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ninny5
Regular Member


Date Joined Jun 2007
Total Posts : 20
   Posted 10/29/2007 4:03 AM (GMT -7)   
I AM WONDERING WHAT YOU DO WHEN YOU CAN NOT WORK. THESE DR. BILLS ARE KILLING ME. DIAGNOSED IN APRIL WITH RA. I HAVE TRIED MTX,ARAVA, AND BOTH MADE ME VERY SICK. I AM ON 2000MG OF SULFASALINE(SP) DON'T SEE ANY RELIEF HANDS ,FEET SHOULDER HIP TO DIE FOR. I HAD SOME VISION CHANGES 2 WEEKS AGO. WHENT TO OPTHAMALAGIST 13 YEARS AGO I HAD A PSUDO TUMOR THAT IS A MOCK TUMOR THAT MAKES YOU GET FLUID ON THE BRAIN. WELL IT CAME BACK AND THE FLUID HAS PUSHED ON MY OPTIC NERVE IN THE RIGHT EYE I LOST 40% OF MY VISION IT DRIVES ME CRAZY. I LOST MY JOB DUE TO MISSING WORK. VERY DEPRESSED about IT EVERY TIME YOU GO TO THE DR. $200 PLUS. MY INSURANCE DOES NOT COVER OFFICE VISITS. THIS IS THE ONLY INSURANCE I CAN GET. ANY ADVICE WHAT TO DUE.

yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 10/29/2007 12:53 PM (GMT -7)   
so sorry to hear your troubles ninny5, i am not certain where you are from or how old you are (or how long you have worked prior) but if you are in the united states you can apply possibly for disability if you are unable to work. do you know if you are eligible?

ninny5
Regular Member


Date Joined Jun 2007
Total Posts : 20
   Posted 10/29/2007 6:17 PM (GMT -7)   
I LIVE IN ILLINOIS AND HAVE WORKED SINCE I WAS 16 I AM 43.

yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 10/30/2007 4:33 AM (GMT -7)   
hi ninny5, well it sounds like you have enough quarters in to collect disability, now comes the hard part getting it. i would talk to your doctor about disability and fill out the paper work. you mentioned you had decreased vision? but it seems like in only ine eye? if in both eyes~ my advice is to find out if you are legally blind. being such that legal blindness pays the most disability in our nation. and you can earn the most while working too. if not legally blind then go on the physical disability of the arthritis. good luck and dont be surprise if you have to appeal the denial. they dont want to make to easy on you. lol i am joking. take care good luck. yally

leeloo67
Regular Member


Date Joined Aug 2006
Total Posts : 81
   Posted 10/30/2007 8:57 PM (GMT -7)   
Also notable is that an employer (of more than 15 employees) has to treat RA sufferer like any other person protected under the Americans with Disabilities Act. Your employer (again, if they employ at least 15 people) must make reasonable accomodation including going so far as job restructuring (giving you an easier job) and modification of work schedule - unless all of that would cause undue hardship for the company (not likely if it is a large company). You may want to go back and examine your previous job situation to see if any wrong steps were taken.

I'm self-employed now but looking for another "real" job again. I've had a bit of trouble with the last two employers. Nobody ever said anything negative officially, but damage was definitely done, unofficially. I got berated once for wearing comfortable shoes at my old job (a job that has no client or public contact in person). At my last job I was once told by my supervisor quite simply to "do more work" - the day after I came back to work from recovering from a really bad infection! I told the big boss (an attorney) the next day that I was quitting and told him why and he nearly fired my supervisor and then he told me I could have any job I wanted at the company.
 


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 10/31/2007 4:42 PM (GMT -7)   
you go girl! yep i am big on taking advantage of ADA accomodations. if i go it too will be with a fight! at least right now lol

Christine10
New Member


Date Joined Nov 2007
Total Posts : 4
   Posted 11/9/2007 4:11 PM (GMT -7)   
This is my very first post here. I am a 40 year old ( feels like 80 sometimes) Diagnosed with sero neg RA in January and Fibro in July /. I worked for an internal medicene doctor first as a receptionist then for the last year as a medical assistant. I have always been told I did a great job at work, In Sept I called in for the second time this year and my manager seemed very sympathetic. Well when I got to work on Monday I had a letter saying that I need to go back down to 2 days ( I was originally hired for 2 then worked 3) or take my time off when the office was closed. I still had 1 1/2 personal time for the year. i was very distraut and I quit. Not the most sensible way or mature but was constantly being asked about my medical problems (eventhough they looked enough in my office chart I am sure) It was a small office of 8 and I understand they needed everyone there pretty much all the time. So I am now the best darn housewife I can be LOL and am enjoying the rest between flares.

momteach18328
New Member


Date Joined Nov 2007
Total Posts : 2
   Posted 11/10/2007 6:14 PM (GMT -7)   
Many drug companies have programs where you can get your meds for free, provided you have proof. I'm sure your doctor could help with that. Let your doctor know what is happening, and perhaps they can help. Remember it is OK to ask. Contact your local hospital as well. Social workers there can steer you in the right direction for help as well.

Good luck!
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