sleepless in NJ

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

iMarzz
Regular Member


Date Joined Apr 2006
Total Posts : 103
   Posted 6/17/2007 11:21 PM (GMT -7)   
What so you guys do to get some decent sleep at night?  I'm exhausted all day and can't get to sleep at night and no I'm not taking any long naps.  Feeling cranky.
 
Should I ask my PMD for a sleeping pill?

Kibbles
Regular Member


Date Joined Mar 2007
Total Posts : 79
   Posted 6/18/2007 4:43 AM (GMT -7)   
Goodmorning Imarzz, Sorry to hear your not sleeping, thats hard. I take melatonin when i have trouble getting to sleep. It's a natural sleep aide found at most drug stores. It comes in different strengths, I always buy the lowest strength ones, and then i can always take two if one doesn't work for me. The lowest is 1 mg. I am not a doc so you may want to ask your dr. if it is all right for you to take this. Good luck, Joy

Count your Blessings, Joy
 
 RA :  Meds: Prednisone, MTX


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 6/18/2007 9:54 PM (GMT -7)   
whoa!!!!!!!! Joy...make sure you tell your doctors you're taking melatonin!!!!!!!!!!!
Melatonin makes autoimmune diseases WORSE!!!!!!!!!
look closely on your bottle, it should have that statement in print. that or either...DO NOT USE IF YOU HAVE AN AUTOIMMUNE CONDITION.

i purchased a few bottles & had to toss them all due to that.

let me know what your pill bottle says. ask your pharmacist too.
i'm just watching your back.
take care
erin
Arthritis Forum Moderator & Co-Pilot
Active Severe Rheumatory Arthritis. AS. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Kidney Stones (oh joy). Previous Lymes Disease for 10 years.
Meds: Remicade infusions 600mg Q3weeks; Intra-articular knee injections; 6MP 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 20mgQD; Entocort 9mgQD; Meclizine; Augmentin; Tigan 300mg; Reglan; LidoDerm; Diazepam 5mg; Rozerem 8mg; Diclofenac; Celebrex; Percogesic; Dilaudid 4mg. 


CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 6/18/2007 10:23 PM (GMT -7)   

I hear ya! Barely making it thru the day and then can't sleep - ugh! - it's the worst!

***


 


Kibbles
Regular Member


Date Joined Mar 2007
Total Posts : 79
   Posted 6/19/2007 4:29 AM (GMT -7)   
Erin, OMG no my bottle doesn't say anything of the sort! Thats scarey! I will most deffinately talk to my Dr. and Pharmasist. Didn't even have a clue about that. Just hate the thought of having to take another script of meds that have the bad drug altering effects. I promiss not to take another homeopathy without consulting my dr first!! Thank you so much, Joy
Count your Blessings, Joy
 
 RA :  Meds: Prednisone, MTX


babyplace
Regular Member


Date Joined May 2007
Total Posts : 499
   Posted 6/19/2007 5:08 AM (GMT -7)   
Hi guys,
Was just wondering, a friend told me that insomnia can be part of RA. Is this true? I know that I certainly don't sleep as well, either, but have sort of chalked it up to hormones, you know the whole pre-menopause thing.
Last night I think I woke up almost every hour on the hour, dreaming alot too. Didn't think it could be the mtx until I read this thread.
Erin, if you read this, what is your thoughts on this?
Also, Kibbles, glad to hear from you ,too, have been wondering how you've been, hope all is well.
Thanks!
Jody

momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 6/19/2007 6:57 AM (GMT -7)   
Sorry you are having trouble sleeping :( Are you taking prednisone?? And yes it is true what Erin said about the Melatonin..I actually looked at my bottle thinking that could not be right, our body MAKES melatonin for crying out loud!! and sure enough on the bottle it says if you have autoimmune disorders do not take. When I was taking them, and I would take 4 or 5 of them to sleep, I was feeling crummier on them and could not figure out WHY. I actually take tylenol pm's to help me fall asleep.

Also if you take the MTX and are just starting out it can keep you awake or at least it did for me and gave me very vivid and strange dreams.

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 6/19/2007 8:10 AM (GMT -7)   

My PCP recommended Benedryl to help me sleep. But, I feel so groggy on that the next day, I decided to deal with the insomnia.

****


 


Hollynne
Regular Member


Date Joined Jun 2007
Total Posts : 25
   Posted 6/19/2007 8:48 AM (GMT -7)   
I don't know how I didn't see the insomnia post until after I posted about gabapentin-  so I am sorry if I am being redundant!
 
I can TOTALLY relate to the insomnia thing!  It had been months since I have slept the whole night through.  Last night was the first night I did-  and it was after taking my first dose of gabapentin 400mg that my PCP prescribed.  BTW-  the two docs, my PCP and rheumy ARE communicating and my PCP is going to manage my ADHD and fibromyalgia, the rheumy will manage the meds for RA.
 
I've tried benadryl and had no real success except that I felt 'hung-over' the following day.  Gabapentin seems to have worked like a miracle for me!  Of course it's primary use is for controlling seizures, my PCP says it helps with neuropathy and nueralgia, too.  Maybe it's a coincidence but I slept like a baby and the Rx did say to take it at bedtime.
 
I don't know if any of you watch TV in your bed at night but I really found that watching TV before I fall asleep actually made me have goofy dreams and I seem to wake up a lot.  I really noticed it after I had to euthanize my beloved old dog, Britt, two weeks ago....   I was very upset that night and turned on the TV because I couldn't sleep.  There was this documentary on about the Jim Jones mass suicide in Guyana that I watched...   I woke up in a cold sweat from a nightmare that *I* was in Guyana with Jim JOnes and I was injecting the euthanasia drug into little kids with big sad eyes-  just like my old Britt's!  I woke up screaming, I tell you!  THAT was when I decided NOT to watch anything screwy like THAT before bed.  A few days later it occurred to me that maybe watching anything while I was in bed about to go to sleep was detrimental.  SO..   I am trying to eliminate TV when I am in bed as a means of helping me fall asleep-  I am sure it does the complete opposite. nono
 
iMarzz-  do you use TV to fall asleep?  Just curious....
 
Holly in PA
Dear Lord, please help me to be the kind of person my dogs think I am!


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 6/19/2007 12:48 PM (GMT -7)   
redface  hey my fellow insomniacs! redface
momto3!  so glad you found that skull warning skull  on the Melatonin bottle.
i know there are 3 companies that DO post it on the label on the back & on the inscript...i think Nature's "something" {it's a purple bottle} and Walgreens & GNC brands have that warning.
now...i don't know WHY this chemical makes "AI diseases worse" confused but from my collection of knowledge here and there the connection might be a toxicity related thing. not sure, but if anyone finds out...that'd be cool to know.
 
prednisone, steroids, restaril & trazadone definitely cause very trippy dreams especially if on any combo of them. AND I MEAN TRIPPY!!!!!! ya can't decifer if you're awake or asleep, dreams are intense & seem to real.
 
after a daily dose of 40mg of pred 2 nights ago...oy, i had the saddest dream EVER!  it was one of mass destruction too! holey cow, the death toll! lol.  and my boyfriend died!!!!!!!!!  there was a big flood at a wedding in Pennsylania (wtf?!?!) for my best friend...a big crash was heard & a canal broke & uprooted huge trees and crushed like all of the guests...
oh my poor joey... sad  lol...it was 1 of those dreams where you wake up & catch yourself crying.  
 
fughetaboutit'...perimenapause, pre & early post?...if you're not whippin' off the sheets from hot flashes your feezin' your keister off.  plan on not sleeping well for the next 10 years, LOL. tongue i dunno...just insight from my mom.
 
peace/love
erin
 
Arthritis Forum Moderator & Co-Pilot
Active Severe Rheumatory Arthritis. AS. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Kidney Stones (oh joy). Previous Lymes Disease for 10 years.
Meds: Remicade infusions 600mg Q3weeks; Intra-articular knee injections; 6MP 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 20mgQD; Entocort 9mgQD; Meclizine; Augmentin; Tigan 300mg; Reglan; LidoDerm; Diazepam 5mg; Rozerem 8mg; Diclofenac; Celebrex; Percogesic; Dilaudid 4mg. 


iMarzz
Regular Member


Date Joined Apr 2006
Total Posts : 103
   Posted 6/19/2007 8:07 PM (GMT -7)   
Thanks for all the responses, the warnings and laughs. Have moved my prednisone dose to the morning since I think it makes me jittery and very hot! (sweat like a man hot) I'm also 50 and perimenopausal (Thank God), can't wait 'til thats over with.

No I don't use TV to help me fall asleep - actually I hardly ever turn the tv on because then I have to watch it and I get nothing else done.

Think I'll wait and see how things are going when I get on some steady medication doses and then if it's still a problem I'll ask my PMD and see what he recommends.

Mary

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 6/20/2007 7:24 PM (GMT -7)   
Valerian Root can work too.. a natural herb you can get at GNC.. If you like tea, there is a "Sleepy Time Tea" that is at times effective for me.. Also, Tylenol puts out a sleep aid that you can get OTC... But always run it by your doc.. just in case.. I have Ambien for my sleepless nights.. sad thing is, I don't always feel "rested" after taking one.. I sleep, but still feel yucky when I get up.. good luck to you..
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


The Bear
Regular Member


Date Joined Mar 2007
Total Posts : 364
   Posted 6/21/2007 2:34 AM (GMT -7)   

Post from the bear in cavesville in downtown Apsley. Interesting posts re sleep or the lack of it. Nowus bears are great foragers and out there in the woods are a number of plants which, amongst other properties, are relaxants and soporfics. One of which, closely related to the hemp lpant, is woonderful for inducing sleep. Unfortunately it is illegal but there are similar substitutes which are not and easily available by mail order from a variety of 'head shops'.

Beinga socalled sufferer of pd this bear often has restless legs syndrome, particularly at night which does indeed keep me awake and so i go foraging in the woods of the stash cave and lo and behold sleep comes. tongue Being a natural substance it doesn't interfere withmy meds. Don't get me wrong here, I am not encouraging anybody to breaak the law but merely saying what works for me. Going to get my wrists smacked by the thread police here no doubt. nono

In fact there is a legitimate debate going on inthis country regarding the medicinal use of said hemprelated plant and I have my own slant on why it apears to help, not rocket science or nuclear physics, just goo ol' observations. The reason why hte wacco bacco appears to assist in many neuro/auto immune conditions s simply by inducing a relaxedbody and mind there is less tension and stress which both exacerbate said conditions - reduced stress > relaxed state of miind and body > less liklihood of anxiety based flares in our condition. Now sleeplessness, remember sleeplessness? It's a thread about sleeplessness. There can be nothing worse at night that lying there wondering when sleep will befall, redface and then you start counting the church bell tolling out the hours etc etc [that's when I either go foraging or logging on to the thread in the middle of the night.]

That's how bears sleep at night folks, only just some of the time, now and again, once in a while, every now and then, once every Preston Guild.

Sleep Well y'all.

The Bear


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 6/21/2007 9:20 AM (GMT -7)   
Tee hee hee...Bear, no way will you be cuffed by the police here! You dodge the system very nicely (and cutely literated as well!)
Hee hee hee...hey Ducky! We've beaten the misses mary-jane system! Hah.
I do hear ya Bear.
In the US though...this is going to be a loooong winded argument amongst the states with legality.
Who knows...slowly but surely maybe?
Hmmm...they should bring back opium parlors. LOL.

{ok, now i'll be fired from moderator....watch! lol}
ciao ciao
erin
Arthritis Forum Moderator & Co-Pilot
Active Severe Rheumatory Arthritis. AS. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Kidney Stones (oh joy). Previous Lymes Disease for 10 years.
Meds: Remicade infusions 600mg Q3weeks; Intra-articular knee injections; 6MP 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 20mgQD; Entocort 9mgQD; Meclizine; Augmentin; Tigan 300mg; Reglan; LidoDerm; Diazepam 5mg; Rozerem 8mg; Diclofenac; Celebrex; Percogesic; Dilaudid 4mg. 

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, December 07, 2016 9:35 AM (GMT -7)
There are a total of 2,734,105 posts in 301,180 threads.
View Active Threads


Who's Online
This forum has 151308 registered members. Please welcome our newest member, garf222.
343 Guest(s), 10 Registered Member(s) are currently online.  Details
Wdan, nanahateslyme, Scaredy Cat, garf222, NiceCupOfTea, njfillet, Myself 09, 1039smooth, straydog, Graytech


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer