still not diagnosed

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raggedroy
New Member


Date Joined Jun 2006
Total Posts : 6
   Posted Today 12:23 PM (GMT -7)   

Please read my previous post below from 5 or 6 months ago.

Since i posted below i have been to a rhumotologist and a specialist in chronic fatigue. Both have told my that im fine and basicly imagining it all.

At this time i have aches in my fingers, toes and knees. None of my joints ache when i use them and i have no stiffness in the mornings. I seem to ache when im not doing any thing and my joints pop alot. My knees have started aching more and im concerned this will progress into RA. Is this progression tipical of RA or does any one know what all this is about. My doctors seem uninterested and tell me i have axienty (no sh**).

 

 

 

Hi guys, I have been reading your posts for a few days now and wondering weather I have rheumatoid arthritis.

Here is my history.

A year ago I developed an unexplained irritable bowel problem, which totally knocked me for six, I was in pain totally worn-out and feeling very unwell. Thankfully over time those symptoms have mainly passed, but what I am left with is spells of feeling tired, headaches, eye ache and shaking. A few weeks ago I developed a sharp pain under my right big toe, which lasted a couple of weeks. Now Both my big toes ache in the joints, I seem to get aches through the centre of my foot. I have now started getting aches in my thumbs and little twinges in my fingers and hands. I’m bit of a worrier but I don’t think that I’m imagining these symptoms.

 

I’m a 33-year-old male and I am quite worried about this possibility. My grandmother suffered with rheumatoid arthritis so I have seen how it can affect people. I have an appointment to see my GP on Monday.

 

Any advice will be greatly appreciated.


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted Today 7:35 PM (GMT -7)   
Hey there raggedroy... I remember your posts from before.. have you tried seeking a 2nd opinion? Pain is not normal and I'm sure you're not imagining it... did they do any type of bloodwork on you? What about Fibro? Hang in there and let us know how you are doing
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs/Migraines/Hypertension
Current Meds -  Enbrel/Prilosec/Synthroid/Nitrofurantoin/Midrin/HYZAAR
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
 
 


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted Today 8:27 PM (GMT -7)   
i agree with ducky, pain should not be part of your day or just accepted. any ailment that interfers with our daily life should be addressed.

i hope you find someone to help with a diagnosis. many of us have been down the crazy road til we got a good doc to listen and search our symptoms ....

keep us posted.

raggedroy
New Member


Date Joined Jun 2006
Total Posts : 6
   Posted 12/8/2007 3:53 AM (GMT -7)   
I have had blood tests. I have tried every doctor in my practice.
Its like all the doctors are sticking together and none of them have their own mind. All they keep telling me is that my blood tests are fine.

I have developed a sharp pain in the back of my left knee when I bend it under tension but I have no limited movement. Im not sure if I damaged it rock climbing. I have had this pain for about a month. The doctors will not investigate this unless I develop more symptoms. I have tried to tell them that I have suffered with problems with that knee for years but they cant get it out of their heads that this could be unrelated to my other aches. I even got quite angry with them but that doesn’t do much good. Because I apparently suffer from anxiety.
I any have anxiety when Im talking to or about doctors.

Sorry to unload my frustrations here, as I know my problems are minor compared with others.
Thanks for listening

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 12/8/2007 1:38 PM (GMT -7)   
If you are just going to different doctors within the same complex, they are going to stick together in their diadnosis 'cause they work together and talk with one another.. You need to look outside that practice. Is there a Medical University near you? Bloodwork is not always a good way to diagnose someone either, all my bloodwork came up fine, yet I have PsA and Spondylitis... Have they done x-rays? MRI's? Anything else? you really need to go see a different doc outside that practice.. and have them do a complete work up of you.. Don't worry about unloading your frustrations here, that's what we're here for.. hang in there, we'll get you through this..
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs/Migraines/Hypertension
Current Meds -  Enbrel/Prilosec/Synthroid/Nitrofurantoin/Midrin/HYZAAR
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
 
 


melaniemac30
Regular Member


Date Joined Sep 2007
Total Posts : 23
   Posted 12/9/2007 1:34 PM (GMT -7)   
hi there,
so sorry to hear about your problems with the docs. I just ended my 5 year long struggle with them when i finally saw a good one and he figured out that i have ra, autoimmune thyroid disease and osteo arthritis in my spine. You would think that all these things would have been obvious or "easy' to diagnose but they weren't. So I guess what I'm saying is hang in there. Keep a log of your pain and what makes it better or worse.One other thing about drs, and i hope this comes out right. I know how aggervating they can be, especially when they don't take you seriously, but somehow you have to keep yourself in check. I was told numerous times that I was suffering from anxiety and depression because all my symptoms appeared after I had my children. Obviously! I'm depressed because I feel like s--- everyday and I have 2 babies who are depending on me, but they were implying that i was crazy. They were starting to make me crazy! It's almost like you have to 'play" them to get that notion out of the way. It IS vey frustrating.
My symptoms also started with irritable bowel problems. I was also thought to have chronic fatigue. I was just wondering if you get fevers often, or at least what feels like a fever (chills, aches) but no high temp? How do you feel fatigue and pain wise after you excert (sp) yourself. You mentioned that you rock climb.
This is a little longer than I intended but hang in there.
Lots of luck,
Melaniemac

ericsmom
Veteran Member


Date Joined Jan 2007
Total Posts : 1042
   Posted 12/9/2007 4:37 PM (GMT -7)   

At this time i have aches in my fingers, toes and knees. None of my joints ache when i use them and i have no stiffness in the mornings. I seem to ache when im not doing any thing and my joints pop alot. My knees have started aching more and im concerned this will progress into RA. Is this progression tipical of RA or does any one know what all this is about. My doctors seem uninterested and tell me i have axienty (no sh**).

 

 

 

Hi guys, I have been reading your posts for a few days now and wondering weather I have rheumatoid arthritis.

Here is my history.

A year ago I developed an unexplained irritable bowel problem, which totally knocked me for six, I was in pain totally worn-out and feeling very unwell. Thankfully over time those symptoms have mainly passed, but what I am left with is spells of feeling tired, headaches, eye ache and shaking. A few weeks ago I developed a sharp pain under my right big toe, which lasted a couple of weeks. Now Both my big toes ache in the joints, I seem to get aches through the centre of my foot. I have now started getting aches in my thumbs and little twinges in my fingers and hands. I’m bit of a worrier but I don’t think that I’m imagining these symptoms.

 

I’m a 33-year-old male and I am quite worried about this possibility. My grandmother suffered with rheumatoid arthritis so I have seen how it can affect people. I have an appointment to see my GP on Monday.

 

Any advice will be greatly appreciated.

Your post could have been written by my 30 yr old son Raggedroy, we thought he might have R/A like me, his mother.
Turns out, they tell us he has gout!!!  Do you know if you have been checked for  gout?...it is not an old man's disease like many people thinK
It is high uric acid level in the blood that cause the sever pain in your feet, ankles, knees, fingers..you get the idea
I hope this helps you....type in Gout and google it, you may see your symptoms there...and it is a form of arthritis, it just doesnt involve you immune system.
 
Hope this helps you
Diane
Fibromyagia, R/A, Diabetes, Atrial Fib, depression

Prednisone(not for much longer I hope), methotrexate, folic acid, metformin, diamicron, bisoprolol, plaquinal, fenofibrate, pantoloc, wellbutrin, propafenone, ibprofen, warfarin


What doesn't kill us, makes us stronger


leeloo67
Regular Member


Date Joined Aug 2006
Total Posts : 81
   Posted 12/16/2007 6:53 AM (GMT -7)   
Call a different doctor first thing tomorrow. If that doctor won't listen to your symptoms, then call another one.

I went through decades of doctors who were not willing to consider arthritis because of my age. When the pain finally got unbearable I visited four doctors in a six month period until I finally found one interested in helping me.
Arthritis (poss. RA) - Doc scripts: Enbrel, Methotrexate, Celebrex, Folic acid.  Self-scripts: Glucosamine, GNC Men's Sport multi-vitamin.


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 12/17/2007 6:02 PM (GMT -7)   
My blood work was completely normal for years. The last set was so abnormal it scared my doctor. Thankfully my doctor accepted the fact I was sick and started treatment before the blood work confirmed it.
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