told by rheumy to learn to live with it and take tylenol!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

hsmom24boys
Regular Member


Date Joined May 2007
Total Posts : 53
   Posted 8/31/2007 6:06 AM (GMT -7)   
I went back to my rheumy last week. He sat there with a straight face and said he didn't know what was wrong with me and didn't know how to treat it and I should just go home, learn to live with it and take tylenol!!!!!!  I stared at him for a minute, then told him if tylenol did anything I would have kept my money and stayed home and taken tylenol. ( have pain in all my joints, especially the L arm and hand)
I went back to my IM doctor who told me he still thought it was fibromyalgia even though I didn't meet the criteria and that I should give the muscle relaxers about 3 months. He wouldn't give me anything for the pain.  I hurt worse now than I ever have.  It wakes me up multiple times a night even with muscle relaxers and ambien.  If this is due to lack of sleep as he says, how in the world am I supposed to get better if the pain keeps me from sleeping!!!!
I am going to see a new Rheumy.  Most likely won't be any help either but I don't know what else to do!
Awaiting official diagnosis....... maybe Chron's, Lupus, RA nobody know yet.
 
Homeschool mom 2 four boys (make that 3, just graduated one!)
Labor and Delivery RN
Beloved, Think it not strange concerning the fiery trial which is to try you, as though some strange thing happened unto you, But rejoice in as much as yea are partakers of Christ's sufferings: that when His glory shall be revealed, ye may be glad also with exceeding joy.    I Peter 4:12-13


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 8/31/2007 6:11 AM (GMT -7)   
getting a new rheumy is good. Need to get you a definate dx. You can also see your primary care with help you with pain management untill you get a dx.  Because you need to be able to sleep.  Have you had a colonscopy or an ANA blood test done?


Forum Moderator 
I will find a way, or make one.-Philip Sidney
Make sure your suffering has meaning...

Post Edited (MMMNAVY) : 8/31/2007 7:14:56 AM (GMT-6)


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 9/1/2007 10:46 AM (GMT -7)   
Hey there mom.. how are you? Tylenol huh? Wow.. hhmm.. Have you found a new rheumy yet? Was this the first time you had seen this particular rheumy? Did he do x-rays or any type of bloodwork? Hang in there.. and please let us know how you are doing..
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


hsmom24boys
Regular Member


Date Joined May 2007
Total Posts : 53
   Posted 9/4/2007 9:41 AM (GMT -7)   
I went to my primary care MD. He refused to give me ANYTHING for pain. He thinks it is fibromyalgia even though I don't have any of the tender points. He says the pain med will make things worse by sensitizing the pain receptors and that fibromyalgia is due to lack of deep sleep and the inablility to relax the muscles so he wants me to take 6 zanafex at night and give it 3 months. ( no matter that the pain wakes me up multliple times a night even with the muscle relaxers for sleep and ambien for sleep)No suggestions of what to do for the pain in the meantime other than he suggested a new rheumy. The first reumy did a boatload of blood tests and the only positive was a vit D deficiency. no xrays. It was the 2nd time (and last) time I saw the rheumy. He gave me ultram and told me to take one every 6 hours. I have tried 2 every 4 hours and it does NOTHING. I am getting an appointment with a new rheumy and thinking about seeing a pain management MD. I am just so afraid they are all going to tell me to learn to live with it. They don't have a clue how bad I hurt all the time!
Awaiting official diagnosis....... maybe Chron's, Lupus, RA nobody know yet.
 
Homeschool mom 2 four boys (make that 3, just graduated one!)
Labor and Delivery RN
Beloved, Think it not strange concerning the fiery trial which is to try you, as though some strange thing happened unto you, But rejoice in as much as yea are partakers of Christ's sufferings: that when His glory shall be revealed, ye may be glad also with exceeding joy.    I Peter 4:12-13


SnowyLynne
Veteran Member


Date Joined Apr 2004
Total Posts : 1539
   Posted 9/4/2007 12:19 PM (GMT -7)   
Maybe a good Neurologist can help you.He can run the battery of tests you may need.It's worth a shot.
SnowyLynne


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 9/5/2007 5:29 PM (GMT -7)   
Can you be referred to a pain management specialist?
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


Trying2BFree
Regular Member


Date Joined Oct 2005
Total Posts : 251
   Posted 9/6/2007 7:04 AM (GMT -7)   
A vitamin D deficiency can mimic RA. I would get your PCP or a Rheumy to treat that first. It may be the source of all your problems.
Jeannie ~
   Mom to Ty (4 yrs old)
   and 3 Shelties
 
SLE diagnosis 10/05 now changed to RA 3/06, Endometriosis 5/05, PCOS 1990
Meds: Metformin ER 1500mg (PCOS); Loestrin BCPs (Endo); Methotrexate 17.5mg (RA); Metanx 5mg (RA); Remicade (RA); Lunesta 2mg (as needed)


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 9/7/2007 6:27 PM (GMT -7)   
I am glade that you are going to see another Rheumy.I know it's not easy and very frustraiting when your in pain and having a nut for a Rheumy doesn't help matters either.I agree that a pain doctor is what you need.Please elt us know how your appointment with the new Rheumy goes.
Curley
.........
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, December 06, 2016 5:17 AM (GMT -7)
There are a total of 2,733,417 posts in 301,117 threads.
View Active Threads


Who's Online
This forum has 151256 registered members. Please welcome our newest member, Monkeyjungle.
246 Guest(s), 4 Registered Member(s) are currently online.  Details
sheepguy, tickbite666, Andrina, fightUC


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer