Not new to the site, but new here. Question

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I_willconquer
Regular Member


Date Joined Oct 2006
Total Posts : 77
   Posted 7/28/2007 9:49 AM (GMT -7)   
 I will soon be 35, at age 20 I went to the emergency room b/c both of my calves were in tremendous pain, it also felt like someoen cut my circulation off. Went to ER and was given some pain meds and told to make an apt w/ my fam dr. I believe my sed rate was 300,(actually I'm guessing as it was 15yrs ago) the dr. automatically dx me with RA, said i'd be deformed etc. Don't you just love the tact of some dr.s confused Anyway I saw another dr. who was mad that the first dr. dx me b/c he was't a RA dr, and he said there really was no way to pinpoint it unless there were obvious signs like swelling, and deformation etc. Anyway i had changed my diet worked out, lost 20pounds and the pain disappeared for yrs. I had no signs of it for at least 4 yrs, there-after very mild pain that would come and go. I usually get it in my hips or wrists,and i do have chest pain which seems more prevelant. I've had two or three chest xrays blood work, ekgs etc, and all seemed fine. I've often wonderd if i have fibromalgia, but i read that your sed rate is USUALLY not elevated but normal or low.

 

I don't have deformity or inflamation. The intermitent pain that i do have from time to time is bearable. I also wonder if I subconciously bring symptoms on. Ie I can have no chest pain for 3,4,7 months,yrs etc, or no joint pain, and as SOON as I think about it, it comes on. I think the mind is a powerful thing, as it's happened at least 10 or more times. 15 YRS later and no serious/debilitating pain, the most pain is when i went to the ER 15 yrs ago, and got the "diagnosis" 2 days later. The bloodwork ruled out lupus,lymes, and other liver related diseases. Only reason I am in no rush to follow up is bc i hear that most ppl do better off meds and many who are on them have side effects. I would most likely take the natural approach(herbs, natural remedies etc) if it came down to it. It seems other than eat right and exercise there's really not much to be done about it, or am I missing something?

 

Not looking for a dx, just want to talk with other BTDT.

 

Anyone have mild to no symptoms but have been dx with RA?

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Post Edited (I_willconquer) : 7/28/2007 6:14:46 PM (GMT-6)


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 7/28/2007 10:49 AM (GMT -7)   
Hey there Conquer.. welcome to the Arthritis side of the forum.. There is a thread called "Remission" started by cbrossman.. our wonderful Craig.. Read that as well as some of the other posts by Craig.. seems as though has has put his RA behind him.. he was medicated at first, but now is med free... It really is inspiring.. when you mentioned you would like to try to do this without meds, that is the first thing I thought of.. stay active.. stay in shape and watch what you eat.. Good luck to you and I hope to read more of your posts!
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


I_willconquer
Regular Member


Date Joined Oct 2006
Total Posts : 77
   Posted 7/28/2007 4:44 PM (GMT -7)   
Yea, unfortunately the pharamceutical companies don't like to endorse the natural route. I've used natural remedies for other minor ailments and they seem to work better, and are safer in my op.
 
I'm the type of person that doesn't like going to the dr unless I'm in chronic pain, or I suspect something serious. I dunno, maybe 'part' of me doesn't want to be dx'd since i can't do anything about it.. As i said the symptoms aren't debilitating and come and go, sometimes as long as yrs, so we'll see. If i had to choose, I'd rather it be fibro. but it is what it is, know what i mean?! It could also be my diet. The past month I haven't followed my usual eating habits. I've noticed if I eat chocolate and caffeine daily for awhile I seem to be more achey. Yesterday I made the decision to eliminate the caffeine again. Sometimes we get to feeling good and forget to take care of our bodies.

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 7/29/2007 6:10 AM (GMT -7)   
There are a lot of people on here that have adjusted their eating habits as well.. I know the other MOD here, Erin, has been on the Maker's Diet before, and she did quite well with it... Good luck to you! :)
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


hunnybunny
Regular Member


Date Joined Jun 2007
Total Posts : 21
   Posted 8/2/2007 5:46 PM (GMT -7)   
Interesting about the diet.  What do most RA patients try to stay away from and what do you eat on a daily basic.  Also what vitamins do most of you take?  I know the old saying "NO news is good news" , but if your sed rate is high, if you don't get dx properly maybe you could do damage to your joints. I hope not. Good luck in your quest.  Hunnybunny

I_willconquer
Regular Member


Date Joined Oct 2006
Total Posts : 77
   Posted 8/7/2007 4:54 PM (GMT -7)   
hunnybunny said...
Interesting about the diet.  What do most RA patients try to stay away from and what do you eat on a daily basic.  Also what vitamins do most of you take?  I know the old saying "NO news is good news" , but if your sed rate is high, if you don't get dx properly maybe you could do damage to your joints. I hope not. Good luck in your quest.  Hunnybunny
Thank God for remission and now a mild form, that has probably kept alot of joint damage at bay. Remember this was 15 yrs ago that i was dx'd and everything I've read says that most damage/detrioration,deformation happens in the first 2-5 yrs. Sometimes google can be your best friend AND your worst enemy lol.
 
As for diet. red meat, transfatty acid foods, foods high in carbs, and sugary foodscan bring on inflmation. In fact i'm sure it brought on this mild flare as i was eating brownies, and choco chip cookies everyday for about a month(which i'm usually more disciplined than that.
 
 As for supplements,I, just started taking something called joint health and it seems to be working. Many ingredients but the main ones that stick out are MSM, boswellia, Glucosamine, chondritin, ginger and a host of other natural anti-inflammatories. I will still make an apt to get a referal and get some xrays taken.
 
 

hunnybunny
Regular Member


Date Joined Jun 2007
Total Posts : 21
   Posted 8/12/2007 10:03 AM (GMT -7)   
Thanks for conquer's reply.  Sorry it took so long for me to reply, but I just got back from Lake Tahoe, camping with our grandson (4yrs).  Busy, busy, busy.....Hunnybunny

Gladys Ann
New Member


Date Joined Jun 2007
Total Posts : 18
   Posted 8/17/2007 9:54 PM (GMT -7)   
I-Willconquer, diet can be a powerful tool in the fight against RA. I had RA over five years with just occasional flares , I ignored it and didn't go to a doctor. If I had known about diet and natural cures back then I might not have the severe RA and deformities that I have now. Since my diagnosis in 2005, I watch my diet and eat plenty of garlic. Garlic, ginger, and Omega 3 in fish is what keeps me going and fighting inflamation.

I hope that you stay in remission.

Gladys Ann
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