First Visit to Rheumatologist

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Pupsmom
New Member


Date Joined Jun 2007
Total Posts : 6
   Posted 6/21/2007 12:25 PM (GMT -7)   
Well, I went to see the rheumy today.  He is was really great.  It did help that my doctor had run all the labs prior.  He did the xrays and physical examination and then confirmed that it is definitely RA.  He said I am in a pretty good flare up right now.  He is starting me on on the methotrexate 4 tablets once a week, plaquenil 200 mg twice a day and 10 mg of prednisone just to get me some relief.  He was very positive and that he believes in going slowly to see how I do on the meds.  I was told it takes approximately 6 weeks before you can usually notice any changes and that he will probably be increasing the mx at my next visit 3 weeks.  I am scared about all the side effects of the medication but right now I am desperate for relief. Today is my sons high school graduation so I need to concentrate on that today.  I want to thank everyone who has been openly sharing on this bored.  I know I will have questions.  Right now my biggest problem besides the stiffness is fatigue.... does anyone know how to tackle that one???
 
Take care and I will be in touch!!!
 
CT Mom

yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 6/22/2007 7:53 AM (GMT -7)   
hi pupsmom, i too have my daughter graduating from HS. i know we want it to be about them and not how we cant do for them. listen to your body. dont over do and rest when able but keep limber as able too. meds do take time and we all want a quick fix. but doesnt it seem like just yesterday our kidos were going to kindergarten? where has that time gone?? all too quick. good luck with everything. is ur son going to college?

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 6/22/2007 9:15 AM (GMT -7)   
howdy CT mom
you go get em'!!!!!!!  you're on a good path so don't you worry.
and if 6 weeks goes by & YOU don't have "feeling better benefits" don't get discouraged about that either.
each person is an individual & what may take 1 person 6 weeks, may take another person 10 or 14.
 
you're doc sounds very level-headed...great!
it is best to go slow & thorough.  do give these meds time before jumping off of them.  off too soon when they may have just worked, and ya'd never know.
hang on in there.
 
i think the stiffness may ease once you reach a really good therapeutic level of meds...get the inflammation under control you know.
 
the fatigue may or may not fall into place.  i mean, even if you're healthy/normal....everyone's fatigued in this day & age.
w/ RA and i'm sure you know...it feels like a debilitating fatigue sometimes.
like, "I gotta lay down or else I'll fall down!"
 
be sure that all your thyroid tests are OK, vitamin Bees ( tongue ) and keep all your lab appt's to monitor for any deficiency that may make you fatigued or make it worse.
 
prednisone may help w/ the fatigue.
 
if you're in a lot of pain & it's an effort to do EVERYTHING...you'refatigued to the max....so here you're looking at getting pain & inflammation under control and then the fatigue may not be so bad.
 
like Yalin said...you'll get to really REALLY know your bod & what it's limits are.
if you're looking into "i need a lift/energy to get things going"...maybe look into some teas? ginger, green tea...run it past your doc about any supplements or vitamins/minerals you can possible add to "help"...trying it is worth a shot.
 
keep your chin up. smurf
peace/love
erin
Arthritis Forum Moderator & Co-Pilot
Active Severe Rheumatory Arthritis. AS. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Kidney Stones (oh joy). Previous Lymes Disease for 10 years.
Meds: Remicade infusions 600mg Q3weeks; Intra-articular knee injections; 6MP 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 20mgQD; Entocort 9mgQD; Meclizine; Augmentin; Tigan 300mg; Reglan; LidoDerm; Diazepam 5mg; Rozerem 8mg; Diclofenac; Celebrex; Percogesic; Dilaudid 4mg. 


Pupsmom
New Member


Date Joined Jun 2007
Total Posts : 6
   Posted 6/22/2007 1:30 PM (GMT -7)   
Well, day two and I am doing better.  I took the methotrexate this a.m. and ate a small egg breakfast.  I started to feel some stomach upset and slight headache so I increased my water and am doing fine.  My swelling in my hands and feet have improved (I am sure that is because of the prednisone). 
 
I have a question... can you have a couple social drinks a week if you take the mx and plaquenil?  By no means do I drink alot but once a month we go for a girls night out and I will have one or two, or at home I like an occassional glass of wine... is this okay? 
 
I really have been reading up on all the information.  I just want to say thank you to everyone.  Erin I did talk to the pharmacist and she said that folic acid can help with the fatigue.... I am making a list of questions for my next appt. with the rheumy and I will check with him.   Today I did a power water with some ginseng and antioxidants and that seemed to get me over the hump.  Okay and I did have a small coffee at 4pm. eyes but it was that or fall asleep at my desk!!!!

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 6/24/2007 9:14 AM (GMT -7)   
hey there,
this alcohol issue is a very VERY individualistic matter. it can be really tricky.
if you take a look at the meds i take...and they are plentiful!...for some reason i can tolerate a modest amount of drinks.
usually only on weekends....maybe 2 or 3 beers and i'm totally fine.
or out to dinner & have 2 or 3 glasses of red?....fine.
BUT....in April, i had 1 frozen strawberry margarita...and it was pukes-ville for 11 hours. could have been the starwberries or the mix of tequila & grand manny i don't know.
it is a crapshoot sometimes.
i think it's better to stick to what YOU know won't make ya sick. i think that's safe.
and of course if your liver enzymes are whacky i absolutely would abstain from any drinks.

i tend to get more pukey sick when i'm on steroids...so i avoid all of it.

and then ya gotta live too you know? there's a quality of life issue here...and if a person has a chronic illness & has to be on medications daily forever...there's gotta be room to play if thatwas a part of that persons social life. and i'm a big advocate of that.

so i'd say on "girls nite" go w/ what you know. most times the "lighter" stuff is easier mixed with these meds.
best wishes!
Arthritis Forum Moderator & Co-Pilot
Active Severe Rheumatory Arthritis. AS. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Kidney Stones (oh joy). Previous Lymes Disease for 10 years.
Meds: Remicade infusions 600mg Q3weeks; Intra-articular knee injections; 6MP 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 20mgQD; Entocort 9mgQD; Meclizine; Augmentin; Tigan 300mg; Reglan; LidoDerm; Diazepam 5mg; Rozerem 8mg; Diclofenac; Celebrex; Percogesic; Dilaudid 4mg. 

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