Good Moanin' HealingWell V46

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Ducky
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Date Joined Mar 2005
Total Posts : 3199
   Posted 11/25/2007 6:34 PM (GMT -7)   
yeah   yeah yeah Previous thread can be reached here.. please keep moanin'! yeah yeah yeah
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs/Migraines/Hypertension
Current Meds -  Enbrel/Prilosec/Synthroid/Nitrofurantoin/Midrin/HYZAAR
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
 
 


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 11/25/2007 6:35 PM (GMT -7)   
I'm going to email Admin about our deleted threads, he said he didn't do it, and has been out with the flu.. will see what I can find out.. sorry guys..
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs/Migraines/Hypertension
Current Meds -  Enbrel/Prilosec/Synthroid/Nitrofurantoin/Midrin/HYZAAR
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
 
 


The Bear
Regular Member


Date Joined Mar 2007
Total Posts : 364
   Posted 11/26/2007 1:22 AM (GMT -7)   
Thannks Ducks - how did TG go?
The Bear

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 11/26/2007 9:04 AM (GMT -7)   
Thanksgiving was ok.. was some drama with the family, but of course that is to be expected.. Was my first TG without hubby, so that was hard.. but am pushing through.. How are you Bear?
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs/Migraines/Hypertension
Current Meds -  Enbrel/Prilosec/Synthroid/Nitrofurantoin/Midrin/HYZAAR
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
 
 


elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 11/26/2007 10:02 AM (GMT -7)   

Hi everyone.  I've been gone for a while now--did you miss me?  I was doing pretty well for a while, but after I completed the tb meds, I agreed to go back on enbrel in addition to mtx.  I've been doing that for about 5-6 weeks now.  And I feel like I'm starting to flare again.  Before when I went on both enbrel and mtx, it took care of my pain immediately.  It's not doing that this time.  Perhaps it just takes a while for enbrel to get in your system--I know it took 5-6 months the first time.  I guess, though, that if I feel like this when on 15 mg of mtx/week and 50 mg/enbrel, what would I feel like without anything?

Lots of changes in my life recently.  My twin daughters started kindergarten this fall, so they're in school full-time and my hubby is working almost full-time (he's been a stay-at-home dad for the last 5 years).  I've also decided on a major career change.  I'm currently a research psychologist with the federal government.  I've recently applied as a commissioned officer for the Public Health Services Corps, and related to that position, I've been applying for federal positions in the public health field on a continual basis.  So, I guess with all of this stuff happening, I'm a bit stressed too--which might explain the flare.

One question I have for you guys.  I've noticed that when I walk, or do even light aerobic activity/dance, my joints are in such agony that I can't even take stairs easily.  Exercise is supposed to be good for RA, but in my case it's been making me feel a lot worse than normal.  Although I'm trying to work through it and see if it will ease up a bit over time.  Have any of ever experienced this?  Recall that exercise is supposed to have the opposite effect on RA (and it used to with me) by decreasing inflammation and strengthening joint mobility, etc...

Looking forward to catching up with everyone.  Hope all is well.

Elcamino


Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan


Joan M
Veteran Member


Date Joined Jan 2006
Total Posts : 1973
   Posted 11/26/2007 5:22 PM (GMT -7)   
My dear long gone to heaven husband's cousin called on Saturday night and she was very concerned about me. So has been one of my neighbors and some pool pals.

I called everybody...my psychiatrist, my regular doctor and my osteo-doctor and my regular doctor called me back very fast. He called it in. Called the pharmacuetical company then and found out more about the lidoderm patch. Then I put it on and am hoping it will work. Seems ok.

Did ok because Sunday and today did not move much. Saturday all I did was cut up some veggies and do a load of wash. I was in agony.

Want to see a neurologist as this pain is wierd. It is not like osteo-pain.

Thank you so much my dear moaners for your support

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 11/26/2007 7:32 PM (GMT -7)   

I think you meant for this to go here Bear..

The Bear said...
Hi there everybody asnd greetings from downtown Apsley, especially to you elcamino as we haven't heard from you for a while.  We were on the veerge of sending out the search patries.
Joan - what other symptoms have you got regarding the pain you are in and what are the quacks saying it is [or isn't] and why the referral to the neuro? I  ask as I  am under the treatment of a neurologist and you may have similar ones to me.  My hip has been replaced but not my marbles but my pd is slightly worse brought on by the inactivity of post op recovery. I am genuinely nearly there and have been sihgned off because there are issues with my Parks which are inhibiting recovery.
love to all     
Stay well
The Bear

Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs/Migraines/Hypertension
Current Meds -  Enbrel/Prilosec/Synthroid/Nitrofurantoin/Midrin/HYZAAR
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
 
 


babyplace
Regular Member


Date Joined May 2007
Total Posts : 499
   Posted 11/26/2007 8:14 PM (GMT -7)   

Hi all,

Back from the cold country, and almost thawed out..wonderful to feel warm again!

Yes Yally, I know the fall colors are beautiful, that is one of the things I miss most about the north, fall was my favorite time of year!!  I always wished I could take a trip every fall just for the leaves...only made it a couple of times Just can't handle the cold anymore...hats off to you tough folks who have to deal with winter..felt like someone was taking a drill to my hip joints, everything ached.  Was worth it to see the family though.

Joan, I'm so sorry to hear about the pain you're in, please keep us posted, I sure hope those patches do the trick.

Hi el!  So glad to see you back on...Best of luck with the job searches...twin girls??  Wow that must keep you hopping. You do have a lot going on. I'm pretty new at this, but it does seem if I try too much exercise I pay for it for days after. Trying to start up again real slow.  If I remember right, Momto3 was trying to use her treadmill a while back, and it was tough for her to get going again. By the way, haven't seen you here for a long time Mom, are you ok?  How about you, too, CaMama?  Hope all is well with you guys!! Boo...how are things with you?  Did you have to work today?

Any news on the house, Bear? Did I read in the post somewhere that you have some tests coming up? 

Hi to you too Ducky...how are you doing??Special hugs your way.  You, too Erin, hope you feeling better!

Read something the other day that made me think of all of you... "Courage doesn't always roar...sometimes it's the quiet little voice at the end of the day that says..'I will try again tomorrow' "  Fits you all so well.

Have a good night

Hugs!

Jody


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 11/27/2007 5:39 AM (GMT -7)   
el! great to have you back, never forgot to mention a howdy out to you in hopes you would return...sounds like life is going at full speed for you.
mom23 where are you! i hope u too are ok????? come back soon
jody i am sry i owe you a personal email as well as erin and duck. been a bad girl lately.......
speaking of erin, you ok toots!?
ducky, keep thinking of you and the kidos with hubby gone. my heart breaks for all the service families- all year not just the holidays. i wish they were all home. i wish for world peace. really i do
bear, wishing the pd gets under control if possible? u know i tease but i do care.
well i see the surgeon tomorrow but i am certain he is going to wait til i get a few more tests taken. hanging in there not feeling great. i am off all RA meds and forgot how stiff and painful mornings where. good news is i guess the drugs were working well. bad news is i am off them and will feel more like moanin to u all. hey but what are friends for. rhuemmy said i should wait til 2 weeks before surgery, but in case of emergency i want to be ready it is a small price to pay and i may feel worse physically, but if it helps me emotionally then me and hubby say do it.

well g2g have a great day everyone yally

momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 11/27/2007 2:57 PM (GMT -7)   
Moanin,

I hope everyone had a Happy Thanksgiving holiday..I will go back and read posts later. I have been so busy and exhausted that I just haven't had time to post.

I did read Elcamino's post and that is me in a nut shell....any bit of excercise and I just hurt, it is really frustrating for me...for me it is mostly my lower half....the knees really get me!! and as Jody said you can pay for it days later, that is so true :(

I went in for my appointment with the rheumy and I have been having weird chest pains the kind that just grip you and you can't breath in or move because it hurts something terrible, and he looked alarmed but didn't know what the cause was, and said if I keep having them we will order a chest x-ray, I had asked him if it was possible to have inflammation in your lungs, chest etc? it is like pleurasy (sp?) only 10x worse.

Other than that not much to report, my oldest is on a school trip to Mexico and will visit border patrol etc so he is getting to experience quite an opportunity this week, and I would have liked to have gone but to drive a 15 hour drive wasn't an option for me.

Will try to check in more often..

babyplace
Regular Member


Date Joined May 2007
Total Posts : 499
   Posted 11/27/2007 9:32 PM (GMT -7)   

I wish this was a "hello there all" kind of post...but it is not.  I just finished reading a email from our own dear Boo.  She asked me to share with all of you that they recieved some bad news today about her son-in-law, and she is trying hard to gather her strength.  She will be back with us when she can, however in the meantime, please keep her and her family in your thoughts and prayers,  she really needs our love and support right now.  We all know how tough things have been for her...I am constantly amazed that she is able to carry on like she does. 

I'm not sure of all of the details, but apparently a new ultrasound revealed that the tumor is still malignant and the cancer is also in the lymph nodes.  He will be having surgery soon, it will be a very difficult one due to the location of the tumor.

Hugs to you all,
Jody

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 11/28/2007 2:09 AM (GMT -7)   

oh my! My prayers to Boo and her family! Thank you for keeping us informed Jody!

Hi guys, long time no talk. You have all been in my thoughts constantly. I'm struggling to stay healthy and keep my job (by not getting so sick I have to leave B4 contract ends). Have been on a trip to AZ and a short trip for T-day. Hope everyone's was okay. Ours was nice - kids and went to my family's event. Hubby, as usual, worked. Wed. will mark week 3 of a cold that started out mild, worsed the 2nd wed. then again the 3rd wed and moved in to my chest this past Sat. Kids had strep and I fear I may have either that or some sinus infection....it's not HORRIBLE, so I haven't been to the docs yet....may just be a lingering virus...but it's getting old....

I did a brief scan of V45 and this thread up to now....so, I'm not quite up to speed on everyone, but know I thinkof you all and wish you the best. I'll try to be around more often as I miss you guys terribly! I did read about chewing gum and weight - I need to try that again...I'm also struggling to get myself to 'behave' when it comes to eating. I've gained 10 pounds since starting my job in Oct. I see my PCP in Jan for a physical. She is going to beat me over the head if I don't loose weight before I see her! I've got to drop like 80lbs! Right now, if I can drop 10-20 before I see her, I'll be happy! UGH!

****



 

Post Edited (CaMama) : 11/28/2007 2:12:19 AM (GMT-7)


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 11/28/2007 4:16 PM (GMT -7)   
prayers to boo and her family.

mom23 hang in there we are here for you.

mama dont worry about wieght just get well soon and enjoy the holidays with the kidos

el, how are things going with the new job prospect?

erin, i am starting to get worried..... tried to phone but the line was busy busy busy...... hope you are ok?

bear your in my chants and thoughts........

ducky, hope you are doing well too. i know you must be busy.....
joan how is the shingles doing??? lidoderm help any?

well it seems on the kings birthday, martin luther that is, i will have my galbladder out! yippie. saw the surgeon today he was ok i guess. no firecracker but as long as he knows what he is doing that is all that matters i guess.

well take care everyone..... hugs yally

Joan M
Veteran Member


Date Joined Jan 2006
Total Posts : 1973
   Posted 11/28/2007 4:32 PM (GMT -7)   
Hi...Bear I have post shingles pain, the patch is hard to put on but it is recommended for post-shingles here.

Diabetic nuerology and fibromyalgia and shingles pain here get this Lyrica pill. It is a new fie-sor (don't know how to spell it) Pharmacetical product (they are based in New York City, I think).

Do you have pins and needles like pain and searing pain sometimes? Do you have stabbing pains? Lyrica is good for that. The patch I am taking is to be put right on the area where the pain is. There are many different ones but I am taking the Lidocain derma patch.

If you have Parkinson's Disease, you might need help putting it on. Thank goodness I finally got it as Lyrica was making me drowsy and more dumb that usual. My short term memory was VERY SHORT.

peace on...gang...thanks for caring about me. eyes :-)

The Bear
Regular Member


Date Joined Mar 2007
Total Posts : 364
   Posted 11/28/2007 4:36 PM (GMT -7)   
Yally - thank you as ever. You are ever in my thoughts.
Mama - as long as the weight is not a heath issue do not worry and enjoy the run up to xmas - if he loves you he won't care!!!!
Boo - email on its way nuff said!!
mom24 - likewise, hang on in there kiddo.
ducky - I'm counting the days with you.
Joan - tis one is for you ; not much comfort I know but it is a love song and I can only summise the shingle is that on the beach.

Shingle Song


You can see in the last light that's graced as dawn
that there's nothing in my heart but pain
as I stand, facing sea, knowing that you're gone...
all the elements rage to explain
that I should really be on my way
but there is something
which ensures I must stay.

Beneath the roar of the seething surf,
beneath the caterwaul of scattered call wind
thoughts and gestures unspoken, unheard
and now the dance of rapture begins
as the waves rush along across the beach -
like you, like your love
forever out of reach.

Look at the sky, but it's empty now;
look at the sea, it holds nothing but despair.
I raise my eyes, but my head stays bowed...
I look to my side, but you're not there.
And I can't get you out of my mind,
no, no, no, no, I just can't get you from my mind.


Peter Hammill
1974

The bear

Raven67
Regular Member


Date Joined Sep 2007
Total Posts : 155
   Posted 11/28/2007 10:43 PM (GMT -7)   
Hi all,
Hope everyone had a wonderful Thanksgiving and now Christmas is just around the corner. Joan,
I was on Lyrica as well for diabetic neuropathy in my right foot, mainly the toe area. It worked for the pain but unfortunately gave me severe headaches. I guess it falls into the same family as neuroleptic or anti seizure medication and I can't take of these. I've also tried tegretol with the same side effects. I hope it works for you.
Has anyone had any trouble with arthritis in the heel area. I'ver has severe pain there for the last month and I'm not sure if it the RA or maybe a heel spur. I've tried cortisone injections and have 550.00 orthotics but neither seems to be helping. I'm feeling pretty down these days. I'm not seeing much improvement with the RA at all. My next appt isn't until Dec 27th but I'm not even sure what to expect next.
Enough rambling from me.
Take care all!
Raven
When you get to the end of your rope, tie a not and hang on!!!
 
Current Diagnosis-Rheumatoid Arthritis, Insulin Dependent Diabetes, Osteoarthritis right knee, Osteoporosis.
Current Meds-Methotrexate 15mg weekly, Hydroquinine 200 mg BID, Celebrex, Cesamet, Oxycontin 20 mg BID, Lorazepam 2 mg dly Actonel weekly, Insulin-Humalog 35 units TID and Lantus 40 units BID.


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 11/29/2007 4:52 PM (GMT -7)   
oh raven we cant have you feeling down! not allowed. you know with the inflammation it is common to have plantar faciaitis and i just butchered that spelling but idc! hahaha anyway for me i found streching the foot and pushing on the ball of my foot helped. and if it doesnt then may i suggest you propping yourself up with a good book and a box of cherry cordials, my favorite!

erin, i know your ok... spoke to your mom today so you must be having too much fun with, i mean AT joes talk to you soon.

boo, went to put your sil on our prayer list and we have another new one from Ok on it to! i thought what are the chances my little country hick church has 2 ok requests in one week!!!???? the other was for a 7 year old girl who i think was injured on a horse???? my memory is not good anyway just know prayers are being said and chants around the world.

well better go do something productive ...... or dig into my cherry cordials????? lata yally

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 11/29/2007 7:34 PM (GMT -7)   

Yummmm....can I join you Yalinda!? Shall I bring the 'grape juice'? tongue   I do like a good cordial...oh, of course you meant the chocoloate covered cherry cordials....so did I...yea...that's it.  . . . .

Boo, my thoughts and prayers with you always. Ducky, when do you hear about work? Joan, everyone I spoke to say shingles are the worst! I know my mother struggled with it for a long time. Hang in there! Bear, how is your hip doing? Did I read you haven't moved yet? something fell through? Erin, still no word on your court case?

Raven, I agree with Yalinda, do some deep stretches - I still push the deep calf stretch my podietrist showed me: lean against a counter or wall with one leg back a bit and the other bent forward. Get it to give you a deep stretch in that calf area. Not a cure-all necessarily, but it may help some of the pain. When I get really bad, I have to do it consistently throughout the day for a few days to start feeling some relief. I hope the stretching can help at least somewhat at a minimum....but heel pain is awful!!!!

If I missed anyone or askeda bout somethign that was answered - sorry! I miss you guys something awful!!!! sad   I did finally call PCP today to be seen about this 3 week cold, I think it's a sinus infection. I found out PCP is on leave of absence (she has bad RA and similiar health issues like myself) as she lost her house in the fires and I guess the stress of it all has caused her health to go downhill. I wish I could give her a call and offer some type of help. She is the reason I'm still alive from being so sick in 2003.....she insisted I get checked in to the hospital when they wanted to refuse me stating I only had the flu that was going around...

Take care. ****


 


Joan M
Veteran Member


Date Joined Jan 2006
Total Posts : 1973
   Posted 11/29/2007 7:35 PM (GMT -7)   
Thank you bear...that is so beautiful...I wrote a long and very personal poem called Shadows of the Heart after the death of my husband. I cried when I read it too. Believe it or not, people were trying to edit it and telling me some lines were excellent. Some it was verbose. Someone had the nerve to say that my reading was ruined by my crying a little. Grief just is like pain is. But grief is remembered and pain can drift away.

Had a terrible evening which capped a wierd day. Feel very put upon by people here sometimes but the beauty of upstate New York is amazing.

Spoke with my doctor regarding the patch and Lyrica and it all made sense. I will be taking it off for swimming and putting it back on later in the day. Don't know when I will swim again. Need to keep taking the patch straight for at least a week. Am doing very well with Mobic....so there is a lot of be grateful for.
 
Boo...sorry to hear about your trouble.  God Bless You and my prayers and heart go out to you.

Post Edited (Joan M) : 11/29/2007 7:34:34 PM (GMT-7)


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 11/30/2007 4:59 AM (GMT -7)   
ok i ate many cherry cordials last night and that is all i will say! teehee. camama i too would have liked to drank my cordials but i gve that up for mtx. oh well. lets just say i had one for myself and one for each of you here on hw! byes yally

yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 11/30/2007 6:06 AM (GMT -7)   
ok joan another shingle song......lol

shingles hurt ( sung to the tune of jingle bells)

shingles hurt
shingles hurt
shingles hurt all day
oh what a pain it is to have
shingles everyday, hey

shingles hurt
shingles hurt........

well you get it my ode to put a small smile on a bad pain. and i understnd your pain as i know how i wanted to scream wiht my frozen shoulder and i think that is the type of relentless pain you are feeling so i am sorry but i figure you need to get in the holiday spirit so lets make up a new tune just for you!
 
sing along everyone!

Post Edited (yalinda) : 11/30/2007 6:06:05 AM (GMT-7)


momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 11/30/2007 8:01 AM (GMT -7)   
Moanin everyone,

Boo...I'm so sorry sweetie to hear of your news, and I'm thinking of you and your family.

Yalinda, I also love the cordial cherries and can never eat just one! You made me smile with the though of drinking it instead but with the old MTX who can really do that! But I will admit that sometimes I still have a drink even with the MTX, but only one.

After finals are over, I may have TWO!!!!

I have a question for those of you who don't have a positive Rheumatoid factor? (Ladies) I recently started taking the Omega 3 fatty acids thinking it would help my hair and skin since I am taking the MTX and plaquenil and I just read up on it and it said if you have inflammation (joint) a deficiency in this nutrient can actually cause inflammation? When I went in for my last appointment I had to tell the doc that my 8 pills of MTX still wasn't quite doing the job...I'm wondering if maybe I am lacking some kind of nutrient or something? The Omega 3 is helping my hair but not with my joint pain though!! Maybe I'm just nuts! because I ran out of my plaquenil and I sure noticed THAT! Needless to say I was tired without it, after four days, my energy level was cut in half. Sorry to babble...At my last visit my doc said I should be at a point where I am on a maintenance schedule with my meds and I am just not there! When I went for my ocular migraines, I received topamax and it increased to a level where I no longer have the migranes so I understand what he is trying to say, but that is not happening with this "RA".

Has anyone shopped for Christmas yet? Yalinda's Shingle song should help us to get in the spirit! I love your humor by the way :)

Joan M
Veteran Member


Date Joined Jan 2006
Total Posts : 1973
   Posted 11/30/2007 8:03 PM (GMT -7)   
Yally, woman you are TOO MUCH. I love it. It is my song. Shingle Joan, Shingle Joan Shingle all the way oh what pain makes you insane by living every day.

I want peace too so very much. There is so much pain in the world. These young people fighting over in the Middle East. Well I lived though Vietnam but for me this is worse.

Today was awful. My cushion slipped in the car and I had to go to the side of the highway (put on emergency lights) and fix it. WHHHHHHHHHHHHHOOOOOOOOOOOO.

Thank you gang. I am not going out except to buy food and medicine for a while.

starrnr
Veteran Member


Date Joined Dec 2005
Total Posts : 1782
   Posted 11/30/2007 9:52 PM (GMT -7)   
Hi all...are you accepting new 'moaners?' tongue
Some days you're the bug, some days you're the windshield

RA, AS, intolerance/sensitivity to gluten, wheat and dairy.

Remicade every 6 weeks, Methotrexate weekly, Folic Acid daily


The Bear
Regular Member


Date Joined Mar 2007
Total Posts : 364
   Posted 11/30/2007 10:08 PM (GMT -7)   
hi starrnr -if they let me in they let ecverybody in!!! welcome
The Bear
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