Hi.Im new and I have LOTS OF ?s

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songstress
Regular Member


Date Joined Jul 2005
Total Posts : 393
   Posted 7/5/2007 6:10 PM (GMT -7)   
Okay so a little history: I have crohns, have had for 2 yrs, just had a baby 6mths ago, had some joint pain in the past but NEVER like in the last 4-5mths. In the past it was in  my jaw and my fingers & knees.
 
2-3mths agoooooo I started have joint pain again...passing it off as the last time I got it.!!  At first it was in my jaw, I could barely open my mouth, it took hours to just be able to move it...hurt to eat..sore to touch.  Then my fingers, sometimes the knuckles would swell but not always...also in my knee but unlike the jaw...as I moved them more..they hurt more.
 
Now currently,..the mornings are unbearable..I take 800mg ibprofen which doesnt hardly touch the pain. This morning was the worst ever. I dont have alot of options right now as I have no insur but I want to try and figure this out. Docs sometimes dont do all the testing they need to, to figure stuff out!!
Its moved into my collarbone and shoulder blade. I have it in my ribs so bad it hurts to take deepbreaths, cough, or sneeze, laugh to hard. Its in my lower back I think..and I even have this weird thing where when I turn at certain times...its like a electric sharp shock in my spine..and also it affects (dont laugh) my right buttcheek muscle to where its almost impossible to walk. (no NOT fibromyglia..or whatever....its the only "muscle" affected) (ps: plz dont go into the fibro thing cuz Im a huge skeptic that believes docs only diagnose fibromyglia or whatever when they have no idea what it is....I was diagnosed with IBD when I was 10 only to find out I have severe Crohns colitis) cool
 
This morning I fell 6 times trying to make it to the medicine cabinet. Im sooo depressed becuz I just want to be out of pain.
 Today I took 60mg of Prednisone to help...thank God after 3 hrs I could move.
 
I am 27 yrs old but have a body of a 80 yr old some days. My mother, a nurse of 30yrs, says "u dont even know its arthritis"
 
She is right...I dont, but what the hell is it? Does arthritis only affect joints or the entire bone? Can anyone relate to this pain?  Its NEVER symmetric (sp) but moves around quite a bit but also can stay in certain places for some time. Nothing makes it better but MUCHO steroids and time...mornings are the absolute worst and evenings are 2nd.
 
Thanx for ur help in advance!!! :-)


What doesn't kill you, will only make you stronger!
 
Diagnosed with severe Crohn's in May 2005. Rediagnosed in July with Crohn's but in my large & small intestines.
Have taken Imuran, Remicade, TPN, Colozal, Entocort, Prednisone, Asacol, Prevacid, and the list goes on. Taking low amounts of Pred currently...Can't wait till I can get back on Remicade, my miracle drug!

Post Edited (songstress) : 7/5/2007 7:26:46 PM (GMT-6)


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 7/5/2007 6:47 PM (GMT -7)   
I am sorry that you are having all of this pain,it sucks I know.I have crohns as well and it's not uncommon to have joint pain with crohns.Have you ever seen a Rheumy if not you might want to see one,because we all know that it's not uncommon to have more than one autoimmune disease.

I like you started having some really majore joint issues and at first my GI was tossing it to the crohns,but as time went on I was getting worse so my GI finally sent me to see a Rheumy and boy was I glade because I found out that not only have crohns but not one but three different typs of arthritis.I have RA,OA,AS as well.I still have some major joint pain but with being on Humira and a few other arthritis meds and pain meds I can move around better and I still have pain all the time but I can at least deal with it now.

There will be others that will be along that can give you there take on the pain that you are having and tell you what is being done for them.I hope your pain eases up and let us know how you are doing and remember you are not alone.
Curley
.........
 


songstress
Regular Member


Date Joined Jul 2005
Total Posts : 393
   Posted 7/5/2007 6:57 PM (GMT -7)   
thx Curley...it just makes me feel better to know that this isn't in my head...as u may WELL know until you get a diagnosis..if a person can't physically "see" your pain, its as if you are not "in" pain, I cannot WAIT until I go the rheumy

its hard to stay positive everyday when I am a mother who can't even pick her baby up or dreads getting her out of the crib in the mornings...I go in to the room to this smiling baby girl who has not a care in the world, and her mom is in so much pain, I cant enjoy her
please you all..dont think Im sittting her having a pity party or whatever...I just am having a bad day & am pretty sad

thx for understanding
What doesn't kill you, will only make you stronger!
 
Diagnosed with severe Crohn's in May 2005. Rediagnosed in July with Crohn's but in my large & small intestines.
Have taken Imuran, Remicade, TPN, Colozal, Entocort, Prednisone, Asacol, Prevacid, and the list goes on. Taking low amounts of Pred currently...Can't wait till I can get back on Remicade, my miracle drug!


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 7/6/2007 1:45 PM (GMT -7)   
Hey Songstress.. welcome to the arthritis forum.. so sorry I am late in welcoming you.. this summer has been super busy for me lately.. sheesh..

Anyways - Curley's right.. you can have arthritis due to your Crohn's.. when do you see your Rheumy? Have you had any bloodwork done for it?

I totally understand how you are feeling.. I am 33 and have 3 children, sometimes this disease makes me feel like I am 133.. It's not a pity party, it's the truth.. we all have bad days.. take good care, and let us know how you are doing.. we are here for you..

Duck
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 7/7/2007 6:29 AM (GMT -7)   
hi and welcome- i would let ur rhuemmy know u responded to the prednisone. i was once told by my doc that it i cut myself steriods wouldnt relieve the pain because it is not a pain reliever but an anti inflammatory drug whick means something else is going on in ur system. i know 10 years ago i was told i had fibro and i too felt like it wasto give me a pat on my back, so i never went bqack and delt with all my pain with otc meds. then i got to a point where they werent touching the pain sweeling and stiffness and whala i have RA. i often wonder if i took better care 10 years ago and was more persistant i wouldnt be as bad off today with pain?? but who knows? good luck with ur search for a dx. and welcome to hw!
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