I am new to this topic - I have read quite a few threads but haven't found the answers to my questions, so I thought I'd just ask here.
I had osteoporosis, I believe it was initially caused by all of the steroids at a very young age when Crohn's Disease was diagnosed many years ago. I had a perm. ileostomy in 1984, hysterectomy in 1986. I have had some bone/joint issues in the past.
Here's where I am at now. I finished the 2 yr Forteo inj. therapy prgm early in 2005 with EXCELLENT results. DEXA showed near normal bone density at end of shots. Then thru bloodwork, it was found that I was deficient in Vit D. Tried 3 months of OTC supplements - no change, tried 3 months of sun therapy - no change. Currently on RX - 50,000 IU once a week & will retest 2 more months. The RX dose has been making me a little nauseous too the day after the dose. Calcium levels, parathyroid are fine. Just absorption issues with D.
Meanwhile, endocrinologist wanted me to do the Reclast infusion. Which I just did yesterday. Has anyone had this new drug? Any side effects from it for you? I felt pretty nauseous last night and just wiped out today.
Any comments, hints, suggestions would be greatly appreciated.
Thanks in advance for all your insight.
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery