Post Edited (killerzoey) : 8/28/2007 10:13:25 PM (GMT-6)
I noticed your post and was read back to what you guys were discussing...thanks so much for all the info you shared! Made me got back and dig out all my old labs. Yep, got tested for the ccp...my results were >250, guess now I know why my doc said I had a very clear diagnosis of RA. She also tested the IgA and IgM, both of those were in the normal range, But the IgE was extremely high at 1355. Also tested for Ana, which was negative, but RA factor was 275. Very interesting to get more insight into some of these tests, thanks again.
How are you feeling? My brother also has mixed connective tissue disease, it's been a long struggle for him as well.Like you, I think he was diagnosed in his 30's. Sure understand the feet pain, feet and ankles are really the worst for me..have flares other areas, but so far, those have been the worst.
Raven, did you get any results from your tests yet?
Take care guys,
Thanks for the info on the lab test anti ccp3 IgG. I will ask my rheumatologist for it next week. I have severe pain in my feet, ankles, knees wrists fingers and elbows and all my lab test are normal and RA and ANA are negative/normal. The only lab test that is elevated is aldolase and it is only mildly elevated. I am in SEVERE pain. I have not been diagnosed with RA and can barely walk. I cannot open a can of green beans with a can opener and can barely hold a cup of coffee. Any suggestions as to where to start? I have appt with rheum for the first itme next week.
Cauc female age 55 current meds: synthroid 100 mcg, hctz 12.5 mg, avapro 150 mg, crestor 10 mg, aciphex 20 mg, voltaren 2 a day, darvocet 2 a day, and ambien prn
diagnosed in 2004 with HTN, high cholsesterol, low thyroid, gerd. Insomnia from the pain. voltaren and darvocet for past 2 weeks with NO relief whatsoever.
I am single and support myself and wouldn't get out of bed each day due to the pain except I have to support myself. I am a nurse on a same day surgery ward and on my feet 10-12 hrs a day. When I get home in the evenings I am in tears due to this severe pain. This cannot be normal. Is there something I can ask the rheumatologist that will get her on the right track to finding what is wrong with me and getting me some relief?
Thanks for any advice or suggestions in advance.
I am so sorry that you are experiencing severe pain! :( I would ask about being tested for IgA, IgE and IgM as well as the IgG CCP. The CCP IgG can come up negative even in Patients who have been diagnosed with RA. This is not to say that I think you have RA, since I am not a doctor. But I would start by taking a copy of all the labs that have been done on you already so your Rheum. can get a head start. That's all I can think of; if there is anything else, I will let you know. Good luck, and God bless.