Hi all. I know I've been missing in action lately. I was on vacation last week, so it was difficult to post. I got my biopsies back from the upper EGD I had done about a month ago. They were negative for celiac (bummer because now my GI simply wants to call what I have IBS), but I still have the erosive gastritis and erosive esophagitis. I called the GI and explained that I still have erosions throughout my upper GI tract despite taking a double-dose PPI and 300 mg of zantac every night before bed ( a regimen a previous GI doctor started me on). I tested negative for h. pylori and I don't take NSAIDS, so it's either acid reflux and/or bile reflux that's causing the erosions (which is just one step short of ulcers). He agreed that was a bit weird, so ordered HIDA scan to check my gallbladder functioning. If the scan is normal, he's going to switch me to another PPI, I think he said zagaret? Although, all PPIs are created equal so I'm not sure if that's going to help, but it's worth a try.
My mother had this problem with reflux. It got progressively worse over the years (she eventually developed system sclerosis as a part of her MCTD, which is partially defined by esophagael dysmotility). She couldn't lay down anymore; had to sleep sitting straight up. Eventally, she had a major upper GI bleed and they did reflux surgery for her (nissen fundoplication). In any case, that's my story so far.
Joint still doing fairly well, although I have my days just like everyone else.
Hope everyone else is doing well,
Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan