Psuedo Tumor in the brain---Need Info or some insight----

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BabZ
Regular Member


Date Joined Dec 2006
Total Posts : 74
   Posted 9/24/2007 6:28 PM (GMT -7)   
Hey everyone,
 
I just posted a blog about Migraines, well I went to see one fo the doctors at work, to pick up some more Samples Of imitrix, but she didnt have any, however she wrote me a RX, as we talked she told me that base on my sypmtoms, that i shouldnt wait, and perhaps make an appointment sooner than later....So with that in mind, i went and called a Nuerologist while i was at work...I told the receptionist everything that was going on, and she put me on hold breifly, and then told me to come in, that she is going to squeeze me in...
 
So I did, and I met wit the dr, and he told me that it could be my Ra aggravated my Cervical spine, which can cause the migraines, or it can be a Psuedo Tumor, soo hope fully the Diagnosis isnt that bad....
 
So anyhoot, if anyone knows any information on what and how serious a "Psuedo Tumor" is....I would totally appreciated
 
thanks
BABZ
 

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 9/24/2007 10:52 PM (GMT -7)   
Pseudo Tumor???????? first of all...i don't think it was too swift for anyone to bring that up without any preliminary scans (brain scans, MRI's...) i mean, WTF!?!
to me, the term pseudo tumor means a benign tumor...noncancerous.
are they sending you for a brain scan?
keep us posted on what happens.
best wishes...
erin
Arthritis Forum Moderator & Co-Pilot
Active Severe Rheumatory Arthritis. AS. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Kidney Stones (oh joy). Previous Lymes Disease for 10 years.
Meds: Remicade 600mg Q3weeks; Intra-articular knee injections; 6MP; Mesalamine; Prednisone; Entocort; Meclizine; Azithromycin; Tigan; Reglan; LidoDerm; Diazepam; Diclofenac; Celebrex; Dilaudid; OxyContin. 


ninny5
Regular Member


Date Joined Jun 2007
Total Posts : 20
   Posted 9/25/2007 5:10 AM (GMT -7)   
 I HAD A PSUDO OR HOW EVER YOU SPELL IT IN 1993. WITH SEVERE MIGRANES. IT IS A MOCK TUMOR,YOU GET WATER ON THE BRAIN LIKE WHEN A BABY IS BORN WITH THIS. I HAD SPINAL TAPS TO DETERMINE THE PREASUR. THEN IWAS PUT ON 2000MG WATER PILL AND STEROIDS IT WORKED FOR ME. MY SISTER ALSO HAS IT THEY SAY IT IS HEREDITERY THE WATER PILL DID NOT WORK FOR HER SHE HAD TO HAVE A SHUNT PUT IN. THE PREASURE GETS SO BAD IT SQUISHES YOUR OPTIC NERVE AND CAN MAKE YOU GO BLIND . I CAN STILL SEE JUST HAVE REGULAR CHECH UPS. BUT I WONDER IF THIS GOES WITH RA.

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 9/26/2007 10:54 AM (GMT -7)   
wow wow wow...so is it fluid all over that increases the intracranial pressure? or is it a "ball of water" (i can't explain it any different sorry!) that looks like a tumor?...umh...wait, ok IS IT WATER JUST IN ONE SPOT? or SURROUNDING THE WHOLE BRAIN?
that's better.
Arthritis Forum Moderator & Co-Pilot
Active Severe Rheumatory Arthritis. AS. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Kidney Stones (oh joy). Previous Lymes Disease for 10 years.
Meds: Remicade 600mg Q3weeks; Intra-articular knee injections; 6MP; Mesalamine; Prednisone; Entocort; Meclizine; Azithromycin; Tigan; Reglan; LidoDerm; Diazepam; Diclofenac; Celebrex; Dilaudid; OxyContin. 


BabZ
Regular Member


Date Joined Dec 2006
Total Posts : 74
   Posted 9/26/2007 6:47 PM (GMT -7)   
Hey thanks for the prompt reply and concerned,

well from all the reading ive done, Pseudo Tumor is basically A False Tumor that is Excess fluid in the brain, that acts like a Tumor, but isnt a tumor....and from what i hear, and from what i read, the worst thing that can happened is a person can go blind....but...im assuming Blindness probally would occur more-so in people that dont go to the drs regularly and check themselves...but im not 100%

I just got the authorization from insurance today to get the Mri Brain...soo 2morrow Im going to call the O/p Facility and make an appointment as soon as they can see me...

anyhoot, i will keep everyone updated, wish me luck

ttyl
Babz

ninny5
Regular Member


Date Joined Jun 2007
Total Posts : 20
   Posted 10/14/2007 6:32 PM (GMT -7)   
HEY JUST WONDERING HOW YOU CAME OUT.  I DO NOT NO IF I JINXED MYSELF OR WHWT . I HAVE BEEN HAVING SOME VISION CHANGES LIKE I CAN NOT SEE HARDLEY AT ALL OUT OF RIGHT EYE . VERY SCAREY. I WENT TO OPTHAMALAGIST SAT. SHE SAID PREASURE IS BACK UP IN EYE ANF FROM RA THAT SHE CAN NOT FIX THIS THAT I WILL NOT EVER BE ABLE TO SEE ANY BETTER. I HAVE TO GO BACK TUESDAY TO HAVE A VISUAL FIELD TEST AND SEE IF THE PREASURE IS STILL UP. I WAS JUST CURIOS HOW YOU CAME OUT

BabZ
Regular Member


Date Joined Dec 2006
Total Posts : 74
   Posted 10/15/2007 5:45 AM (GMT -7)   
Thanks for all ur concerns...well I didnt get the results yet, but im going to try to call the nuerologist today, and see what the mri says....


I will keep u guys posted once i know....


Thanks
BabZ

BabZ
Regular Member


Date Joined Dec 2006
Total Posts : 74
   Posted 5/28/2008 12:12 PM (GMT -7)   
Sorry I havent responded back regarding my results from that time with the whole Pseudo tumor thing, well apparrently all the meds I take was causing me a very bad drug interaction...So Ive stop my meds slowly...and I eventually weaned myself off, and now i just try to deal with the Ra flare ups..
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