I was on Methotrexate for about 1 month and I actually felt sicker taking it, than without it.
I've had 3 shots of the Enbrel now and after the third shot, I don't feel too great, there has been practically no improvement. I felt a little better after the second shot, the pain in my arm and shoulder improved, yet for some reason, after the third shot, it seems like I'm back to square one.
Now, the doctor wants to put me on Sulfazine (spelling?) in place of the Methotrexate, along with the Enbrel.
Also, I'm losing a LOT of hair due to the Imuron that I've been taking.
Anyone else have hair loss on Imuron (or any other med)? And the bigger question, does it grow back???
Enbrel is a wonderful drug, but works for me only when combined with mtx. I started on enbrel, and didn't receive full benefits until about 5 months into it. I felt some effect earlier than that, but it took maybe 3-4 weeks to do so. It wasn't until I added mtx that I was getting the complete benefit from both drugs. Other people tell me that 2 weeks was long enough for them to feel enbrel's effects. I guess everyone's different--I'm just a slow responder.
Best of luck,
I had to stop the Enbrel (I was going to take my 5th shot) because I've developed some kind of infection on my leg. It started out as dry skin but now I have an open sore. So, I can't take the Enbrel now. Just what I need, something else to go wrong.
I understand Enbrel lowers your ability to fight infection, so that's why I had to stop it when I got this thing on my leg. Also, I need to get root canal because I have a tooth abscess. Again, this is another infection and another reason why I can't take the Enbrel right now.
After stopping the Enbrel, now I know what effect it had on me. It really reduced the pain I had in my shoulder/arm and knees. I hope I can go back on it once I get over the infections above.
I don't know what the infection is on my leg. I had very dry, red, itchy skin there beforehand, so I'm hoping that's all it is.
My rheumatologist, quite frankly, is not interested in anything other than the RA symptoms. I developed the sore on my leg after I saw him (my next appointment is not until mid Feb). But, when I saw him a few weeks ago, I showed him the redness, itchiness on my leg and he didn't know what it was and wasn't too helpful in offering any ideas. At this point, I don't know whether to see my family doctor or a dermatologist.
As far as the root canal, as soon as my dentist can fit me in, I'm getting it done.
The rash (which is now a sore) is actually on the front of my calf. The Enbrel shot is given to me in my upper arm. On my other calf, I have redness and itching, just the way the other leg was, before I got the sore on that one leg. I'm hoping all it is, is that my leg got too dry and itchy and formed a sore. I hope it's nothing else.
I looked at the other entries about many with RA, who have extremely dry and itchy skin and potential remedies. Once this sore heals, I will put something on it. I was putting lotion on both legs after I got out of the shower but of course, I'm not putting any lotion on the leg with the sore now. I put some Neosporin on the leg with the sore and I'm keeping it covered with gauze. I initially left it open but it started to ooze a little and therefore I don't want to keep it exposed now.
You might have MERSA. My husband had a sore like that on his calf and he couldn't get rid of it. He ended up going to a dermatoligist and that is what he had. I know that people with a slow immune system can be more prone to MERSA than others. It may have shown up after your injection since the Enbrel lowers your immune system more. Check with your med doc about that.
My Enbrel run has been good so far (since Novemberish of 2007). I've had to miss a few shots for mild respiratory infections, but nothing as bad as when I was on Prednisone for nine months and had to take myself off of it!
Now that I look at it I too have had a touch of dry skin, but nothing too irritating. The acne I've had for 23 years is completely gone, so that's cool. No injection site reactions either.
Roja, you going back on the Enbrel or no?
I start my Enbrel (fingers crossed) on Friday. I recieved all of my Enbrel a couple of weeks ago but because I had a sore throat/cold I could not start then. I'm not sure who said their prescription was delayed??? what company are you using? This is my first time using a mail order pharmacy and Curascript shipped the Enbrel within 2 days and I was shocked that it was here that fast and the same with Enbrel and their free month supply was also here within 2 days. The only problem is that I have two different types...I have the autoinjector and also regular shots..
Roja, I was going to ask you if you are on MTX? if so it seems to make us more suseptible to infections because I have been on it for awhile and since I started taking it, I have had an eye infection, tooth infection (my face swelled up) and a cold/virus that took two weeks to go away. It just seems when I get something it is magnified 10x what it would be otherwise.
For those on Enbrel AND Methotrexate...how do you stay healthy?? When I was on the phone with the nurse ordering my Enbrel, she told me to stay away from sick people and I would be fine????!!what???!!! I try to be careful but....I have kids and my immune system is puney already. Any advice?