I need help interpreting test results and want to know why I wasn't contacted

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babybloo
Regular Member


Date Joined Aug 2005
Total Posts : 289
   Posted 7/13/2007 11:27 AM (GMT -7)   
Maybe it isn't important but from what I have read it could be.  I got my infusion today which went well actually so far.  While I was there I asked for a copy of my most recent blood work which was from the middle of may.  I was amazed by the drop in my CRP from one month to the next but it is consistent with how I feel things are improving and the fact that I have been off of steroids for 4 weeks now.  CRP went from 19 something to 7.5 which is a huge drop.  So either the methotrexate or the arava is really doing something.  I am interested however to see how it is now that I have noticed in the last week symptoms returning in the new areas like wrists and shoulders vs my feet. 
 
Anyhow there is something on the bloodwork that concerns me and maybe it shouldn't but I just want to be sure here is what it reads:
Lupus Anticoagulation Reflex
PTT-LA : high
PTT-LA mix:  High
Hexagonal Phase Phospholipid: High
dRVVT:  High
 
Repeated results were slightly higher but essentially equivocal.   Results are consistent with the presence of Lupus Anticoagulant.  This can be caused by a deficiency of one of the common pathway factors (X, V, II, or fibrinogen)
 
Positive for Lupus anticoagulant Inhibitor.  The presence of lupus anticoagulant antibodies, confirmed by hexagonal phospholipid neutralization procedure have been associated with thrombotic and bleeding complications, thrombocytopenia, and recurrent abortions.
 
 
Now all of the lupus tests were within normal range.  The rheumatoid factor was also within normal range.  Other clotting times were high normal. 
 
Negative for Anticardiolipin AB, IgG, Qn
Normal for Anticardiolipin Ab, IgM, Qn (result was 9, less than 10 is normal)
 
I assume this is nothing to worry about but it seems that there should have been something mentioned to me.  Am I right or is this the whole reason they don't generally give bloodwork to patients without asking?
 
Theresa
 


dx: Rheumatoid Arthritis.  Duration: 10yrs. Dx'ed 2006.  Asthma, hypertension, hypothyroid
 
Meds: Methotrexate 25mg wkly, Prednisone 15mg, Enbrel 50mg wkly, Arava 20mg, Folic Acid, Fish Oils, Ultram 50mg TID,  Advair 250/50, Diovan HCT 160mg/25mg QD, Women's One a Day, tylenol PRN.
 
 


elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 7/13/2007 12:04 PM (GMT -7)   

Hi Theresa,

I'm sorry, but I really don't know how to interpret the lab values you have recently had done.  If you're concerned about it, though, by all means ask your doctor.  That whole idea of, "if you don't hear anything, you can assume that everything is normal," is a bunch of bunk.  Many times, doctors are simply so busy that they overlook the abnormal results, or they table it to discuss with the patient at a later date.  Or it's not that big a deal to them and they figure the patient doesn't need to know.  Basically, I believe you have to follow up with the doctor, and not expect that they're going to tell you everything you need or even want to know.  Even my rheumy, whom I have a great deal of respect for, does not tell me a lot unless I specifically ask.  Most of what I've learned comes from this board and other medical information from the net at large.

El


Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan

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