Lynnwood, Co-Moderator: Lupus ForumSLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, ValtrexLinks: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions
No Sjogerns dx, but I definately have dizziness. I actually was trying to read back of previous posts about dizziness and syncope a minute ago. For the past few years, I feel like I have a bad sense of balance. Pretty much like you said. I dont usually notice it unless I am walking next to someone or a wall and nudge into them/it. I guess vertigo is a better word for it.
Today it kind of freaked me out. I was buying a new case for my phone and blacked out for half a sec and grabbed on to my bf, and almost passed out. Right after I was really dizzy, and hot, and everything looked kind of hazy. We had just gone out for lunch so I am not sure what caused it. I still feel kind of off. Not sure if it is related to the dizziness/vertigo or not. That was the first time that had happened and I definately experience what you are experiencing. Kind of coincidental you posted on that today! I was going to start a new post about it but saw yours.
Another interesing thing is that my mom and a couple of my aunts have had vertigo a couple times. It must be hereditary. Anyhow, my mom had an older Irish nurse who told her to take a shot of whiskey whenever she gets it. It worked twice, and never again. Wierd huh? There are also postural techniques you can do to help aleviate some of the vertigo and drain the fluid out of your ear. Do a search for "postural vertigo treatments" I think that may bring some exercises up. I hope that helps!
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
Clickable Links: Lupus Resources Lupous.Org Lupus Criteria (4 of 11) Lupus Chapter Locator
I'm just chiming in with occasional and short-lived dizziness/vertigo. Usually doesn't last more than a day or day and a half. It's happened for years and I've always chalked it up to sinus problems, (long before dealing with all the AI stuff)but I finally mentioned it to my PCP in March and he Rxd Meclazine in case it happens again. I have complained of ear pain - shooting nerve pain inside the ear as well as "cartilage tenderness" on the outside. These spells also last a day or two and subside. The doc looks in my ears and proclaims them to look fine. And I'm usually not having the problem when he is looking. The ear pain is relatively recent and seems to coincide with sore throat, tender neck nodes and some zingy nerve sensations in my face on that side, so it makes me think it is an element of flare - usually not feeling really great, with other symptoms around the same time. No more periods for me - so can't comment on the timing/hormones.
I picked up my refill for Plaquenil today though and noticed this time it had a yellow sticker that said this drug may cause dizziness - which it doesn't always - depends on who is filling the Rx, I guess. Anyway - don't know if this could be part of the equation or not for some. I think it's lupus/sjogrens' related myself.
Think I'll look up the exercises, though....
Hi everyone, I'm normally on the fibro forum.
This is interesting!!! I blame everything that happens to me on fibromyalgia but I get dizzy, lightheaded and nauseous a lot and my GP said it sounded like an inner ear thing but he didn't say it could be the Sjogren's. I never thought about it affecting my ears. I think it is time for the ENT doc.
Post Edited (Marlee2) : 6/19/2009 2:50:08 PM (GMT-6)