Weaned off Prednisone now what?

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NanMac
Regular Member


Date Joined Mar 2007
Total Posts : 71
   Posted 5/15/2007 8:39 PM (GMT -7)   
     I weaned of the Pred. in 2 weeks. There was a few days that I was very stiff and in pain. The only joints that were visibly red were my big toes but wrists, hips, neck and one knee all stiff and painful. I thought about calling the Doc but the last thing he said was "I want to see you when you are totally off the Pred. And not to worry if you have stiffness and pain you can go back on the Pred." I don't want to go back on it! It makes my BP go up and I feel really jittery. After 5 weeks on the Pred. My Sed rate went down to normal. I see him next Tuesday. I have decided to give him one more chance before I go to another Rhuemy. It has been 3+ months and this is as far as we have gotten.
      There is a research study advertised in my local paper recruiting people for a anti inflammatory diet trial. It is sponsor by the Oregon Health Science University and a National College of Natural Medicine. Has anyone tried this or involved in the study. I meet the profile and left my name and #. They provide your food and it only lasts 6 weeks. Sounds interesting.
     I thank everyone for your advice as I don't want to discuss the with my friends who don't really understand. We all have very busy lives so they don't know how badly i have been feeling. I do have one coworker with PS arthritis but I don't have the rashes that she has. She says its time for me to move on to a new Rheumy. Hopefullu I hope someday I can help someone else as you'll have helped me.
NanMac
 

mhicks
Regular Member


Date Joined May 2007
Total Posts : 20
   Posted 5/15/2007 9:59 PM (GMT -7)   
Hi , I saw your post regarding prednisone. I used to take it for an internal disease. I quit it cold turkey and found out later I could have had a heart attack . In the long run the pred destroys joints. Have you tryed fish oil? It is phenomenol for inflamation, pain, and depression to name a few. I play tennis alot and something else that really helped is Himalayan Goji Juice. Take Care, Marty 

Keah
Veteran Member


Date Joined Nov 2003
Total Posts : 7314
   Posted 5/27/2007 11:45 PM (GMT -7)   
Hi NanMac, Has your Doc discussed other treatment options? I'm on pred now, but I've also started Humira. It hasn't gotten me into remission yet, but I've had great improvements in my joint pain.

Are you a condidate for Remicade, Humira or EnbreL? Many people find these meds sufficient to control their arthritis and have been able to taper off pred once they get settled onto the anti-TNFs.

I'd get back to the Rheumy now that you're off the pred and if his only idea to get you relief is more pred, I'd seek another opinion. Your friend might just be right. Your Doc is there to help you find the best treatment option and long term steroids is not really revommended. There are other meds to try and I hope you find what works best for you soon.
Keah a.k.a. Wormy
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NanMac
Regular Member


Date Joined Mar 2007
Total Posts : 71
   Posted 5/29/2007 7:30 AM (GMT -7)   
Finally my Rheumy believes that I am feeling so badly. I went in on Tuesday having a terrible and visiable flare. Having weaqned of Pred. He ordered a bone scan, MRI and CT scan which I had on Thursday. I go see him next Thursday for results. I will see what happens. Currently he prescribed Percocet and back on Pred. The Percocet makes me sick and the pred.
Nancy

Ducky
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Date Joined Mar 2005
Total Posts : 3199
   Posted 5/29/2007 8:56 PM (GMT -7)   
Hey there Nance.. what time is your appt on Thursday? Keep us posted!
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
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NanMac
Regular Member


Date Joined Mar 2007
Total Posts : 71
   Posted 5/30/2007 7:47 AM (GMT -7)   
Ducky,
I have a 7:40 am appt. I am alittle nervous. Right after I have to get back to work. Let you'll know what happens. I probably will have some ???? that you'll can help me with. Thank for your support!
NanMac
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