ive never posted before but need to vent

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New Member

Date Joined Oct 2007
Total Posts : 5
   Posted 12/9/2007 9:12 PM (GMT -6)   
Hi all. I am on prednisone right now for arthritis. My face is breaking out really bad and ive already put on like 8 pounds in a month. This sux but i need the prednisone to control the pain. I want to wean down some but doc doesnt want me too quite yet. Also i now have a mustache. Totally sick. Im gonna end up a man ****. Anybody else in my boat? Any suggestions. Hope to hear back from anybody. Thanks,

Veteran Member

Date Joined May 2006
Total Posts : 1179
   Posted 12/10/2007 6:27 AM (GMT -6)   
hi and welcome suzan! sorry to hear all the side effects you are having from prednisone, but yep the miracle drug has its downfaults. i hate to tell you i gained almost 30 pounds when i was on it for over a year and off for a year now i have only lost maybe 15 of those pounds.
i know it is hard but your doctor is probably trying to get the inflammation undercontrol and then try some other medications? many of us on this thread have started on prednisone but now take other meds like methotrexate or bilogics like enbrel or humeria.
it is hard going thru physical changes but try to keep a check on your diet through your hunger bouts. i know easier said than done sometimes but try? as for the stash i too had a bit of one developing but leave it alone and it will go away after you are off, mine did. also do not just drop the prednisone without tlaking to your doc you must be weaned off this drug or you will have major sideffects that can be life threatning.
what type of arthrits do you have? when do you see your doc next?
look forward to more conversations yally

Regular Member

Date Joined Sep 2006
Total Posts : 100
   Posted 12/10/2007 6:50 PM (GMT -6)   
I've been on 15mg. (which is a small dose) and am dropping 1mg down a month at a time and I can really tell with more pain already and I have only cut it down by 1mg. Also am on Ultram for pain. I see more hair too. Gained weigh too.
A love or hate relationship with prednisone.

I have Polymyagia Rheumatica. So many arthritis illnesses.

Have a painfree day,

Veteran Member

Date Joined Mar 2005
Total Posts : 4305
   Posted 12/11/2007 10:23 PM (GMT -6)   
Welcome, I am so sorry that you are having to go through all of this and yes it does suck know when I was on prednisone I gained a little over a 100 pounds I have so fare lost 60 pounds of that and I did get some facial hair but it was not bad and when I finally got to wing off of prednisone it went away.I hope that you get to feeling better. Oh and one more thing try to drink as much water you can because that will help with the weight issues.

Veteran Member

Date Joined Dec 2007
Total Posts : 2113
   Posted 12/17/2007 7:43 PM (GMT -6)   
I love prednisone for very short term relief.  This time I had to stay on it longer 3 months so far as I wait for the plaquinel to kick in.  For me the plaquinel is an appitite suppresent and has reduced my sweet tooth so that has countered the tendeny to gain weight from the prednisone.  The facial hair I could do without.

Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 12/25/2007 6:03 AM (GMT -6)   
Hi and Welcome to Healing Well Suzan,
I do not let any of my doctor put me on prednisone, Because of the side effects that I had in the past.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007

New Member

Date Joined Dec 2007
Total Posts : 2
   Posted 12/26/2007 11:39 AM (GMT -6)   
I am sorry to say I can relate to you... I am only on 5mg due to hypertention problems, i know it has sent my Rosecea flaring up, I can use my Finecea for that. I had a heart stent placed in september and was dignosed with RA in November so exercise has been a problem. I just crave food.... Any kind... sweets.... you name it!! I had been working on getting the weight off before my heart problem and had lost 17 pounds... I have sence put that back on and am struggling not to gain even more!!! Because my RA numbers are so high my Rheumy doesn't want me to start to exercise until we can get the inflammation under control so I don't do any more joint damage.... grrrrr ......... what's a girl to do!! I am on MTX as well and will start Humira as soon as the insurance approves it. So I guess there is light at the end of the tunnel... I just maybe alittle wider when I see it!!!
Good luck and hang in there!

Veteran Member

Date Joined Apr 2006
Total Posts : 733
   Posted 12/26/2007 1:40 PM (GMT -6)   
I am sorry Susan.  I have taken Prednisone years ago and my doctor has tried to get me on it again but I refuse.  Sally Hansen makes a good cream facial hair remover.  Acne Free is good for acne, it is like Proactive on tv but cheaper and you can buy it at Walmart/Target/Walgreens.  I know how much the side effects Prednisone suck.  Just don't go off it on your own because it could be dangerous.  Hopefully you can start to taper off it soon.  Has your doctor talked to you about trying Humira or Remicade or something? 

Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcourt, Colazol, Proctocort, Anamantle, etc...
Diagnosed with Ulcerative Proctitis with rectal fistula in 2004, put on Remicade
2007:Increased Remicade dosage-660mg every 6 weeks,diagnosed with Psoriatic Arthritis & Fibromyalgia
Current meds: Remicade 660mgs every 6 wks ( had a reaction will start Humira in 6 weeks) Lomotil, Darvocet, Clorazepate

New Member

Date Joined Dec 2007
Total Posts : 3
   Posted 12/28/2007 6:44 PM (GMT -6)   
Are u going to a rheumy or a regular Dr. If you are going to a regular DR. get a rheumy and one that isn't old school. Drill the secretary and I mean drill her. See if they have an infusion center along with their regular practice. You will be more likely to get up to date treatment. I had to go through three of them before I found one that worked. My Dr. doesn't belive he is a god he consults other Dr. in his practice right in front of me. It is like having three or four rheumies for the price of one.

I will not use predisone. I watched what it did to my mom. She had RA. I have anklying spondylitis. My sister has MS. My mom started using it in her 40's. In her early 50's she had by pass sugery and the surgeon sd that her tissues were broken down and surgery was hard due to prednisone. By 62 she was dead that was three years ago. The prednisone had weakened her organs by continued use and destroyed her liver and the liver blew out her gi tract. She did not use nsaids or coxx2s. There was nothing they could do for her. We consulted her regular dr and he said that the prednisone killed her ( given by her rheumy)

My sister has to take a 5 day course of presnisone when she has an MS episode. There is nothing else to help her. Thank the lord they have been few and far between!

Tell your Dr. to get you off of it and get you off of it NOW! DON't DO IT BY YOURSELF!!! It is too dangerous. Your Dr is not in control of your disease you are. Don't let him or her think for one minute that they are. There are other alternatives to prednisone.

Sorry I feel really strongly about this. My disease is in the same class as RA and I am being treated without prednisone. Only a bad Dr. would keep you on that if only for RA if you didn't want it.

I guess I needed to vent too! lol!

Veteran Member

Date Joined Dec 2007
Total Posts : 2113
   Posted 1/1/2008 6:44 PM (GMT -6)   

I agree that only a bad doctor would keep you on it if you want off.  And only an uniformed doctor would use it instead of other treatments, but, I would not tolerate a doctor who would not let me take it short term when I am having a flare bad enough that I can't dress myself or work half a day. 

The side effects get worse the longer your on it and the higher the dose you take small doses for short periods of time may be okay for you but only you and your doctor can decide that.

Veteran Member

Date Joined Mar 2005
Total Posts : 3148
   Posted 1/2/2008 11:35 AM (GMT -6)   
hi there,
yikes, we all share the same sour feelings about the Pred!  unfortunately, nsaids & steroids are THE only meds besides dmards & TNF & Bcell meds that actually work on inflammation.
even narcotics do not hold any anti-inflammatory properties.
Prednisone is an issue that we have to accept & learn to cope with because somewhere along the line it's going to be a course of treatment every now & then and for some...it's a chronic use situation.
to make ya' feel somewhat better, (yeah right) prednisone does act as a disease modifying agent! by arresting the errosive inflammation process that can damage your joints.  so, it is a very good treatment in that aspect.
from personal experience, the ONLY trick i hold for the weight gain/water retention/edema...was following the MAKERS DIET. 
i followed it for quite a few months when i was on 40mg of pred trying to taper down from 120mg.  the edema i had in my legs & arms was tremendous.  i went from 95pounds to 118lbs in little than a month.  the swelling was so painful.
using the foods & fish oils & flax & "all good" nutrients truly helped "flush" away MOST of the water retention.
my skin/complexion responded really well too.
i'm at a point where i literally can not stand to be on steroids...the heart palpatations and insomnia are  just too much to deal with.
if i were you i would start to talk w/ your doc about alternatives to prednisone.
i wish you well...
Arthritis Forum Moderator & Co-Pilot
Active Severe Rheumatory Arthritis. AS. Crohns Disease. A.Chiari Malformation. MVP & Tricuspid Valve Prolapse. Kidney Stones (oh joy). 
Meds: Remicade 600mg Q3weeks; Intra-articular knee injections; 6MP; Mesalamine; Prednisone; Entocort; Meclizine; Azithromycin; Tigan; Reglan; LidoDerm; Diazepam; Diclofenac; Dilaudid; OxyContin. 

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