Please Help. Severe Pain.

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kronstoolong
Regular Member


Date Joined Mar 2006
Total Posts : 366
   Posted 11/2/2007 11:24 PM (GMT -7)   
Hi.  I have Crohn's Disease and Rheumatoid Arthiritis, or severe joint inflammation to due to CD.  They don't seem to be sure which one to call it.  Anyway, most of my joints are affected.  My right shoulder has always been the worst though.  I just got over having strep throat and a bacterial infection.  I was very ill for about 7 days.  105 degree fever, sore throat to the pointn of not being able to eat or drink. Never been that sick in my life.  Today was my first day mostly back to normal.   Tonight, just all of a sudden the pain became unbearable.  I can't move my arm more than an inch or two in any direction.  I am holding in close to my body as if it's broken.  Could this be related to being sick?  The pain rivals when I broke my other arm when i was young.  I have taken pain medication and it isn't even touching the pain.  I tried a warm bath and that didn't help either.  It's not like I was doing anything to aggravate it.  I was sitting and all of a sudden, it hurt and I CAN"T move it.  Can anyone explain why this may be happening?  What do I do?  It really hurts so bad.


Dawn
 
31 Years Old
Diagnosed with Crohn's Disease at age 17.
Diagnosed with RA or severe joint inflammation due to CD.
Hypothyroid, GERD.
 
Currently taking Leucovorin, Levoxyl, Humira, Methotrexate, Vitamin D - 50,000 IU per week, Vitamin B12 injections, Lunesta and Vicodin or Percocet as needed.
 
In the past have taken Prednisone, Pentasa, Remicade, Imuran, Plaquenil and I am sure many, many more.

Post Edited (kronstoolong) : 11/3/2007 12:35:30 AM (GMT-6)


Boo
Veteran Member


Date Joined May 2004
Total Posts : 724
   Posted 11/3/2007 5:19 AM (GMT -7)   
First of all, Kronstoo.... welcome to this forum.  I understand your pain and frustration and probably sometimes, fear of what's going on with your body.  Maybe the increased shoulder pain is a result of being a little more immobile with your recent illness.  Sounds like a really tough bout with strep and my heart goes out to you.  It's hard enough to have RA and all the other associated ailments without infection being piled on top of it.  Always, always, report continuing pain like that to your doctor.  I say you're doing the right thing by taking good care of yourself in the meantime.  In my experience with having illness, my joints always seem to be affected when I run a fever.  But, please report to your doctor if it persists.  So glad you found us.  This is a good place to vent and feel like you're not alone in this big world.  Boo

yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 11/3/2007 4:17 PM (GMT -7)   
hi krons2long, sorry to read about all your pain, been there done that! is it in your shoulder area? i have a frozen shoulder from all the inflammation and when it was its worst i dont know how i survived... worst pain and no function in taht arm, no one can imagine unless you have gone through it. if it is like mine you need to get to a doctor asap unlike me at first i waited .... and get the inflammation down! in my case the inflammation was so severe it has frozen the joint because it was too painful to move at all and talk about no sleep! i am not certain if that is what you ahve but there is a thread on here called frozen shoulder a ways back read and seee and if you havenet already phone you doc~! good luck and keep us posted. i wouldnt wish it on my worst enemy, not that i have any..... hugs yally ps it takes a long tiem to recover if this is it and you dont get attention asap. my shoulder still is frozen since last february but i am not in constant pain any longer just lost mobility now like a contracture it is hard work to work it out and i dont do my daily movements like i should. wy .... cuz they hurt silly lol take care let us know how you are doing hopefully it is not a frozen shoulder hugs again yally

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 11/5/2007 12:00 AM (GMT -7)   
hi there & sorry about what's going on,
if the pain is so severe that it's the worst you've ever had in your life and you say you can't move it, i would personally take a trip to the ER...IV steroids & IV pain meds will help.
i've had to do this too many times w/ RA joint pain.
how are you typing? i take it you can at least use your hands a little?
yes indeed...a stress such as acute illness can cause an RA flare up quite severe.
take goood care.
Arthritis Forum Moderator & Co-Pilot
Active Severe Rheumatory Arthritis. AS. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Kidney Stones (oh joy). Previous Lymes Disease for 10 years.
Meds: Remicade 600mg Q3weeks; Intra-articular knee injections; 6MP; Mesalamine; Prednisone; Entocort; Meclizine; Azithromycin; Tigan; Reglan; LidoDerm; Diazepam; Diclofenac; Celebrex; Dilaudid; OxyContin. 


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 11/5/2007 9:04 AM (GMT -7)   
I am sorry that you are having to deal with all of this joint pain on top of having crohns to boot but I do know where you are coming from because I have crohns,ra,oa,as,sejerens and I have a rare skin condition called Pyderma gangrensoum.So to say the least I deal with alot of pain my own self.


I would like to ask you this have you said any thing to your GI about your pain?are you seeing a Rheumy if not you need to get your doctor to referr you to one you need to be tested to see if you have arthritis.Now keep in mind that crohns it's self can cause joint pain.

What are you taking for pain any thing?if not you need to tell your PCP or your GI that you are dealing with alot of pain and it is getting to the point you can't deal with it any more.I personaly would get in with a pain doctor believe me when IO say they can help you.

keep in mind for awhiule it will be trial and error to get you on the right combo of pain meds before you and your pain doctor find one that works.I am on Oxycodone 30mg(I'm allowed four aday)I am also on the Fentanyl pain patches 50's.I have been on this for awhile and it has helped me to be able to do thing's that other wise I would not be able to do.

Good luck and let me know how you are doing and if you have any more questions please ask and I will help you.I hope that you are having a pain free day.
Curley
.........
 


kronstoolong
Regular Member


Date Joined Mar 2006
Total Posts : 366
   Posted 11/8/2007 5:33 AM (GMT -7)   
Hi-all. I just spent 4 days in the hospital. I will try to answer all questions that everyone mentioned in their posts. Thank you all for posting. First, how am I typing...with my left arm!! Much slower. I hadn't contacted anybody at the pint of my post b/c the pain had just starrted that night. I made it until 5 am and couldn't take it anymore. I felt silly waking my Dr. for shoulder pain but it was unimaginable. I got steadily worse for a couple days. They had me on a morphine drip that wouldn't even touch the pain. i was screaming in excruciating pain. Finally they started mixing a couple different drugs to control the pain. I was given antibitotics and steroids. The antibiotics were for an infection that may have been masked in the blood tests because I was already on antibiotics from my sickness the week before.
 
My shoulder has frozen but maye not as bas as yours, Yalinda. I am doing my Occupational Therapy and it helps. They have me on very strong meds-Oxycontin. I don't function much right now, but otherwise I would still be in the hospital. This allows me to move my shoulder so it doesn't stay frozen.
 
They said I have Bursitis.
 
My Deltoid muscle is also very swollen and warm to the touch. Ice helps too. It's nice to hear from people who have had that pain. I don't think this time around the family understands.(other than my husband becaause he lives with me and witnesses my pain). It's hard for someone who has not experienced this to understand the need for an ER for shoulder pain.
 
 I also had a small degenerative cyst in my shoulder. They didn't really address this in the hospital but I will talk with my Dr. in follow up. I meet with my Family Practioner on Wed. and the Orthopedic Shoulder Specialist the following week. Hopefully next week we can start lowering the dosage of pain med. Thank you all for your support.


Dawn
 
31 Years Old
Diagnosed with Crohn's Disease at age 17.
Diagnosed with RA or severe joint inflammation due to CD.
Hypothyroid, GERD.
 
Currently taking Leucovorin, Levoxyl, Humira, Methotrexate, Vitamin D - 50,000 IU per week, Vitamin B12 injections, Lunesta and Vicodin or Percocet as needed.
 
In the past have taken Prednisone, Pentasa, Remicade, Imuran, Plaquenil and I am sure many, many more.


Boo
Veteran Member


Date Joined May 2004
Total Posts : 724
   Posted 11/8/2007 8:24 PM (GMT -7)   
Dawn, I hope you continue to improve. Sorry you've had such a rough go of it.
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