possible but like so many others i jsut want to be fixed and go on with life...... heres to hope!

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 5/8/2007 8:00 PM (GMT -7)   
Yeah true... I know what you mean! I am on Enbrel only, but have never been on MTX or anything other than NSAIDS... I think I may have to add MTX or Plaquenil soon though.. :(
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


Harley Diva
Regular Member


Date Joined Oct 2006
Total Posts : 160
   Posted 5/13/2007 6:01 AM (GMT -7)   
Hey is this a crazy club. I am taking MTX and Enbrel. I started out with 20 mgs of MTX and the 50 of Enbrel we have cut the MTX to 15 my doc says they work much better together and not to expect to get off the MTX. He said I meght be able to go a little lower over time. I did notice the reduction in the MTX. I don't have 100% relief but I am better. I don't know I would be much worse without treatment. Yalinda thid is exciting for you I called Enbrel and did the Enliven program. They sent me a travel pack shaps container etc. They are also there to answer questions for you. Like when I froze my medication! The nurses are a litttle robotic and read you the party line in response to a question.
Harley Diva
 
....RA, HPT,  drugs: MTX Enbrel, bp meds,folic acid


elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 5/14/2007 9:46 AM (GMT -7)   
Yay for you Yalinda!  I can tell you the enbrel and mtx was the magic elixir for me.  I hope it is for you as well.  But be patient.  It took a while for the enbrel to kick in for me (5-6 months). 

Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan


The Bear
Regular Member


Date Joined Mar 2007
Total Posts : 364
   Posted 5/14/2007 4:34 PM (GMT -7)   
 Hi Yalinda, its the bear cross threading. Can you please tell me what enbrel is and what it is used for? RA?
Is it a propriatory brand or generic? I've never heard of it. I read all the drug neames ijn the variuos threads and we don;t seem to have them here or if we do they are called soemthing else. I spoke to my doctor about the meds that they take on the pd forum and asked why we don't hear of them in the UK and was told that they were considered outdated in the UK and that we use the morem recently developed drugs like mmy patch therapy.
Is this something to do with patents and drugs that are out of patent are cheaper to get hold of for those people who have to fund their own meds? There is so  much I don't know about your system, I've just responded to elcamino saying we don't know how lucky we are here in the UK.
Stay well yalinda and I'm really pleased you have had some good vibes.
Stay well
The Bear

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 5/14/2007 4:57 PM (GMT -7)   
Hey Bear.. Enbrel is a biologic like Humira or Remicade... it's self injectible... I am on it as well as a few others here... Enbrel helps to slow the progression of Arthritis... Another name for it is Etanercept.. It has worked well for my Arthritis as well as my Spondylitis.. I believe the biologics are relatively new in the treatment of Arthritis, they've been around for a few years, but not too long.. Uhm, as far as the cost, Enbrel is pricey (in my opinion) for a month supply (4 shots) it is $1400.00 ... I don't know if it is more from different pharmacies, but that's how much mine is.. :( Thank goodness I don't have a co-pay! whew!

Sorry Yalinda.. didn't mean to hijack your thread.. just saw this and wanted to answer! :)
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 5/16/2007 4:35 AM (GMT -7)   
no thanks duck i didnt see all the great responses from everyone thanks guys! el i knew u would be happy for me..... thanks harley! i am sooooooooo hopeful all my pain will vanish... i know i am putting a ot into one drug but the vieo they gave me to watch was so hopeful! i have the loot in my fridge and see the nurse on friday to learn how to take the injection. i plan on going back to work after the injection will i have any side effects that driving and seeing clients might not be a good idea? or will i feel like myself and not notice???

cant wait! i wanna be active this summer and swim so i hope this works!

elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 5/16/2007 6:48 PM (GMT -7)   
Hey Yalinda,

The injection was nothing for me, anyway. Just a little stick and no immediate side effects. Honestly, I did tend get a few more infections while on enbrel, but they were pretty mild infections, not a big deal at all.

Did you get the actual syringes or the sureclick things? I used the syringes and never found them that difficult. If you do, know that the sureclick things are available and might make it easier. Perhaps some are a bit squeamish to give themselves an injection?

You go girl!

El
Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan


Harley Diva
Regular Member


Date Joined Oct 2006
Total Posts : 160
   Posted 5/17/2007 8:07 PM (GMT -7)   
Yalinda......I drive and see clients too...Sounds like human services. The only side effect I have had is a loss of apetite. I lost aliitle wieght when I first started. I never felt sick and no other side effects. I did have a respiratory infection but I think I was sick when I started the Enbrel. I do feel much better and I am able to do things I have not done for the last two years. I am not 100% but working on it.The nurse said it can take three months to get relief. I could tell the differance the second week. I pray that it is the one for you. I use the sureclick auto injector. I don't even notice the Enbrel at all now. I don't even have a red spot. A word to the wise let the enbrel warm up to room temp prior to use. Ask the nurse at Enliven. She told me the injection could stay out for several hours. I think if you are filling the injections yourself you would want the bulk of the meds in the frig but let the filled enjection get room temp. I can't even feel the medication going in when it is not cold. I also got to go off most of my other medications which was great.
Harley Diva
 
....RA, HPT,  drugs: MTX Enbrel, bp meds,folic acid


babyplace
Regular Member


Date Joined May 2007
Total Posts : 499
   Posted 5/19/2007 7:19 AM (GMT -7)   
Hi Yalinda,
Saw on the other thread that your enbrel went good...happy for you!! Hope it it helps you, and really soon. I guess down the line my doctor may add that at some point, but wants the mtx to get working good first. If that happens, I'll be posting you for advice!!
Take care!

yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 5/20/2007 5:43 AM (GMT -7)   
hi everyone. thanks for all the support! yep i took the shot no problems on friday. didnt even feel it! just like u all said.....
yep harley i am in human services. this driving is costing me a bundle these days as we cover 8 counties so i can drive over 200 miles a day! at over 3 bucks a gallon it soon will be costing me more to work than my pay! lol
has anyone taken anything to boost ur immune system esp since i work with so many different peps- my clients? crazy question but i know i am trying to weaken the attack but i hope i dont get sick always either?
babyplace how r u doing?

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 5/20/2007 7:25 AM (GMT -7)   
Hey there Yalinda.. so glad the injection went groovy for you.. where did you inject at? Ok, knock on wood, but I've not had any real "illness" since I've been on the Enbrel.. I've gotten infections (UTIs) but no colds, flu.. nothing like that.. I take a multi-vitamin everyday and pro-biotics.. but that's it.. Wash your hands alot, or carry a lot of hand sanitizer, since you'll be traveling so much.. I keep a bottle on my desk and use it religiously! How are you feeling after the shot by the way?
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


babyplace
Regular Member


Date Joined May 2007
Total Posts : 499
   Posted 5/20/2007 11:37 AM (GMT -7)   
Hi Yalinda,
Fingers crossed, second dose of mtx yesterday, and so far so good. A little queasy, burny stomach yesterday but nothing like last weekend at all!! Next week I'm supposed to double the dose, 2 in am and 2 in pm. I'm hoping that just becase I increase the meds it won't mean the effects are doubled?! Idon't know if this will help or not, but I asked my doc about taking something to strengthen my immune system and she said not to. She said -that RA is from an immune system that is already too acitve, and the meds are supposed to suppress it a bit. So, if I taking something to strenghten the immune system, it sorts of works against what she's trying to do. Anyway, not sure if I got it right, like I said before I have a lot to learn about all of this and I'm so confused!!
The doc told me to take a multi, calcium, and that fish oil would be good. Iused to take the pro-biotics that Ducky menitoned, forgot about them until I read her post, think I'll ge t some again. Also need to grab some more hand sanitizer, with the daycare kids here, someone is always passing something! Seems our house is nothing but diapers and dog hair most days. Hope you're feeling well, enjoying your weekend...seems so many use the enbrel, and do so well on it, makes me kind of hope the doc puts me on it soon.
Read your other post about the teeneager....bet your heart stopped!!! Our boys are older, but my heart still jumps when the phone rings late at night....so glad you had such a good outcome! Did I read that you are in upstate NY? You guys sure had a rough winter!! Kept reading all about the bad snowstorms....we are in Florida, not far from the Gulf. but moved here from Wisconsin...don't miss winter a bit, but get a bit nervous during hurricane season. Time to get going, family is a'callin.
Chat with you later, thanks for checking on me!
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