Need Pertinent INFO PA/RA - Watching for it in your children

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deejane
Regular Member


Date Joined May 2006
Total Posts : 73
   Posted 8/1/2007 10:24 PM (GMT -7)   
HEY GUYS AND GALS!!
 
tHIS IS A TOPIC I AM GETTING MORE AND MORE CONCERNED about.  i have two beautiful adult daughters, 26 and 23 years old, both dancers, now primarily for their own enjoyment or when they are teaching.  My son, 21, is a percussion major in college and frequently walks with a big drum with all of them we've already had problems with knees and cartilage, eet and backs.  At what point should I be comcerned enough to held them in the direction of my rheumy?  They are already established in her office by seeing her Nurse Practitioner.  She and I did that for that very reason.  We suspect the middle daughter is already exhibiting signs of PA. 
 
If anyone of you out there have had any experience with adult children and guiding them through this process, I would treasure your words or wisdom and guidance.  They have watched my journey and the battles I have fought and while they have been comfort and so much strength for me, I'd like to return the favor and ad least be the soft place where they can fall.  Mostly I think my middle daughter is wrestling with this.  She exhibit many signs already and I just don't know when to jump in and say NOW is the time to act.  Whatever you can share will be most appreciated!
 
deejane
 
Current DX:  psoriatic arthritis/rheumatoid arthritis/spondylitis/fibromyalgia, CD, carpal tunnel, degenerative disc disorder, nerve damage, back spasms/pain/,lower right hip pain/inflamation/high blood pressure
Current meds:  Remicade 400 mg. every 5-6 weeks, methotrexate 15 mg., celebrex, micardis/hct, folic acid, medrol dose pack, steroid shots in areas of pain
flexeril, topamax, toprol XL, lortab 10-500, zoloft, and now nitroglycerine
Previous meds:  Enbrel, humira, bextra, vioxx


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 8/2/2007 12:52 AM (GMT -7)   
hi deejane,
awe, this pulled at my heart chords.
i do not have children, but i have counseled parents about this exact subject when i was working.
 
what symptoms are your children having that you said you noticed they're exhibiting? (the middle daughter?)
 
worrying of course will drive you if not sick than mad! but i know, it's impossible to NOT worry.
 
the ONLY thing YOU can do is provide your experience at what you experienced at first, and also keep the ties with the rheummy to your kids.
 
what THEY can do?  health maintenance is vital for everyone, even without family history.
all 3 should have yearly physicals with a focus on joint assessment specifically (checking for edema and such).
yearly labs w/ a focus on a rheumtaic panel is a sure bet to catch anything abnormal going on.
 
right now, if the one girl is having trouble or pain that is not going away? i'd say it's time to go.  it can not hurt to get checked...it could be something totally mechanical & NOT disease related.
 
there is no substantial evidence that there's a certain percent increase chance that offspring will develop RA and AI diseases.
genetic & inheritance is still iffy...however wherever you look it does seem that at least one other person in a family has RA or another AI disorder.
 
it scares me too...if i were ever to have children? i think i'd just die if one developed this.
 
you're best words to your kids would be to tell them to just pay attention to their bodies.  that and definitely keep a yearly physical and blod work.  sosoooo much can be avoided when caught early.
 
((((((((((hugs))))))))))))
erin
Arthritis Forum Moderator & Co-Pilot
Active Severe Rheumatory Arthritis. AS. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Kidney Stones (oh joy). Previous Lymes Disease for 10 years.
Meds: Remicade infusions 600mg Q3weeks; Intra-articular knee injections; 6MP 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 20mgQD; Entocort 9mgQD; Meclizine; Augmentin; Tigan; Reglan; LidoDerm; Diazepam; Rozerem; Diclofenac; Celebrex; Dilaudid 4mg; Duragesic 25mcg/hour. 


deejane
Regular Member


Date Joined May 2006
Total Posts : 73
   Posted 8/4/2007 10:20 PM (GMT -7)   
Thanks so much, Erin!!!  I needed that!  It is easier to look at yourself with an unbiased eye thinking objectively about what needs to be done but when it's your kids, that right there blows any reasonability out the window!!
 
Her symptom have primarily manifest themselves through orthopedic problems - knees, feet, and her back.  She does see an othopedist.  We realize some of the problems come from years and years of dance.  However, this one area of her foot was odd so my rheumy's PA saw her and called the rheumy in on the exam.  She did tell her that the way the foot looked and the symptoms she was having with it sounded "pre-RA" kind of symptoms.  She's been taking medication, going to PT and wearing a brace and she goes back to see her in September.  We'll cross that bridge in September.  The problem with this my precious child is that her pain threshold is SOOOOOOOO high, she will work and keep going through terrible, intense pain....probably causing more damage.  But, she thinks she has to keep working.  Things would not continue without her.. She's a bartender at an upscale restaurant here in Houston.  Go figure.....
 
I do know she sees the doctors regularly and she does trust them a great deal!  Mostly because she sees how they have helped me and supported me through alot of difficult situations.  I'll keep you posted.  It does worry me that these things are manifesting early....earlier than mine did.  She's only 23 and mine started when I was around 43.  I'm 52 now.
 
I guess I worry because one of my cousins has severe RA and severe Crohns.  His problems are so severe that he has to work from home.  He and I are the only two in the family we know about and he's just one year younger than me.
 
Thanks for the hugs and thoughts.  I appreciate them so much!!!  I'm going back to school next week.  It's almost time for the kids to come so we have to have our meetings and get everything ready for our students but I'll keep checking on you all as I can.  This is a great place.  You all have helped me many times and I sure appreciate all your kindness!!
deejane
 
Current DX:  psoriatic arthritis/rheumatoid arthritis/spondylitis/fibromyalgia, CD, carpal tunnel, degenerative disc disorder, nerve damage, back spasms/pain/,lower right hip pain/inflamation/high blood pressure
Current meds:  Remicade 400 mg. every 5-6 weeks, methotrexate 15 mg., celebrex, micardis/hct, folic acid, medrol dose pack, steroid shots in areas of pain
flexeril, topamax, toprol XL, lortab 10-500, zoloft, and now nitroglycerine
Previous meds:  Enbrel, humira, bextra, vioxx


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 8/5/2007 11:43 PM (GMT -7)   
:-)  hi deejane...
i know what your gal is like...that was me too!
she's 23?  awe...so sorry if it should be but i pray not.
i was 21 at official DX but suffered from 16 y/o on till then.
hang on in there dee!
(((((((((((((hugs)))))))))))))))) erin
Arthritis Forum Moderator & Co-Pilot
Active Severe Rheumatory Arthritis. AS. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Kidney Stones (oh joy). Previous Lymes Disease for 10 years.
Meds: Remicade infusions 600mg Q3weeks; Intra-articular knee injections; 6MP 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 20mgQD; Entocort 9mgQD; Meclizine; Augmentin; Tigan; Reglan; LidoDerm; Diazepam; Rozerem; Diclofenac; Celebrex; Dilaudid 4mg; Duragesic 25mcg/hour. 


deejane
Regular Member


Date Joined May 2006
Total Posts : 73
   Posted 8/7/2007 8:26 PM (GMT -7)   
Hey Erin!
I was talking to her before she went to work and she said she just went out and bought a new bed because she's having so much trouble with her back and feet and knees.  Back and Knees is where mine started.  She's got an appointment with the rheumy after school starts in a few weeks.  I'm just keeping my fingers crossed that she's working too hard and she's just fatigued!  Of course I know it never hurt to catch things early.  That way she wouldn't have to suffer like I did until I found out what was going on with my body.  So..........we watch and wait and pray alot!!!  Thankfully, we're all here in the Houston area and can see the same docs.  That helps SO much!!!
 
Take care, Erin!  And thanks especially for your hugs and kind words.  I appreciate you so very much!!!
deejane
 
Current DX:  psoriatic arthritis/rheumatoid arthritis/spondylitis/fibromyalgia, CD, carpal tunnel, degenerative disc disorder, nerve damage, back spasms/pain/,lower right hip pain/inflamation/high blood pressure
Current meds:  Remicade 400 mg. every 5-6 weeks, methotrexate 15 mg., celebrex, micardis/hct, folic acid, medrol dose pack, steroid shots in areas of pain
flexeril, topamax, toprol XL, lortab 10-500, zoloft, and now nitroglycerine
Previous meds:  Enbrel, humira, bextra, vioxx

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