Flares- Please help me understand this mess?!?!

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Hollynne
Regular Member


Date Joined Jun 2007
Total Posts : 25
   Posted 6/5/2007 8:40 PM (GMT -7)   
Hello Everyone,
      Although this is my first post, I've been hanging out and reading the posts and replies while crying with pain from swollen, throbbing wrists as well as shedding tears of empathy for the struggles and agonies each of you has gone through.  And..  I have learned so much.    I've had arthritis for years and joint pain and damage-  spine fusion in 2002, infamed elbows, shoulders, ankles, you name it since about 2001, had to have most all of the meniscus in my R knee removed in October, and just last week my orthopedic doc gives me the RA Dx.   Ironically, this flare, if that is what I am experiencing, came on within 48 hours of that Dr visit.  I have several questions/ comments that I would really appreciate your input on:
   After the Dx on Wednesday, my 16 yo dog fell down the steps (again) and we knew it was time to put her down.  I've been an emotional wreck for months but Britt's death sent me into a real tailspin.  I cried day and night and was (still am,  actually) grieving her death terribly.  The day I pit her down was worse and in truth it was a long time since I fell apart to that degree.  Less than 24 hours later my both wrists were hot, painful as heck, throbbing, stiff and weak.  That was 4 days ago and each day has gotten WORSE.   I am on vicoden and I even altrernate it with vicoprofen and neither drug even touches the pain.  Ice helps a little and I feel like an ice gel-pack junkie.  I plan my day around the number of cold gel packs I have-  honest!  ANyway...  is this a FLARE??  Do flares come on without warning and escalate?  Is there anything like a typical duration time??  I can't even grip a coffee mug and getting dressed actually reduces me to tears.  Oddly, I can type so-so as my hands aren't that painful unless I try to support or lift something using my wrists.  Forget any motion like opening even an easy jar lid or putting my hair in a scrunchie! 
     The main reason for my terror over this new ailment is that I am an artist.  A muralist, actually, and I do faux finishes in plaster and paints.  I am also just about to begin a REALLY big mural for a two story foyer even though I can't even grip a paintbrush or open a tube of paint.  My jobs are comissioned/ contracted.  I *have* to deliver on this mural even if I have to paint it holding a brush in my teeth.  
    I do understand that each person has different types of flare ups, I guess I am just trying to compare the 'norm' to what I am experiencing...  you know?    I just was blindsided by this sudden flare up-  I don't see a rheumatologist for another 2 weeks and my PCP is on vacation.  THat leaves my ortho doc and basically pain pills and injections.  Cortisone injections helped a lot in my knee, elbow and shoulder....  would they help the swollen throbbing wrists? 
     Thanks in advance for your replies-  your openess and experience are priceless!
 
God Bless,
Holly in PA
 
 

curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 6/5/2007 9:57 PM (GMT -7)   
Holly Hi and Welcome,

I am so sorry to hear that you are having to go through all of this.If you don't mind me asking what meds are you for your RA other than the cortisone injections and the pain meds?

I want you to know that you are alone there are alot of people that are in the same shoes as you are.I have RA,OA,AS,and Crohns disease,so I live with alot of pain even though I take Humira.I was in a wheelchair at the time.It seemed like every meds we tryed nothing was helping with the joint pain that is untill I was put on Humira this med is what got me out of that wheelchair.

I would most deffenley (sp)say that you are in a flare and if it get's worse you may want to take a trip to the ER so that you can at least get some relief from the pain.What typ of pain meds are you on?There will be other's that will popin and remember that you are welcome any time.I hope that you get to feeling better soon.
Curley
.........
 


Hollynne
Regular Member


Date Joined Jun 2007
Total Posts : 25
   Posted 6/6/2007 1:59 AM (GMT -7)   
Thanks, Curley, for your reply!!
I was just got the RA diagnosis last week so I have not started with RA meds.  The ortho doc had mentioned RA before but I guess I wanted NOT to believe him....  I just kept going in every 2-3 weeks and begging for cortisone shots in the affected joint(s).   Right now I am waiting on more lab tests for all the standard stuff for RF, and the other RA indicative ones, as well as the ones to rule out lupus and a host of other connective disease/ disorders.
PREVIOUS Meds:
  1. oxycodone- I was so high my hubby tells me I was talking about raccoons driving white cars!  Never again!  (I think)
  2. cymbalta-  made my depressions WORSE if possible
  3. mobic-  might as well have taken sugar pills!
  4. celebrex-  had an allergic reaction due to the sulfa component.  I have allergies to most antibiotics. confused
  5. naproxen-  I had a bleeding ulcer in 2001 so I can't take any NSAID that might cause that to return....  well except for my begging for an occaional Rx for vicoprofen which helps a LITTLE more with pain than vicoden.

CURRENT MEDS:

  1. Prozac 20 mg qd
  2. Wellbutrin 75mg bd
  3. vicoden 10/325 up tp 2 tabs qid
  4. vicoprofen 7.5/325 one every 8 hours prn
  5. hydrochlorothiazide 50 mg qd
  6. glucosomine chondroitin with MSM 2000mg/1000mg combo,  2 tabs qd

All of the above taken with saltines to prevent nausea!  LOL confused

Now to my drug ALLERGIES:  (*sigh*)

  1. penecillin, amoxicillin-  all 'cillins'
  2. sulfa
  3. tetracyclines
  4. cephalosporins
  5. celebrex
  6. feathers and poultry related by products are  used to produce Supartz and after my insurance actually APPROVED those costly injections, my allergy to the feather/ poultry stuff prevented starting that treatment!  My ortho even called the company the day I was to receive my first treatment and it was a big NO GO.  I was so hoping, as was the ortho that Supartz would buy me time in place of a knee replacement.  LUcky me, eh?
  7. aspirin based/ ibuprofen based NSAIDs due to the bleeding ulcers

So..  that's a brief drug profile, past, present and 'never again' or allergic.

I woke up at 4 AM with pain, took the dogs- Dharma and Zeke, our NEW puppy of 2 days- outside, ate my saltines and I am heading back to TRY to sleep with my vicoprofen and ice gel packs.  Curley, I may JUST go to the ER today if things remain the same.  Maybe it's wishful thinking but my left hand seems to be a little tiny bit better-  or not...?  *shrug*

It's so nice to be able to come down to my office, log in the this forum and feel like I've done something positive by sharing (and complaining!LOL).  Thanks for being there!

God Bless,

Holly in PA


hunnybunny
Regular Member


Date Joined Jun 2007
Total Posts : 21
   Posted 6/6/2007 11:10 AM (GMT -7)   
Hi Holly, Pa  You just described a flare up of mine.  When I get overly tried or something major happens is when I get my major flare ups.  Usually my Dr. will give me a med pak for five days and then I continue on with the placqunil and motrin 800 mg twice a day.  The flare ups last about two weeks but with rest and swimming I usually can break the cycle.  Just remember it was overwork and depression that brought on your flare up.  Rest and the right meds should get you out of it.  When you see your Rhummy Doc it should help.  Hang in there.  Oh, and sorry for the silly name I use , but my grandbaby named me this and it always makes me smile.  Smiling helps!!!!

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 6/6/2007 4:24 PM (GMT -7)   
I second that!
welcome to HW hunnybunny!
Holly...a Medrol-dose pack or a course of prednisone JUST MIGHT help you more right now than the injections!
prednisone works a little more systemically than an injection into a joint or area of the body.
IV steroids are the cream of the crop however, LOL.
so yeah...perhaps some oral prednisone will help kick this in the butt!
the ortho doc could (and i don't see why he wouldn't...but as you described em'? hmmm?) RX some prednisone. i mean, it's a very potent antiinflammatory, it's an orthopeadic med for the most part...and if it WORKS it means that ya got somethin' inflammatory going on! {thus would aid in his definitive diagnoses}
oh i LOVE that you're an artist! can't wait to check out your site. i was a fine arts major at Marymount Manhattan College before i switched to nursing. i did archival framing & French Matting for 10 years as well. it's wonderful isn't it?
i actually got swooped up in medicine because of art!
i started taking Anatomy & Physiology classes to learn how to draw the human body better, LOL...then i caught the bio-bug! and it was all medicine & science then on in! it was a nice course of actions & i think the 2 worlds collide beautifully.

you take good care.
erin
Arthritis Forum Moderator & Co-Pilot
Active Severe Rheumatory Arthritis. AS. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Kidney Stones (oh joy). Previous Lymes Disease for 10 years.
Meds: Remicade infusions 600mg Q3weeks; Intra-articular knee injections; 6MP 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 20mgQD; Entocort 9mgQD; Meclizine; Augmentin; Tigan 300mg; Reglan; LidoDerm; Diazepam 5mg; Rozerem 8mg; Diclofenac; Celebrex; Percogesic; Dilaudid 4mg. 


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 6/7/2007 4:21 PM (GMT -7)   
holly OT- you do great work!!!!!! i love the squirrel on top of the door frame, everydetail down to his paw grip! wow and the faux finishes are incredible. i loved the site thanks for sharing. i painted a laundry line with clothes in my laundry room when i use to take tole painting up. drew a brain last night for the daughters science project lol thaks for sharing..... now back on topic...........

how r u today?????? any better? did u go to the rhuemmy? whtat he say?

MysteryB
New Member


Date Joined Jun 2007
Total Posts : 10
   Posted 6/7/2007 8:14 PM (GMT -7)   
I vote with the other posted who suggested Prednisone. I was on that for over a year before the other meds kicked in enough so I could function. Yeah, I gained a few pounds, whatever, it beats not working. Oddly enough I always managed to keyboard, even if it was just two fingers working, LOL! Hang in there and report back on how you are doing.

Charity F
Regular Member


Date Joined May 2007
Total Posts : 130
   Posted 6/11/2007 3:07 AM (GMT -7)   

Holly, Oh Holly! welcome honey! I'm fairly new here too. This board is the best!!!! for sure. We understand and with all our gathered knowledge it helps so much> Thank the Lord.

I'm so sorry for your phsical pain.. and for the loss of your beloved pet. I've lost a pet too and it's like losing a dear member of the family. I hope you find some peace in knowing your pet had a good life with you and you two will always be connected in love. LOVE bears all things I Corrinthians 13.

FLARE-UPS: What I call them too. I've tried to figure out an exact formula for what brings them on, but I can't. I mean at times, yes I can predict one; if I clean house a lot one day,e tc but then the very nature of CP is pain all the time: on a continuum of low>>>HIGH and n B tween.

I too take Vicodin, but my Dr only gives me 5/500's and I have to take 2 plus IBU's, etc. I add muscle relaxers, valiums, prayer,  hot showers, hot towels, soft music, etc. It's a daily fight to manage my pain. AND before my MVA I was fine and happy/healthy.

I know your pain is bad. WE have no choice but to "bear it" I mean we can't jump ship..our families need us; life is still beautiful--we find moments of the sun shining in just right : )

I'll tell you one thing though: This board will help you so much with living with CP.

I pray for your pain and peace of mind right now. IJN amen

 

Welcome, and you're a friend here already, Charity

 

 

 

 


Charity (& Faith : )
 
Whiplash: Cervical trauma, C-2, 4, 5&6; facet joints. Seizures, nerve pain/damage. FIbro/myofascial pain syndrom. Chronic pain: Every minute of every day.
 
My hope: My faith in God has helped me soo much!

"the tongue of the wise brings healing" Proverbs 12:18 NIV
 
I pray for respite from pain, serenity, wisdom and faith for you. I appreciate your comrade-ship at this board. We need to stick together : )


jimmy777
New Member


Date Joined Jun 2007
Total Posts : 4
   Posted 6/11/2007 10:08 AM (GMT -7)   

Hi Holly,

I am an 18 year veteran of RA. Everything as you know depends on the individual. So therefore for me predisone can work for flairs if taken in substantial quantities for short period of times and then taper back to zero.. Injections are great for the knees which I have had during the past 2 weeks primarily because I change my diet while traveling. All the other drugs I've tried and have little success. 

Also very importantly, a 24 hr to 48 hr food fast has totally elliminated the pain. Elliminate sugar, meat, dairy and bread from your diet immediately increasing your water take and you may start feeling better within the next few days, as I have found works for me. Keep the system flushing regularly especially during the first 48  hours, very important. I have a  diet that I developed and when I hold true to the plan I can stay pain free for 4-6 months, coupled with moderate exercise.  

Hang in there.


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 6/11/2007 1:13 PM (GMT -7)   
Hey folks!
Holly...how ya' doing?
 
Wanted to say a hello to Charity & Jimmy.
 
Jimmy... WELCOME! you do bring up a very good theory & practice which not too many people follow. if you ever feel like it...post a thread on your experience with that. {only thing is that we can't post any links to any product website/soliciting} 
Personally, when I do fast (and for the most part not on purpose but because I can't take solid foods) there is a significant decrease in joint pain.
 
Charity....that was completely beautiful.
 
peace/love
erin
Arthritis Forum Moderator & Co-Pilot
Active Severe Rheumatory Arthritis. AS. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Kidney Stones (oh joy). Previous Lymes Disease for 10 years.
Meds: Remicade infusions 600mg Q3weeks; Intra-articular knee injections; 6MP 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 20mgQD; Entocort 9mgQD; Meclizine; Augmentin; Tigan 300mg; Reglan; LidoDerm; Diazepam 5mg; Rozerem 8mg; Diclofenac; Celebrex; Percogesic; Dilaudid 4mg. 


Hollynne
Regular Member


Date Joined Jun 2007
Total Posts : 25
   Posted 6/11/2007 8:52 PM (GMT -7)   
Hi Everyone,
 
Today was my best day in a week and I am feeling more positive.  The wrist splints have helped me so much that I don't even like to be without them.  I had x-rays today and physical therapy and more lab work tomorrow.  Even though I am still in pain, the vicodin does relieve it for the most part.  I'm even going to begin the mural this week-  possibly even tomorrow evening after Dave comes home from work.  (He has to help me get it all ready)
 
We are active in a Life Fellowship Group at our church and tonight I shared what has been going on for the past week and the Dx.  The people in our LFG are like family and they were all so supportive.  Something happened though that emabarassed me so much I broke down and cried.  We all  meet at each other's homes once a month and Dave & I are very close to the couple who hosted it.  Since today was a good day and my wrists felt better, I had better strength in my hands, right?  WELL... I tried to carry a glass of lemonade about 8 feet from the counter to the table and in front of everyone I dropped it!  My hands just went weak on me and it crashed to the floor soaking the carpet.  I was so upset and humiliated that I cried.  The hosts assured me it was fine but I was mortified.  I really thought I could handle that stupid glass and well...  I hate having to always ask Dave or someone else to pour my drinks, carry my plate, and so on.  I was also surprised at how much it affected me and how easily I cried!   In the passt I would have joked and apologised for being a clumsy oaf but somehow tonight this little episode was like a preview of what is to come and the faces of my friends looked so sympathetic-  like they pitied me!  I don't want to be pitied or be treated as an invalid.  I am NOT going to let this get the best of me.   Good Lord, I feel like my emotions are always right there ready to spill out and things that I used to brush off now seem to bother me.
 
It's been an emotional roller coaster, to say the least.  I am just SO luck to have my Dave-  he's such a goodguy that after HIS real job, he comes home and does all of the laundry, shopping and cooking.  (And help me when I can't manage something)
 
I thank God for the wonder of computers, internet and this forum.   Life seems so much more manageable after I read the posts.  God Bless you all!
 
~Holly in PA~
Dear Lord, please help me to be the kind of person my dogs think I am!


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 6/12/2007 9:08 AM (GMT -7)   
hiya' Holly
 
it is so nice to have one of those "GOOD DAYS" isn't it?  that's what it's all about.
 
hey...fuhgetaboutit! the spill was waaaay more on your mind than anyone elses; in fac it's long forgotten by now.
 
i do the same thing too...but WORSE! skull I SPILL WINE! skull yeah....OUCH!
the hand grip? it goes when we least expect it...and it goes even when we're trying really hard to "NOT SCREW UP". lol.
 
so ya know what i do now as a joke to make me feel not so shameful & embarassed?
 
   i make up a "spot remover/carpet cleaner" gift basket for the home of the host
 
it gets a good laugh.  i dress it up like a first aid kit.  and i give warning to people who invite me over. don't bring out the good glasses!
 
Dave sounds like my Joe! :-) an absolute saint.  and for someone who is in PERFECT health...Joe has this compassion that you would only expect from someone WHO HAS RA or an AI disease.
he too has to open like everything. but...he loves it b/c it's something he CAN DO TO HELP.  our guys wanna' "fix us" but are helpless cuz they can't...so actually DOING things for us i think makes em' feel like they're really doing something really good.
 
keep on hangin' in there Holly...do a great job on your mural!
 
peace/love
erin 
Arthritis Forum Moderator & Co-Pilot
Active Severe Rheumatory Arthritis. AS. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Kidney Stones (oh joy). Previous Lymes Disease for 10 years.
Meds: Remicade infusions 600mg Q3weeks; Intra-articular knee injections; 6MP 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 20mgQD; Entocort 9mgQD; Meclizine; Augmentin; Tigan 300mg; Reglan; LidoDerm; Diazepam 5mg; Rozerem 8mg; Diclofenac; Celebrex; Percogesic; Dilaudid 4mg. 


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 6/14/2007 2:17 PM (GMT -7)   
Hey Holly.. how are things?
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


Hollynne
Regular Member


Date Joined Jun 2007
Total Posts : 25
   Posted 6/14/2007 7:26 PM (GMT -7)   
Hi Ducky and Everyone,
 
THings are improving here-  I seem to be on the downside of the flare as far as my wrists are concerned.  I had my 2nd iontophoresis treatment today, too.  It's hard to say what has helped-  time, cortisone shots in the wrists, or the dexamethasone via iontophoresis.   Wrists are better but the rest of me-- boy oh boy!  It's been cool and damp in Central PA and maybe that's why I hurt all over today.  Last night I had leg cramps that woke me and left my legs aching today.
 
Sometimes I feel no one but my Dave really understands how miserable I can feel.  My mom decided to email a distant cousin who also has fibromyalgia and a host of other problems.  Mom and I have always struggled withy our relationship-  we've never been too close and mom's 74 and not too net savvy....  well the email intended for cousin Peggy came to me.  In it mom says (and I am quoting her word for word!!)  "Holly has been diagnosed with fibromyalgia as a few days ago.  Maybe you want to give her an EMAIL SHOUT.   She ALWAYS has something wrong with her (between you and I, right?)   She is also one of these that self-diagnoses herself constantly.  Oh well - enuf said.  Please MUM on what I say about her.  IF YOU VALUE YOUR LIFE, THAT IS!!!!!  lol  ha ha ha."
 
Now keep in mind this is my MOTHER and our family jokes about my Mom's hypochondria...  some of her friends hate to call her because all she does is talk about her health or lack of it.   When I told her my wrists hurt so much and my hands were weak, she said it was because I was online too much-  HOWEVER...  I was online to find out WHY my wrists hurt!    IN any case, I am quite upset with her and I am reluctant to share any health related news with her from now on.  It's like she won't believe me when I say I am in pain-  like she decides who can have pain and to what degree.   Of course, when I called her on her insensitivity, she said she did nothing wrong-  that I always have something different wrong with me.  Well no kidding, SHerlock!  I have fibromyalgia AND RA- doh!
 
SO with the mom BS and the damp cool weather, I am miserable tonight.   Sorry, folks.  It just gets me so down.  I began a mural today but basicallt only did the base coat and rough sketch.  I just can't keep the same pace these days.
 
~Holly~

 

 


Dear Lord, please help me to be the kind of person my dogs think I am!


SnowyLynne
Veteran Member


Date Joined Apr 2004
Total Posts : 1539
   Posted 6/14/2007 8:17 PM (GMT -7)   
Weather changes of any kind cause my joints to hurt,cold weather really bothers me.Glad i'm in Texas,lol.Before a rain I hurt & it gets better after the weatherfront has passed by.I only take Tylenol extra strength as I refuse traditional pain meds.They make me feel even worse.Besides I have a very high tolerance for pain.............
SnowyLynne


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 6/15/2007 2:03 AM (GMT -7)   
hiya' Holly,
geez...people right?!?!
well, my sincerest "Oy!" goes out to you for having to put up with your mom's bologny.
tongue  to put a spin on it...autoimmune diseases like RA are some of the most difficult diseases TO DIAGNOSE!  so take your mom's comment of "she's always self diagnosing" as a pretty frickin' excellent compliment! LOL.
people like that are so irritating...it's like "find something better to talk about would  ya'?!?"
i hear ya though.
 
my "father" eyes is still under the impression that RA & Crohns are like a cold.
it's rare i ever speak with him...maybe once every 6 months for a few pointless minutes.  but he always ALWAYS has to squeeze in somewhere "Are you better yet?  When's it going away?"  and doesn't do it in a naive, innocent way either...nothing of concern...it's in a demeaning, condescending way.  and it makes you feel bad about yourself.
 
like you have to find an explanation for yourself?  i dunno.
people suck! tongue
 
hey what is iontophoresis?  i'm guessing it's a way of delivering the dexamethasone?
 
what else is next? besides steroids for the RA...did you discuss any meds?
 
peace/love
erin
 
 
Arthritis Forum Moderator & Co-Pilot
Active Severe Rheumatory Arthritis. AS. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Kidney Stones (oh joy). Previous Lymes Disease for 10 years.
Meds: Remicade infusions 600mg Q3weeks; Intra-articular knee injections; 6MP 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 20mgQD; Entocort 9mgQD; Meclizine; Augmentin; Tigan 300mg; Reglan; LidoDerm; Diazepam 5mg; Rozerem 8mg; Diclofenac; Celebrex; Percogesic; Dilaudid 4mg. 


Hollynne
Regular Member


Date Joined Jun 2007
Total Posts : 25
   Posted 6/15/2007 4:49 AM (GMT -7)   
Hiya Erin and everyone :)
 
Erin-  your posts ALWAYS cheer me up!!  tongue      Most of the time I can ignore my mom's nasty comments but the email to Peggy was just a little hard to take, yanno?   I mean, if she trashes me like that with relatives that know me, how does she talk about me with her cronies???   I am sure that all of her red hat sisters think her oldest daughter is a head case!!  Now, don't get me wrong...  I do claim a certain degree of insanity and quirkiness as an artist and I really don't give a rat's bum what a couple of hundred older women dressed in flambouyant red and purple really think about me!  I have to remember to keep my sense of humour although these days I find myself crying easier than smiling!  I gotta change that!!
 
Iontophoresis is the way they are administering the dexamethasone.  Basically, they use injectable dexamethasone and shoot it into a pad on an electrode.  They attach the electrode and another contact to each wrist and then zap the med into me for 45 minutes or so.  It's not painful-  sort of feels like getting a tatoo or a bee sting.  And the best part-  I really do think it IS Working.  My wrists are improving daily even though I am still wearing my splints day and night.
 
I'm going to post this part on the fibromyalgia forum too.   I have so many goofy and seemingly unrelated little symptoms and problems and I want to know if it's the way FM is.  Or maybe some RA people have it too.  Almost every week for several years now I have at least one or two nights when I am awakened by incredibly painful leg cramps-  we used to call them 'charlie horses" :)  I usually wake up screaming for Dave to rub the affected part.  It can be my feet, ankles, calves, thighs, even my gluteus maximus!   The crampy spasms last about a minute or so but even the following day my legs ache and feel sore like I was running a marathon in my sleep.  Is this a symptom anyone else has?  BTW, my potassium levels have been good, so it's not that.
 
I see my Rhematologist again on June 28th.  The meds so far have not changed-  I still take vicodin 10/660, 2 every 4-6 hours, mobic, vicoprofen when I really need them at night, and I use the lidoderm patches qd for 12 hrs.  I am waiting on the appointment for my sleep study and the results of all the tests the rheumy requested.  SO presently, there have been no meds for my RA as the docs want to have all my test results back.  *shrug*  I only want to get on with it, yanno??  I accept my Dx so let's be proactive now!   My life is waiting!
 
I always appreciate any input and advice from the forum community and I thank God that I have the 'net and this venue to use while trying to cope with daily living.  Thanks from the bottom of my heart!
 
~Holly in PA~
Dear Lord, please help me to be the kind of person my dogs think I am!


babyplace
Regular Member


Date Joined May 2007
Total Posts : 499
   Posted 6/15/2007 5:43 AM (GMT -7)   

Hi Holly,

Been meaning to get back with you, but life has been....well life! Glad to hear that you are doing somewhat better with the pain and all, having a diagnosis makes such a difference in itself, doesn't it?  But, so sorry about the mess with your mom.  No one can hurt us like family, especially if it's our moms, for goodness sakes!!  Can't say I have that situation with my mom, but my sisters are sort of indifferent, so I just choose not to involve them, I've learned the people who I can count on, and who I can't.  They weren't ever really supportive of me in other tough times, so can't expect this to change them now.  Know what I mean? But to have it thrown right up there in your face, must have been really tough.  Have you spoken to her about it, does she know what happened? Maybe this can turn around into an opportunity for the two of you to mend some fences.

Sounds like your hubby is a dream, if it fails with your mom, you still have his wonderful support...Also read the post about spilling the glass, loved Erin's "first-aid" kit idea, sounds great, doesn't it!!! I remember a day I was sitting in parking lot of Chick-filet,trying to open a ketsup packet, and my fingers just wouldn't work...cried like a baby...over ketsup...dumb huh?  Just felt so incredibly helpless, I was so sad about everything. Of course I did get the ketsup opened...used my teeth..I would not be denied my waffle fries! But I think we all have those "what on earth has hppened to me" moments.

I had that electode stuff done once, about 4 years ago.Had fallen off a ladder (grace is my middle name)  and gotten a compound fracture of bones in my leg just below the knee.  Anyway, had to have therapy for a while, and they used that to help some of the swelling, it worked real well!  Glad it's helping you, too.

Glad to hear your're doing better, praying it continues!!

Jody


Post Edited (babyplace) : 6/15/2007 7:13:46 AM (GMT-6)


jimmy777
New Member


Date Joined Jun 2007
Total Posts : 4
   Posted 6/15/2007 8:57 AM (GMT -7)   
Hello everyone,
I get those leg crams from time to time during the night time and I havae been able to reduce these problems by insuring I have more than enough fluid-water before I go to bed.
I gotta a flair that has been moving every week, left knee, rt knee, rt. foot and now rt hand. I had injections for the knees and the rt foot I just toughed it out with lots of ice. Now the rt hand. I know it will pass in time. Only those that have experienced RA will truly understand.
Hang in there.
Jimmy

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 6/15/2007 7:43 PM (GMT -7)   
ooooooh...so it's like a TENS machine! groovy....tee hee hee.
now you've gone and given me ideas!!!!!!
my honey is in neurology & he totes a good load of his equipment from office to office {in 3 cities}...some of it has to comes home on the weekends {like the EEG machine/halter monitors & EMG probes and all the wires & crap}
i know he has a TENS unit...hmmmm???? LOL.
i wonder what we can put on those pads????????? LOL
TEQUILA?
yeah yeah yeah...imagine that? TRANSDERMAL TEQUILA THERAPY
"TTT"
ooh wow i see a whole new horizon of medical practice here!
ya know what we wanted to do once? (this is really stupid but we're pretty stupid [in a ridiculous way]) he wanted to hook himself up to a GUINESS IV DRIP after a marathon....
nevertheless WE DID NOT...but were seriously considering it. you know how some clinics have that vitamin infusion crap done intravenously?....wellwe were thinking more along the lines of that...but in a pub setting.

hey...ya never know.
Arthritis Forum Moderator & Co-Pilot
Active Severe Rheumatory Arthritis. AS. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Kidney Stones (oh joy). Previous Lymes Disease for 10 years.
Meds: Remicade infusions 600mg Q3weeks; Intra-articular knee injections; 6MP 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 20mgQD; Entocort 9mgQD; Meclizine; Augmentin; Tigan 300mg; Reglan; LidoDerm; Diazepam 5mg; Rozerem 8mg; Diclofenac; Celebrex; Percogesic; Dilaudid 4mg. 


Hollynne
Regular Member


Date Joined Jun 2007
Total Posts : 25
   Posted 6/15/2007 8:03 PM (GMT -7)   
Erin, girlfriend-  you are a genuine HOOT!  LOL   IV Tequila!!!   I love it!!  But it has to be that really good stuff you can only get in Mexico-  the stuff that is so smooth you don't even know you've just swallowed Tequila! 
 
Yeah, the thingie is like a TENS unit, or so I think.  The PT guy tells me the modality is slightly different though. 
 
My hubby just told me he's heading to bed so I'm outta here, too!  Thanks, Erin, for the visual of you and your honey hooked up to tequila and a TENS unit.....    LOL
 
~Holly~
Dear Lord, please help me to be the kind of person my dogs think I am!


hunnybunny
Regular Member


Date Joined Jun 2007
Total Posts : 21
   Posted 6/17/2007 9:34 AM (GMT -7)   
Hi Hollynne, I just read your e-mail about your Mom. You must be really sad.  Years ago my Mom gave my sister a present and nice little note and said whatever you do don't tell your sister.  Well, she sent it to me.  I kinda know how you feel.  With all the different problems you have with AI its hard to know what is the true cause.  After awhile you think to yourself you are a hypo!  If I hear one more Doctor say "I don't know  what causes that, but this is interesting"  I will scream.  Hang in there.  Your Mom is probably embarrassed and she handles it by saying she didn't do anything wrong. Hunnybunny nono
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