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elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 7/11/2007 4:35 AM (GMT -7)   
Hi all.  I know I've been missing in action lately.  I was on vacation last week, so it was difficult to post.  I got my biopsies back from the upper EGD I had done about a month ago.  They were negative for celiac (bummer because now my GI simply wants to call what I have IBS), but I still have the erosive gastritis and erosive esophagitis.  I called the GI and explained that I still have erosions throughout my upper GI tract despite taking a double-dose PPI and 300 mg of zantac every night before bed ( a regimen a previous GI doctor started me on).  I tested negative for h. pylori and I don't take NSAIDS, so it's either acid reflux and/or bile reflux that's causing the erosions (which is just one step short of ulcers).  He agreed that was a bit weird, so ordered  HIDA scan to check my gallbladder functioning.  If the scan is normal, he's going to switch me to another PPI, I think he said zagaret?  Although, all PPIs are created equal so I'm not sure if that's going to help, but it's worth a try.
 
My mother had this problem with reflux.  It got progressively worse over the years (she eventually developed system sclerosis as a part of her MCTD, which is partially defined by esophagael dysmotility).  She couldn't lay down anymore; had to sleep sitting straight up.  Eventally, she had a major upper GI bleed and they did reflux surgery for her (nissen fundoplication).  In any case, that's my story so far.
 
Joint still doing fairly well, although I have my days just like everyone else.
 
Hope everyone else is doing well,
Elcamino
Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 7/11/2007 7:57 AM (GMT -7)   
hey there El,
ya know...you could always have those slides from the biopsie looked at by another specialist if you do have any 2nd doubts about the DX.  like my GI dude said, "2 eyes are better than 1."
you stated that "you explained to your GI that you still had erosions..."  was this procedure done by a different GI doc????  i might have missed something along the line.
 
even though you showed - for the celiac and all...erosive gastritis & esophogitis are still pretty serious enough to cause major discomfort & ulcerations (even if they wanna' label it IBS...) what's in a name anyway eyes LOL...it's all a friggin' headache isn't it.
 
did anyone mention anything about plaquenil causing some epigastric issues?
 
hang on in there El.
:-)   :-) :-) :-) :-)
erin
Arthritis Forum Moderator & Co-Pilot
Active Severe Rheumatory Arthritis. AS. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Kidney Stones (oh joy). Previous Lymes Disease for 10 years.
Meds: Remicade infusions 600mg Q3weeks; Intra-articular knee injections; 6MP 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 20mgQD; Entocort 9mgQD; Meclizine; Augmentin; Tigan 300mg; Reglan; LidoDerm; Diazepam 5mg; Rozerem 8mg; Diclofenac; Celebrex; Percogesic; Dilaudid 4mg. 


elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 7/11/2007 9:44 AM (GMT -7)   

Hi Erin.  I have no doubts that the biopsies from my duodenum are negative for celiac--no need to get a second opinion for that.  The erosive gastritis and erosive esophagitis are a separate issue altogether.  I've had 3 upper EGDs done in the past 5 years, 2 from a previous GI doc, and this most recent one with a new GI doc.  All three of them have come back positive for gastritis/esophagitis, although the first time, it was nonerosive gastritis associated with h.pylori.  I no longer have h. pylori, but I continue to have stomach pain which I attribute to the gastritis, and it's severe enough to cause erosions when I'm still taking a stupid PPI plus zantac.  I think I have chronic gastritis because of the consistent results with all of the EGDs.  New GI doc wasn't connecting the dots, but I helped him along and he's thinking something's up too, which is why he's ordered the HIDA scan. 

with respect to the celiac--I may not have it, but certain foods, like breads and pastas, certainly trigger my IBS.  So I've been able to minimize my symptoms by avoiding them.  I'm not terribly concerned about it; if it turns out to be the beginnings of something it could take years for it to fully develop.  I think God gives us AI disease to teach us patience :)  I'm more concerned about the inflammation in my stomach and esophagus, as the erosions could easily turn into ulcers and start bleeding.

Thanks for you input! 

El


Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan


The Bear
Regular Member


Date Joined Mar 2007
Total Posts : 364
   Posted 7/12/2007 10:29 PM (GMT -7)   
I don't know what the hell you're on about elcamino I jst wish you weren't going through the mill.You're on the list for the gong bashers and chanters.
Some people chant, others pray. Me I just look at the sky and go mmmmmmmmmmmmmmmmmmmmmmm
The Bear post hallucinations
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