Okay so a little history: I have crohns, have had for 2 yrs, just had a baby 6mths ago, had some joint pain in the past but NEVER like in the last 4-5mths. In the past it was in my jaw and my fingers & knees.
2-3mths agoooooo I started have joint pain again...passing it off as the last time I got it.!! At first it was in my jaw, I could barely open my mouth, it took hours to just be able to move it...hurt to eat..sore to touch. Then my fingers, sometimes the knuckles would swell but not always...also in my knee but unlike the jaw...as I moved them more..they hurt more.
Now currently,..the mornings are unbearable..I take 800mg ibprofen which doesnt hardly touch the pain. This morning was the worst ever. I dont have alot of options right now as I have no insur but I want to try and figure this out. Docs sometimes dont do all the testing they need to, to figure stuff out!!
Its moved into my collarbone and shoulder blade. I have it in my ribs so bad it hurts to take deepbreaths, cough, or sneeze, laugh to hard. Its in my lower back I think..and I even have this weird thing where when I turn at certain times...its like a electric sharp shock in my spine..and also it affects (dont laugh) my right buttcheek muscle to where its almost impossible to walk. (no NOT fibromyglia..or whatever....its the only "muscle" affected) (ps: plz dont go into the fibro thing cuz Im a huge skeptic that believes docs only diagnose fibromyglia or whatever when they have no idea what it is....I was diagnosed with IBD when I was 10 only to find out I have severe Crohns colitis)
This morning I fell 6 times trying to make it to the medicine cabinet. Im sooo depressed becuz I just want to be out of pain.
Today I took 60mg of Prednisone to help...thank God after 3 hrs I could move.
I am 27 yrs old but have a body of a 80 yr old some days. My mother, a nurse of 30yrs, says "u dont even know its arthritis"
She is right...I dont, but what the hell is it? Does arthritis only affect joints or the entire bone? Can anyone relate to this pain? Its NEVER symmetric (sp) but moves around quite a bit but also can stay in certain places for some time. Nothing makes it better but MUCHO steroids and time...mornings are the absolute worst and evenings are 2nd.
Thanx for ur help in advance!!!
What doesn't kill you, will only make you stronger!
Diagnosed with severe Crohn's in May 2005. Rediagnosed in July with Crohn's but in my large & small intestines.
Have taken Imuran, Remicade, TPN, Colozal, Entocort, Prednisone, Asacol, Prevacid, and the list goes on. Taking low amounts of Pred currently...Can't wait till I can get back on Remicade, my miracle drug!
Post Edited (songstress) : 7/5/2007 7:26:46 PM (GMT-6)