Insomnia..sleep medications anyone? Help NOTHING HELPS!

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momto3
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Date Joined Nov 2006
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   Posted 9/23/2007 12:48 PM (GMT -7)   
I have been having horrid insomnia for the past several weeks and last week was given a script for Ambien (10mg) and even after taking it at bedtime I STILL woke up at 1am...so my doctor told me if this happened I could then take 1/2 (5mg) in addition to the 10mg taken at bedtime..at this point I am just drug out, not sleeping off the extra 5mg. So I called back and was then given Amitriptyline (10mg) I took this at bedtime on Friday....STILL awake!! so I took another one...AWAKE..I then took an ambien (on top of the other pills) and finally fell asleep..needless to say, Saturday I could hardly keep my eyes open all day but come bedtime the same thing..wide awake only to repeat the same process of the Amitriptyline plus Ambien.

Does anyone else take something to help them sleep and if so WHAT? Before I went in, I was taking the tyelnol pm's and the over the counter seep aids, and I have tried the Valerian. I feel as if I am losing my MIND!

At this point I am in an awful flare, in pain, exhausted and cranky. If anyone takes something for insomnia I would love to know what it is, because lack of sleep is making my flare much worse. Today I can hardly move and I need to be moving by Monday morning!

Thanks a bunch!

erin.K
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Date Joined Mar 2005
Total Posts : 3148
   Posted 9/23/2007 2:47 PM (GMT -7)   
hiya' mom!
a fellow insomniac here...(((((((((((i feel your anguish)))))))))))))).  1st, is pain [joint pain/muscle pain] either keeping you from falling asleep or waking you up?  Or do you just "not feel sleepy"?  Or, once you are set to go to bed...ya' just lay there and nothin' happens?
finding the etiology of "why" you can't sleep is the major factor with insomnia.
 
sleeping pills in "normal people" work wonderfully when insomnia is caused by stress or anxiety or racing thoughts.  it helps people fall asleep faster & stay asleep once asleep.
but when a person has a disease? ick...a different story.
steroids will definitely screw up pretty much all of the hormones & chemicals needed for normal sleep/wake patterns.  are you on prednisone or any steroid?
 
narcotics can cause insomnia (go figure...they're suppose to make you drowsy but they actually make it harder to sleep properly).
 
and of course, if you're in pain...ya' can't fall asleep IN PAIN and the worst is WAKING UP from pain. ugh.
 
my hunny has a tempur-pedic mattress and that is the ONLY place i'm able to sleep! lol...so basically i only sleep on weekends, lol.  seriously, when i'm at my own home? i don't sleep, mattress is terrible (plus the environment i live in is not too great).
 
geesh, i took Ambien CR once, and NOTHING...then i even took a 2nd one...and was still up for 3 nights in a row.
Restaril is a sleep med that's a bit stronger, it's been around for a LONG time...but it stays in your system for like 12 hours.  maybe worth looking into?
 
no sleep aid ever helped me, and it is soooo frustrating.
 
sleep is vital for you mom.  lack of will make you feel worse & increase pain you have (and just make everything harder to deal with).
ya feel like a zombie and it's a terrible feeling. i'm so sorry mom.
 
is your bedroom set up OK?  no extra lights around, spacious, dark, free of clutter?  that seems to help.
 
oh, when i run my air conditioner...i seem to get to sleep. like white noise kinda i guess.
 
i hope you get relief soon. (((((((((hugs)))))))))))
peace/love
erin
Arthritis Forum Moderator & Co-Pilot
Active Severe Rheumatory Arthritis. AS. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Kidney Stones (oh joy). Previous Lymes Disease for 10 years.
Meds: Remicade 600mg Q3weeks; Intra-articular knee injections; 6MP; Mesalamine; Prednisone; Entocort; Meclizine; Azithromycin; Tigan; Reglan; LidoDerm; Diazepam; Diclofenac; Celebrex; Dilaudid; OxyContin. 


momto3
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Date Joined Nov 2006
Total Posts : 1331
   Posted 9/23/2007 6:59 PM (GMT -7)   
Hi Erin!

It sounds as if you know a great deal about this yourself!! Only sleeping on the weekends? That is awful for you!! :( I was able to fall asleep in the beginning at night no problem (probably from exhaustion) and then would wake up around 1-3am and not able to go back to sleep. It has all been downhill since then, and now I am caught in this can't sleep at all, taking pills to try to sleep fiasco! My joint pain I think is caused from the no sleeping and hectic schedule of kids, driving and stress. I'm not taking any prednisone or steriods, only the MTX and Plaq and I also take Topamax and have taken that for several years. Although I did break down today and take 3 prednisone and a Celebrex because I just hurt so horribly and so now I have created a worse situation with the PREDNISONE!!!!

I will ask about the Resteril..Thanks for listening!

babybloo
Regular Member


Date Joined Aug 2005
Total Posts : 289
   Posted 9/23/2007 7:48 PM (GMT -7)   
I was actually given Trazadone once upon a time. Sometimes depression can keep you awake. I wasn't depressed or at least I didn't think so at the time but I had a lot of stress and did a lot of thinking once things got quiet and I could hear myself. This was before the dx of RA so don't know if this will help but it wasn't before the pain started. When I took that I was out like a light and usually slept about 6 hours before I woke.

I don't take anything for sleep now and don't get much of it. My environment and habit gets in the way with this. I sleep in the living room, turn on the tv when I wake up or go to the computer, big mistake. When you wake in the middle of the night no smokes, no drinks (except water), no TV and no Computer. You can turn on a dim light and get a book, journal, or turn over and go back to sleep. That is what you are supposed to do. Do I do that? Hell no.

I usually go to bed by 11, wake up at 2:34 (on the nose), then 4 something then I am usually out until 6am. Most of the time it is potty breaks but other times it's just cause that is what I have allowed my body to get used to and now it is a habit. To break the habit means to not get up when you wake up, turn over and go back to sleep.

Also, I was told to avoid taking the prednisone in the evenings. Last dose at 4pm the latest so that it doesn't effect sleep.

Good Luck,

Theresa
dx: Rheumatoid Arthritis.  Duration: 10yrs. Dx'ed 2006.  Asthma, hypertension, hypothyroid
 
Meds: Methotrexate 25mg wkly, Arava 20mg, Rituxan infusion, Folic Acid, Fish Oils, Advil, Advair 250/50, Diovan HCT 160mg/25mg QD, Women's One a Day, tylenol PRN.
 
 


momto3
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Date Joined Nov 2006
Total Posts : 1331
   Posted 9/24/2007 6:41 AM (GMT -7)   
Hi bloo...Yes stress can make us have no sleep! My issues pretty much started with going back to school full time and I didn't factor in a beligerant 15 year old boy! Who knew a sweet kid could turn so unruly almost over night? #%#%$%$!!!! I with you, I also wake up and then can't go back to sleep, and this morning my husband asked me how I slept??? Well after the two sedatives, which are actually anti depressants or so it says when I looked them up! plus an ambien, I DID make it to 4am!


Thats true that prednisone can't be taken in the late afternoon, not if you want to sleep at all! I don't normally take it, only if I am in dire need and in severe pain.- Mainly because I only have a few left and my doctor is also stingy with them and probably for good reason!

My husband can drink pop and the not decaf right before bed and go right to sleep and stay asleep, its almost ridiculous!!

Glad to see I'm not alone:)

babyplace
Regular Member


Date Joined May 2007
Total Posts : 499
   Posted 9/24/2007 7:17 AM (GMT -7)   

hey there,

I'm so sorry to read that you are having so much trouble!!  Just left you a nessage the other day on the other thread..did you get it?

Looks like you are getting lots of great advice here, hope it helps  you.  I had quite a bit of trouble sleeping, but mine turned out to be hormones.  Once I started on progesterone, it helped alot. I still wake up quite a bit more depending on where I am in my cycle, but I'm an old lady with all those wonderful issues! Sometimes it's really hard to shut off my thoughts, especially when there is a lot going on with the family. Makes for some long nights.  Seems like there was another thread about this a while back, maybe imarzz started it?  Not sure.

Hope you get some sweet dreams,

Jody

 


momto3
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Date Joined Nov 2006
Total Posts : 1331
   Posted 9/24/2007 10:50 AM (GMT -7)   
Hi Jody :)

Yes, I have been meaning to catch up with you..just so busy, it seems like I am on some kind of merry go round and I can't seem to get off of it! I think the MTX is making my cycles longer and longer, I am now on day 36, and just waiting..it has been misery and pain! I usually have a couple of sleepless nights prior but this is ridiculous, I am assuming it is the MTX coupled with stress. Yes, I agree we tend to take our problems with us when we are trying to fall asleep!

babybloo
Regular Member


Date Joined Aug 2005
Total Posts : 289
   Posted 9/24/2007 3:11 PM (GMT -7)   
babyplace,

You mentioned hormones getting in the way. Half the time if not more when I wake I am hot and sweaty, my hands and feet feel swollen too.... What were your symptoms with the lack of progesterone?
dx: Rheumatoid Arthritis.  Duration: 10yrs. Dx'ed 2006.  Asthma, hypertension, hypothyroid
 
Meds: Methotrexate 25mg wkly, Arava 20mg, Rituxan infusion, Folic Acid, Fish Oils, Advil, Advair 250/50, Diovan HCT 160mg/25mg QD, Women's One a Day, tylenol PRN.
 
 


erin.K
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Date Joined Mar 2005
Total Posts : 3148
   Posted 9/24/2007 4:36 PM (GMT -7)   
Topamax? If I am correct, that acts on the body like an "upper" does. Topamax for migraines? I think I'm right. It can also cause tremors, shakes, an lack of appetite/weight loss too.
Maybe it's the Topamax that's keeping you from sleeping?
hmmmmmm...?????
Arthritis Forum Moderator & Co-Pilot
Active Severe Rheumatory Arthritis. AS. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Kidney Stones (oh joy). Previous Lymes Disease for 10 years.
Meds: Remicade 600mg Q3weeks; Intra-articular knee injections; 6MP; Mesalamine; Prednisone; Entocort; Meclizine; Azithromycin; Tigan; Reglan; LidoDerm; Diazepam; Diclofenac; Celebrex; Dilaudid; OxyContin. 


babyplace
Regular Member


Date Joined May 2007
Total Posts : 499
   Posted 9/24/2007 5:44 PM (GMT -7)   

Hi Bloo,

Nice to "meet" you. Don't meant to hijack your thread Mom, but will answer Bloo, if it's ok.  Warm and sweaty flushes were definetely something I was having. I would have them during the day, but also would also wake up that way at night.  Yes, fluid retention too, mostly in my feet and calves, and other parts of my body would get very sore and swollen...hurt to get a hug..if you know what I mean. My cycles started getting kind of irregular, felt like I had constant PMS. Anyway, when I went in for my annual exam, my doc put me on something called prometruim...said it's a bio-indentical hormone (whatever that means),  I take it about 2 weeks of the month, and it has helped ALOT.

Take care,

Jody


momto3
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Date Joined Nov 2006
Total Posts : 1331
   Posted 9/25/2007 4:13 PM (GMT -7)   
Hi Erin,

The topamax I have been on for a couple of years and when I go without I will have insomnia, it actually helps of all things and I get something called occular migraines, the aura without the pain? I have been without my prescription a couple of times for a few days and had difficulty sleeping. I will be off to the doctor for yet a different prescription! But yes it was great for some weight loss and I haven't complained about that!

babybloo
Regular Member


Date Joined Aug 2005
Total Posts : 289
   Posted 9/25/2007 6:25 PM (GMT -7)   
I used to take topamax. It knocked me out in the beginning and did a lot to help me relax but it also screwed with my vision bigtime. I would see trails. Noting tasted right either but I can't say it messed with my sleep at all.

So MOM ... what do you do when you wake up at all hours?
Is there something in particular that wakes you?
dx: Rheumatoid Arthritis.  Duration: 10yrs. Dx'ed 2006.  Asthma, hypertension, hypothyroid
 
Meds: Methotrexate 25mg wkly, Arava 20mg, Rituxan infusion, Folic Acid, Fish Oils, Advil, Advair 250/50, Diovan HCT 160mg/25mg QD, Women's One a Day, tylenol PRN.
 
 


The Bear
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Date Joined Mar 2007
Total Posts : 364
   Posted 9/25/2007 8:03 PM (GMT -7)   
[[[[[[[[[[[[[[[[[[[[[[[[[[[BEAR HUGS FOR ALL FELLOW INSOMNIACS - ALLBEIT TEMPORARY]]]]]]]]]]]]]]]]]]]]]]]]
Got no advice otherwise I would be asleep at this moment rather than hugging youall.

Sleep well whenever.
The Bear

HighlandWolf
Regular Member


Date Joined Jul 2007
Total Posts : 27
   Posted 9/25/2007 9:13 PM (GMT -7)   
I am a bad insomniac..my brain re-wired itself without my permission about 4 years ago. I might get to sleep around 3-4 A.M. Then I have to be up for either of my therapies about 7 or earlier. My best sleep was on the couch in the afternoon,or in the recliner. I recently got Nortriptyline,and it drops me like a sucker punch. I love that. I actually get some sleep. Sunday,in between church..I slept 12 1/2 hours. A rarity.
Even a man who is pure of heart and says his prayers by night will become a wolf when the wolfsbane blooms and the autumn moon is bright.
 
 
 
Confirmed Diagnosises:
Rheumatoid Arthritis (27 years) Neuropathy (from RA 11 years) Genetic Nerve Deafness (10+ years) OsteoArthritis (12+ years) GERD (17+ years)Myalgia(15+ years) Mild HBP (one year) Complicated Migraines ( 15+ years) Vertigo( 3 years) Allergies and Chronic Bronchitis, (all my life)Chronic Diarrhea (16 years)Cervical Spondylosis..just diagnosed. Osteophyte Disc complex..just diagnosed..Cervical Stenosis..just diagnosed..4 bulging discs..just diagnosed.
 
Medications: Zantac,Vicodin,Lisinopril, 
Relpax,Arava,Nasorel, Singular,Meclizine,Lomotil,Ultram. 
 
 
Non-Prescription:
 
Chromium (to regulate hypoglycemia)
Biotin (also to regulate hypoglycemia)
B Vitamins
Vitamin C
Green Tea
Papaya ( for replacement of enzymes lost from gall bladder removal.)


momto3
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Date Joined Nov 2006
Total Posts : 1331
   Posted 9/26/2007 7:05 AM (GMT -7)   
Hi there Bear...Guess are awake as well? Gosh that could be yet ANOTHER support group!

Bloo...I usually wake up thinking about my classes or my son or whatever problems are going on at the moment, and then I can't get back to sleep. However, last night after one of the amytriptelines plus an ambien I was out and don't remember anything from the night before. I think the exhaustion just caught up with me. We will see how tonight goes. As for the Topamax, I get those weird trailers too, and if it is after 9pm, I start to get the floaters etc, and they stick around until day light happens the next morning. If I have to get up before it is light outside and I need to turn on lights, I will have the full light show happening. It is just strange! The Topamax just takes care of the numbness and basic vision loss that I have during the occular migraines and I only get them maybe once a month if that.

babybloo
Regular Member


Date Joined Aug 2005
Total Posts : 289
   Posted 9/26/2007 1:58 PM (GMT -7)   
Do you turn on a light, TV, or computer?

When you think do you just lay there in the dark or do you get up?

Can you or do you journal or read?

Theresa
dx: Rheumatoid Arthritis.  Duration: 10yrs. Dx'ed 2006.  Asthma, hypertension, hypothyroid
 
Meds: Methotrexate 25mg wkly, Arava 20mg, Rituxan infusion, Folic Acid, Fish Oils, Advil, Advair 250/50, Diovan HCT 160mg/25mg QD, Women's One a Day, tylenol PRN.
 
 


yalinda
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Date Joined May 2006
Total Posts : 1179
   Posted 9/26/2007 6:08 PM (GMT -7)   
hi mom miss you on the moanin thread, sry to hear you have insmonia, i know when i was at my worst in pain i only got 2-3 hours a night but i can say sry everyone, i am doing well sleeping from 12-530 by choice. but with that said i do feel for all of you and wish you all well. i am here if you need to chat though....... take care m23 hugs yally

momto3
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Date Joined Nov 2006
Total Posts : 1331
   Posted 9/27/2007 9:18 AM (GMT -7)   
Hi Bloo,

No I don't get up and turn on any lights or hop on the computer, sometimes ( here lately) hubby has been snoring and if I wake up to use the restroom and he is snoring..forget it I am up for the rest of the night, regardless of how many pills, I have taken the night before..The last couple of nights I have fallen asleep talking to him in bed, but if I wake up, thats it! The joint pain is so intense and I think it is from not sleeping. So to answer your question, yes I am just there in the dark. Although when he is snoring, there are times when I will go downstairs to the sofa and try to fall asleep. I do enjoy reading but I have not had time to read for pleasure since my classes have started up.

Hi Yalinda! I'm so happy to hear you are sleeping! I miss everyone on the Moanin thread, but can't seem to keep up, but I do read it!

The Bear
Regular Member


Date Joined Mar 2007
Total Posts : 364
   Posted 9/28/2007 6:55 AM (GMT -7)   
Hi there fellow sleep ignorers this is the epistle according to the Apsleyites from the Venerable Bear. As I pointed out to Erin some while back we bears are fond of the natural things in life you know?  nuts, berries, herbs and fermented juices. certain of the latter are useful if and when used in abundance before retiring for the evening, particularly certain herbs which I believe grow in abundance in the California countryside. I used to prefer the strong fermentation of yeast, hops and sugar which was guaranteed to anaesthetise a grizzly but there then required another skill to guarantee a nights sleep - the ability to go through the night without visiting the john. Like snoring, once awake and you go pee pee where did sleep disappear to. Down the pan that's where.
I haven't got insomnia as much as I sleep graze - a coupleofhours here a couple there, afternoon naps - that s..t adds up man but there again, I haven't got to go work, look after little ones, cook and bake for the county, make long drives [I can't], just climb the walls and pretend to be stoical about the whole thing. Have you ever watched  daytime tv? What did I do to deserve this - the mother in law threatens to come and keep me company - now that is a cure for insomnia. [I love her really but in small doses]
Camama my heart goes out to you especially re the snoring! Momma Bear blows for tugs as we say in Liverpool and if I am asleep before she comes to bed - fine. If I wake up that's me for the night just like you. We shallform a trans continental mutual snoring abatement society and all you gotta do to join is to sing along next time it comes around on the guitar there......................oops wrong story. You get the drift. You are 8 hours behind me so if you are awake at three I will be on line at 11 and we may meet halfway for a chat?
 
Have a great weekend one and all and don't forget to put  your desert island discs down.
 
The Bear

babyplace
Regular Member


Date Joined May 2007
Total Posts : 499
   Posted 10/1/2007 10:44 AM (GMT -7)   

Hey there Mom,

Just wanted to check in and see how things are going. Are you getting any rest?

Hugs,

Jody


momto3
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Date Joined Nov 2006
Total Posts : 1331
   Posted 10/1/2007 11:27 AM (GMT -7)   
Hi Jody,

Thank you for checking in on me. I actually go in today to figure out my insomnia because no matter what I take I just can't seem to sleep all night! This a new pcp, so I am hoping she will be understanding like our old doctor would have been!

Oh and bear, that was me with the snoring husband and it does drive me up the wall..but at this point it is probably his least most annoying habit in life. But then when you are sleepless it doesn't take much to set you off I suppose.

yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 10/1/2007 7:01 PM (GMT -7)   
hi toots! lol how did you make out at the new docs?????? i guess you will know better the next few nights maybe?????????? well just dropped in to let you know i care ((((((((((((((((((((((hugs))))))))))))))))))))))) yally

momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 10/2/2007 4:37 PM (GMT -7)   
Hi yalinda!! (thanks for being a sweetie!) and Jody:)

Well...the doctor is new and replaced our old one since he moved away and lets just say I MISS him. The new doctor wasn't sure what to say at first other than I need to get rid of the stress in my life and left, came back with an online printout of the definition of insomnia, how to go about keeping the bedroom only for sleep etc THIS I ALREADY KNEW! Anyway her take on it is I will have the insomnia until I get rid of my life stressors, gave me a prescription for the Ambien CR or the extended release but explained it is only a temporary fix. That is pretty much it.. I will take the extended release tonight and hopefully I will get sleep for a little while!

babyplace
Regular Member


Date Joined May 2007
Total Posts : 499
   Posted 10/2/2007 7:14 PM (GMT -7)   

Oh Mom,

I so hope you are able to get some sleep!  How did you keep yourself from puching that doc?  Get rid of the stressors....just LOVE it when they tell you that, easy for them to say, right? LIFE  is the stressor.....don't know of anyway around that, unless we could move to Bear's deserted island lol! The docs just make me crazy with the "stress" diagnosis sometimes, seems  to be the answer to everything sometimes.  That or depression.

Seriously, we all have our issues and we're all doing the best we can, and you do amazing with all you have on your plate. Just the RA is stressful in itself, throw in everything else, and wow. Wish they understood that!

Take care, Keep me posted!

Jody

 


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 10/2/2007 8:01 PM (GMT -7)   
hey i first wrote this lewis black joke -story- to decrease your stress and make you laugh but then i was afraid i would offend hipoopotumuses or hippomi? and little people so i decided against it.
but i do like lewis black.

hang in there an the doctor is in if you need to decrease stress we are here to .......................idk? just here hugs yally
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