Still in alot of pain here...

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reresunshine
Regular Member


Date Joined May 2007
Total Posts : 24
   Posted 5/20/2007 7:06 AM (GMT -7)   
I was diagnosed with osteoarthritis in my shoulder about a month ago. I have been having alot of pain all along the shoulder area, neck and down my arm. I went to the ER and they took an xray that showed I had some swelling in the joints in the shoulder thus the osteoarthritis diagnosis. I was put on Celebrex200mgX2 and some days I get relief but some days I just sit and cry from the pain. It is so intense! Lately I have been hearing a "popping" sound when I move in there. I told this to the doctor in the ER and he said the shoulder showed no signs of dislocation at all. So my question is this, why am I hearing this popping sound and why am I getting little or no relief after taking the Celebrex? Some days I wish I could just cut my arm off that's how intense the pain gets. Its a constant ache really. Any suggestions would be appreciated.
 
Thanks,
Annmarie
 "Sow a thought, and you will reap an act,
  Sow an act, and you will reap a habit,
  Sow a habit, and you will reap a plus character,
  Sow a character,and my dear you will have reaped a
  God appointed destiny!!!!
 
Diag. Type II Diabetes, Osteoarthritis, Glipizide 10mg.X2 Celebrex200mg Accupril 20mg. also permanent ileostomy since 1981
 


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 5/20/2007 7:21 AM (GMT -7)   
Hey Annmarie.. I'm not sure if I've welcomed you to Healingwell yet, I have been a little out of it lately, so if I already have, please forgive me, and if I haven't.. WELCOME TO HEALING WELL! :) So sorry it ha to be under these circumstances. Have you been to a rheumy? Or is your GP handling your Arthritis issues? Can you take NSAIDS? If you can, Aleve may help, or Motrin with the pain and swelling... I believe the popping you hear (Erin, please correct me if I'm wrong) is the fluid moving around within your joints.. How long have you been on the Celebrex? Hang in there Annmarie, I know you're hurting, but we'll get ya through this.. take good care..

Duck
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


reresunshine
Regular Member


Date Joined May 2007
Total Posts : 24
   Posted 5/20/2007 8:42 AM (GMT -7)   
Thank you for your quick reply and welcome. I only got diagnosed about a month ago. My GP is handling this so far. I am also Diabetic and on Glipizide and also high bp and on Accupril so I am not sure about taking the Motrin/Aleve. I am one of those folks who doesn't like to take pills if I don't know or am unsure about them. I just know the pain is intense and sometimes I just want to scream. My mother never told me it would be like this once you are over 50!!!! LOL Who said aging gracefully was nice? I want to shoot them! jkidding  but really I would appreciate any info you can give me to somehow ease this pain.
 
Annmarie
 "Sow a thought, and you will reap an act,
  Sow an act, and you will reap a habit,
  Sow a habit, and you will reap a plus character,
  Sow a character,and my dear you will have reaped a
  God appointed destiny!!!!
 
Diag. Type II Diabetes, Osteoarthritis, Glipizide 10mg.X2 Celebrex200mg Accupril 20mg. also permanent ileostomy since 1981
 


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 5/20/2007 12:31 PM (GMT -7)   
Hey there.. Usually the docs will prescribe some type of anti-inflammatory to help with the swelling and pain.. that's where the Motrin or aleve comes in.. Or the doc may prescribe something stronger, and that can be Voltaren, Feldene, Mobic, etc stuff like that.. they are all NSAIDS but some people cannot tolerate those type of meds, 'cause it is rough on your stomach, so some will use just regular Tylenol. So you have only been on the Celebrex for a month? When do you go back to see the doc? I know with some meds, it takes a while for you to feel the effects.. I have never been on Celebrex, so I can't really say, so sorry.. You may want to try heat and ice though.. If the area is hot to the touch and swollen, use ice.. You can actually alternate between the two, and it may help you out a bit.. I know I have ice packs that I use on a regular basis.. And I like to sit in a nice hot bath, soooo relaxing! Hang in there..
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


babyplace
Regular Member


Date Joined May 2007
Total Posts : 499
   Posted 5/21/2007 6:39 AM (GMT -7)   
Hi there,
Hope you are feeling better! I have been taking Celebrex for a couple of months now, but it did take a bit for it to kick in. The doctor told me it was ok to take Tylenol with it, and I got some of the arthrtis strength type that lasts 8 hours. It really helped me, have you tried that? Know what you mean about being nervous about the meds, I called my pharmsist ALOT asking her about interactions, side effects, etc...it can be pretty scary. But the people on this site have helped me so much, they are great.

reresunshine
Regular Member


Date Joined May 2007
Total Posts : 24
   Posted 5/21/2007 7:00 AM (GMT -7)   

Thanks Baby,

  I will try some Tylenol arthritis strength and see if it works. I know with any sort of med it does take some time to kick in. But people do get inpatient and want it to work PRONTO! Like me lol.

Its really funny some days it's okay pain wise and I can handle it, but some times its just GRRRRRR! Like today is a good day, not to hard to handle. I know its there yet it really doesn't pain me that much. Oh the joys of getting older! Gotta love it!

Thanks again,

Annmarie


 "Sow a thought, and you will reap an act,
  Sow an act, and you will reap a habit,
  Sow a habit, and you will reap a plus character,
  Sow a character,and my dear you will have reaped a
  God appointed destiny!!!!
 
Diag. Type II Diabetes, Osteoarthritis, Glipizide 10mg.X2 Celebrex200mg Accupril 20mg. also permanent ileostomy since 1981
 


babyplace
Regular Member


Date Joined May 2007
Total Posts : 499
   Posted 5/21/2007 7:11 AM (GMT -7)   
Hi again,
Hope the tylenol helps! You made me laugh with the "50" thing, I turn 50 in a few months, and have been thinking the same thing! Like I said before, all this an menopause too, how lucky can a girl get? Have you talked to your doc about going to a rhuematologist? I was in pain for quite a while, when it hit my shoulder, there were days I thought I would just die! But, once I got to the rhuematologist and they did the bloodwork. that's when they started putting it altogether. I tired several different meds before the Celebrex worked for me.
Hope you have more good days!

reresunshine
Regular Member


Date Joined May 2007
Total Posts : 24
   Posted 5/21/2007 7:43 AM (GMT -7)   

Hi again Baby,

 Glad I gave you a chuckle! But you know its so true. When you hit that certain age the mechanics of your body seem to got into breakdown mode! You get out of bed in the am and feel every creak and crack in your bones and just wonder...what the heck! Yes, love the menopause on top of all of this! Fortunately for me, I went thru it already since I had a partial hysterectomy when I was 38. I still have those lovely "hot flashes" every once in awhile but basically I think that last little ovary inside is probably done with. All shriveled up and dead. But alas, we still plug away and get thru our daily grind, don't we?

Hope you stay well,

Annmarie


 "Sow a thought, and you will reap an act,
  Sow an act, and you will reap a habit,
  Sow a habit, and you will reap a plus character,
  Sow a character,and my dear you will have reaped a
  God appointed destiny!!!!
 
Diag. Type II Diabetes, Osteoarthritis, Glipizide 10mg.X2 Celebrex200mg Accupril 20mg. also permanent ileostomy since 1981
 


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 5/22/2007 1:16 PM (GMT -7)   
hi annemarie,
oh i feel your pain!!!!!!  this touched me b/c i'm having very bad RA joint pain now in both shoulders (like, can't pull up my shorts or wipe my arse!).
i popped 400mg celebrex today too. plus 2G of Tylenol PLUS a steroid and it's still quite unbearable.
i had my ma' stick on about 4 LidoDerm patches & it is helping a little but not much.
also have the heat pad on em'.
 
you really don't want strong pain meds?
 
like yourself...i was at the ER way too much w/ RA pain.  it's now in a catagory of "intractable pain" and unfortunately even high doses of morphine only make it "bearable".
DarvocetN100 worked very well for me for abou 4.5 years till i grew tolerant to it.
it does have a small opioid additive, plus tylenol....but it's not a drug that makes you loopy...so no need to worry much about that.  the 1st few doses might cause drowsiness...but i thought it was a great pain med overall.  i was able to sit through class & even carry out my nursing responsibilities @ the hospital even while taking them & they caused no "undesireable tiredness or a "high" so to speak"".
 
((((((((((((hugs to you))))))))))))))  i felt so badly when i read this. i do hope you get comfy soon. :-) :-) :-) :-) :-) :-) :-) :-) :-)
erin
Arthritis Forum Moderator & Co-Pilot
Active Severe Rheumatory Arthritis. AS. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Kidney Stones (oh joy). Previous Lymes Disease for 10 years.
Meds: Remicade infusions 600mg Q3weeks; Intra-articular knee injections; 6MP 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 20mgQD; Entocort 9mgQD; Meclizine; Augmentin; Tigan 300mg; Reglan; LidoDerm; Diazepam 5mg; Rozerem 8mg; Diclofenac; Celebrex; Percogesic; Dilaudid 4mg. 


babyplace
Regular Member


Date Joined May 2007
Total Posts : 499
   Posted 5/28/2007 6:05 AM (GMT -7)   
Hi there,
Saw your post on the dinner site, and it got me to wondering how you've been? Hope you are feeling better!!!

Keah
Veteran Member


Date Joined Nov 2003
Total Posts : 7314
   Posted 5/29/2007 12:32 PM (GMT -7)   
Annemarie, sorry I'm so late. I have similar problems with inflammation in my joints. In my case, the popping is actually the tendons, which are so inflammed that they pop as they move through the joint. In order to raise my right arm over my head, I almost have to twist my shoulder to accomodate that tendon. Although not a long term treatment, I have had some good success and relief from a cortisone injection into the shoulder. I won't lie, it's not painless, but for me, it's worth the little bit of pain to get several months of relief.

This is obviously something that your GP won't be able to do for you. You'll need either a Rheumy or Pain Mgmt Doc for it, but it's something you might want to consider. Of course we all find different things that work for our individual needs. This is just what has worked the best for me.

I hope you find an answer that works for you soon.
Keah a.k.a. Wormy
 God helps those who help themselves.
Please help us support this invaluable forum.
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The Bear
Regular Member


Date Joined Mar 2007
Total Posts : 364
   Posted 5/30/2007 2:39 AM (GMT -7)   
This may be a stoopid question as I am a bear of very little brain [like cousin Pooh] but when you have RA are the joints not responsive to replacement surgery as they are with OE? Or is it a cost thing in the US? I don't know of anybody here who has had knee/hip/shoulder replacemennt for RA s o it may be that. Any ideas Ducky/Keah/Erin? I'm just a big baby when it comes to shots - desperate to avoid 'em and I was led to believe that you can only have so much cortisone before that too becomes a problem like so many meds.
Good morning, I hope it stops raining.
The Bear

SnowyLynne
Veteran Member


Date Joined Apr 2004
Total Posts : 1539
   Posted 5/30/2007 5:54 AM (GMT -7)   
I have Osteo,& pop like rice crispies at times.Had Rotor cuff surgery a few years ago as my popping was from that.The pain was awful.But am ok now,though I still have pain I just use Tylenol extra strength as needed.I do not do pain meds.
SnowyLynne


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 5/30/2007 9:34 AM (GMT -7)   
hey Bear!
good point! of course, if an RA patient's joints are destroyed (knees usually) from inflammation & the cartilage is cuhput...knee replacement surgery is absolutely a good solution. personally i do know of a young man who has had his hand joints all replaced due to RA disease process.
the thing is...with rheumatoid arthritis, it is sooooo different from osteo-arthritis. with RA it's a total body disease...with the heart, lungs, muscles, eyes, other organs and also many of the soft tissues & conective tissues that are effected by RA. so basically...it's a multisystem disease not exclusive to the joints alone.

i have wondered myself if I get a knee replacement....would my body "attack" the artificial joint? i dunno!?!? i mean, if there's no joint there? then what's there to attack?

much of the time...people with RA STILL HAVE joint cartilage....it's just that it's constantly being attacked.

i would like a total body replacement for christmas if indeed joint replacement works....LOL.

what stinks over here in the states...is that docs a lot of times "frown" upon joint replacement surgeries until a person is of at least late 40's & 50 year old (due to having to go through 2 or 3 more surgeries in a lifetime). i would like one tomorrow!
ciao ciao
erin
Arthritis Forum Moderator & Co-Pilot
Active Severe Rheumatory Arthritis. AS. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Kidney Stones (oh joy). Previous Lymes Disease for 10 years.
Meds: Remicade infusions 600mg Q3weeks; Intra-articular knee injections; 6MP 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 20mgQD; Entocort 9mgQD; Meclizine; Augmentin; Tigan 300mg; Reglan; LidoDerm; Diazepam 5mg; Rozerem 8mg; Diclofenac; Celebrex; Percogesic; Dilaudid 4mg. 


The Bear
Regular Member


Date Joined Mar 2007
Total Posts : 364
   Posted 5/30/2007 12:30 PM (GMT -7)   
Thanks for that info Erin, as usual, very ifnformative. I've already started on the body part replacement - half a knee, total hip and soon another hip. Verything will go well until post opwhen the smart arse of an orthopod will say something like 'we've replaced the knee Mr bear.what? t wasn't your knee?
I've had enough of young children tellng me this - or so thy seem to me. I tell myself 'humour them , they make you better!"
Stay well one ad all
The Bear

shante
New Member


Date Joined May 2007
Total Posts : 2
   Posted 5/31/2007 9:06 AM (GMT -7)   
Bear,
 
Hello.  I am also suffering with RA.  I am 33 and in desperate need of a knee replacement.  My ortho did not want to do the surgery because of my age until he saw my MRI himself.  Now that he is willing to do it because replacement fluid, and cortisone injections have not helped, I am a little concerned about the pain and length of time for recovery.  I noticed that you have had some replacements and was wondering if you could elaborate on how the process was for you. 
 
Thank You,
Shante

The Bear
Regular Member


Date Joined Mar 2007
Total Posts : 364
   Posted 6/3/2007 1:31 AM (GMT -7)   
OOOOOOOOOOOOOooo someone's asked me a question that I actuall y know something about.
She's in for it now eh Erin? [I assume it is a she ?????]
Okay knee replacment. History: My knee was goosed down one side caused originally through a really bad ligament sports injury playing soccer n 74 when I was 24. It wasn't until 1982 that I had one of the first ligament replacement ops using carbon fibre. This was a great success and I even went back to doing some non-contact sport. However, the years of the kne constantly slipping out of place took it's toll and throughout the 90's I needed a number of 'cleanout' arrthroscopies until the orthopod said 'you knees a mess you need a replacement but not until you are 55]. I was then 49! When I was 51 [in 02]  and with a different orthopod and with the advent of the web I looked up new surgical techniques and found a process called unicompartmental relpacement therapy. Instead of replacing the knee joint lock stock and barrel they replace only those parts of the knee that are degraded and as such doesn't kneed [oops] the bone shaving that radical total replacement involves [each time they replace you knee there is some bone shaving done to allow clean adhesion of the new joint hence you can only have two or three knee joints as after more, you walk with a limp due to excessive shaving causing one leg to end up slightly shorter than the other] . The main reason for joint breakdown s the degrading of the cement causing loosening of the joint needing further surgery. 
 
Where are we? Oh yes. Not all knees are receptive to unicompartmental but for me it was the bees knees. However the years of walking with a limp had taken tis toll on the hip joints and 2 years ago I had a ttal hip replaceement right side.
 
Generally speaking, in the UK there are different types off hip replacement including 'skimming' the existing bone to smooth it out.  a normal metal replacement unit takes much less time to recover from than say a knee because of all sorts of reasons not least its an articulated joint. Basically they cut the head of the femur off and put a metal spike in with a new head on and even replce he socket if necessary. Backat work 4-6weeks depending  on aftercare but they get you on you feet 48 hour post op.
 
However: my hip joint was done at a specalist orthopaedic hospital and because of my age in 05 [54] and the theory that I had a full working life ahead of me I was offered cad cam design. The joint is specially made by computer aided design and manufacture out of ceramics.  This joint is not cemented in relying instead on the natural adhesion of the ceramic joint to the bone and so precluding cementation breakdown. In theory this means the new joint should last a lifetime. The recovery time is however much longer as you are off you feet for the first 6-8 weeks after the op. I was off work for nearly 5 months. It wa during this time that I was formally dx with pd.
 
The hip is a gem and I now need the other one doing not before time - pain and ability to walk an issue . 
Cost: my op was free bcause of the nhs here but it would have cost me $40000 on current exchange rates
 
As you can gather this is not medical text books here - info is as assed on to me at the time by docs involved etc.
 
I was in hospitl 5 days foro the knee and 8 days for the hip. Off work 3 months knee and nearly 5 months hip. 
 
Obviously I don't know what methods are used in US  but cadcam is the methodd sans cementation so once in it should stay in.
 
Okay can I go back to my milk and cookies now because us bears just love milk and cookies nuts and berries are so yesterday.
 
The Bear  
 
 
 
 
 
 
 
 
 

Boo
Veteran Member


Date Joined May 2004
Total Posts : 724
   Posted 6/3/2007 5:09 AM (GMT -7)   
Bear can sure weave a great story. And a true one at that. You have a lot of experience in this area and I will remember that in the future.
Reresunshine, welcome and know I'm sending hugs your way. What misery! I hope you get some relief soon. I've had days when I too couldn't move a certain joint without crying. Once I had some kind of inflammation in my neck, went down my shoulder, couldn't move. Spent a week in the recliner after seeing ortho, who said to "give it time". A week was enough. I woke him up on a Sunday night along with my pharmacist. He gave me a pain script, muscle relaxer, and sleeping pills. Guess he wanted to shut me up as I was in a state at that point. I did get some rest and finally the inflammation subsided (after I had to withdraw from college courses). I hate taking pain meds but I was going crazy with pain. Kids were still home in those days and it was rough.
Do any of you ever watch the re-runs of Saturday Night Live? Sometimes I look like Cheri Oteri when she's in the skit where she's trying to fill a bogus script at her pharmacy. I've never had to stay on pain meds for very long but when you need 'em, you need 'em. Don't have any in house even but doc made the mistake of giving me his cell #. I used to work in the ER and there were folks who came in a lot and just wanted pain meds. Then there are the folks like us who really need the relief because of our disease.
I hope you start feeling better soon, Rere. We're here for ya. Boo
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