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cbrossman
Regular Member


Date Joined Apr 2005
Total Posts : 191
   Posted 7/24/2007 10:19 AM (GMT -7)   
or maybe I never had RA. I don't know, but I do know the following:

- I've wanted to stop taking MTX and Enbrel for many months now, and this past weekend was week 5 w/o any drugs.
- I've had my normal amount of crashes on my mountain bike and unicycles, no recent broken arms, but lots of scrapes and cuts.
- My wrists, elbows and knees don't seem any stiffer or sorer than usual. They are still sore sometimes, but usually only after 4+ hours in the saddle.
- I have done this without any adult supervision, specifically my Rhuemy. She may be pissed.
- It took 2 months for the drugs to kick in, I won't declare victory for at least another 3 weeks.
- I had all my Silver Almagam fillings (8) removed and replaced with porcelain fillings.
- Being reliant on the drugs has been a source of depression for me for over 2 years; I have to know if I can deal without them.

So maybe I am an impostor, a guy who was diagnosed with RA, but really does not have it. Maybe I'm just lucky, it went into remission, maybe the fillings had something to do with it. I just don't know.
The funny thing, even if I go 2 more months and still do not feel the affects to RA, now I'll have to deal with the depression associated with waiting for it to return
... unless I get that lobotomy I've been considering ... Craig

elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 7/24/2007 10:28 AM (GMT -7)   

You go Craig!  I hope you continue to do so well.

 

El


Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan


iMarzz
Regular Member


Date Joined Apr 2006
Total Posts : 103
   Posted 7/24/2007 11:09 AM (GMT -7)   
Sounds good to me! It's your life. I wish you well.

Mary

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 7/26/2007 3:33 PM (GMT -7)   
Woo-hoo Craig! I have wondered where you'd been.. I see that you are off galavanting since you feel so good! I hope it continues.. please continue posting, it gives us hope! :)
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 7/27/2007 5:24 PM (GMT -7)   
wow! great news craig! send the water your drinking our way so we can all get some! my comes from polluted lake erie :)

so u mastered the unicycle? glad no broken bones silly man....... i do think of you when i look up in my garage an see my bike hanging, i say craig can do it???? they i say nahhhhh but i am swimming this summer when the weather is hot.
great hearing from you take care and if u have any pics again to share we'd love to see em!

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 7/28/2007 10:52 AM (GMT -7)   
bump for I_willconquer..
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


I_willconquer
Regular Member


Date Joined Oct 2006
Total Posts : 77
   Posted 7/28/2007 4:34 PM (GMT -7)   
Thanks ducky. I was looking all over for it and couldn't find it lol.
 
cb, if you are in remission, ENJOY it. Don't waste your time in depression, worrying about if/when it will come back. If you wake up and the sun is shining and you are pain free, just relax and appreciate another day free of pain. Think about it...if you woke up in pain, you'd be thinking about how good life would be without pain, well today's that day, so enjoy. I truely believe by positive thinking we can lessen our symptoms and in some cases make them go away.
 
Oh yea, what do you mean by adult supervision? Are you a teen?
 
Congrats cb. Soak it up!

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 7/29/2007 6:06 AM (GMT -7)   
Hey Conquer.. No Craig isn't a teen.. he's just a big kid at heart.. :) :) :)
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


cbrossman
Regular Member


Date Joined Apr 2005
Total Posts : 191
   Posted 7/31/2007 12:06 PM (GMT -7)   
I'm 46, so not a teen, but still require more supervision than I get, and the Mrs. just can't be there all the time. devil
Sunday was week 6, no MTX or Enbrel (how is it a spell checker in the Arthritis news group does not know MTX or Enbrel?)

I really don't know what to think about why I'm still holding on.
I was told that remission w/o chemicals is unlikely. I was also told I had RA, severe enough to require those chemicals. Now both of those statements cannot be true, can they.

I've not mastered the Unicycle yet, but I am getting better. It is great fun and I recommend it to everyone. The best part, and certainly feeds my voracious ego, is the reaction from others who see me.

not everyone enjoys a clown, but EVERYONE likes a unicyclist ... Craig

magsmom
New Member


Date Joined Mar 2007
Total Posts : 9
   Posted 8/1/2007 4:56 PM (GMT -7)   
Craig,
 
Your story gives me hope!  I HAVE heard of several people who struggled with RA for years and then it just went away?????
 
I'm not kidding, I have heard of people who were miserable with it and then it just went away and now they take nothing.
 
This makes sense to me b/c my RA hit me like a freight train:  one week-fine, next week-miserable!
 
I've only had a diagnosis of RA since January and all I currently take is methotrexate.  I tried sulfasalazine but it made me ILL!
Now it seems my RA is kicking up  and so they are trying to get my insurance co. to approve Humira.  I have never taken prednisone but I am a teacher and am just feeling rotten, so I'm going to take 5 mg. of prednisone/day  until they get the Humira approved.
 
I used to do 5 spin classes a week and felt really energetic and younger than my years (48).  This summer has been a drag b/c I haven't felt like entertaining my children (10 and 12) as I normally do on our summer break.
 
My response to you is LIVE IN THE NOW!  Enjoy going without meds and if you find that you need them again, then thank God that they are there and they worked before. 
 
Having RA is a burden, but I have several friends with cancer, so I feel like I need to count my blessings......
magsmom 

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 8/2/2007 1:00 AM (GMT -7)   
hell! Craig go for it!  do whatever the heck you're doing now for as long as you can because "ya never now"...misdiagnoses is possible, and some weirda** illness that go away do respond to heavy antiinflammatory meds.
 
it may be that you have hit a remission! a long LOOOOOONG one i hope in that too.  some peeps hit 10 year remission! yeah
 
i say, anything is possible.  i do not believe that statement in that RA can't have a non chemical remission...i mean, getting the immune system bumped back to working order the way it's supposed to be? it should drive pretty well thereafter.
 
live it up dude!!!!!!  who cares what it is!!!!!!!!  it's a good thing.
erin
Arthritis Forum Moderator & Co-Pilot
Active Severe Rheumatory Arthritis. AS. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Kidney Stones (oh joy). Previous Lymes Disease for 10 years.
Meds: Remicade infusions 600mg Q3weeks; Intra-articular knee injections; 6MP 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 20mgQD; Entocort 9mgQD; Meclizine; Augmentin; Tigan; Reglan; LidoDerm; Diazepam; Rozerem; Diclofenac; Celebrex; Dilaudid 4mg; Duragesic 25mcg/hour. 


BabZ
Regular Member


Date Joined Dec 2006
Total Posts : 74
   Posted 8/8/2007 7:44 PM (GMT -7)   
Congrads on your amazing Remission, I think its great that you are feeling better and stronger.....I think the fact that u are active with Cycling might play a big part of it as well.

I also agree with Erin, there are times that we may have a weird illness that can respond greatly with heavy antiimflammatory medications...and if thats the case for you...WOOOHOOOO...Live it up...beucase that can give us all hope, to know that we all may have a Remission like urs....

good luck with everything
BabZ

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 8/11/2007 9:25 PM (GMT -7)   

Craig! Great to hear from you and hear such great news! Here's hoping you stay in remission!!!!

***


 

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