MTX is Working!

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elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 6/21/2007 5:48 AM (GMT -7)   
Hi all,
 
It's been a while since I've checked in.  Joint-wise I've been doing wonderfully since my rheumy doubled my dose of mtx (15 mg/week) about 5-6 weeks ago.  It's truly working for me!  It's not perfect; I still take tramadol, especially in the mornings, and by the end of the week I'm getting pretty sore.  But overall, it's working well.  I was on 7.5 mg/week for several months, but was also using enbrel (50 mg/week)--that worked well too.  But when I stopped taking the enbrel, I was left with only 7.5 mg of mtx and it wasn't doing much.  I felt myself regressing at a significant rate.  Once I upped the mtx to 15 mg, it took about 3 doses (3 weeks) until I started feeling better.  I think it would have taken much longer if I hadn't had mtx in my system as well.  So, for those of you who are just trying mtx, hang in there.  There's a reason why this drug has been used for RA for 50-60 years.
 
Still don't have an answer yet to celiac disease or not.  Waiting on results from my biopsies.  But since I've had the biopsies done already, I have started trying to eat gluten-free, and it's remarkable how much better I feel.  No bloating, cramping, abdominal pain--nothing.  Still a challenge, though, as I don't have all of the ingredients I need to have in the house yet.  I suspect this is similar to the Maker's Diet, and may, in fact, be a reason for why the Maker's Diet works for some of us and not others.  Because even if we're not dx celiacs, many people with AI disease are gluten-intolerant.
 
Elcamino
Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan


momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 6/21/2007 6:20 AM (GMT -7)   
Hi Elcamino!

That is fabulous news and I am so happy to hear it!!!! Yay for you!! I had my 6th dose of MTX this past weekend and it was my first dose at 15mg. Yes, by the end of the week the soreness does return a bit, BUT I have to admit the awful hip pain is now gone. I am still fearful of giving up my plaquenil though, but maybe after a few more weeks of MTX at 15mg like you, I will give it a try again.

Thank you for the the encouraging post :)))

babyplace
Regular Member


Date Joined May 2007
Total Posts : 499
   Posted 6/21/2007 8:18 AM (GMT -7)   

Thank you so much for giving us all a much-needed boost! Glad to hear things are improving for you, encourages us all, like mom said, we all need to hear this!!  Will be week 2 of 15mg this Saturday, have been slowly working up to this dose for a bit now.   Also glad to hear from you, was just wondering how you'd been, hope your tests come back ok.

Take care!

Jody


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 6/21/2007 5:29 PM (GMT -7)   
Good news! Woo-hoo! Great to hear that all is going well for you el! I have been wondering where you were.. now we know.. :) :) :) Keep us posted!
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 6/21/2007 8:58 PM (GMT -7)   
I am so glade that you are finally getting some relief.It makes alot easier on you when yiou are not in constand pain.
Curley
.........
 


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 6/22/2007 9:18 AM (GMT -7)   
weeeeeeeeeee! someone made me happy!!!!!!!!!!!

El...i agree, when on the MAKERS diet? BIG difference!
i can't wait to go back on it....
you go girl!
:)
Arthritis Forum Moderator & Co-Pilot
Active Severe Rheumatory Arthritis. AS. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Kidney Stones (oh joy). Previous Lymes Disease for 10 years.
Meds: Remicade infusions 600mg Q3weeks; Intra-articular knee injections; 6MP 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 20mgQD; Entocort 9mgQD; Meclizine; Augmentin; Tigan 300mg; Reglan; LidoDerm; Diazepam 5mg; Rozerem 8mg; Diclofenac; Celebrex; Percogesic; Dilaudid 4mg. 


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 6/26/2007 6:42 PM (GMT -7)   
any celiac results yet? when will u findout? keep usposted i think of u oftem

The Bear
Regular Member


Date Joined Mar 2007
Total Posts : 364
   Posted 6/27/2007 4:11 AM (GMT -7)   
Hi Elcamino, so good to hear rfefrershing news and so positive also. You must be over the moon without counting your chickens before you leap into cliceville! I am so pleased to hear this. As babyplace said, it gives hope to everybody . Way to go girl!!!
Bear

ps Hey Yally, what was that stuff that took you to another planet?
Just curious that's all.

yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 6/27/2007 4:31 AM (GMT -7)   
lortab 7.5 u want some? lol

elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 6/27/2007 4:37 AM (GMT -7)   

Thanks everyone!  Yalinda, I should get my celiac results this week (hopefully).  Three weeks was the estimate I was given by my GI doctor, and 3 weeks isn't up until Monday (next Monday).  I would imagine, though, that the results should reach his office sometime this week.  I won't call until Monday, though.  I'm actually a bit more concerned about the erosive gastritis and erosive esophagitis the GI doctor found, rather than the celiac.  I've been taking a double dose PPI for years for acid reflux, and I still have the beginning stages of ulcers both in my stomach and esophagus.  Does that mean the aciphex I'm taking isn't working, or acid is not causing the inflammation?  GI doctor kept talking about h. pylori re-infection (I've had it before, but it was successfully eradicated), but I understand re-infection is pretty uncommon.  And if I do have h. pylori again, the treatment is brutal--not quite as brutal as tb treatment, but it's an additional 10 pills a day (added to the 15 I already take).  GI doctor also mentioned bile reflux, but that is usually a problem for people after gastric surgery, and especially after they've had their gall bladder removed.  I've had neither.  I don't know what's going on with my stomach, but I know that my mother had this problem as well.  Her problems got so bad that she eventually had to sleep sitting straight up because of the dangers of aspiration pneumonia.  They finally did a fundoplication on her, but not until she was in ICU for the last time.  I have no idea what GI is going to do with me.  At least with celiac, I can completely control that with diet alone; with this reflux issue, I can't.

but mtx is still working :)

Elcamino


Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan

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