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Hollynne
Regular Member


Date Joined Jun 2007
Total Posts : 25
   Posted 6/19/2007 10:32 AM (GMT -6)   

Hello, friends!

I am posting this on both the Arthritis forum and the Fibromyalgia forum:

Yesterday I saw my PCP for my bi-monthly check-up ( I also have ADHD and he oversees those meds).  My new rheumatologist had already sent him a letter about my fibromyalgia and RA and explained his goals.  My PCP doctor was so good and understanding and he praised the rheumy for Dxing the fibro.  I guess my PCP focused primarily on my ADHD and depression and hadn't considered fibro.  Anyway, the two docs are actually working together and for the first time in YEARS I am optimistic about my health! 

My PCP prescibed gabapentin 400 mg at bedtime.  Amazingly I slept from 11 PM to 9:07 AM!  I didn't even wake up ONCE!  I can't remember the last time I slept ALL night.  I was so ecstatic about my good night's sleep that I even put on make-up today!!!   Because I am an artist and usually wear paint-stained t-shirts  (I work from home on murals, etc...)  it's been MONTHS since I put on make up when I was just heading down to my studio!!   I actually feel like maybe the road back to a normal life is in sight.  Thank God!   Just the thought of living in pain with fibromyalgia and RA and having pain like I had for the past few weeks was so depressing I spent most of my time lying around and crying.  I was so afraid that my hands would stay as useless as they had become during this flare.  Thankfully, I was able to start painting again this week and that alone helps boost my mood.  

Having these two things-  RA and fibro- really complicates running a mural and faux finish business, for sure.   MY husband and I spent a chunk of money starting the business just this past winter and I  was terrified that I wouldn't be able to continue!  Naturally, that alone added to my depression because the financial responsibility for everything fell on my husband.  Three years ago we built a new home and although we can scrape by on just Dave's income, my income provided the little extras.  In the past 9 months since I've been unable to work, the strain of it all is taking it's toll.  We really should sell this house and buy a smaller one that is a ranch on one floor but we have put so much love and sweat equity into this home that leaving it would be heart-breaking.  I'm sorry... I am running on and on...  I wanted to just say that today I feel more hopeful and optimistic.  Sleeping all night long doesn't seem like a big deal to most folks but to those of us with rheumatalogical conditions it's a real GIFT!

So my question:  is anyone else currently taking gabapentin?   My PCP also prescribed depakote ER 250mg qd that I must start next week.  ANyone use this combination and have any success with it or is this something that only folks with fibromyalgia take?

Again, thanks so much for being here!

Holly in PA


Dear Lord, please help me to be the kind of person my dogs think I am!


babybloo
Regular Member


Date Joined Aug 2005
Total Posts : 289
   Posted 6/19/2007 5:45 PM (GMT -6)   
I used to be on Neurontin or Gabapentin. This drug did help me to deal with pain in a different fashion though it never actually took away the pain, I was just able to handle it better. I was on 2400mg actually and eventually became immune to its effects for sleep. It did help me however to function better in life, but once I realized that all it was doing was in essence masking the pain and a pain that needed to be approached instead of hidden. I was placed on this because they assumed my symptoms were psychogenic. Boy were they wrong when 1 year later I couldn't walk unassisted and my CRP shot up from 3-19. So, of course my experience was somewhat bitter. I would ask your doc however about a drug very similar to neurontin called Lyrica. Apparently some of the side effects are not as severe.

Theresa
dx: Rheumatoid Arthritis.  Duration: 10yrs. Dx'ed 2006.  Asthma, hypertension, hypothyroid
 
Meds: Methotrexate 25mg wkly, Prednisone 15mg, Enbrel 50mg wkly, Arava 20mg, Folic Acid, Fish Oils, Ultram 50mg TID,  Advair 250/50, Diovan HCT 160mg/25mg QD, Women's One a Day, tylenol PRN.
 
 


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 6/19/2007 9:52 PM (GMT -6)   
Hi Holly
Well yes I was on THAT COMBO!!!!!! In 2002 I was taking a few pills {I forget how many Mgs} of Neurontin plus I was also taking Depakote ER with that (I forget that dose too). This was to help partial/complex seizures I was having.
Nothing bad happened...nothing great happened. I wasn't using them for pain or anything related to RA though.
But...with these 2 meds, it felt like their were bugs crawling up & down my spine! Was freaky. And also I got??? Restless? Like squirmy worms!?!? Oh, and here's the kicker...I developed this weird {I never told anyone this before except for a previous nurse practitioner friend of mine} I started to count syllables!!!!!!! When I listened to someone! Wassome freaky OCD thing triggered by the meds. Oh it was bizarro...I got a kick out of it...but I stopped all of those meds/ Was still having seizures so what's the point. Valium has worked the best & it helps the AS back spasms.

Best of luck! You'll probably do just fine.
But when ya start counting syllables...raise a flag & scream for help. LOL.
ciao
erin
Arthritis Forum Moderator & Co-Pilot
Active Severe Rheumatory Arthritis. AS. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Kidney Stones (oh joy). Previous Lymes Disease for 10 years.
Meds: Remicade infusions 600mg Q3weeks; Intra-articular knee injections; 6MP 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 20mgQD; Entocort 9mgQD; Meclizine; Augmentin; Tigan 300mg; Reglan; LidoDerm; Diazepam 5mg; Rozerem 8mg; Diclofenac; Celebrex; Percogesic; Dilaudid 4mg. 


Leighski
New Member


Date Joined Jul 2007
Total Posts : 11
   Posted 7/12/2007 7:41 AM (GMT -6)   
Hello,
I too was put on Gabapetin for my psra(post strep reactive arthritis) but unfortunately shortly after starting it, my face swelled terribly and my doc took me off. She wasn't totally convinced it was from the Gabapentin but wasn't willing to take a chance.
 
 
 
 
Leigh
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