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Raven67
Regular Member


Date Joined Sep 2007
Total Posts : 155
   Posted 9/10/2007 7:46 PM (GMT -7)   
I really appreciate all the info.  My Rheumy is looking at Enbrel down the road and I say this because he asked me if my insurance company covered it.
And I am actually from Ontario, Canada.
I do have another question that I am sure many of you can answer.  How long does a flare up last?????
I seem to have a few good days then bam!! knocked on my butt.  I find that its very difficult to plan anything with friends and family because I never know how I'm going to feel. I feel like I have absolutely no control over anything anymore and I am just trying to take one day at a time.  We have no support groups in this area which I think you be very helpful.
Thanks Again
Raven 

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 9/11/2007 2:28 PM (GMT -7)   
no thanks required! i am so glad that you DID find a good place for support here at HW. everyone has to help each other out, and yeah...it does at many times come down to dealing with this at a day to day basis. (me i'm hour to hour)
the nature of the disease is unpredictable for many...good days & then bad days all intertwined don't neccesarily equate to a "flare"...an RA flare up is more along the lines of for example:
a noticeable length of time in where joint pain is exacerbated daily; usually lasting several days {that's why the Medrol Dose pack was created, LOL} to sometimes even a month or months on hand.
basically...you'll KNOW it's a flare because the RA will "feel worse" then you will eventually start to feel "back to regular crapiness" when the flare has finished it's peak.
kinda' like when you get a cold...it's 3 days coming...BAM TOTAL HELL...then 3 days you feel it getting less severe.
if a "flare up" is overly lengthy & severely painful it can signal plain old disease progression. in either case both need to be evaluated b/c a change in meds or an increase in meds can help solve the problem or at the least ease the flare.
this whole thing is truly like going back to school. you have to learn your body all over again; reprogram yourself to adjust to daily activities...ya gotta' STUDY! lol...it's a process that takes time (years!) i'm sure many will agree.
but...when you graduate & get your diploma you kinda feel like YOU have a bit more control over the matter.
i think i must have taken a few semesters off or had 1 too many keg parties because after 10 years i feel that i am JUST recently getting the hang of how to cope.
hopefully you can skip a few grades.
hey...maybe you can be the 1st to start a support group in your area! you may be a blessing in disguise to many who need it.
hang in there
erin
Arthritis Forum Moderator & Co-Pilot
Active Severe Rheumatory Arthritis. AS. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Kidney Stones (oh joy). Previous Lymes Disease for 10 years.
Meds: Remicade infusions 600mg Q3weeks; Intra-articular knee injections; 6MP 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 20mgQD; Entocort 9mgQD; Meclizine; Augmentin; Tigan; Reglan; LidoDerm; Diazepam; Rozerem; Diclofenac; Celebrex; Dilaudid 4mg; Duragesic 25mcg/hour. 

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