FROZEN SHOULDER (ADHESIVE CAPSULITIS)

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yalinda
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Date Joined May 2006
Total Posts : 1179
   Posted 5/30/2007 5:22 PM (GMT -7)   
ok folks been seen by yet another specialist for the shoulder problem and i am having an MRI tomorrow to rule out torn rotator cuff but the orthopedic surgeon thinks i have FROZEN SHOULDER (ADHESIVE CAPSULITIS)
 
rhuemmy kept telling me it was due to the inflammation and would take time to return to normal but never put a name to it so after almost three months of not being able to move my right arm and shoulder and let me tell u adl's are hard to do with only one arm. i have been now given this as the most likely cause of my problemsby the ortho i saw today.
 
  i think the rhuemmy thought this too just never called it by the name as he said someday i would need therapy. i wondered why not now ....i now know it is because if still in the freezing phase it wont work!
 
i should know for certain soon enough but the doc told me to look online and yes i have all the symptoms and cause can be inflammation but treatment and time for recovery suck pardon my language but if this is true i am still in the freezing phase cant have therapy til the frozen and thawing phases and this could last for up to 3 years!!!!!!!!!!!!!!!!!!!!   wt*?!
 
i almost hope rotator cuff it is! 
so i am looking to see if anyone has delt with this and any positive information you could share..... tongue
 
heres hoping i can do this again soon???? yeah yeah yeah yeah yeah
thanks for ur support as always my dear friends

elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 5/31/2007 7:29 AM (GMT -7)   

Hey Yalinda,

I don't have much info to share about frozen shoulder syndrome, but I have heard that it is extremely painful.  Sorry to hear this is what you may have.  I've also read, though, that it can be completely cured--but as you know, it takes some time.  Hope you get some kind of relief in the meantime.  I doubt whether you would want to do physical therapy at this point anyway--it would probably be too painful and not very productive.

Elcamino


Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan


babyplace
Regular Member


Date Joined May 2007
Total Posts : 499
   Posted 5/31/2007 10:51 AM (GMT -7)   
HI Yalinda,
I don't know anything about frozen shoulders just wanted to check in and say HI! Been missin your posts, hope your tests go well today. I'm so sorry you've been having such a bad time of it. Let a message for you on the dinner thread, asking you how you do the grilled salmon on cedar...sounds so good!
Take care

Ducky
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Date Joined Mar 2005
Total Posts : 3199
   Posted 6/1/2007 6:33 AM (GMT -7)   
Hey Yalinda.. how'd everything go?
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


yalinda
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Date Joined May 2006
Total Posts : 1179
   Posted 6/1/2007 3:05 PM (GMT -7)   
hey everyone thanks for the support. i guess this means if i have fozen shoulder i can give you the cold shoulder lol lol lol i think i am watching house too much! lol i just love his sarcastic humor!

i am doing fine had the mri and am waiting to hear results. mean while i am going with the pretense that i have this thing and it will be with me for a while......... so forgive me if i give anyone the cold shoulder! lol

yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 6/22/2007 8:05 AM (GMT -7)   
well my worst fear came true this morning and i had a break down in the doctors office~ but i am ok now..... i think? eyes
 
seems it is definetly frozen shoulder caused from the RA...... seems the uncontrolled imflammation created severe scaring at my joint.  it will be 1-2 years of shear hell for me but i got 4 months already under my belt so let the count down begin.  i will be starting PT 3 times a week to break through the scar tissue.  the doc said if he surgically goes in he literally has to crack and hear the cracks of the rippin scar tissue, lovely.  but he wants me to do it on my own first.  i hope i can endure what the good Lord thinks i can.  i havent vented tons on all my pain i have it but not having a functional left arm in about a level 7 constant pain for years to come is a bit overwhelming.  but i will take it day by day have pitty parties smurf when needed and apprecate what i do have that is good daily.  so for now me and my adhesive capsulitis will try to unglue as quickly as possible.    oh fyi when i give yu all hugs they are one arm hugs lol 
 
me in therapy yeah yeah yeah yeah yeah yeah yeah yeah yeah yeah yeah yeah yeah yeah yeah yeah yeah yeah yeah yeah yeah yeah yeah
 
hugs and thanks for letting me vent  yalinda

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 6/22/2007 8:41 AM (GMT -7)   
Oh no Yalinda.. Sometimes breaking down in the doctor's office is just what we need though.. A lot of times docs think we're better than we truly are 'cause we try to mask pain/frustration..

How long are you going to have to do the PT? Does he think that he'll still have to do the surgery? Hang in there.. vent away, and know we are here for you!

Love ya!
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 6/22/2007 9:02 AM (GMT -7)   
a great big ol' 1 arm hug to you Yalin from me!  :-) (my right sholder is out...but that's due to "trying to play catch" w/ nephew)
eeks...it is hard to use only 1 appendage ain't it?
 
Yalin...i'm not worried about you. you are greater than you think you are and i know that you'll get through this.
 
don't think about how many years or pain or suffering...you're gonna get well equipped, get back up pain meds, you'll have a PT...and us of course.  it'll be seen that you get through it.
 
so wow...via MRI scar tissue was visible? 
ain't that somethin'.
 
you are in my thoughts & prayers always...
 
hey...did your doc say "why" that shoulder????????
are you left handed? was there an old injury there?  i'm curious to know how this develops.
 
so...at your leisure...(and i mean when you are able to write...i don't care when, it can be 4 days or 4 years from now) if you were able to pick that docs brain about this, i'd like to know the pathophysiology of it.
and...do you have this scarring anywhere else?
 
great big hugs
:-)   :-) :-) :-) :-) :-) :-) :-) :-) :-)

yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 6/22/2007 8:59 PM (GMT -7)   
thanks ducky and erin..... yep the doc explained but i will bore u instead with internet info to best explain but in a nut shell, he said "like it isnt bad enough you suffer from the pains of RA - it has to do this to u yet on top of everything else" he was really felt bad and said most people who get this become just miserable because of the long term intense pain..... i hope not to become on of them :) so here is the tech info......
Causes of Frozen Shoulder?
This type of condition appears more commonly in people with diabetes, chronic (longterm) inflammatory arthritis of the shoulder or after chest or breast surgery. If the shoulder has been immobilized for a long period of time, adhesive capsulitis could develop as a result.

Some doctors believe that the condition could also develop as a result of an autoimmune reaction. The body thinks it is under attack during an autoimmune reaction and will start to attack parts of itself causing an inflammatory reaction in the tissues. As a result, the shoulder can lose its range of motion and adhesive capsulitis will form.

Adhesive capsulitis causes scar tissue to form in the shoulder region. The condition usually goes through various stages until it is treated. In the beginning, the shoulder may feel stiff and ache and gradually become very painful. This stage can last up to eight months. The second stage is referred to as the adhesive stage and it is when the shoulder becomes even stiffer. This stage usually lasts 4 to 6 months and is generally less painful than the first stage. The final stage lasts about one to three months. At this time, it usually becomes easier to move the shoulder. Pain may exist still and you won’t get the full range of motion back with treatment.
Treatments of Frozen Shoulder?
Successful treatment of adhesive capsulitis include the following three elements:
Anti-inflammatory drugs
Cortisone injections to the shoulder
Physical therapy

Anti-inflammatory drugs and cortisone injections reduce the inflammation of the shoulder allowing the shoulder to be more easily stretched. Physical therapy is essential because it helps regain the range of motion in the shoulder.

Treatment can be a long process. Initial treatment is aimed at reducing inflammation and pain and increasing the range of motion of the shoulder. Exercise is a very important part of the treatment. The exercises will help break up the scar tissue in the shoulder and should be done twice a day. Your doctor or physical therapist will show you what kind of exercises should be performed. Since the exercises may be painful, using ice packs afterwards may help. As with all exercises, you should warm up before attempting to do them.

If treatment is stalled, your doctor may suggest a manipulation of the shoulder while you are under anesthesia. During a manipulation, your doctor reduces or breaks up the scar tissue in the shoulder and stretches the shoulder joint. This procedure can speed up the healing process and may be repeated if necessary. However, there is a small chance the arm bone may break during this procedure. It is very important to properly exercise the shoulder after a manipulation so that mobility is returned.

Arthroscopic surgery may also help break up the scar tissue. This procedure is done on an outpatient basis. A camera is inserted through a small incision allowing the doctor to access the damage to the joint and, at the same time, aid in the healing process.

so that is it in a nut shell. i wouldnt wish this on my worst enemy and i dont think i have any so that is good! :) it is my left arm which is good cuz i am right handed, but i sure do my OT stuff with all my ADLs if u know what i mean! ugh.......... thanks to all again hugs yalin

yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 6/23/2007 5:44 AM (GMT -7)   
ok everyone, i could use some further loritab 101........
first i am onthe generic version which is hydrocodone/apap  7.5/500
now i am guessing the 500 is the apap which is like a basic tylenol- harmless.
but my reaction must have come from the hydrocodone 7.5
 
my ortho told me i could take up to 6 pills a day every 4 hours if needed.  i told him i just needed bed time to sleep.  he advised me to start with 1 pill and build up top 2 at bedtime if needed.
 
well i was shopping up a storm yesterday andby 6pm i was in severe pain could barely move so i had stopped at the pharm and got the rx so i took the loritab.  i told my mom i had a great buzz from it and actually enjoyed it?  sry but it felt harmless and yes pain or buzz honestly buzz was nice. 
well bedtime came at midnight and i figured the pill had worn off and to get agood nice rest i would take another.  it had been 6 hours?!  ok that is when i last posted but boy did i get a high.  beyond a buzz.  almost to the spinning not good phase.  powerful sh**! 
now i am a light weight pepes havent had a drink in 18 months and never got into the natural stuff in bears forest (JustJoking) either.  i know i am shelterd but that aside.........
i woke up at 6 and i was hung over big time. its 830 and my daughter graduates in a few hours and i have finally dragged my sorry- achey again- self out of bed.....
 
My ? is....... is that a large dose? or am i just pathetic?  bear i know ur answer lol tongue
 
thanks for any input  hugs to u all.........  and today is graduation day whoohoo tongue
 
ps daughter is 25/468 in class 96.9 GPA for 4 years with 2 scholarships graduating with all types of honors and rewards so it will be a happy and proud day! sry for the boast redface
 

The Bear
Regular Member


Date Joined Mar 2007
Total Posts : 364
   Posted 6/23/2007 7:07 AM (GMT -7)   
Boast away yalinda - my, I'd be boasting f the ear cub got anywhere near those type of grrades. The kids refelct their parents in many ways and I know it's not a consolation but t may enable you to take your mind off the paiin for just a little while yeah and say 'you're not going to ruin my day'. Well done Yally. I cannot imagine whatyou are gong through really, all I can do is sedn hugs, try and empathise and try and put a smile on your face. Got any of that stuff to spare??? devil devil devil
 
I thought a frozen shoulder was just that. So stiff you cannot use it but what do I know. Smeg all it would appear. Enjoy the prom.
 
The bear
 
 

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 6/24/2007 8:55 AM (GMT -7)   
sad  oh my poor dear mommy yallie! {i am kinda' diggin' Yally over Yalin' tongue }
do we need to FedEx nurse erin to NY for the summer to be your nurse maid?  cuz i'd do it!  and you know it.
 
hmmm?  ok, it doesn't sound like you had an allergic reaction or a severe adverse reaction from the hydrocodone.
did ya have anything is your stomach when you took it?
given it will work better & faster on an empty stomach....but it WILL cause more vertigo, nausea, dizziness, spinniness (heeheeheee) and a really loopy high feeling.
much of which can be avoided with a little carbohydrates or a small snack.
 
that or you just hit a point where it acted as an a**kicker you know?  if you're not constantly throwing down opiates and you take a little more than normal...it's expected that may happen {thus the "DO NOT OPERATE HEAVY MACHINERY" warnings}
 
i mean, go figure....morphine & dilaudid i can use no sweat....but percocet for some reason causes me to get really dizzy, nauseous & too loopy.
 
good luck w/ the meds again.  i'd give em' another try but perhaps after a small snack or something.
 
{{{{{{{{{{{{{{{hugs}}}}}}}}}}}}}}}}}} 

yalinda
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Date Joined May 2006
Total Posts : 1179
   Posted 6/24/2007 3:28 PM (GMT -7)   
i am done with the loopy feeling. i start PT monday evening i will let u know how that goes too! i hope he is strong and cute!!!!!!!! it will suck if it is a she like me...... always better to work for a hunk of a man :)
yally- per request

yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 6/25/2007 6:26 PM (GMT -7)   
well seems my tall dark and handsome PT kicked me out of therapy! yep! and yes bear i know u been kicked out of worse places but they conferenced my case after an hour long exam and said i was in a major inflammatory flare and they wouldnt touch me right now. they said i have to get the inflammation undercontrol first.... like i can if i tried?! i also am what they referrred to as severly limited in my ROM. duh! i cant put my own hand in my poket let alone grab and reach something..... but i am ok. disappointed and this is one more thing that makes this ride harder to deny cuz u know i still do not accept i have RA! lol hey denial is fun and u dont get depressed!

so no hot therapists moving my arms for now.......... seems the rhuemmy knew this all along but i looked at the ortho for a cure. hey cnat blame a girl for trying.... or crying......

babyplace
Regular Member


Date Joined May 2007
Total Posts : 499
   Posted 6/27/2007 2:57 PM (GMT -7)   
hey yalinda,
just got back from my trip and was doing a little catchng on the computer. So so sorry you have to go through all of this!!! How are you feeling today? I think we do need some sort of rehab central were we could help take care of each other....Wouldn't that be great?
How was graduation? Hope all went well, you must be so proud of your girl and you sure should be....we need to hear about good kids like that more!! Too much bad stuff out there. You deserve to be loud and proud! What are her plans now?
Hugs to you!!
Jody

yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 6/27/2007 5:08 PM (GMT -7)   
hi jody, thanks for the hugs. i need them today. ithink i amgoing back onprednisone soon. gonna callthe rhuemmy i just cant take this pain much longer. but with that said....... life is goreat otherwise :)

my daughter is leaving me moving to boston. she wants to grow up and do research on the brain. i think she is trying to figure her mom out lol...... how was ur trip? all go well? i look on moanin for a update :) hugs back at u! yalinda aka yally lol

terbear
New Member


Date Joined Jun 2007
Total Posts : 8
   Posted 6/29/2007 9:07 PM (GMT -7)   
Yalinda I just went to an Orthopedic 2 days ago and my diagnosis is Frozen Shoulder. I have had this for 10 months now and in the left shoulder. Lucky for me I am right handed too! I had Breast Surgery in August of 2006 and this is what caused mine. The pain is like nothing I've ever experienced and it really does wear on you. I too can't handle the PT as of yet. I went 2 different times for about 3 sessions and that was it, my pain was over the top.
My doc said play the wait game or have surgery. Surgery woud require scoping it and breaking up the scar tissue. 6 weeks of recovery and more pain after Breast Surgery recovery is a bit more than I am willing to do right now. Guess I am going to live with the 1 armed life for a bit longer.

I just wanted to let you know that I can relate and good luck with your shoulder.

Ter

terbear
New Member


Date Joined Jun 2007
Total Posts : 8
   Posted 6/29/2007 9:09 PM (GMT -7)   
oops i didn't mean to send the wink...i'm new at this.

yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 6/30/2007 4:52 AM (GMT -7)   
ter, thank you so very much for ur post!!!!!!!
i just needed to know someone else out there goign through this intense pain.  i am so sry to hear it has been ten months! gosh i have hasd mine since like feb. and i just want it to go away!  how much movement do you have???  i can barely separate the arm from my side. when i do the intense pain just holds on.  and sleeping ugh.  if it hangs our of line in any direction i wake up with a sharp pull pain.  i find it best with it supported lying on my back but that is not my usual sleep pattern so if i turn ouch!
what has helped u????? any treatments or meds? i was told i have to get the inflammation under control before i can get PT. has yours continued to get worse or any better over the past ten months.  do u have RA? 
now i do not know if u r a guy or gal(guys have breast surgery too) but i have found a method the shave my lovley arm pit which i soooooooooooo took for granted. lol very loud! i float my arm in the tub and the water density holds my arm apart! and i dress my left arm first and undress my right. can u reach the streering wheel ok???? i can if i push beyond comfort so i basically drive one handed.so many task daily i have to rethink how to do. ironically i am an OT by trade and use to do this for peps all the time. 
i hope i havent overwhelmed you with ?'s but i have so many and thus far havent found a sole out there with this dang same shoulder.  i wish you healing and comfort and thank you so much for your post!  oh my kids laugh at me always cuz i gues i am an unconscious winker so go ahead wink! lol  tongue   
i'll send my trademark one arm hug * hugs)))))))))))
yalinda

Jemima Puddleduck
Regular Member


Date Joined Oct 2006
Total Posts : 41
   Posted 6/30/2007 8:22 AM (GMT -7)   

Hey Yalin,

I know where you're coming from. I've had frozen shoulder in both shoulders, thank goodness not at the same time though! It's quite a few years ago now but I still remember it well. Left shoulder happened after I had surgery...what they did to my arm is beyond me but soon afterwards my shoulder froze up. They pretty much had me going for therapy right away and it was excruciating. I did therapy for six weeks. One cortisone shot not only did nothing for the pain but made the pain worse...ran all the way down my arm after that shot. Second shot a week later took the radiating pain down my arm away but did nothing for my shoulder. I had a prescription for NAPROSYN and I don't think it made a blind bit of difference. I basically had to grin & bear it. I slept with pillows under arm. I did the exercises at home but overall it just seemed to be a matter of time and it got better over a period of a year. Putting a bra on was a bear...would hook it from front, slide it around but getting the arm through the strap...even thinking about it now makes me cringe.

The right shoulder froze up about six years later...I didn't bother going to Dr. I just kept moving it as much as possible. I'm right handed so it was a b***h, especially in the bathroom, if you get my drift. Pure agony. I just used OTC pain reliever and over a period of about a year it unfroze. I did the ROM exercises that had been prescribed the first time. You have to keep moving, I know it's hard. I have two sisters that also suffered from this, one of them had the manipulation under anesthesia the other had PT. The manipulated one was better a lot faster than my other sister or myself. I found it rather bizzare that we all suffered from this ailment.

My ROM after all these years isn't the best but I can raise my arms over my head and put my arms behind my back. Sorry that mine isn't a happy tale.  sad   I hope you have better success and a speedy recovery.

Take care, hang in there girl!

-Jem


terbear
New Member


Date Joined Jun 2007
Total Posts : 8
   Posted 6/30/2007 10:05 AM (GMT -7)   
Yalinda,

Thanks for the response and no you didn't overwhelm me with questions. In my original post I claified that I was a female but I think that they did an edit on it. Not sure why-I have a either way name. Anyway, I can relate to the post about getting the bra on. What an impossible task that is. I bought some snap in the front and I do the button in front and then slide around.
No I don't have RA but my sister in law does. I Google search and it brough me to this forum. Not sure how others feel about Frozen Shoulder talk with this forum but maybe the administrator wil clarify if that's a problem.
I have only used OTC anti-inflam. drugs. It helps with pain if I have over done it. Noting can touch the pain you get when you go beyond you range. Thanks for the tip on armpit shaving, I just grin and bear it when I shave.
The steering wheel is very difficult since I have short arms and the car I drive has been giving bad ratings due to the steering wheel being so far away. I don't the 1 armed driving everyday.
Physical therapy is out of the question for me right now but I have been doing some at home. Putting your knee on the couch and letting your arm dangle and using your body to let it swing in circles seems to loosen it..
As far as improvement I would say it has improved by 5% in the last 2 weeks, think it was a fall I had. I'm serious, I fell going up some stairs and when I streched my arms out to catch myself from smacking my face I pull the arm beyond it's capacity and I let out a scream that no one heard. Once I got up and it setteled down I noticed a slight difference. Now, I don't think you should go out and try this....lol!!!
Last note my doc said that the minipulation under anesteia is a very risky thing, shoulders get broken. He said he quit doing that surgery in the 80's....I'm thinking he may have broke one or two...yikes!
Have a good day and I hope I answered all the question you asked.
ter

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 6/30/2007 12:26 PM (GMT -7)   
hey there terbear.. I just checked your postings, and they have not been edited..
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


terbear
New Member


Date Joined Jun 2007
Total Posts : 8
   Posted 6/30/2007 1:07 PM (GMT -7)   
that's strange....thanks for confirming that I have really lost my mind!!! Pain will do that to a person.....LOL!!!!

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 7/1/2007 9:07 AM (GMT -7)   
oooh!  see!  you've got friends! yeah
this was unexpected!  so glad you got some fellow frozen shoulders. {not that i'm glad anyone has THAT...but you know what i mean}
 
:-)  glad to have you Ter!

terbear
New Member


Date Joined Jun 2007
Total Posts : 8
   Posted 7/1/2007 9:17 AM (GMT -7)   
Thanks Erin it's nice to talk with people who know the pain you're experiencing. Appreciate the welcome.
Have a great day...it's going to be 100 here today. I think my husband and I will be spending some time in the pool today.

Ter
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