New and unusual pain

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CaMama
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   Posted 9/20/2007 11:28 PM (GMT -7)   
My left knee and upper calf hurt really bad. I don't remember hitting it, but it hurts to touch, like a bruise (especially on the inner leg where the side of knee meets the calf). Most of my knee is sensitive to the touch as well. The calf area feels really tight and my lower leg is getting tingly (sp?) easy. At one point, the pain felt like I might get a cramp in my leg. I"m a little scared to go to sleep.. I"m not sure what is going on. I can even feel my knee tingle/hurt.  I've been stretching my calf and back of leg for the last 2 hours and it's not much better.
 
Any ideas of what might be going on or what to do?
****
 


Ducky
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   Posted 9/21/2007 5:58 AM (GMT -7)   
Hey CaMama.. how is today? Did you take anything? Please let us know how you are doing..
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
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babyplace
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Date Joined May 2007
Total Posts : 499
   Posted 9/21/2007 7:41 AM (GMT -7)   

Hi CaMama,

How are you??  I am really paranoid about leg pain, especially if you don't remember hurting yourself.  A few years ago I fell off a ladder and had a bad compound fracture in my left leg.  Needed a couple surgeries, and the docs were so watchfull about blood clots. Tightness in the calf, sore to touch, and pain that got worse when flexed my foot were all things I was supposed to alert them about. But, I think they talked more about soreness in the back of the knee...anyway....please be carefull!!  Might be worth a call to the doc.  Keep us posted, ok?

Hugs,

Jody


CaMama
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   Posted 9/21/2007 8:28 AM (GMT -7)   
My calf muscle is not as sore, but my kneee hurts really bad. Because of all the stomach issues I've had the last few weeks since having the flu, I opted not to take anything for it and try to just go to sleep. My husband has some flexeril and that was going to be my backup plan if things got worse (I know, shame on me for thinking of taking someone else's pain med.) I did think about blood clots last night as well - never had one before, but I have enough reasons to know they can't be ruled out. 
 
Anyway, over the course of the night I woke up with various problems. My arm fell asleep and my hand burning (the tingle is gone, but my palm still burns) BOTH knees really hurt today (but the leg that was tingling is burning a little as well) along with the calf soreness. Pretty much the rest of my joints hurt anywhere from "somewhat" to "today isn't going to be fun."
 
I don't quite understand the burning pain on my skin (it's not the joint) - Does it sound familiar to anyone???? - I am guessing I'm just moving in to a massive flare. Oh joy. sad   I think the marital stress has over taken my body. Between that and 4 weeks of stomach issues - which did cause me to skip a lot of plaquenil and arava dosages periodically - I feel like a mess. I just don't know if I need to call a doctor to double check if something is wrong or this is all just part of the flare and shall pass eventually. Any thoughts would be appreciated. Thanks.
****
 


CaMama
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Date Joined Mar 2005
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   Posted 9/21/2007 8:39 AM (GMT -7)   

It's probably worth mentioning the weather did change overnight. It was raining yesterday a.m. and this morning it dropped to 45 degrees. We were wearing shorts and tanks to school w/no jacket the other day at 7:30 a.m.

*****


 


babyplace
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Date Joined May 2007
Total Posts : 499
   Posted 9/21/2007 9:32 AM (GMT -7)   
Hi again,
I'm sure not anybody with any medical knowledge, just concerns me a bit that seem to have so many different things going on at the same time. Think I would call the doc just for peace of mind alone.Especially since it's Friday, and the weekend is a hard time to reach a doctor if you need one.  Has a flare ever felt like this to you before? The numbness, tingling, and burning feeling, that seems odd to me.
take care,
Jody

CaMama
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Date Joined Mar 2005
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   Posted 9/21/2007 1:32 PM (GMT -7)   
You know, last night was a little 'familiar' - I think my leg has done some similar things way back when my feet first went bad. The burning skin...I don't recall. My palm feels like I burned it, you know? Like I leaned on a hot grill or scraped it against something rough, but I don't remember doing anything like that nor does it look like I did either of those things. Plus, it didn't happen until my arm went numb last night in my sleep, after I 'woke' it up, my hand was left with that burning feeling. My husband says it doesn't feel abnormally hot to him either.  My leg isn't as bad right now (the burn and tingle) but it's not completely gone.
 
I'll see if I can reach either the PCP or Rhuemy today before the weekend. It's not going to be easy, PCP works part-time and rhuemy works in a different office on Fridays.
****
 


babyplace
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Date Joined May 2007
Total Posts : 499
   Posted 9/21/2007 3:07 PM (GMT -7)   

I'm so glad you're going to try and reach someone, hope you are able to!  Let me know how you are.

Take care,

Jody


The Bear
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Date Joined Mar 2007
Total Posts : 364
   Posted 9/21/2007 3:40 PM (GMT -7)   
camama I am sure glad that you are seeking advise about your recent pain and possible flare as there more I read the more I thought 'this isn't right'. I would hate for to read next wek sometime that you had been taken in for somekind of rattlespider bite or whatever.
I think you have a point when you say that it may be your body finally reacting to the personal troubles you have been going through these past weeks. We all can only take so much and I have admired the way in which you have tried to be fair, understanding and stoical through it all but at some point - and that point is different in all of us - we reach dry tank with not a gas station in sight. I think youmay have arrived there and that may be no bad thing on one level. Your doctor may prescribe total rest for you and mr. camama may have to go that extra mile to enable you to recover. Maybe a bit of collusion between you and the doc in the form of a letter to your hubby may also bring home the seriousness of the situation to him. Maybe.
Let me know how it goes - please. Enjoy the weekend mama.
The Bear

curley
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   Posted 9/21/2007 4:30 PM (GMT -7)   
Hey CaMoma I want to tell you this (not trying to scare you)any way my dad had this happen about a year ago and it turned out that he had an infection behind his knee cap and had to have shots of antibotics and stroided shots as well.So please make you you get it checked and let us know how you are.
Curley
.........
 


yalinda
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Date Joined May 2006
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   Posted 9/21/2007 7:04 PM (GMT -7)   
camama! whats going on sweetie! did you call the doc? tingling can be inflammation reaching nerve endings too? but whatever it is a phone call is a must and now it is friday night so i hope you called during the day! if not i think i will have to fly over with a wet noodle and slap you silly!
even if you didnt call the doc we forgive you and are jsut worried. let usnow how you feel again soon
lov and hugs yally

babyplace
Regular Member


Date Joined May 2007
Total Posts : 499
   Posted 9/22/2007 3:07 PM (GMT -7)   

Hey there,

just wanted to check in on you....are you ok?  Been worried about you, hope you were able to reach the doctor.

Hugs,

Jody


CaMama
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Date Joined Mar 2005
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   Posted 9/22/2007 6:19 PM (GMT -7)   

Hi guys, thanks for checking in with me. I've been off-line all day. I did not reach the doctor yesterday, I think I see rhuemy soon but will call on Monday to see if I can move it up just in case there is somethign to check in to. My joints are hurting pretty bad and I'm exhausted beyond belief. The tingling in my hand is still there and my legs are falling asleep really easily. In fact, today, I didn't even feel my leg asleep until while I was walking along I almost fell flat on my face. Very strange.  No feeling of pins and needles. Had no idea it was asleep and wasn't sure when I got it all awake.

My palm is still weird, but slightly better than yesterday. It hasn't been going numb like it did....I've been thinking that maybe the tingling is either a result of the going numb or (which I'm not happy about) my psorisis is about come out on my palm there. I haven't had a serious problem on my hand w/it since I started remicade. I seem to recall strange feelings in my hand before it would get really bad. I could never control it before the infusions, but the remicade eradicated it (on my hands) in the first 2 doses. SO, while I wait the weekend out to reach the doc, I'm trying to heavily lotion up my hands regularly in hope that if it is psorisis coming through, I can lessen the outbreak by keeping the hand moisturized. Soon as/if a rash comes thru, I'll put on the rx'd cortizone.

Yalinda....noodles sound yummy! Can I put some basalmic vinigrette on it first? tongue ****


 


babyplace
Regular Member


Date Joined May 2007
Total Posts : 499
   Posted 9/22/2007 7:41 PM (GMT -7)   

Hi again,

Was so glad to see that you had posted!!  Had you on my mind all day...was almost ready to e-mail you and see if you were ok.  That numb leg sounds stange, must have been kind of scary...please be careful and take good care of yourself! Do you have family or anyone around who can help you with the kids so you can get the rest you need?

 


The Bear
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Date Joined Mar 2007
Total Posts : 364
   Posted 9/23/2007 2:20 AM (GMT -7)   
Hey camama - glad to see you are more comfortable about your mystery ailment - all greek to me but this forum is a whole new learning curve to me in terms of RA. What does concern me in a small way is the possibiility of RA being hereditary in some way. My father in law - when he was alive - had RA quite badly and I never knew him as a well man. Mommy bear now has signs of arthritis andmy concern is that it may be RA rather than OA. I have tried to ask her about getting tested at this early stage so that we know one way or the other but her response is "whats the point?" The point is it makes it easier for me to deal with given my other issues - knowledge is the first step in the strategy. What do peeps on this thread think? All answers much appreciated.
Stay well
The Bear 

Boo
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Date Joined May 2004
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   Posted 9/23/2007 6:57 AM (GMT -7)   
Camama, How are you this morning? I'm worried!

yalinda
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Date Joined May 2006
Total Posts : 1179
   Posted 9/23/2007 7:38 AM (GMT -7)   
keeping you in my thoughts and prayers! hugs ~ yally
ps sure basalmic is no problem :)

CaMama
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Date Joined Mar 2005
Total Posts : 1884
   Posted 9/23/2007 8:23 AM (GMT -7)   
I went to bed early and though I'm still tired, I seem to be feeling a bit better, but I haven't been up long. Ha ha.  I think the rain and bad weather is letting up, that may be part of the reason. My palm now mainly hurts which is making me lean towards my psorisis theory. I know I stopped Remicade 2 years ago, but I have to wonder if I can get "one dose" if this turns in to being a problem! tongue Remicade cleared it up so fast last time and I haven't had a problem with my hands since! I chunks of skin falling off my fingers last time - it was so disgusting and painful!
 
No, we don't have help. I just wrote a long paragraph about why but it got me so angry I deleted it. Now I'm in a rotten mood.

Bear, my thoughts are mixed on your wife. She may have it, but tests may not yet show she does and then where does that leave her? But, it wouldn't hurt to get it checked out and get the ball rolling if she is dealing with pain and it runs in her family. 
****
 


erin.K
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Date Joined Mar 2005
Total Posts : 3148
   Posted 9/23/2007 11:13 AM (GMT -7)   
confused  Camama...we need to ship your arse to the CDC! tongue ok, i have my hunny handy here (tah! i'm a poet) he's in neurology so i just 'splained your situation to em'.
to him it sounds like a neuropathy; basically a disruption of the signals of where nerves are supposed to shoot.  this also would explain any burning, hot feeling of the palms and also bottoms of feet.
that'll be $150...what insurance do you have? LOL.
 
sooooo...toss in my opinion, and you'll whip in inflammation "in general" from the inflammatory arthritis & somewhere along the lines inflammation is bound to reach or be near a nerve, thus the loss of sensation, tingling, burning, etc...
also, menopause (hah!)can cause quite a few similar problems w/ burning or hot feelings in hands/chest/face/feet.  not that you're going through it, i don't know...LOL...but females in their mid 30's to age 45 can have the "starts" of it.
 
the leg thing:  have you ever had vasculitis?
i did and it STINKS!  basically it's an inflammation of the tiny arteries & veins of a certain area.  mine was RIGHT WHERE YOU ARE TALKING about!  near the knee, to the side just below it...but on the inner part near the bend (you'll see that on most people a big jobey of a vein lies there).
it was so painful that i couldn't even touch it, or even wash my leg near there, or lotion or anything.
it was diagnosed through a doppler US and i had to rest the leg, keep it elevated, use HEAT (moist heat pad), steroids and i had an anti inflammatory and antibiotics too.
some people also go on low dose aspirin therapy as well.
 
i think people here are talking about a thrombus in the calf?  the maneuver about "bending the foot towards you for a response of pain" is really not safe to practice & it's not practices in most hospitals anymore either due to the fact that it can actually dislodge the emboli.
so, what we look for instead is : swelling, heat, redness of the calf area. and if the patient complains of pain too.
 
well my dear, i do think it's a good idea to bring your butt to the doc if this really is worrying you & not getting any better.  it is most likely benign and probably an inflammation thing.  but it's better to go & get a clear head about it.  vasculitis isn't that bad of a recovery, i think i was on my butt for only a week or two.
 
your doc might suggest a neuro consult if you never have been to one yet, to find out about the problems you're experiencing with your extremities.
 
{{{{{{{{{{{{{{{{{{many hugs}}}}}}}}}}}}}}}}}}
luv ya,
erin
 
 


Arthritis Forum Moderator & Co-Pilot
Active Severe Rheumatory Arthritis. AS. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Kidney Stones (oh joy). Previous Lymes Disease for 10 years.
Meds: Remicade 600mg Q3weeks; Intra-articular knee injections; 6MP; Mesalamine; Prednisone; Entocort; Meclizine; Azithromycin; Tigan; Reglan; LidoDerm; Diazepam; Diclofenac; Celebrex; Dilaudid; OxyContin. 

Post Edited (erin.K) : 9/23/2007 12:12:50 PM (GMT-6)


babyplace
Regular Member


Date Joined May 2007
Total Posts : 499
   Posted 9/26/2007 10:30 AM (GMT -7)   

Hey CaMama,

Are you still doing a little better?  How about the numbness in the leg? Praying you are able to get some rest through all of this! What does psorasis look like?  I have some stuff breaking out on one knuckle, looks a little strange to me.

Erin, I'm the one who brought up the leg manuever..thanks for sharing that info..but it's kind of scary..I had surgery 3 years ago, and the nurse in the ortho's office told me to do that!! Thankfully, I never developed a clot.

Been thinking about your wife Bear, can understand how she feels, but also been thinking about what Erin has written several times.  She has said that she is at the point she is now because treatment wasn't done early on....so, what I am hoping, and what my doc has said, is that early agressive treatment is the best defense against the joint damage and other stuff this disease brings into out lives. It may not stop it, but if it slows it down even, I'll take it. Also, from what I understand, treatments are so much better today than even a few years ago...so that gives me hope.  Must be a bit scary for both of you to have watched someone you love go through this, then think that perhaps you're facing the same thing.  Anyway, just my thoughts, for what they are worth.

Jody

erin.K
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Date Joined Mar 2005
Total Posts : 3148
   Posted 9/26/2007 10:41 AM (GMT -7)   
Bravo Jody!
I can't stress it enough...EARLY ACTION, EARLY DIAGNOSES, EARLY TREATMENT!
And this is what all of these TNF meds and newer Bcell meds are for. You really want to be the "ideal" RA patient and start the treatments early. Wait 10 or 12 years???? Not great.
So much can be avoided & one can actually change the path their life will take.
I really do wish someone told me that when I was 16! {then again none of this stuff was out there, LOL}.
As for people like me though...the next 15 years should be very interesting in where they're going next for RA in advanced stages.

Camama...did ya' get to the docs?
Arthritis Forum Moderator & Co-Pilot
Active Severe Rheumatory Arthritis. AS. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Kidney Stones (oh joy). Previous Lymes Disease for 10 years.
Meds: Remicade 600mg Q3weeks; Intra-articular knee injections; 6MP; Mesalamine; Prednisone; Entocort; Meclizine; Azithromycin; Tigan; Reglan; LidoDerm; Diazepam; Diclofenac; Celebrex; Dilaudid; OxyContin. 


CaMama
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Date Joined Mar 2005
Total Posts : 1884
   Posted 9/26/2007 9:07 PM (GMT -7)   

No, I did not go to the docs. I've been so stressed out and miserable, but decided it was nothing to bump up my appt. on the 11th. My palm still hurts. They look a little red, but not like a burn or scrape (which is how they feel)  and are sensitive to the touch. The tingling in my hand and leg seems to have dissapated, but there is a lot of joint pain in the knees, feet, hands, etc.  I know stress level is REALLY bad....when I reach my limit, my stomach hurts to the point it occasionally makes me do a slight double-over.  I'm so angry, tired, and fed up by night-time, I am not able to relax when putting the kids to bed (which they need to relax themselves!) I'm sure that is NOT helping matters.

****


 


babyplace
Regular Member


Date Joined May 2007
Total Posts : 499
   Posted 9/27/2007 7:47 AM (GMT -7)   

Just wanted to send you a hug, and let you know am thinking of you.  So much wish there was something I could say or do to help you...you've always been such a support for me!  My heart is with you girl...email me anytime if you'd like...always there for you, even if it's just for you to vent.

Jody


CaMama
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Date Joined Mar 2005
Total Posts : 1884
   Posted 9/28/2007 7:18 PM (GMT -7)   
Thank you. Though I hurt from this flare and bad weather again, my body feels a little better. Maybe I've been fighting something that is finally going away (we can hope!) That's helped me cope a lot better and put on my "i'm gonna pretend nothing is wrong until everyone plays along" attitude. I'm still depressed but trying to sweep it under the rug as much as possible. The palm is still weird....It's starting to itch, though there is no rash yet, I think I'll slather the Rx cream on it tonight and see what happens. Does anyone w/psorisis put covering over their hands for the cream even though it says not to? I'm afraid I'll rub it in my eyes in my sleep or something.
 
Thanks everyone for you support and help.
****
 

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