what pain meds do work?

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lovemysons
New Member


Date Joined Jul 2007
Total Posts : 18
   Posted 7/18/2007 10:01 AM (GMT -7)   
I am new to healingwell.com. But I have been in pain and suffered for many years with different things. Presently, I am facing a disc removal surgery on my l-5 with fusion. I also suffer from severe arthritis in my lower back and hips. I think I also have it in my left knee.I have fibro, RLS,depression. ( i take meds for depression)I take Celebrex daily for months now and it does not seem to work.( i have tried several steriods with no relief,injections,etc.) For my back and hips I take percocet. I also take Lyrica with not so fun side effects for my nerve pain/damage in my legs. After all of that,I still have pain. Constanly. any ideas?  

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 7/18/2007 4:43 PM (GMT -7)   
Hi! Welcome to Healing Well! :)
I have to be brief (my paws hurt now); but having been on almost every NSAID & pain med out there...the few things that HAVE worked were:

Arthrotec [there are a few variations of it] was GREAT for the inflammatory arthritis joint pain I have (RA). I WAS THRILLED! I felt it was better than narcotics & steroids the way it worked!

Prednsione at 20mg or above really does the trick for me w/ joint pain & swelling.

Dilaudid helps me (more so before I got tolerant to it) w/ getting a grip on the joint pain.
Actually...whenever I take Celebrex or Diclofenac, I get MUSCLE PAIN as a side effect!

Wow...steroids do not provide any relief for you? I'm so sorry.

If you state that you have pain "constantly"...perhaps a time-released "around the clock" pain med might be an option for you?

But I was really surprised & impressed how well Arthrotec worked. {I had to stop it due to major bleeding issues though, I'm still P.O.'d about that}

Best wishes...be in touch soon.
Sincerely,
erin
Arthritis Forum Moderator & Co-Pilot
Active Severe Rheumatory Arthritis. AS. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Kidney Stones (oh joy). Previous Lymes Disease for 10 years.
Meds: Remicade infusions 600mg Q3weeks; Intra-articular knee injections; 6MP 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 20mgQD; Entocort 9mgQD; Meclizine; Augmentin; Tigan; Reglan; LidoDerm; Diazepam; Rozerem; Diclofenac; Celebrex; Dilaudid 4mg; Duragesic 25mcg/hour. 


SnowyLynne
Veteran Member


Date Joined Apr 2004
Total Posts : 1539
   Posted 7/18/2007 4:48 PM (GMT -7)   
I ave Osteo.& I have a very high tolerance for pain so I mostly take Tylenol Extra strength.
SnowyLynne


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 7/21/2007 6:59 PM (GMT -7)   
u know if pain is unable to be conrtolled byy ur med, i have a friend who raves about her pain magmt specialist and says her quality of life is improved 10fold. i was asked to go to one by the ortho this past week on my visit but i am uncertain if i want to get into too many narcotics cuz i work. he told me pain management could work with that?? i might go yet? doiingmore research on the topic. keep us posted on ur control and welcome yally

hunnybunny
Regular Member


Date Joined Jun 2007
Total Posts : 21
   Posted 7/23/2007 8:30 PM (GMT -7)   
Yalinda, Could you tell me more about pain management.  I hate having to add drugs to manage pain and would like to know what is involved with a specialist.  Thanks for your help. Hunnybunny

M.Catherine
Regular Member


Date Joined May 2007
Total Posts : 102
   Posted 7/24/2007 8:25 AM (GMT -7)   
Here in Vancouver, Canada, one of the teaching hospitals has a pain management clinic. I had to wait for a year to be seen, and then it was because of a cancellation. It was the best thing that happened to me. I had to have a GP's referral. The moral of the story: the sooner, the better.
Mary
My first name is Mary, but I've used its initial and my second name Catherine


hunnybunny
Regular Member


Date Joined Jun 2007
Total Posts : 21
   Posted 7/24/2007 4:28 PM (GMT -7)   
Thank you Mary for replying. Is it biofeedback of hypnotism? I here a lot about pain management, but I never knew anyone who actually went. Again , thank you, Hunnybunny P.S. My silly name comes from my grandson who named me this instead of Grandma.My husband is 6'5" and he named him BIG GUY.

M.Catherine
Regular Member


Date Joined May 2007
Total Posts : 102
   Posted 7/25/2007 6:52 PM (GMT -7)   
I, too, thought it would be biofeedback or self-hypnosis. But, instead, it was an hour interview with a doctor who specialized in pain management, both from a psychological and physical viewpoint. I have had anklyosing spondylitis, a form of rhematoid arthritis, since my early twenties.
The doctor took a very thorough history and then essentially fine-tuned the medications and treatment I was on.
At age 77, I had no further tolerance for oral, or rectal, anti-inflammatory medications and their attendant acid-suppressors, so I was advised to use only anti-inflammatory creams and only when necessary. Tylenol, 500 mgs. every 4 hours, not to exceed 4000 mgs. per day, kept the pain in check.
The use of physio and excercise, including water exercises as prescribed by the pysiotherapist, was encouraged.
A characteristic of ankylosing spondylitis is that the pain increases during the night. I never got a good night's sleep, which increased the pain, which increased the lack of sleep the following night. Breaking that cycle with a very low dose of the anti-depressent Trazodone at bedtime was the crux of solving my problem. (One of the side effects of Trazodone is sleepiness, and the sleep produced is close to a natural one.) I take 1300 mgs. of long-acting Tylenol, plus 25 mgs.of Trazodone, at bedtime.
Once I got the pain under control, I now take approx. 3000 mgs. of Tylenol per 24 hours. plus 25 mgs. Trazodone. I exercise 3 times a week at the YWCA, which has equipment that you can increase or decrease in resistance to within a pound or two, thus avoid injuring yourself. The swimming pool water is warm and there is a hot pool.
I didn't mean to go on and on, but sometimes the truth is in the details.
Mary

hunnybunny
Regular Member


Date Joined Jun 2007
Total Posts : 21
   Posted 7/25/2007 6:56 PM (GMT -7)   
Thanks Mary for the info.  You didn't go on and on, it was very interesting. Hunnybunny
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