DID YOU OUTGROW JRA???

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

stutterbug
Regular Member


Date Joined Jul 2007
Total Posts : 478
   Posted 7/12/2007 11:31 AM (GMT -7)   
i WAS WONDERING IF ANYONE OUT THERE HAD JUVENILE RHEUMATOID ARTHRITIS AND OUT GREW IT. i THOUGHT i HAD   RA UP UNTIL A MONTH AGO BECAUSE I HAVE THE PAIN I ALWAYS HAVE HAD SINCE I WAS DIAGNOSED AT 10 YRS OLD, I AM NOW 32. I AM CHRONICALLY FATIGUES AND WENT TO SEE A RHEUMATOLOGIST. EXTENSIVE BLOOD WORK WAS DONE AND I DO NOT HAVE RA, OR LYMES, OR ANYTHING. i GUESS BLOOD WISE, I AM HEALTHY. I HAVE MUSCLE AND JOINT PAIN, FATIGUE, MEMORY AND WORD LOSS, NUMB, COLD FEET WHICH DO NOT GUAGE TEMPERATURE WELL (WARM WATER BURNS MY FEET). i THOUGHT I MAY HAVE LYMES IDEASE BECAUSE I KNOW JRA CAN BE MISDIAGNOSED. HAS ANYONE OUT GREW JRA AND STILL HAVE ANY OF THESE SYMPTOMS? i AM HAVING A SLEEPING STUDY DONE TO SEE IF I AM NOT GETTING "GOOD" SLEEP.
i WAS BITTEN BY A TICK AND HAD SCARLET FEVER AS A CHILD TOO. lET ME KNOW IF YOU FIT INTO THIS CATEGORY OR KNOW ANYTHING. THANKS

lizziebug2.5
New Member


Date Joined Aug 2008
Total Posts : 1
   Posted 8/7/2008 4:55 PM (GMT -7)   
I too had JRA as a child and out grew it.  I am 34 and I sometimes experience joint pain in my knees, elbows and shoulder.  I also have memory and word loss.  I'm not completely sure the two are related.  RA in children and adults is sometimes hard to diagnose.  Blood work can be negative even with active disease, especially in JRA.  Please keep me informed of your outcome.   

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 8/19/2008 8:39 PM (GMT -7)   

I had it and was told I outgrew during my late teens it and was supposedly in remission for years - even though I was having a slew of issues, the docs dismissed me b/c my bloodwork was fine. Then, they finally said, 'you have psoriatic arthritis' after I could barely walk for 3 months when I was 25.

Memory loss and brain fog can also be caused by your liver acting up. I have it a lot myself. But, I also have liver problems.


 


mztx07
New Member


Date Joined Jul 2012
Total Posts : 4
   Posted 7/26/2012 4:02 PM (GMT -7)   
I was diagnosed with JRA at the age of 10 through a tissue biopsy on my ankle, so I am quite sure that I did have the disease. I was treated with large doses of aspirin unitl I was about 22-years-old at which time I began having stomach issues and ulcers and the doctor told me, you must quit the aspirin or you are not going to make it because your stomach issues are far more serious than your arthritis. I immediately quite the aspirin and noticed that I felt fine without taking it. (I don't know at what time I actually went into remission because I think I was taking the aspirin despite the fact that I was in remission.) At that time, I had also begun a much more serious exercise program and had lost about 10 pounds, so I don't know if that had anything to do with me going into remission. I had JRA in my left ankle, neck, jaws, and both knees. I have some visible degeneration on X-rays, but I currently do not experience pain or other problems. I had one flare up when I was about 33-years-old. When I went to the doctor, my blood work came out RA- which I found interesting. The rheumatologist said that often people who have had JRA as kids will show up RA negative. At that time, I had read about fish oil as being a treatment for arthritis. I started taking fish oil and in about a month, my symptoms disappeared. I continue with fish oil (actually most recently I switched to Krill Oil after reading about the benefits over fish oil.) I have not had a flare-up since that time and I am 45-years-old, so for those of you who have JRA and are still in your teen years, there is hope that you can go into remission long term. I really do believe in Omega 3's to help with the inflammation such as those found in fish oil or Krill Oil. I have another adult friend who was suffering miserably and found considerable relief by taking fish oil. Having JRA as a young person can be very depressing. Just rememeber that staying as active as you can within reason is important. Surround yourself with people who are understanding. Support groups are great as well. It is very comforting to talk to other kids going through similar things. I know that would have helped me immensely. Only as an adult have I connected with others who had JRA, but I think the experience would have been really helpful as a young person.
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, December 08, 2016 3:13 PM (GMT -7)
There are a total of 2,734,928 posts in 301,259 threads.
View Active Threads


Who's Online
This forum has 151367 registered members. Please welcome our newest member, vtu15.
373 Guest(s), 15 Registered Member(s) are currently online.  Details
blueberrymuffin, Darkwolf, abb, chrisp1, Rikky1, dismissed, Scaredy Cat, Almost a 10, mpost, smlafleur, wpack3, DennisinNY, vtu15, Ariel Smith, multifacetedme


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer