Good Moanin' Healing Well V34

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Ducky
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Date Joined Mar 2005
Total Posts : 3199
   Posted 7/7/2007 9:04 AM (GMT -7)   
yeah    yeah   yeah Previous thread can be reached here.. Please keep moanin'! yeah yeah yeah
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


Ducky
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Date Joined Mar 2005
Total Posts : 3199
   Posted 7/7/2007 9:05 AM (GMT -7)   
Hey Jody.. I'll find that dinner thread and bump it to the top.. I'll also start a new thread about feet/thyroid meds.. :) :) :)

Moanin' all.. happy Saturday.. woo-hoo! I slept in til 0830.. I feel like a new woman! Ok, gotta read the rest of the posts (I still haven't finished the last Good Moanin' Thread) and I'll be back..
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


Ducky
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Date Joined Mar 2005
Total Posts : 3199
   Posted 7/7/2007 9:23 AM (GMT -7)   
Ok, I'm back.. I found that thread Jody.. and after I post here, I'll start the new thread about feet/thyroid issues.. I am curious as to what your question is.. :) :) :)

Oh Boo.. Hang in there.. there are days where there is just no explanation, and we just "hurt" like you said.. we do understand, shoot, most of us are there right now.. How old is your hubby, may I ask? There will come a time, when he too will be in your shoes, and then he'll know exactly what you are going through.. but until then, you come here and yell and scream all you want, 'cause I know that's what you really wanna do! I know I get that way! Sometimes I just look at my hubby and think, "Seriously? Are you seriously asking me that? What is WRONG WITH YOU?" But they can't see the pain, and they have no idea.. hard for them to empathize with us when they just don't know.. It's like childbirth... they say they understand, but they don't.. 'cause until they pass a 8 lb watermelon out of their nostril, they really have no clue! Hang in there girl, this too shall pass!

Hey Bear.. yeah, 12 hour days are wiping me out.. but have to do it.. it's only for this next week, then I am off for 3 weeks.. woo-hoo! So I just grin and "bear" it and press on.. my flare as of right now is "ok" at best.. not too bad, but not great either.. maybe I'm living in denial? Either way, I'm making it.. I'll sleep and catch up on all my rest those 3 weeks I'm off! :) :) :)

CaMama - Lice.. sheesh.. it's always something with the kiddies, isn't it? My daughter got it once, from daycare.. I was MORTIFIED! I had never had any run ins with it before.. But this is what I did.. I put vaseline in her hair and made her sleep with a shower cap on all night (so not to mess up the pillows and stuff) The Vaseline will smother the active lice as well as the eggs.. then the next day, I used Dawn (yes the dish soap) 'cause it will break down the vaseline... to wash her hair.. then I washed and conditioned it with her normal shampoo and conditioner.. All the eggs and active lice fell right out.. it was the greatest ever! She has very long, thick and curly hair.. and it worked wonderfully.. then I used the RID sprays on all my furniture and carpets.. as well as washing everything in HOT HOT HOT water 2 or 3 times! :) :) :) Good luck to you!

How is everyone else?

Yally? How are those shoulders/arms love?

Momto3.. you doing ok?

Erin.. how's the tan? :) :)

Ok.. I need more coffee.. have a good Saturday all!
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


momto3
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Date Joined Nov 2006
Total Posts : 1331
   Posted 7/7/2007 11:53 AM (GMT -7)   
Hi everybody,

Boo...I'm sorry to hear you are down :( and yes a good cry DOES help! but when you hurt you hurt! and as Jody pointed out, nobody really gets it, not even our spouses!! It is so frustrating!! I'm sorry sweetie, I hope things look up soon, for you.

Jody...I know what you mean...people ask how you are but who REALLY wants to know eh? My own husbands asks every morning but when I begin my tirade as I call it, he often changes the subject...really what do you say?

I woke up this morning and my hips were on fire...but it is MTX day...yeah for me!! I used to put off taking it until almost bedtime...Now?? I can't wait to take it, and hope it kicks in SOON...ASAP! because I HURT!! Monday is my appointment and I have to tell my rheumy that 15mg of MTX plus 400mg of plaquenil isn't quite doing the job....now what?? Why can't that be enough? why why why?? Today I am really super tired, and I think the MTX just cancels out whatever energy the plaquenil gives.. I would really like to have some prednisone!! Gosh I sound like some kind of prednisone junkie:) Some like pain pills..Me? I like prednisone..I think I must be losing my mind!

My daughter is running through the sprinklers because it is so hot here, it is just hot and dry. My boys who decided to stay on in Kansas to visit their dad a bit longer, my daughter had to come home early because of her cheerleading, are in Kansas with all of the flooding, so that has been a bit of an adventure for them. I will be ready for them to come home, it is too quiet without them here, and I miss them terribly.

Bear...I'm sorry to hear you are not doing well...I have been thinking about both you and Erin, and everyone else.

babyplace
Regular Member


Date Joined May 2007
Total Posts : 499
   Posted 7/7/2007 1:25 PM (GMT -7)   
Hey Mom,
Glad you checked in, but sorry you are having a tough day....here it is 7/7/07 was supposed to be a super GOOD luck day....so much for that!
Be sure to let us know what happens with the doc, left you an update of my appt on the "first dose" thread you started, did you see it?
Never had the pleasure of the prednisone, but my brother really likes that stuff too. He has mixed connective tissue disease, is supposed to be on plaquenil, but only takes his meds when he feels bad. Otherwise, if the pred gets him by he just takes that. He's pretty stubborn, and scares me to pieces, especially since I'm learning more and more about all of this now. He's only 42, and has had this for years, but sure wish he would take better care of himself. What is it about those men???? Bear you are certainly NOT the average bear!
Wish we could get you do do some sort of class....if only they would listen!!
Jody

momto3
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Date Joined Nov 2006
Total Posts : 1331
   Posted 7/7/2007 1:33 PM (GMT -7)   
Hi Jody,

Yes I read your update and will reply to that one as well...a bit slow on the uptake I think!! Sorry to hear about your brother! If he is supposed to be on the plaquenil, he should be using it daily?? I tried to get rid of the plaquenil when I was being stubborn and it came back and bit me in the behind!! Because that is what made me really need the prednisone! I have felt pretty good the last couple of weeks, just the last day or so trying to make it to Saturday without any kind of hip pain or swelling seems to be next to impossible. I would worry about your brother too...prednisone is not to be taken for long periods of time or in high quantity, it can cause fluid build up around the heart.. I have a prescription (one refill) and have not had it refilled although there have been a few days that I have been very tempted!! I can certainly understand your brother and his pain.

The Bear
Regular Member


Date Joined Mar 2007
Total Posts : 364
   Posted 7/8/2007 4:07 AM (GMT -7)   
And the wind criees mary
So muc to read and so much to say [as usual]. Boo, big bears don't cry do they? Now this ebar is no goody goody and I can be as big an arse as the next bear and usually at a time of my choosing but the tears were streaming when I read Boo's post and you can gues why. They were as much tears of rage as empathy. I have spent my whole adult life fighting the urge to be an arse all of the tme and fightng not to be the type of people [men] I see around me on the rare occasions I now go to the pub. Boo's hubby must be a good man most of the tiime else she wouldn't be with him but you don't choose to be an arse at the very moment your loved one needs totally the opposie. Stick a firework up his nostril [or even a 8 lb melon] and light the touch paper. Us men have only one role model when it comes to the dads and husbands dept. - our fathers. We can elarn so much from those guys if we choose adn if there s much to learn from. I think you all get the gist ofmy point. Boo, you tell him the bear's a comin'.
Thank you alll for your concern but I am relatively fine. I have to wait to go nto the hospital because  chose mydate, the hospital is that good. I turned down the chance of op in April cos I wouldn't have been fitto go the states in 2 weeks. Then at work my boss is on leave and so I waited for her to come back from holiday before I agreed a date. I am thentaking the cub on his annual trip to Liverpool to touch base with all his friends and relations - he msn's all sorts of people from Liverpool and will meet them[ supervised] for the first time while there, then I shall have the op. But you know when you really need a pee and the nearer you get to the can the more you wanna pee? It's similar with ops. The nearer the op comes the less the body seems to be able to anturally deaden the dscomfort. But a big ebar thank you to one and all for your concern.
Yes Yally, fireworks are a biig issue here but no government has been brave enough to ban private displays and the only law they brought in was to ban sales to minors [under 18] and to ban setting the things off after 11 at night. It seems that every birthday isn't a birthday without a back garden [yard] being turned into Operation Overlord. [D-Day but Ducky would know that already eh?].
 
The cub's final gig with the band turned into a fiasco. It was a big [for locals] one day outdoor music event for the local bands from the district with a big main stage and a side tent for smaller young bands. Cub's bandwere due to go on at 4.30 in the alternative stage but the opening act didn't turn up and they agreed to fill in and start the show, but at no time did the stage manager say it would be at the cost of their later slot. Their army of fans [over 60 turned up at the right time] were not there at the begining so the tent was half empty. Now. The cubs travelling armmy were notorious at the venues they have played for getting a really physical mosh pit going down the front. It wasn't until gone 5.30 that the stage manager and sound man said Days Remain had already been on once and wouldn't be allowed backon as they had played once already. There had by this time been warnings issued that if anyone started moshing security would throw them out and if they continued the plugs will be pulled. Still with me here? Good.
I merely suggested to the Cub that if the 'army' started moshing to every other band they would have to pull the plugs on the whole show. The brought the event director over to the tent and met with  me and two other parents [momma bear was staying well out of this as it was gettng rather heated by this point] and it was pointed out to them by the cub that the band wouldn't be held responsible for the type of ensuing protest by 70+ [word was getting round] hyped up adolscents and the compromise was reached; they go on last and no mosh pit. You know they brought over ten shaven heads from the main stage to put a wall between the army and the band - to stop the cub 'surfin' and allegeedly stop the mosh. Well it was beautiful. It was like a twenty minute scramble for the balll after John Riggins fumbles going for the line. They couldn't really pull the plug as they would have had a riot and common sense prevailed and the security men were great just throwing the kids backinto the mosh. The event director and stage manager were going mental but what could they do?
The stage manager was the tutor at an after school thing called 'rock school' which the cub has been doing for two years and he has never got on with the cub and maybe he saw this as a chance to really show him who the boss was. Stupid arse, he only knew hs name was Phil cos it was on the tag around his neck. It was a good day regardless and just showed what a lot of talented musicians there are locally and some of the acts on the main stage were superb but I think the cub has blown his chance of ever appearing on the main stage in years to come. He's a good kid but he ahs developed a 'persona' with the band a little too early for my liking but what the hell - he helps old ladies cross the road and the cat likes him.
 
Big opst must cook sunday dinner moother in law iscomng over so I better tidy up. Cub in bed momma bear lpaying cricket.
 
Have a great Sunday folks and stay well.
 
The Bear

Boo
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Date Joined May 2004
Total Posts : 724
   Posted 7/8/2007 5:37 AM (GMT -7)   

yeah  I'm here and ok this am.  ((((((((((((((((())))))))))))))))))!  Mega hugs to everyone here!  And YES, of course, I cried when I read your responses this morning.  To have this place to come to when I feel my light is dimming is a lifesaver.  I've always operated on the thought that when one door closes, another one opens, and you all are my other door.  You raise me up.  Hubby is a good man, Bear, like you said.  He just doesn't know how to handle me sometimes and is smart enough to know when to flee the countryside.  The moaning and gnashing of teeth was too much for both of us yesterday.  He did ask me to accompany him to lunch at our fav cafe though.  I have to give him a gold star for that. 

Can't remember who was talking of 12 hour days (fibro fog) but take care of yourself.  I'm going to have some of those this week too and then a week of vacation. 

Just too much frustration last week and it was more than I could handle.  I have an employee that mimmicks everything I'm going through.  Last year I had carpal tunnell surgery and she HAD to schedule something for herself as not let me get "ahead" of her.  She had some varicose veins removed during the busiest week of our year, Rodeo Week.  Then couldn't work any extra hours for me as she was recooping.  I ended up with staph and in the hospital for a week.  I can't remember it all right now but everything I've had done, she's found a suitable "like" thing to do.  I buy a t-shirt, the next day she has the same one.  I get my hair cut, the next day she's gone to the same hairdresser.  Somehow she's convinced her doc to prescribe the SAME MEDS I'm on.  It's creepy.  I had that skin cancer removed so she made an appointment with the dermatologist to have all her moles removed.  I told her she is a nut case last week.  I also gave her the name of my psych doc and told her to give her a call as she needs a lot of help!  Has anyone ever seen "Single White Female"?  She's been with us for many years and I think she wants my life!!!!??????

 

Don't know where all this came from as I try to ignore all this crazy stuff.  But it's getting to be too much for me.  I really am a pretty sensible/stable human being most of the time.  Physical limitations put a damper on eveything.  I'm laughing now at all this.  It's like a book no one would believe.  At least I'll have all next week to take a step back and look at everything and make some changes.  Some big changes. 

Bear, it sounds like you're a real hands-on Dad!  That's hard work and real accomplishment on the Cub's part to have a band and some real gigs!  Glad you're involved in it. 

Going to check out the thyroid?feet thread.  Thanks for listening to the ramblings of a madwoman.  Boo

 


Boo
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Date Joined May 2004
Total Posts : 724
   Posted 7/8/2007 8:25 AM (GMT -7)   
Hey, I just had to get back on here and apologize for my last vent. Not appropriate for this forum. Just having a lot of trouble putting things into perspective. Fogged by pain, ya know. Boo

erin.K
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Date Joined Mar 2005
Total Posts : 3148
   Posted 7/8/2007 8:34 AM (GMT -7)   
cool  moanin'
 
Boo...{{{{{{{{hugs always}}}}}}}}}
 
thanx Duck for thinkin' of my UVRAYS.  i do have an official "tan" yeah it's a 1st...or rather "it's been a while".
 
exciting news:
just 10 minutes ago, while i'm sitting here on my hunny's back patio...i hear a SCREAM that goes right htrough you!  right across the street a cute little boy, like 9 y/o...his mom closed the car door right on his little hand! sad
LUCKILY, lol...i was here icing my bum knees...
i "ran" across the street & gave em' my ice pack & assessed his little paw.
see...nursing school actually pays off now and then. :-) anyhow...i felt useful. lol.  nothing seems broken, but dang!!!!!! ouch!
 
it's been nice staying with my honey the past 11 days.  just hanging out, i'm a bit beat so resting a lot.
 
we have trained our pet chipmunk to eat peanuts out of Joe's hand! :-) :-) :-) it's the cutest thing EVER!
 
ok...i won't moan' too mch so i'll end now.
ciao!
Arthritis Forum Moderator & Co-Pilot
Active Severe Rheumatory Arthritis. AS. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Kidney Stones (oh joy). Previous Lymes Disease for 10 years.
Meds: Remicade infusions 600mg Q3weeks; Intra-articular knee injections; 6MP 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 20mgQD; Entocort 9mgQD; Meclizine; Augmentin; Tigan 300mg; Reglan; LidoDerm; Diazepam 5mg; Rozerem 8mg; Diclofenac; Celebrex; Percogesic; Dilaudid 4mg. 


The Bear
Regular Member


Date Joined Mar 2007
Total Posts : 364
   Posted 7/8/2007 2:21 PM (GMT -7)   
Hi Boo. Apologise for nothing it seems the perfect thread for a vent - it isa moaning thread after all - isn't it. We all get those days but most people are not fortunate enough to have such an outlet as this at hand to get support and allow a blowout every now and again. [or read the ramblings of a sometime demented bear and fulll time freak show]. And yes, it is cathartic to have a good cry at times. Look what happened to Alice
Good to have you back erin and I hope that you are suuitably refreshed and your hunny looked after you and cosseted you and, well, just and!!
Sometimes the 'and' is the best bit. You must have felt really good when you did your Dr. Kildare bit [showingmy age here], medical training never seems too be forgotten no matter what. It's like riding a bicycle. What do you mean you can't ride a bike?
I have had a mixed day as my back went into spasm again but help was at hand in the form of the 7th cavalry aka Kelly the physiotherapist a friend
of the momma bear. She had me in tears again but this time tears of pain which she assured me was a good sign. I must have been at the back of the queue when they were giving out meanings of words and I don't understand how the adjective 'good' can be assigned to the abstract noun of 'pain', unless of course it is in relation to the works of thegood Marquis de Sade. I await the bruises with interest.
Boo I hope and chant that youare in a better frame of mind and your pain is less - you don't deserve such things - none of you do. Watch out for that 15 hour days thing - the body can take only so much. Nuff preachin' for one Sunday. Was thinking of going to church and then I woke up.
take care and stay well all.
Bear

Ducky
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Date Joined Mar 2005
Total Posts : 3199
   Posted 7/8/2007 6:21 PM (GMT -7)   
Hey Boo.. like Bear said.. nothing to apologize for.. that's what we're here for.. vent away! Glad you are having a better day.. take good care!
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


yalinda
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Date Joined May 2006
Total Posts : 1179
   Posted 7/8/2007 11:21 PM (GMT -7)   
boo ditto! and it does sound a bit scary? mini me? dontknow swf?

bear- does ur sons band have a myspace or website to listen to his music????? mosh pits? hmmm what type does he play?

well the right shoulder is starting to flare real bad in pain and i am so worried it is going to so like the left one! i dint have a great day agian so i am starting a log on pain using excel to kee track of how i am doing. seems u forget the good days and keep the bad so i want to see exactly how i feel morning and night for a month. i think it is a good idea? i maybe should keep a slepp log or sleepless log too? i rarely slepp naanymore shoulder hurt cant lay on them. i wish i had a lazy boy to sleep on.

i put in some solar lights in my landscape today. took me like 3 hours to put in 10 lights and i was wiped out after that. i felt like suck a loser. i remember when i would work all day and haul dirt and stuff i am no feable woman or at least i wanst? it is hard for me not to be able to do as i use to. but likeu dont arealdy knw what that is like :P gosh when i think of the old me..... hiking rock climbing aroebics heavy duty gardening and household fixing. now it takes 2 times longer and i cant do half of it. maybe someday???? i hope?????? well it is almost 230 and i do have to work today. got to ber up at 6 so i guess i will try again to sleep? lata nd hugs to all! yally

The Bear
Regular Member


Date Joined Mar 2007
Total Posts : 364
   Posted 7/9/2007 2:07 AM (GMT -7)   
 
Hi Yalinda, what can we do to make the pain go away. Maybe if we start a synchronised chant of 'no pain' it wiill wash away? Nope> Didn't think so. Remember in the Woodstock days we all thought that that was what you could do - if only life was so uncomplicated as it seemed then. The band's name is Days Remain and they do have one track on myspace recorded in the drummers shed in the yard. They lpay what the cub calls hard core with a growling sort of 'vocal' style which really is a shame coz the kid really can sing [A star in music exam]. He stood in with another band on Saturday for one number and it almost made me cry again listening to what people around me were saying about his singing and I thought 'wait 'til his own band come on and then repeat what you've just said'. I don't quite know what the new band will sound like as the cub is playing guitar in this one and just doing backing vx. Once we have moved house and if the band stick together I would be interested intalking to the other parents and see if we can cover the cost of a day in a local studio to record a demo andd then reproduce it on computer for sale at gigs. Watchthis space.
Momto3 what are your kids into? Everybody else - are your kiddles all grown up adn moved away? Was isi Yally or Boo who said a daughter is moving out? Big world here we come eh?
My first real job when I left school was a police officer if you can dig that. Only stayed 2 years because I was too honest to stay. I am sure there were many people like me who joined with high principles but soon learn that you either compromise your beliefs or leave - I left but never regretted joining as it taught me so much in a short time about human nature and what can happen when young people have access to almost unlimited and unfettered power. Remember the adage about power corrupting? All true I am afraid in my experience. There were many funy and hair raising experiences as you can imagine. There's a small book in there somewhere.
Sad enough.
Stay well.
The bear

momto3
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Date Joined Nov 2006
Total Posts : 1331
   Posted 7/9/2007 7:37 AM (GMT -7)   
Moanin...*yawn* How is everyone on this Monday morning? Here it is overcast and looks like rain..we haven't had much rain here so I am hoping we get some soon..I have an appointment to see my rheumy this afternoon and to my disappointment and I am sure to his as well, I will have to report that my MTX is not working as well this week as it has in the past few weeks. I'm not sure what that means in the world of meds and joint inflammation. I think the MTX is making me really tired and depressed because I just don't feel myself. I feel as if I am swimming through quick sand!! This morning my husband is looking for a shirt to wear for work, and he gets one out of the closet and turns to me and says could you wash some shirts? I reply they are in the dryer, and need to be ironed. He says okay, he just doesn't usually like to wear the one he is putting on because it doesn't button right, I don't say anything but I am thinking it looks FINE because I IRONED it last week, but he didn't notice that it was ironed. Just assumed that it was still wrinkled and would not button "right". Insert "eye roll" here. My daughter is still sleeping, maybe I will go back to bed..or maybe I will iron some shirts haha!! :)

Have a great day everyone.

The Bear
Regular Member


Date Joined Mar 2007
Total Posts : 364
   Posted 7/9/2007 9:13 AM (GMT -7)   
Hiya Mom23 sounds like you had the same experience as me when I started my pd meds. For the first few weeks life was great but slowly bit by bt the hiatus reacheda lower plateauwhere it remained stable for some months but it never again reached the level, or the perceived level of relif as it did in those first few weeks. Of course it might have been my imagination that it was so good to start with more the relief of geting something rather than nothing - any relief rather none. I don't know much about mtx only what erin told me here on the thread. But I do know that many people regardless of what they take and for what, have this honeymoon period when the stuff works well and then the body seems to get wise and not respond in the same way after a sjhort while. Pure layman's terms there. Okay Erin/Ducky/keah, time to giive us the bodyworks definition. I do know it can be quite a let down when hopes are raised for that short time when it works. You never know mom it might just be a blip! Here's hoping.
Bear

momto3
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Date Joined Nov 2006
Total Posts : 1331
   Posted 7/9/2007 9:31 AM (GMT -7)   
Hey Bear...yeah it does feel like a honeymoon of sorts! and for the time being the honeymoon seems to be over...it just seems to take more and more thats the scary thing!! Blech I hate these meds!! And since you have Parkinsons...you of all people will understand better than most I'm sure. How have YOU been holding up? I have read some of your postings of you taking your bear cub to places, you are such an awesome dad, but I know your health isn't good.

The Bear
Regular Member


Date Joined Mar 2007
Total Posts : 364
   Posted 7/9/2007 11:51 AM (GMT -7)   
Thanks mom23 but am not awesome just trying to be as good a dad as I can while I can and while he lets me. Being an adolescent it's only a matter of time until he totally breaks free and he wll be getting ready to go to uni thiis tme in 2 years and its anybody's guess what he will end up like. I just think its vitally important to take as keen an interest in the cub until he doesn't want me to any more. Although we have ouur run ins we a good mates and we are both looking forward to spending time together in Liverpool. Once again thank you, t was well received but I don't have the same level of parental responsibiltiy some of you people have - we try to work the partnership thing in the bear cave. Sometmes it works well but others.........we're human, sort of. Growl!!!
Bear

babyplace
Regular Member


Date Joined May 2007
Total Posts : 499
   Posted 7/9/2007 2:27 PM (GMT -7)   
Hey Bear,
Don't think you give yourself near enough credit. You are a phenomenal dad, the love and pride you have in your family is evident iin your posts. Don't know too many dads who enjoy the mosh pits, just because their son is there, singing! In my business have seen all types of dads through the years, believe me, the ones like you are few and far between. My own hubby is a great guy, but was a stay-at-home-dad when it came to band performances, baseball games and the such. That was my department. On one hand I understood, he works contruction and days are long and hot here in Florida, once he gets home, he's exhausted, but on the other, he missed out on so much with his boys, and he realizes it now that they are older. Ours are all out of the house, except the youngest. At 22, he's barely ever here, between work and girlfriend, somedays only know he's been here cuz there is dirty laundry present and food missing. You must have had a great father, you learned well., and your son is lucky to have you. You deserve the kudos.
Yally, hope you got some rest and are feeling better today!! Hate to hear that so many are hurting, I ache right with you.
Mom, how the doc visit go?
Hope you are doing better, too, Boo...just wish we could all make it better somehow.
Been wondering, there's been a lot of postings about how depression goes along with this ****we deal with every day, do you think our spouses, or "others" get depressed as well? I just wonder if maybe that's why they don't know how to deal sometimes. Got me to thinking about this cuz, as been said before, our youngest was diagnosed with diabetes at age 2. Rough times, and his care was pretty much up to me for the most part, until he was a late teenager. I got really down sometimes, the stress of it all could get a bit much. I was healthy, working full time, but it still all got to me, too. Even though our spouses aren't caring for us in the same way, life has changed for them as well.
Oh well, just some rambling thoughts......
have a nice night all,
Jody

Post Edited (babyplace) : 7/9/2007 3:47:00 PM (GMT-6)


momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 7/9/2007 3:10 PM (GMT -7)   
Bear, I agree with Jody, you sell yourself short! and yes they grow up so fast, and before we know it, they are gone! My oldest at 15 *sigh* in a few years will be out of the house, and I try to hold on to every minute. Whenever it gets stressful, I just tell myself, they will never be this age again, and it is so true! Cherish every moment!

Jody...My appointment went well. I get to keep my plaquenil (400mg) and he said it is all about playing around and seeing what works. He was not happy that I still wake up with swelling/stiffness that lasts longer than 30/40 minutes...it lasts several hours, but sometimes it is gone in a couple of hours! I thought that was great! He did not! He said it would be ideal for me to be able to shower,dress, and by that time, be swelling and stiffness free...oh uh...okay! So we are still waiting for this miracle to occur! As for the MTX, I asked how long is it supposed to last and he said it should last from one dose to the next, and I said it is not, I can't seem to make it past Friday and he said this was great news! If you can imagine the look on my face! He said it would be bad if it did not work at all...however, the fact that it is working, just not lasting simply means we need to INCREASE the dose. So I am not up to 20mg... Gosh I'm tired! I told him I am just so tired, and you know there are pills for everything! I have a prescription for something to take on Sunday in place of my folic acid, to help with the fatigue. Other than that he is "very encouraged" and I'm very tired! but I have to admit for the most part, the pain isn't as bad as it used to be..Thats my update for now!

yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 7/9/2007 3:27 PM (GMT -7)   
hi everyone going on pretty much 36 hours no real sleep. worked today came home and got a 15 mnpower nap i dont call that sleep. everyone is gone and busy thought i would take a longer nap but watching tv and the weather and in a panic if it rains saturday! so i am going to go onlime and check out long range forecasts til i find one i like lol! my right shoulder is starting to pain as miuch as the left one? and elbows have been blown ut with apain too. oh well que sara sara. it aint gonna stop me or get me down, at least right now! lol
jody i remember the honeymoon phase of the mtx and i think i went through it with the enbrel at first too? seems like berar says we can only fool our bodies for so long and then theyget smart. go figure dumb me has a smart body? lol
well i have so much to do i guess i better get to it! gonna cut 120 ribbons and wrap plastic utensils in a napkin with a pretty bow, why u ask because that is yally! will anyone care if it is just pick up a fork from a cup ....no but then it wouldnt be yally style :) i already fancied up a basket with that netting stuff and a pretty bow! lol i know iam a kook

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 7/9/2007 11:42 PM (GMT -7)   

Hey all - what's up with this gloomy weather everywhere in July!?

I hope everyone gets better soon. Bear, will you be able to travel in 2 weeks to the states if your hip is hurting so bad? I checked out your son's My Space page - pretty cool!!! Boo, I hope things start looking brighter soon - don't ever apologize for venting! Yalinda, get some sleep! Ugh, I know how the lack of sleep just makes the pain ten-fold! Mom - good luck with the fatigue meds, I am assuming it is a super-vitamin of some sorts?Don't forget H20 - DRINK A LOT.  Actually, I have been lagging on my own water intake and I'm feeling it. Erin - glad your nursing skills came in handy and oooh, that poor little boy!!! hope you are enjoying yoru time at Joe's.

My moanin' is that my hands still hurt. My chest still hurts to breathe deep - is it this lingering congestion or the arava? One has to wonder. The rash on my cheeks there but better, however, now there is one growing above my tailbone pretty bad.  I see doc soon. And the little buggers...but I'm creeped out and upset enough about them tonight....so I won't go on... sad

*****


 


momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 7/10/2007 7:05 AM (GMT -7)   
Moanin..

Camama...Not sure what it is about the weather! It is really overcast here this morning again! You know in Colorado it hardly ever rains, but we always hope! I'm not sure what I am getting but it is a prescription, something similar to folic acid, that starts with an L...I have awful brain fog with the MTX...yeah I know I have been slacking on my water and I think that is some of my troubles! I also take topamax and you are supposed to again drink a lot of water, no wonder I'm tired!

I'm not sure if Erin will see this but I have a question of sorts for her or anyone who might have an answer! When I'm going up the stairs or move my hips etc, I can hear/feel a popping sound in my upper back almost above my shoulder blades. Is that weird? does that make sense? Am I falling apart?

The Bear
Regular Member


Date Joined Mar 2007
Total Posts : 364
   Posted 7/10/2007 9:15 AM (GMT -7)   
Hey camama you like the clip on myspace - i took that with my little pentax digital with its 15 minute video capability. After about 50 seconds the cuub decides the place isn't lively enough and leaps in to the audience [viz-a-viz Sid and Doris Bonkers and all their friends and relations] and gets quite a vio,ent mosh going. You should see him when he comes home from a big band gig he's a mass of bruises as he just loves the physicality of it all and at one venure, the Fridge in Brixton, he was banned from body surfin. Well it wasn't the body surfin it was the leaping from the tables that security got annoyed with1!!!1 Especially the ones with the speaker stacks on - Ihave visions of him doing a back somersualt with double twist before he splats on the deck.
 
How is everybody today? Yally is it your daughter's graduation that all of the ribbons are for or are you going top tie them round a tree for someone? Is this the way to amarillo? Sorry wrong song haha lol.  You should het hubby to put down his wrangling irons. set aside his spurs and hang up his het and get a tyin' of those ribbons there. Better still he could get in touch with his dark er feminine side and wear them. The cub once did a charity walk from school dressed as a charlestone dancer and not only did he do the walk bubble perm and all but he walked back home in full dress annd was even propositioned by a builder hanging from his scaffold.
 
Off to Bristol have a good day all of you and an even better night and may you all have a special nights sleep - especially Yalinda. Watch it Yal or the sleep hallucinators will get you. Power naps my arse what you need is a full 12 hour night.
 
Stay well peeps.
 
The Bear 

babyplace
Regular Member


Date Joined May 2007
Total Posts : 499
   Posted 7/10/2007 11:20 AM (GMT -7)   
Hey Bear,
Little while ago,my son helped me find that myspace page(I'm a little like forest gump on the computer)...was that your son singing? If so, sounded really good...and my son was way impressed with the whole thing, he's a huge music fan.
Hope all is well with everyone today!
Jody

Post Edited (babyplace) : 7/10/2007 1:16:22 PM (GMT-6)

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