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bamabelle214
New Member


Date Joined Jul 2007
Total Posts : 13
   Posted 7/24/2007 2:55 AM (GMT -7)   
Thanks everyone for the insight.  This is a new line of questioning regarding working.  I'm going bored out of my mind being at home.  Currently, I'm doing pool therapy and trying daily walks around my neighborhood (trying to stay active and lose some of this weight from the Pred), however because my job is labor intensive (flight attendant...no jokes we have long days and lots of up and down on your body) I haven't been able to go back to work.
 
I feel like a failure, and really thinking about upping my pred dose and working a trip this weekend just to see if I can handle it. 
 
I know everyone is different, but does anyone work a non-office job that can provide a little insight.  I have my good days and bad days around the house and will be starting remicade next week, but I'd love to have a little "normal."
 
Thanks!

iMarzz
Regular Member


Date Joined Apr 2006
Total Posts : 103
   Posted 7/24/2007 11:00 AM (GMT -7)   
Hi, I work as an RN. 12 hour shifts on my feet with all the pushing, pulling etc. I work two in a row and take 5 days off. Takes 2 days to recover but it's worth it. Good Luck.

Mary

yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 7/26/2007 10:04 AM (GMT -7)   
hi bamabelle, as you know some jobs are more strenuous than others but if you are state side there is the amerian disabilities act or the ADA that does lay some guidelines for employer accomadations to disabilities. most persons are not familiar with their rights and often feel they have no choice but to go on disability. sometimes that is an nlu choice but sometimes employers mght be able with undo hardship to place you within their organization and still keep seniority and benifits. an example might be you are unable to work on an airplane any longer due to mobility issues but maybe with a comfy high chair you could work the ticket station at the gate or something else with in the company. not being fam,iliar with your abiilities, interests and accomadation needs i can only suggest what i am familiar with. often agencies like independent living centers and VESID can help with such exploration if you truley want to work still, plus while on any form of permanent disability you often can still eran limited dollars to compliment your disability earnings without loosing your benifits. good luck with your job search.

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 7/26/2007 4:19 PM (GMT -7)   
Hey there.. I am in the Air Force.. I'm an Aircraft Mechanic.. I work 12 hour days 5 days a week with 2 days off as well.. there are days that I am on my feet non-stop for 14 - 16 hours.. I am also a mother of 3 and a wife.. Don't ever feel like a failure.. you are still persuing ways to beat this.. by going to pool therapy and talking walks and trying Remicade.. PLEASE don't depend on the Pred as a long term fix.. hopefully the Remicade will provide you with the relief you need and soon! Hang in there... you're right, we all have good days and bad.. we just deal with things the best we can.. A lot of times, that is coming here and venting.. Good luck to you!
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


bamabelle214
New Member


Date Joined Jul 2007
Total Posts : 13
   Posted 7/28/2007 6:47 PM (GMT -7)   
From everything I've read, I think I'll be able to return to work once I find the medicine (regime) that works for me.  I'm really hopeful that one day I may be able to brave the route of alternative treatments, etc.  I'm not ready to explore those options because this is all so new.
 
My next question is if someone is not able to work due to this disease, when did you know, or rather how do you know.  Here is my confusion:  on most days after a few hours I feel 'normal.' I have pain, but I can work through it, especially when I'm distracted by other things (one reason I think work is good for me).  I do get the serious fatigue going about midday, and need a nap.  From what I'm told this will also not be the case once I'm getting the proper medicines going.  As long as I stay on the prednisone, I can function.  I do have those days, however that I can't move despite all my efforts.
 
How do I know when I'm well? Is what I'm asking...I know it's silly, but again this is all new?

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 7/29/2007 6:20 AM (GMT -7)   
Morning.. :) hhmm... how will you know when you can't work anymore.. Well, once you get the proper meds, and feel somewhat "normal" again, you'll think that you can conquer the world! :) And you will.. you will still have good/bad days.. but the good will out weigh the bad.. It will be a gradual thing.. hang in there bamabelle.. we've all been there, and will help you through it.. Stay well..
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 7/29/2007 1:04 PM (GMT -7)   
work is so different for each of us .... desk jobs verses manual labor, we all siffer. we also differ by physical limitations and mental outlooks. me i am stuborn and darn if i am gonna quit just yet- patcially cuz i need the income.... actually totoally because i need the income lol well i telling the truth. on really bad days i call in sick and my boss understands me thak goodness. yep work is a distraction for me and home is my resting place. luckily my kids are old enough to do for themsevles so i can nap. i thin those who have gone on disability just knew they had to, no choice and that is when youwill know, no choice. i hope i dont see that day until i can afford it. good luck hugs yally

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 7/30/2007 4:53 PM (GMT -7)   
boy oh boy this is hard isn't it bammabelle?
oh, welcome to healing well! i think your career is awesome! {secretly i'd love to be a flight attendent}
hang on as long as you can with work. i think you will know instinctly when you realy cannot do it anymore.
i hung on till basically i was dragged out of the hospital (nursing).
over a course of 5 years, each year for me got worse and harder and harder to do basic daily obligations.
i'm not saying that this is the written course for RA, by all means it's not...but for me, i filed for SSDI when after trying to work and be on my legs i'd end up in the ER. that and i couldn't last more than abot 1 hour working doing the least amount of work.

so hang inthere & give it your all...you never know what lies ahead, things might turn out really really good.
take care,
erin
Arthritis Forum Moderator & Co-Pilot
Active Severe Rheumatory Arthritis. AS. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Kidney Stones (oh joy). Previous Lymes Disease for 10 years.
Meds: Remicade infusions 600mg Q3weeks; Intra-articular knee injections; 6MP 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 20mgQD; Entocort 9mgQD; Meclizine; Augmentin; Tigan; Reglan; LidoDerm; Diazepam; Rozerem; Diclofenac; Celebrex; Dilaudid 4mg; Duragesic 25mcg/hour. 

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