Only "hang in there!" and remember stress does not help a situation! Good luck on Wed. let us knwo how everything goes.
When I was on remicade - i had to take 25 mg of bendryl otherwise I dragged for days on 50mg ....if I had a steriod infusion ahead of time too - man, I was a mess for days!
OK, so I don't have a medical degree and I'm not a nurse but I've gone back on my Lodine (Etodolac). Celebrex is supposed to be easy on the tummy but it's not easy on mine. And it doesn't even touch the pain and swelling. I'll call the rheumy today and tell them. I have almost been immobile all weekend. Went on a crying jag yesterday that wouldn't stop. I see folks moving on, having fun, living their lives.........and leaving me at home. Oh Poor Boo. Here I am on my pity pot again. My throne. It's just that Nothing will be done this week about trying to sell the business and I'll be expected to suit up and show up again come Monday morning and kill myself in the process. Me thinks my feet will turn into nubs. I'm just working up the courage to tell him once and for all that I'm done. Get a new partner or something. Probably shouldn't do that as he's already "replaced" me once before. Sorry to open that can of worms but it's always in the back of my mind. When I was dx'd and put on disability he went nuts, for three years, with my best friend. Why am I still here? I guess to keep driving him crazy. Ha! We all know how it is on marriage and relationships with this disease. He's got a couple of maladies of his own to deal with(which do not belong on this forum) and the stress is too much for us at times. All that on top of running a business together....well you get the picture.
I'm going to do my "stuff" today, go into the city for a couple of appointments, maybe some shopping, just pace myself, since I can't walk very far. I'm just going to have a good day.
Just have to get on here and rant so I don't explode. Thanks! Boo
Egads, I'm sorry everyone is having such a hard time of it of late! Although my joint symptoms are fairly well controlled now, I still remember when I ached all of the time. It was unrelenting, and at times I was seriously down about it. I can truly empathize with you guys. Just so you know, I tried vioxx (similar to celebrex) and it did nothing for me either except cause GI problems; it's not supposed to cause GI issues either. But then if you have a sensitive GI tract, like myself, everything tends to upset my system.
Fortunately, at this point, I have not had to have an infusion. The enbrel worked for me, when I was taking it, and mtx is working for me alone right now. Boo, try not to let it get you down when it feels like everyone else is leaving you; maybe you can find activities that you can do, and invite your friends/family to join you for a change.
That's all for now. I hope everyone has a better week this time around.
I think my head is on a little straighter this morning. Pity party has broken up and I'm going to Podiatrist (surgeon) today. Another trip into the city and I'm looking forward to it. I can really FEEL concern and care coming through the net! This is awesome! Just a lot of strange crap going on around here that's triggering the depression and rage from a few years ago. I'm on top of it now. Hey, I'm still me and I'm still here.
Bear, you are a gem! There are few of your type running around this planet who aren't afraid to be human and sensitive. But, you're special.
Erin, let's go into the biz together. I've gone back on the Etodolac and I'm doing better. I'm remembering having taken Celebrex once before. Now I'm remembering why I quit it. Gotta call the rheumy's office back and tell them so I'll be able to refill it later. Sometimes I don't think something's working until I stop it. Ugh!
Be it the arthritis or be it the whirlwind of stuff going on......I'm having a bit of a problem keeping my mouth shut. Hahahaha! I had a "discussion" with a receptionist yesterday who clearly doesn't love her job. I listened to her talk down to me for a few moments and quickly informed her that just because I was on Medicare, I was in no way, shape or form going to let this attitude slide, that I am a professional woman who doesn't allow this kind of behavior in my place of business, and that the doctor will be informed of this experience. I too, have been in the medical field and this is not the way to speak to people who are in physical and emotional pain. She was silent for a moment and then apologized. I'm still laughing about that.
The other "meltdown" was at Wal-mart. This guy parks his cart at the front of my car instead of the place where you put them which was two steps away. I said, "Hey, that's ok. I can't walk but I'll put this away for you and I think you scratched my car, I've got your liscense number and you'll be hearing from my lawyer".
Boo better calm it down! Wal-mart parking lot is NOT the place to let off steam. Maybe I'm developing a resentment for able-bodied persons. Wooohoooo! Look out world, here I come.
Got to get ready for doc appt. Pray for me as I drive my Beetle Bug around the city and look for unsuspecting victims. Ha!
Good moanin' all! I hope everyone is doing well today. I'm feeling good. Had a good appointment with my rheumy yesterday. He seemed pleased that the mtx is doing what it should be; offered to increase it even more--I quickly said no way. I also talked to him about the erosive gastritis and erosive esophagitis. He said that certainly is something that needs to be taken care of, as none of the meds I'm on, including the tb meds, can cause erosions. It must be acid, and given that I've been taking a PPI for the past 5 years, it must be break through acid. I have a HIDA scan scheduled for Friday morning to check my gall bladder. Again, if that's normal, GI will switch up my PPI to see if that helps my symptoms.
Post Edited (erin.K) : 7/18/2007 10:31:31 AM (GMT-6)
El, I'm so glad to hear you're doing ok and feeling good! Hope you get that other stuff taken care of. Erin, I thought that Fent stuff was pretty strong. Bless your heart, Sweetie.
We do Slug Bug here. I see kids hit each other all over town when I drive by or pull up next to them. My son-in-law makes fun of my car, says he's waiting for all the clowns to start piling out whe I pull up in front of their house.
Folks, I think this plantar fascitis is going to be the end of me. I purchased yet another pair of shoes today, New Balance, which my doc advised me to do. The salesman spent a lot of time on me and knew what he was doing. I did a little shopping in them while waiting for another appointment and thought I'd die. Maybe it's going to take some time to get used to this new orthotic and I know there is inflammation of Biblical proportions. Had to get home and on the ice pack straight away. I'm getting really discouraged and have to go back to work Monday. I had another break down yesterday when I got home from the injection in my heel. Told hubby I wasn't going to kill myself anymore. This is it. Hire more people or something. I need my feet!
Jay Z........Erin, sounds like a rap singer. Ha!
Yally, you're right....no more cutsie summer sandals. And I'm a shoe nut. Made a second outing today in my "transformer shoes". I remind myself of one of my grandson's transformer toys. These shoes are huge! But they're feeling better. I went to see my mother-in-law in her new place at the nursing home. Very nice place. She seems comfortable and happy. She asked me five times in 30 minutes how my kids are doing. Didn't remember her son (my husband) being there this morning. But that's ok. I'll stand on my head for her to be happy.
Having a better day so far. Erin, watch out for exploding sidewalks!